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Gepubliceerd in:

18-06-2019

Self-management and health related quality of life in persons with chronic obstructive pulmonary disease

Auteurs: Heidi B. Bringsvor, Eva Langeland, Bjørg Frøysland Oftedal, Knut Skaug, Jörg Assmus, Signe Berit Bentsen

Gepubliceerd in: Quality of Life Research | Uitgave 11/2019

Abstract

Purpose

Although it is well-known that persons with COPD experience lower health related quality of life (HRQoL), little is known about the importance of self-management related domains on HRQoL in persons with COPD. Therefore, the purpose of this study is to examine associations between self-management related domains and HRQoL, adjusting for sociodemographic and clinical characteristics, self-efficacy, and sense of coherence.

Methods

Cross-sectional data of 225 persons with COPD, recruited from a hospital register, were analyzed. Self-management related domains were measured using the Health education impact questionnaire (heiQ) and HRQoL was measured using the St. George’s Respiratory Questionnaire (SGRQ). Multiple linear regression analysis was used.

Results

The final models showed significant associations between the self-management domains constructive attitudes and approaches and emotional distress and HRQoL. Dyspnea, number of comorbidities, self-efficacy, and the various self-management related domains explained 51.3 to 55.1% of the variance in HRQoL.

Conclusions

The findings suggest that addressing self-management related domains, in addition to self-efficacy, dyspnea, and comorbidities, may be of importance for enhancement of HRQoL in persons with COPD.

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GOLD. (2018). Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease. Retrieved April 15, 2018, from, http://goldcopd.org/gold-reports/.

Giacomini, M., DeJean, D., Simeonov, D., & Smith, A. (2012). Experiences of living and dying with COPD: A systematic review and synthesis of the qualitative empirical literature. Ontario Health Technology Assessment Series, 12(13), 1–47.PubMedPubMedCentral

Fraser, D. D., Kee, C. C., & Minick, P. (2006). Living with chronic obstructive pulmonary disease: Insiders’ perspectives. Journal of Advanced Nursing, 55(5), 550–558. https://doi.org/10.1111/j.1365-2648.2006.03946.x.CrossRefPubMed

Larsen, F. B., Pedersen, M. H., Friis, K., Glümer, C., & Lasgaard, M. (2017). A Latent class analysis of multimorbidity and the relationship to socio-demographic factors and health-related quality of life. A national population-based study of 162,283 Danish adults. PLoS ONE. https://doi.org/10.1371/journal.pone.0169426.CrossRefPubMedPubMedCentral

Bentsen, S. B., Rokne, B., & Wahl, A. K. (2013). Comparison of health-related quality of life between patients with chronic obstructive pulmonary disease and the general population. Scandinavian Journal of Caring Science, 27(4), 905–912.

Antwi, S., Steck, S. E., & Heidari, K. (2013). Association between prevalence of chronic obstructive pulmonary disease and health-related quality of life, South Carolina, 2011. Preventing Chronic Disease, 10, E215. https://doi.org/10.5888/pcd10.130192.CrossRefPubMedPubMedCentral

Zwerink, M., Brusse-Keizer, M., van der Valk, P. D., Zielhuis, G. A., Monninkhof, E. M., van der Palen, J., et al. (2014). Self management for patients with chronic obstructive pulmonary disease. Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD002990.pub3.CrossRefPubMedPubMedCentral

Jolly, K., Majothi, S., Sitch, A. J., Heneghan, N. R., Riley, R. D., Moore, D. J., et al. (2016). Self-management of health care behaviors for COPD: A systematic review and meta-analysis. International Journal of Chronic Obstructive Pulmonary Disease, 11, 305–326.PubMedPubMedCentral

Curtis, J. R., Martin, D. P., & Martin, T. R. (1997). Patient-assessed health outcomes in chronic lung disease: What are they, how do they help us, and where do we go from here? American Journal of Respiratory and Critical Care Medicine, 156(4), 1032–1039.PubMed

10.

