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Gepubliceerd in: Journal of Autism and Developmental Disorders 11/2013

01-11-2013 | Original Paper

Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders

Auteurs: Amber Harper, Tina Taylor Dyches, James Harper, Susanne Olsen Roper, Mikle South

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2013

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Abstract

Parents of children with autism spectrum disorders (ASD) are at risk for having higher stress and lower marital quality than other parents. Survey data regarding respite care, marital quality, and daily hassles and uplifts were obtained from 101 mother-father dyads who were together raising at least one child with ASD (total # of children = 118). Number of hours of respite care was positively related to improved marital quality for both husbands and wives, such that a 1-h increase in weekly respite care was associated with a one-half standard deviation increase in marital quality. This relationship was significantly mediated by perceived daily stresses and uplifts in both husbands and wives. More respite care was associated with increased uplifts and reduced stress; increased uplifts were associated with improved marital quality; and more stress was associated with reduced marital quality. The number of children in the family was associated with greater stress, and reduced relational quality and daily uplifts. Results suggest policymakers and practitioners should develop supports for providing respite for families raising children with ASD.
Literatuur
go back to reference Baillargeon, R. H., Bernier, J., & Normand, C. L. (2011). The challenges faced by caregivers of children with impairments of psychological functions: A population-based cross-sectional study. Canadian Journal of Psychiatry, 56, 614–620. Baillargeon, R. H., Bernier, J., & Normand, C. L. (2011). The challenges faced by caregivers of children with impairments of psychological functions: A population-based cross-sectional study. Canadian Journal of Psychiatry, 56, 614–620.
go back to reference Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47, 551–561. doi:10.1037/a0021268.PubMedCrossRef Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47, 551–561. doi:10.​1037/​a0021268.PubMedCrossRef
go back to reference Benson, P., Karlof, K. L., & Siperstein, G. N. (2008). Maternal involvement in the education of young children with autism spectrum disorders. Autism: The International Journal of Research and Practice, 12, 47–63.CrossRef Benson, P., Karlof, K. L., & Siperstein, G. N. (2008). Maternal involvement in the education of young children with autism spectrum disorders. Autism: The International Journal of Research and Practice, 12, 47–63.CrossRef
go back to reference Bose, R. (1991). The effect of a family support model on maternal mental health of mothers caring for children with mental handicaps. Research Policy and Planning, 9, 2–8. Bose, R. (1991). The effect of a family support model on maternal mental health of mothers caring for children with mental handicaps. Research Policy and Planning, 9, 2–8.
go back to reference Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders: The couple’s relationship. Focus on Autism Other Developmental Disabilities, 24, 38–49. doi:10.1177/1088357608323699.CrossRef Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders: The couple’s relationship. Focus on Autism Other Developmental Disabilities, 24, 38–49. doi:10.​1177/​1088357608323699​.CrossRef
go back to reference Busby, D. M., Christensen, C., Crane, D. R., & Larson, J. H. (1995). A revision of the Dyadic Adjustment Scale for use with distressed and nondistressed couples: Construct hierarchy and multidimensional scales. Journal of Marital and Family Therapy, 21, 289–308. doi:10.1111/j.1752-0606.1995.tb00163.x.CrossRef Busby, D. M., Christensen, C., Crane, D. R., & Larson, J. H. (1995). A revision of the Dyadic Adjustment Scale for use with distressed and nondistressed couples: Construct hierarchy and multidimensional scales. Journal of Marital and Family Therapy, 21, 289–308. doi:10.​1111/​j.​1752-0606.​1995.​tb00163.​x.CrossRef
