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Journal of Autism and Developmental Disorders

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21-09-2016 | Original Paper

Respite Care, Stress, Uplifts, and Marital Quality in Parents of Children with Down Syndrome

Auteurs: Michelle Norton, Tina Taylor Dyches, James M. Harper, Susanne Olsen Roper, Paul Caldarella

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2016

Abstract

Parents of children with disabilities are at risk for high stress and low marital quality; therefore, this study surveyed couples (n = 112) of children with Down syndrome (n = 120), assessing whether respite hours, stress, and uplifts were related to marital quality. Structural equation modeling indicated that respite hours were negatively related to wife/husband stress, which was in turn negatively related to wife/husband marital quality. Also, wife uplifts were positively related to both wife and husband marital quality. Husband uplifts were positively related to husband marital quality. Therefore, it is important that respite care is provided and accessible to parents of children with Down syndrome.

vorige artikel Autonomic Arousal Response Habituation to Social Stimuli Among Children with Asd

volgende artikel The Latent Structure of Autistic Traits: A Taxometric, Latent Class and Latent Profile Analysis of the Adult Autism Spectrum Quotient

Bailey, D. B., Golden, R. N., Roberts, J., & Ford, A. (2007). Maternal depression and developmental disability: Research critique. Mental Retardation and Developmental Disabilities, 13, 321–329. doi:10.1002/mrdd.20172.CrossRef

Barron, S., McConkey, R., & Mulvany, F. (2006). Family carers of adult persons with intellectual disabilities on the island of Ireland. Journal of Policy and Practice in Intellectual Disability, 3, 87–94. 10.1111/j.1741-1130.2006.00059.x.CrossRef

Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50, 184–198. doi:10.1111/j.1365-2788.2005.00768.x.CrossRefPubMed

Bose, R. (1991). The effect of a family support model on maternal mental health of mothers caring for children with mental handicaps. Research Policy and Planning, 9, 2–8.

Busby, D. M., Clark, C., Crane, D. R., & Larson, J. H. (1995). A revision of the Dyadic Adjustment Scale for use with distressed and nondistressed couples: Construct hierarchy and multidimensional scales. Journal of Marital and Family Therapy, 21, 289–308.CrossRef

Centers for Disease Control and Prevention. (2012). Key findings: Updated national birth prevalence estimates for selected birth defects in the United States, 2004–2006. Atlanta: Centers for Disease Control and Prevention. Retrieved from http://www.cdc.gov/ncbddd/features/birthdefects-keyfindings.html.

Cook, W. L., & Kenny, D. A. (2005). The actor-partner interdependence model: A model of bidirectional effects in developmental studies. International Journal of Behavioral Development, 29, 101–109. doi:10.1080/01650250444000405.CrossRef

Cuskelly, M., & Gunn, P. (2006). Adjustment of children who have a sibling with Down syndrome: Perspectives of mothers, fathers and children. Journal of Intellectual Disability Research, 50, 917–925. doi:10.1111/j.1365-2788.2006.00922.x.CrossRefPubMed

DeLongis, A., Coyne, J. C., Dakof, G., Folkman, S., & Lazarus, R. S. (1982). The impact of daily hassles, uplifts and major life events to health status. Health Psychology, 1, 119–136.CrossRef

Esping-Andersen, G. (2007). Sociological explanations of changing income distributions. American Behavioral Scientist, 50, 639–658. doi:10.1177/0002764206295011.CrossRef

Fraley, R. C., Waller, N. G., & Brennan, K. A. (2000). An item response theory analysis of self-report measures of adult attachment. Journal of Personality and Social Psychology, 78, 350–365. doi:10.1037//10022-3514.78.2.350.CrossRefPubMed

Gallagher, S., & Whiteley, J. (2012). Social support is associated with blood pressure responses in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 33, 2099–2105. doi:10.1016/j.ridd.2012.06.007.CrossRefPubMed

Harper, A., Dyches, T. T., Harper, J., Roper, S. O., & South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(11), 2604–2616.

Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., Krauss, M. W., Sayer, A., Upshur, C. C., & Hodapp, R. M. (2001). Children with disabilities: A longitudinal study of child development and parent well being. Monographs of the Society to Research in Child Development, 66(3), 1–126.CrossRef

Hodapp, R. M., Ly, T. M., Fidler, D. J., & Ricci, L. A. (2001). Less stress, more rewarding: Parenting children with Down syndrome. Parenting, Science and Practice, 1, 317–337.CrossRef

Hodapp, R. M., & Urbano, R. C. (2007). Adult siblings of individuals with Down syndrome versus with autism: Findings from a large-scale US survey. Journal of Intellectual Disability Research, 51, 1018–1029. doi:10.1111/j.1365-2788.2007.00994.x.CrossRefPubMed

Holmbeck, G. N. (1997). Toward terminological, conceptual, and statistical clarity in the study of mediators and moderators: Examples from the child-clinical and pediatric psychology literatures. Journal of Consulting and Clinical Psychology, 65, 599–610.CrossRefPubMed

IBM Corp. (2012). IBM SPSS Statistics for Windows, Version 21.0. Armonk: IBM Corp.