Curtis, J. R., Deyo, R. A., & Hudson, L. D. (1994). Pulmonary rehabilitation in chronic respiratory insufficiency. 7. Health-related quality of life among patients with chronic obstructive pulmonary disease. Thorax, 49(2), 162–170.PubMedPubMedCentral

11.

Barlow, J., Wright, C., Sheasby, J., Turner, A., & Hainsworth, J. (2002). Self-management approaches for people with chronic conditions: A review. Patient Education and Counseling, 48(2), 177–187.PubMed

12.

Osborne, R. H., Elsworth, G. R., & Whitfield, K. (2007). The Health Education Impact Questionnaire (heiQ): An outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions. Patient Education and Counseling, 66(2), 192–201. https://doi.org/10.1016/j.pec.2006.12.002.CrossRefPubMed

13.

Nolte, S., Elsworth, G. R., Sinclair, A. J., & Osborne, R. H. (2007). The extent and breadth of benefits from participating in chronic disease self-management courses: A national patient-reported outcomes survey. Patient Education and Counseling, 65(3), 351–360.PubMed

14.

Benzo, R. P., Abascal-Bolado, B., & Dulohery, M. M. (2015). Self-management and quality of life in chronic obstructive pulmonary disease (COPD): The mediating effects of positive affect. Patient Education and Counseling, 99, 617–623.PubMedPubMedCentral

15.

Cramm, J. M., & Nieboer, A. P. (2012). Self-management abilities, physical health and depressive symptoms among patients with cardiovascular diseases, chronic obstructive pulmonary disease, and diabetes. Patient Education and Counseling, 87(3), 411–415.PubMed

16.

Cramm, J., & Nieboer, A. (2013). The relationship between self-management abilities, quality of chronic care delivery, and wellbeing among patients with chronic obstructive pulmonary disease in the Netherlands. International Journal of Chronic Obstructive Pulmonary Disease, 5(8), 209–214.

17.

Morita, R., Arakida, M., Osborne, R. H., Nolte, S., Elsworth, G. R., & Mikami, H. (2013). Adaptation and validation of the Japanese version of the Health Education Impact Questionnaire (heiQ-J) for the evaluation of self-management education interventions. Japan Journal of Nursing Science, 10(2), 255–266.PubMed

18.

Jonkman, N. H., Schuurmans, M. J., Groenwold, R. H. H., Hoes, A. W., & Trappenburg, J. C. A. (2016). Identifying components of self-management interventions that improve health-related quality of life in chronically ill patients: Systematic review and meta-regression analysis. Patient Education and Counseling, 99(7), 1087–1098. https://doi.org/10.1016/j.pec.2016.01.022.CrossRefPubMed

19.

Lenferink, A., Brusse-Keizer, M., Valk, P. D., Frith, P. A., Zwerink, M., Monninkhof, E. M., et al. (2017). Self-management interventions including action plans for exacerbations versus usual care in patients with chronic obstructive pulmonary disease. Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD011682.pub2.CrossRefPubMedPubMedCentral

20.

de Silva, D. (2011). Evidence: Helping people help themselves. A review of the evidence considering whether it is worthwhile to support self-management. The Health Foundation. Retrieved July 01, 2018, from, https://www.health.org.uk/publication/evidence-helping-people-help-themselves.

21.

Lindström, B., & Eriksson, M. (2010). The hitchhiker’s guide to salutogenesis: salutogenic pathways to health promotion. Helsinki: Folkhälsan Research Centre.

22.

Bandura, A. (1997). Self-efficacy: The exercise of control. New York: Freeman.

23.

Braun-Lewensohn, O., Idan, O., Lindström, B., & Margalit, M. (2017). Salutogenesis: Sense of coherence in adolescence. In M. B. Mittelmark, S. Sagy, M. Eriksson, G. F. Bauer, J. M. Pelikan, B. Lindström, et al. (Eds.), The handbook of salutogenesis. New York: Springer International Pubishing. https://doi.org/10.1007/978-3-319-04600-6.CrossRef

24.