go back to reference Cowan, P. S., & Reed, D. A. (2002). Effects of respite care for children with developmental disabilities: Evaluation of an intervention for at risk families. Public Health Nursing, 19, 272–283.CrossRef Cowan, P. S., & Reed, D. A. (2002). Effects of respite care for children with developmental disabilities: Evaluation of an intervention for at risk families. Public Health Nursing, 19, 272–283.CrossRef
go back to reference Crowe, T. K., & Florez, S. I. (2006). Time use of mothers with school-age children: A continuing impact of a child’s disability. American Journal of Occupational Therapy, 60, 194–203.PubMedCrossRef Crowe, T. K., & Florez, S. I. (2006). Time use of mothers with school-age children: A continuing impact of a child’s disability. American Journal of Occupational Therapy, 60, 194–203.PubMedCrossRef
go back to reference Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291. doi:10.1007/s10803-007-0512-z.PubMedCrossRef Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291. doi:10.​1007/​s10803-007-0512-z.PubMedCrossRef
go back to reference Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13, 375–387. doi:10.1177/1362361309105658.PubMedCrossRef Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13, 375–387. doi:10.​1177/​1362361309105658​.PubMedCrossRef
go back to reference Freedman, B. H., Kalb, L. G., Zablotsky, B., & Stuart, E. A. (2012). Relationship status among parents of children with autism spectrum disorders: A population-based study. Journal of Autism and Developmental Disorders, 42, 539–548. doi:10.1007/s10803-011-1269-y.PubMedCrossRef Freedman, B. H., Kalb, L. G., Zablotsky, B., & Stuart, E. A. (2012). Relationship status among parents of children with autism spectrum disorders: A population-based study. Journal of Autism and Developmental Disorders, 42, 539–548. doi:10.​1007/​s10803-011-1269-y.PubMedCrossRef
go back to reference Gau, S. S., Chou, M., Chiang, H., Lee, J., Wong, C., Chou, W., et al. (2011). Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism Spectrum Disorders, 6, 263–270. doi:10.1016/j.rasd.2011.05.007.CrossRef Gau, S. S., Chou, M., Chiang, H., Lee, J., Wong, C., Chou, W., et al. (2011). Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism Spectrum Disorders, 6, 263–270. doi:10.​1016/​j.​rasd.​2011.​05.​007.CrossRef
go back to reference Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56, 631–642.PubMedCrossRef Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56, 631–642.PubMedCrossRef
go back to reference Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., et al. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24, 449–457. doi:10.1037/a0019847.PubMedCrossRef Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., et al. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24, 449–457. doi:10.​1037/​a0019847.PubMedCrossRef
go back to reference Hastings, R. P., Kovshoff, H., Ward, N. J., Espinosa, F. D., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644. doi:10.1007/s10803-005-0007-8.PubMedCrossRef Hastings, R. P., Kovshoff, H., Ward, N. J., Espinosa, F. D., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644. doi:10.​1007/​s10803-005-0007-8.PubMedCrossRef
go back to reference Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642. doi: 10.1007/s10803-012-1604-y. Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642. doi: 10.​1007/​s10803-012-1604-y.
go back to reference Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 9, 125–137. doi:10.1177/1362361305051403.CrossRef Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 9, 125–137. doi:10.​1177/​1362361305051403​.CrossRef
go back to reference Kazemi-Saleh, D., Pishgou, B., Farrokhi, F., Assari, S., Fotros, A., & Naseri, H. (2008). Gender impact on the correlation between sexuality and marital relation quality in patients with coronary artery disease. The Journal of Sexual Medicine, 5, 2100–2106.PubMedCrossRef Kazemi-Saleh, D., Pishgou, B., Farrokhi, F., Assari, S., Fotros, A., & Naseri, H. (2008). Gender impact on the correlation between sexuality and marital relation quality in patients with coronary artery disease. The Journal of Sexual Medicine, 5, 2100–2106.PubMedCrossRef
go back to reference Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Dyadic data analysis. New York, NY: Guilford. Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Dyadic data analysis. New York, NY: Guilford.
go back to reference Kline, R. B. (2011). Principles and practice of structural equation modeling (3rd ed.). NY: Guilford. Kline, R. B. (2011). Principles and practice of structural equation modeling (3rd ed.). NY: Guilford.
