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This paper describes a large-scale administration of the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric items to evaluate measurement characteristics.
Each child completed one of seven test forms containing items from a pool of 293 PROMIS items and four legacy scales. PROMIS items covered six domains (physical function, emotional distress, social role relationship, fatigue, pain, and asthma).
From January 2007 to May 2008, 4,129 children aged 8–17 were enrolled. The sample was 51% female, 55% aged 8–12, 42% minority race and 17% were Hispanic ethnicity. Approximately, 35% of the children participating in the survey consulted a clinician for a chronic illness diagnosis or treatment within 6 months prior to study enrollment.
The final PROMIS pediatric item banks include physical function (n = 52 items), emotional distress (n = 35 items), social role relationships (n = 15 items), fatigue (n = 34 items), pain (n = 13 items), and asthma (n = 17 items). The initial calibration data were provided by a diverse set of children with varying health states (e.g., children with a variety of common chronic illnesses) and racial/ethnic backgrounds.
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Ader, D. N. (2007). Developing the Patient-Reported Outcomes Measurement Information System (PROMIS). Medical Care, 45(Suppl 1), S1–S2. CrossRef
Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) Study. Health and Quality of Life Outcomes, 7(3), 1–10.
Ravens-Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Duer, W., et al. (2005). KIDSCREEN-52 quality of life measure for children and adolescents. Expert Review of Pharmacoeconomics and Outcomes Research, 2005(5), 353–364.
European DISABKIDS Group. (2006). The DISABKIDS questionnaires: Quality of life questionnaires for children with chronic conditions. Berlin: Pabst Science Publishers.
www.pedsql.org. Accessed 10 June 2009.
kidscreen.diehauptstadt.de. Accessed 10 June 2009.
Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5, 43. CrossRefPubMed
- Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey
Debra E. Irwin
Brian D. Stucky
Esi Morgan DeWitt
Jin Shei Lai
James W. Varni
Darren A. DeWalt
- Springer Netherlands