Huang, I. C., Lee, J. L., Ketheeswaran, P., Jones, C. M., Revicki, D. A., & Wu, A. W. (2017). Does personality affect health-related quality of life? A systematic review. PLoS ONE, 12(3), e0173806. https://doi.org/10.1371/journal.pone.0132670.CrossRefPubMedPubMedCentral

25.

Sarma, J., & Konwar, G. (2015). Impact of psychosocial factors on health-related quality of life in chronic obstructive pulmonary disease patients. Dysphrenia, 6(1), 20–27.

26.

Delgado, C. (2007). Sense of coherence, spirituality, stress and quality of life in chronic illness. Journal of Nursing Scholarship, 39(3), 229–234.PubMed

27.

Antonovsky, A. (1987). Unraveling the mystery of health: How people manage stress and stay well. San Francisco: Jossey-Bass.

28.

Keil, D. C., Vaske, I., Kenn, K., Rief, W., & Stenzel, N. M. (2016). With the strength to carry on. The role of sense of coherence and resilience for anxiety, depression and disability in chronic obstructive pulmonary disease. Chronic Respiratory Disease, 14(1), 11–21.PubMedPubMedCentral

29.

McCathie, H., Spence, S., & Tate, R. L. (2002). Adjustment to chronic obstructive pulmonary disease: The importance of psychological factors. European Respiratory Journal, 19(1), 47–53.PubMed

30.

Hesselink, A., Penninx, B., Schlösser, M., Wijnhoven, H., Van Der Windt, D., Kriegsman, D., et al. (2004). The role of coping resources and coping style in quality of life of patients with asthma or COPD. Quality of Life Research, 13(2), 509–518.PubMed

31.

Popa-Velea, O., & Purcarea, V. (2014). Psychological factors mediating health-related quality of life in COPD. Journal of Medicine and Life, 7(1), 100–103.PubMedPubMedCentral

32.

Tsiligianni, I., Kocks, J., Tzanakis, N., Siafakas, N., & van der Molen, T. (2011). Factors that influence disease-specific quality of life or health status in patients with COPD: A systematic review and meta-analysis of Pearson correlations. Primary Care Respiratory Journal, 20(3), 257–268.PubMed

33.

Kwon, H.-Y., & Kim, E. (2016). Factors contributing to quality of life in COPD patients in South Korea. International Journal of Chronic Obstructive Pulmonary Disease, 11, 103–109.PubMedPubMedCentral

34.

Mewes, R., Rief, W., Kenn, K., Ried, J., & Stenzel, N. (2016). Psychological predictors for health-related quality of life and disability in persons with chronic obstructive pulmonary disease (COPD). Psychology and Health, 31(4), 470–486.PubMed

35.

Miravitlles, M., Naberan, K., Cantoni, J., & Azpeitia, A. (2011). Socioeconomic status and health-related quality of life of patients with chronic obstructive pulmonary disease. Respiration, 82(5), 402–408.PubMed

36.

Jones, P., Brusselle, G., Dal Negro, R., Ferrer, M., Kardos, P., Levy, M., et al. (2011). Health-related quality of life in patients by COPD severity within primary care in Europe. Respiratory Medicine, 105(1), 57–66.PubMed

37.

Xiang, Y.-T., Wong, T.-S., Tsoh, J., Ungvari, G. S., Correll, C. U., Sareen, J., et al. (2015). Quality of life in older patients with chronic obstructive pulmonary disease (COPD) in Hong Kong: A case-control study. Perspectives In Psychiatric Care, 51(2), 121–127. https://doi.org/10.1111/ppc.12073.CrossRefPubMed

38.

Balcells, E., Gea, J., Ferrer, J., Serra, I., Orozco-Levi, M., de Batlle, J., et al. (2010). Factors affecting the relationship between psychological status and quality of life in COPD patients. Health and Quality of Life Outcomes. https://doi.org/10.1186/1477-7525-8-108.CrossRefPubMedPubMedCentral

39.