Johnson, K. R., & Loscocco, K. (2015). Black marriage through the prism of gender, race, and class. Journal of Black Studies, 46, 142–171. doi:10.1177/0021934714562644.CrossRef

Keller, D., & Honig, A. S. (2004). Maternal and paternal stress in families with school-aged children with disabilities. American Journal of Orthopsychiatry, 74, 337–348. doi:10.1037/0002-9432.74.3.337.CrossRefPubMed

Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Dyadic data analysis. New York: Guilford.

Kersh, J., Hedvat, T. T., Hauser-Cram, P., & Warfield, M. E. (2006). The contribution of marital quality to the well being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50, 883–893.CrossRefPubMed

Kline, R. B. (2010). Principles and practice of structural equation modeling (3rd edn.). New York: Guilford.

Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.

Main, M., & Cassidy, J. (1988). Categories of response to reunion with the parent at age 6: Predictable from infant attachment classifications and stable over a 1-month period. Developmental Psychology, 24, 415–426. doi:10.1037/0012-1649.24.3.415.CrossRef

Mannan, H., O’Brien, P., McConkey, R., Finlay, F., Lawlor, A., & Harrington, G. (2011). Complexities in the provision of respite care to family carers of persons with intellectual disabilities. Disability, CBR and Inclusive Development, 22, 38–54. doi:10.5463/DCID.v22i2.22.CrossRef

Miller, R. B., Hollist, C. S., Olsen, J., & Law, D. (2013). Marital quality and health over 20 years: A growth curve analysis. Journal of Marriage and the Family, 75, 667–680. doi:10.1111/jomf.12025.CrossRef

Mullins, L. L., Aniol, K., Boyd, M. L., Page, M. C., & Chaney, J. M. (2002). The influence of respite care on psychological distress in parents of children with developmental disabilities: A longitudinal study. Children’s Services: Social Policy, Research, and Practice, 5, 123–138. doi:10.1207/S15326918CS0502_06.CrossRef

Norlin, D., & Broberg, M. (2013). Parents of children with and without intellectual disability: Couple relationship and individual well being. Journal of Intellectual Disability Research, 57, 552–566. doi:10.1111/j.1365-2788.2012.01564.x.CrossRefPubMed

Povee, K., Roberts, L., Bourke, J., & Leonard, H. (2012). Family functioning in families with a child with Down syndrome: A mixed methods approach. Journal of Intellectual Disability Research, 56, 961–973. doi:10.1111/j.1365-2788.2012.01561.x.CrossRefPubMed

Preacher, K. J., & Hayes, A. F. (2008). Asymptotic and resampling strategies for assessing and comparing indirect effects in multiple mediator models. Behavior Research Methods, 40, 879–891.CrossRefPubMed

Quittner, A. L., Glueckauf, R. L., & Jackson, D. N. (1990). Chronic parenting stress: Moderating versus mediating effects of social support. Journal of Personality and Social Psychology, 59, 1266–1278.CrossRefPubMed

Risdal, D., & Singer, G. H. S. (2004). Marital adjustment in parents of children with disabilities: A historical review and meta-analysis. Research and Practice for Persons with Severe Disabilities, 29, 95–103. doi:10.2511/rpsd.29.2.95.CrossRef

Robertson, J., Hatton, C., Wells, E., Collins, M., Langer, S., Welch, V., & Emerson, E. (2011). The impacts of short break provision on families with a disabled child: An international literature review. Health and Social Care in the Community, 19, 337–371. doi:10.1111/j.1365-2524.2010.00977.x.CrossRefPubMed

Samios, C., Pakenham, K. I., & Sofronoff, K. (2012). Sense making and benefit finding in couples who have a child with Asperger syndrome: An application of the actor-partner interdependence model. Autism: The International Journal of Research and Practice, 16, 275–292.CrossRef

Seltzer, M. M., Krauss, M. W., & Tsunematsu, N. (1993). Adults with Down syndrome and their aging mothers: Diagnostic group differences. American Journal on Mental Retardation, 97, 496–508.PubMed

Sherman, S. L., Allen, E. G., Bean, L. H., & Freeman, S. B. (2007). Epidemiology of Down syndrome. Mental Retardation and Developmental Disabilities Research Reviews, 13, 221–227. doi:10.1002/mrdd.20157.CrossRefPubMed

Stalker, K. (1988). Family-based respite care for children with severe learning difficulties: An evaluation of the Lothian scheme. Social Services Research, 1, 1–10.

Stalker, K., & Robinson, C. (1994). Parents’ views of different respite care services. Mental Handicap Research, 7, 97–117.CrossRef

Touliatos, J., Perlmutter, B. F., & Straus, M. A. (1990). Handbook of family measurement techniques. Thousand Oaks: Sage Publications.

Urbano, R. C., & Hodapp, R. M. (2007). Divorce in families of children with Down syndrome: A population-based study. American Journal on Mental Retardation, 112, 261–274.CrossRefPubMed

Titel: Respite Care, Stress, Uplifts, and Marital Quality in Parents of Children with Down Syndrome
Auteurs: Michelle Norton
Tina Taylor Dyches
James M. Harper
Susanne Olsen Roper
Paul Caldarella
Publicatiedatum: 21-09-2016
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 12/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-016-2902-6

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