Gruenberger, J.-B., Vietri, J., Keininger, D. L., & Mahler, D. A. (2017). Greater dyspnea is associated with lower health-related quality of life among European patients with COPD. International Journal of Chronic Obstructive Pulmonary Disease, 12, 937–944.PubMedPubMedCentral

40.

Ekici, A., Bulcun, E., Karakoc, T., Senturk, E., & Ekici, M. (2015). Factors associated with quality of life in subjects with stable COPD. Respiratory Care, 60(11), 1585–1591.PubMed

41.

The Norwegian Directorate of Health. (2014). ICD-10. Den internasjonale statistiske klassifikasjonen av sykdommer og beslektede helseproblemer. 10. Revisjon. [ICD-10. International Statistical Classification of Diseases and Related Health Problems]. Retrieved March 05, 2014, from, http://finnkode.kith.no/#|icd10|ICD10SysDel|2615761|flow.

42.

GOLD (Global Initiative for Chronic Obstructive Lung Disease). (2014). Global Strategy for the Diagnosis, Management and Prevention of COPD. Retrieved April 15, 2018, from, https://www.researchgate.net/file.PostFileLoader.html?id=564f02006225ff87418b459e&assetKey=AS%3A297825037504518%401448018431272.

43.

Miller, M. R., Hankinson, J., Brusasco, V., Burgos, F., Casaburi, R., Coates, A., et al. (2005). Standardisation of spirometry. European Respiratory Journal, 26(2), 319–338.PubMed

44.

GOLD (Global Institute for Chronic Obstructive Lung Disease). (2010). GOLD Spirometry Guide. Retrieved April 27, 2016, from, http://goldcopd.org/gold-spirometry-guide/.

45.

Johannessen, A., Lehmann, S., Omenaas, E. R., Eide, G. E., Bakke, P. S., & Gulsvik, A. (2006). Post-bronchodilator spirometry reference values in adults and implications for disease management. American Journal of Respiratory and Critical Care Medicine, 173(12), 1316–1325.PubMed

46.

Fletcher, C. (1960). Standardised questionnaire on respiratory symptoms: A statement prepared and approved by the MRC Committee on the aetiology of chronic bronchitis (MRC breathlessness score). British Medical Journal, 2(2), 1665.

47.

Bestall, J., Paul, E., Garrod, R., Garnham, R., Jones, P., & Wedzicha, J. (1999). Usefulness of the Medical Research Council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax, 54(7), 581–586.PubMedPubMedCentral

48.

Stenton, C. (2008). The MRC breathlessness scale. Occupational Medicine, 58(3), 226–227.PubMed

49.

Mahler, D., & Wells, C. (1988). Evaluation of clinical methods for rating dyspnea. Chest, 93, 580–586.PubMed

50.

The Norwegian Directorate of Health. (2012). Kols. Nasjonal faglig retningslinje og veileder for forebygging, diagnostisering og oppfølging. [COPD. National guideline for prevention, diagnosis and follow-up]. Oslo: Helsedirektoratet.

51.

Langeland, E., Wahl, A. K., Kristoffersen, K., Nortvedt, M. W., & Hanestad, B. R. (2007). Sense of coherence predicts cange in life satisfaction among home-living residents in the community with mental health problems: A 1 year follow up study. Quality of Life Research, 16, 939–946.PubMed

52.

Drageset, J., Nygaard, H. A., Eide, G. E., Bondevik, M., Nortvedt, M. W., & Natvig, G. K. (2008). Sense of coherence as a resource in relation to health-related quality of life among mentally intact nursing home residents—a questionnaire study. Health and Quality of Life Outcomes. https://doi.org/10.1186/1477-7525-6-85.CrossRefPubMedPubMedCentral

53.

Eriksson, M., & Lindström, B. (2005). Validity of Antonovsky’s sense of coherence scale: A systematic review. Journal of Epidemiology and Community Health, 59(6), 460–466.PubMedPubMedCentral

54.

Pallant, J. F., & Lae, L. (2002). Sense of coherence, well-being, coping and personality factors: Further evaluation of the sense of coherence scale. Personality and Individual Differences, 33(1), 39–48. https://doi.org/10.1016/S0191-8869(01)00134-9.CrossRef

55.

Schnyder, U., Büchi, S., Sensky, T., & Klaghofer, R. (2000). Antonovsky’s sense of coherence: Trait or state? Psychotherapy and Psychosomatics, 69(6), 296–302.PubMed

56.

Feldt, T., Lintula, H., Suominen, S., Koskenvuo, M., Vahtera, J., & Kivimäki, M. (2007). Structural validity and temporal stability of the 13-items sense of coherence scale: Prospective evidence from the population-based HeSSup study. Quality of Life Research, 16, 483–493.PubMed

57.

Antonovsky, A. (1993). The structure and properties of the sense of coherence scale. Social Science and Medicine, 36(6), 725–733.PubMed

58.

Eide, M. C. (1991). Livsorientering, livsstil og helsevaner: en spørreskjema-undersøkelse av niendeklasse-elever. [in Norwegian] Bergen: Universitetet i Bergen.

59.

Lundman, B., Forsberg, K. A., Jonsén, E., Gustafson, Y., Olofsson, K., Strandberg, G., et al. (2010). Sense of coherence (SOC) related to health and mortality among the very old: The Umeå 85 + study. Archives of Gerontology and Geriatrics, 51(3), 329–332.PubMed

60.

Schwarzer, R., & Jerusalem, M. (1995). Generalized self-efficacy scale. In J. Weinman, S. Wright, & M. Johnston (Eds.), Measures in health psychology: A user’s portfolio. Causal and control beliefs (pp. 35–37). Windsor: NFER-NELSON.

61.

Schwarzer, R. General Self-efficacy scale (GSE). Retrieved March 20, 2017, from, http://userpage.fu-berlin.de/~health/selfscal.htm.

62.

Schwarzer, R. (2014). Everything you want to know about the General Self-Efficacy Scale but were afraid to ask. Retrieved March 20, 2017, from, http://userpage.fu-berlin.de/~health/faq_gse.pdf.

63.

Scholz, U., Doña, B. G., Sud, S., & Schwarzer, R. (2002). Is general self-efficacy a universal construct? Psychometric findings from 25 countries. European Journal of Psychological Assessment, 18(3), 242–251. https://doi.org/10.1027//1015-5759.18.3.242.CrossRef

64.

Leganger, A., Kraft, P., & Røysamb, E. (2000). Perceived self-efficacy in health behaviour research: conceptualisation, measurement and correlates. Psychology and Health, 15(1), 51–69.

65.

Andenæs, R., Bentsen, S. B., Hvinden, K., Fagermoen, M. S., & Lerdal, A. (2014). The relationships of self-efficacy, physical activity, and paid work to health-related quality of life among patients with chronic obstructive pulmonary disease (COPD). Journal of Multidisciplinary Healthcare, 7, 239–247. https://doi.org/10.2147/JMDH.S62476.CrossRefPubMedPubMedCentral

66.

Bonsaksen, T., Lerdal, A., & Fagermoen, M. S. (2012). Factors associated with self-efficacy in persons with chronic illness. Scandinavian Journal of Psychology, 53(4), 333–339.PubMed

67.

Wahl, A. K., Osborne, R. H., Langeland, E., Wentzel-Larsen, T., Mengshoel, A. M., Ribu, L., et al. (2016). Making robust decisions about the impact of health education programs: Psychometric evaluation of the Health Education Impact Questionnaire (heiQ) in diverse patient groups in Norway. Patient Education and Counseling, 99(10), 1733–1738.PubMed

68.

Schuler, M., Musekamp, G., Bengel, J., Schwarze, M., Spanier, K., Gutenbrunner, C., et al. (2014). Measurement of stable changes of self-management skills after rehabilitation: a latent state–trait analysis of the Health Education Impact Questionnaire (heiQ™). Quality of Life Research, 23(9), 2531–2543.PubMed

69.

Bélanger, A., Hudon, C., Fortin, M., Amirall, J., Bouhali, T., & Chouinard, M.-C. (2015). Validation of a French-language version of the health education impact Questionnaire (heiQ) among chronic disease patients seen in primary care: A cross-sectional study. Health and Quality of Life Outcomes, 13(1), 1–9. https://doi.org/10.1186/s12955-015-0254-0.CrossRef

70.

Ammerlaan, J. W., van Os-Medendorp, H., Sont, J. K., Elsworth, G. R., & Osborne, R. H. (2017). Validation of the dutch version of the health education impact questionnaire (HEIQ) and comparison of the Dutch translation with the English, German and French HEIQ. Health and Quality of Life Outcomes, 15(1), 28. https://doi.org/10.1186/s12955-017-0601-4.CrossRefPubMedPubMedCentral

71.

Nolte, S. (2008). Approaches to the measurement of outcomes of chronic disease self-management interventions using a self-report inventory. (Doctoral thesis). Australia: RMIT University. Retrieved July 20, 2018, from, https://www.researchgate.net/publication/266455034_Approaches_to_the_measurement_of_outcomes_of_chronic_disease_self-management_interventions_using_a_self-report_inventory.

72.

Schuler, M., Musekamp, G., Faller, H., Ehlebracht-König, I., Gutenbrunner, C., Kirchhof, R., et al. (2013). Assessment of proximal outcomes of self-management programs: Translation and psychometric evaluation of a German version of the Health Education Impact Questionnaire (heiQ™). Quality of Life Research, 22(6), 1391–1403.PubMed

73.

Maunsell, E., Lauzier, S., Brunet, J., Pelletier, S., Osborne, R. H., & Campbell, H. S. (2014). Health-related empowerment in cancer: Validity of scales from the Health Education Impact Questionnaire. Cancer, 120(20), 3228–3236.PubMed

74.

Elsworth, G. R., Nolte, S., & Osborne, R. H. (2015). Factor structure and measurement invariance of the Health Education Impact Questionnaire: Does the subjectivity of the response perspective threaten the contextual validity of inferences? SAGE Open Medicine. https://doi.org/10.1177/2050312115585041.CrossRefPubMedPubMedCentral

75.

Nolte, S., Elsworth, G. R., & Osborne, R. H. (2013). Absence of social desirability bias in the evaluation of chronic disease self-management interventions. Health and Quality of Life Outcomes, 11(1), 114. https://doi.org/10.1186/1477-7525-11-114.CrossRefPubMedPubMedCentral

76.

Schuler, M., Musekamp, G., Bengel, J., Nolte, S., Osborne, R. H., & Faller, H. (2014). Measurement invariance across chronic conditions: A systematic review and an empirical investigation of the Health Education Impact Questionnaire (heiQ™). Health and Quality of Life Outcomes, 12(1), 56. https://doi.org/10.1186/1477-7525-12-56.CrossRefPubMedPubMedCentral

77.

Jones, P. W., Quirk, F., & Baveystock, C. (1991). The St George’s respiratory questionnaire. Respiratory Medicine, 85, 25–31.PubMed

78.

Jones, P. (2009). St George’s Resoiratory Questionnaire Manual, version 2.3. Retrieved March 20, 2017, from, http://www.healthstatus.sgul.ac.uk/SGRQ_download/SGRQ%20Manual%20June%202009.pdf.

79.

Paap, M. C., Brouwer, D., Glas, C. A., Monninkhof, E. M., Forstreuter, B., Pieterse, M. E., et al. (2015). The St George’s respiratory questionnaire revisited: a psychometric evaluation. Quality of Life Research, 24(1), 67–79.PubMed

80.

Bentsen, S. B., Henriksen, A. H., Wentzel-Larsen, T., Hanestad, B., & Wahl, A. (2008). What determines subjective health status in patients with chronic obstructive pulmonary disease: Importance of symptoms in subjective health status of COPD patients. Health and Quality of Life Outcomes, 6, 115. https://doi.org/10.1186/1477-7525-6-115.CrossRefPubMedPubMedCentral

81.

Bentsen, S. B., Rokne, B., Wentzel-Larsen, T., Henriksen, A. H., & Wahl, A. K. (2010). The Norwegian version of the chronic obstructive pulmonary disease self-efficacy scale (CSES): A validation and reliability study. Scandinavian Journal of Caring Sciences, 24(3), 600–609.PubMed

82.

Andenæs, R., Kalfoss, M. H., & Wahl, A. (2004). Psychological distress and quality of life in hospitalized patients with chronic obstructive pulmonary disease. Journal of Advanced Nursing, 46(5), 523–530.PubMed

83.

Johannes, T. (2015). Drawing And Analyzing Causal DAGs with DAGitty. Retrieved March 20, 2017, from http://www.dagitty.net/manual-2.x.pdf.

84.

Howard, J. S., Mattacola, C. G., Howell, D. M., & Lattermann, C. (2011). Response shift theory: An application for health-related quality of life in rehabilitation research and practice. Journal of Allied Health, 40(1), 31–38.PubMed

85.

Allison, P. J., Locker, D., & Feine, J. S. (1997). Quality of life: A dynamic construct. Social Science and Medicine, 45(2), 221–230.PubMed

86.

Sprangers, M. A., & Schwartz, C. E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Social Science and Medicine, 48(11), 1507–1515.PubMed

87.

van Oostrom, S. H., Smit, H. A., Wendel-Vos, G. W., Visser, M., Verschuren, W. M., & Picavet, H. S. J. (2012). Adopting an active lifestyle during adulthood and health-related quality of life: The Doetinchem Cohort Study. American Journal of Public Health, 102(11), e62–e68.PubMedPubMedCentral

88.

Esteban, C., Quintana, J. M., Aburto, M., Moraza, J., Egurrola, M., Pérez-Izquierdo, J., et al. (2010). Impact of changes in physical activity on health-related quality of life among patients with COPD. The European Respiratory Journal, 36(2), 292–300. https://doi.org/10.1183/09031936.00021409.CrossRefPubMed

89.

Barton, C., Effing, T. W., & Cafarella, P. (2015). Social support and social networks in COPD: A scoping review. COPD: Journal of Chronic Obstructive Pulmonary Disease, 12(6), 690–702.PubMed

90.

Weldam, S. W., Lammers, J.-W. J., Heijmans, M. J., & Schuurmans, M. J. (2014). Perceived quality of life in chronic obstructive pulmonary disease patients: A cross-sectional study in primary care on the role of illness perceptions. BMC Family Practice, 15(1), 140.PubMedPubMedCentral

91.

Scharloo, M., Kaptein, A. A., Schlösser, M., Pouwels, H., Bel, E. H., Rabe, K. F., et al. (2007). Illness perceptions and quality of life in patients with chronic obstructive pulmonary disease. Journal of Asthma, 44(7), 575–581.

92.

Burgel, P.-R., Escamilla, R., Perez, T., Carré, P., Caillaud, D., Chanez, P., et al. (2013). Impact of comorbidities on COPD-specific health-related quality of life. Respiratory Medicine, 107(2), 233–241. https://doi.org/10.1016/j.rmed.2012.10.002.CrossRefPubMed

93.

Troosters, T., van der Molen, T., Polkey, M., Rabinovich, R. A., Vogiatzis, I., Weisman, I., et al. (2013). Improving physical activity in COPD: Towards a new paradigm. Respiratory Research, 14(1), 115. https://doi.org/10.1186/1465-9921-14-115.CrossRefPubMedPubMedCentral

94.

Corhay, J.-L., Dang, D. N., Van Cauwenberge, H., & Louis, R. (2014). Pulmonary rehabilitation and COPD: Providing patients a good environment for optimizing therapy. International Journal of Chronic Obstructive Pulmonary Disease, 9, 27–39. https://doi.org/10.2147/COPD.S52012.CrossRefPubMed

95.

Kohler, C. L., Fish, L., & Greene, P. G. (2002). The relationship of perceived self-efficacy to quality of life in chronic obstructive pulmonary disease. Health Psychology, 21(6), 610.PubMed

96.

Bentsen, S. B., Wentzel-Larsen, T., Henriksen, A. H., Rokne, B., & Wahl, A. K. (2010). Self-efficacy as a predictor of improvement in health status and overall quality of life in pulmonary rehabilitation—an exploratory study. Patient Education and Counseling, 81(1), 5–13.PubMed

97.

Musekamp, G., Bengel, J., Schuler, M., & Faller, H. (2016). Improved self-management skills predict improvements in quality of life and depression in patients with chronic disorders. Patient Education and Counseling, 99(8), 1355–1361.PubMed

98.

Musekamp, G., Schuler, M., Seekatz, B., Bengel, J., Faller, H., & Meng, K. (2017). Does improvement in self-management skills predict improvement in quality of life and depressive symptoms? A prospective study in patients with heart failure up to one year after self-management education. BMC Cardiovascular Disorders, 17, 51. https://doi.org/10.1186/s12872-017-0486-5.CrossRefPubMedPubMedCentral

99.

Huber, M. B., Wacker, M. E., Vogelmeier, C. F., & Leidl, R. (2015). Comorbid influences on generic health-related quality of life in COPD: A systematic review. PLoS ONE, 10(7), e0132670. https://doi.org/10.1371/journal.pone.0132670.CrossRefPubMedPubMedCentral

100.

Baltzan, M. A., Scott, A. S., Wolkove, N., Bailes, S., Bernard, S., Bourbeau, J., et al. (2011). Fatigue in COPD: Prevalence and effect on outcomes in pulmonary rehabilitation. Chronic Respiratory Disease, 8(2), 119–128.PubMed

101.

van Isselt, E. F. V. D., Groenewegen-Sipkema, K. H., Spruit-van Eijk, M., Chavannes, N. H., de Waal, M. W., Janssen, D. J., et al. (2014). Pain in patients with COPD: A systematic review and meta-analysis. British Medical Journal Open, 4(9), e005898. https://doi.org/10.1136/bmjopen-2014-005898.CrossRef

102.

Scharf, S. M., Maimon, N., Simon-Tuval, T., Bernhard-Scharf, B. J., Reuveni, H., & Tarasiuk, A. (2010). Sleep quality predicts quality of life in chronic obstructive pulmonary disease. International Journal of Chronic Obstructive Pulmonary Disease, 6, 1–12. https://doi.org/10.2147/COPD.S15666.CrossRefPubMedPubMedCentral

103.

Voll-Aanerud, M., Eagan, T. M., Plana, E., Omenaas, E. R., Bakke, P. S., Svanes, C., et al. (2010). Respiratory symptoms in adults are related to impaired quality of life, regardless of asthma and COPD: Results from the European community respiratory health survey. Health and Quality of Life Outcomes, 8(1), 107. https://doi.org/10.1186/1477-7525-8-107.CrossRefPubMedPubMedCentral

104.

Katsura, H., Yamada, K., Wakabayashi, R., & Kida, K. (2005). The impact of dyspnoea and leg fatigue during exercise on health-related quality of life in patients with COPD. Respirology, 10(4), 485–490.PubMed

105.

Altman, D. G. (1991). Practical statistics for medical research. London: Chapman and Hall.

106.

Polit, D. F., & Beck, C. T. (2017). Nursing research: Generating and assessing evidence for nursing practice (10th ed.). Philadelphia: Wolters Kluwer.

Titel: Self-management and health related quality of life in persons with chronic obstructive pulmonary disease
Auteurs: Heidi B. Bringsvor
Eva Langeland
Bjørg Frøysland Oftedal
Knut Skaug
Jörg Assmus
Signe Berit Bentsen
Publicatiedatum: 18-06-2019
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 11/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-019-02231-8

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Self-management and health related quality of life in persons with chronic obstructive pulmonary disease

Abstract

Purpose

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Deel dit onderdeel of sectie (kopieer de link)

Abstract

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The importance of face-to-face contact and reciprocal relationships and their associations with depressive symptoms and life satisfaction

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