go back to reference Langer, S., Collins, M., Welch, V., Wells, E., Hatton, C., Robertson, J., & Emerson, E. (2010). A report on themes emerging from qualitative research into the impact of short break provision on families with disabled children. Lancaster, UK: Center for Disability Research, Lancaster University. Langer, S., Collins, M., Welch, V., Wells, E., Hatton, C., Robertson, J., & Emerson, E. (2010). A report on themes emerging from qualitative research into the impact of short break provision on families with disabled children. Lancaster, UK: Center for Disability Research, Lancaster University.
go back to reference Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York, NY: Springer. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York, NY: Springer.
go back to reference Lee, L. C., Harrington, R. B., Louie, B. B., & Newschaffer, C. J. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Development Disorders, 38, 1147–1160. doi:10.1007/s10803-007-0491-0.CrossRef Lee, L. C., Harrington, R. B., Louie, B. B., & Newschaffer, C. J. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Development Disorders, 38, 1147–1160. doi:10.​1007/​s10803-007-0491-0.CrossRef
go back to reference Lickenbrock, D. M., Ekas, N. V., & Whitman, T. L. (2011). Feeling good, feeling bad: Influences of maternal perceptions of the child and marital adjustment on well-being in mothers of children with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 41, 848–858. doi:10.1007/s10803-010-1105-9.PubMedCrossRef Lickenbrock, D. M., Ekas, N. V., & Whitman, T. L. (2011). Feeling good, feeling bad: Influences of maternal perceptions of the child and marital adjustment on well-being in mothers of children with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 41, 848–858. doi:10.​1007/​s10803-010-1105-9.PubMedCrossRef
go back to reference Liptak, G. S., Stuart, T., & Auinger, P. (2006). Health care utilization and expenditures for children with autism; Data from U.S. national samples. Journal of Autism and Developmental Disorders, 36, 871–879. doi:10.1007/s10803-006-0119-9.PubMedCrossRef Liptak, G. S., Stuart, T., & Auinger, P. (2006). Health care utilization and expenditures for children with autism; Data from U.S. national samples. Journal of Autism and Developmental Disorders, 36, 871–879. doi:10.​1007/​s10803-006-0119-9.PubMedCrossRef
go back to reference Main, M., & Cassidy, J. (1988). Categories of response to reunion with the parent at age 6: Predictable from infant attachment classifications and stable over a 1-month period. Developmental Psychology, 24, 415–426. doi:10.1037//0012-1649.24.3.415.CrossRef Main, M., & Cassidy, J. (1988). Categories of response to reunion with the parent at age 6: Predictable from infant attachment classifications and stable over a 1-month period. Developmental Psychology, 24, 415–426. doi:10.​1037/​/​0012-1649.​24.​3.​415.CrossRef
go back to reference Meadan, H., Halle, J. W., & Ebata, A. T. (2010). Families with children who have autism spectrum disorders: Stress and support. Exceptional Children, 77, 7–36. Meadan, H., Halle, J. W., & Ebata, A. T. (2010). Families with children who have autism spectrum disorders: Stress and support. Exceptional Children, 77, 7–36.
go back to reference Murphy, C. M., & Verden, C. E. (2012). Supporting families of individuals with autism spectrum disorders: Developing a university-based respite care program. Journal of Positive Behavior Interventions, 15, 16–25. doi:10.1177/1098300712436845. Murphy, C. M., & Verden, C. E. (2012). Supporting families of individuals with autism spectrum disorders: Developing a university-based respite care program. Journal of Positive Behavior Interventions, 15, 16–25. doi:10.​1177/​1098300712436845​.
go back to reference Myers, B. J., Mackintosh, V. H., & Goin-Kochel, R. P. (2009). “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives. Research in Autism Spectrum Disorders, 3, 670–684. doi:10.1016/j.rasd.2009.01.004.CrossRef Myers, B. J., Mackintosh, V. H., & Goin-Kochel, R. P. (2009). “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives. Research in Autism Spectrum Disorders, 3, 670–684. doi:10.​1016/​j.​rasd.​2009.​01.​004.CrossRef
go back to reference Parker, J., Mandleco, B., Roper, S. O., Freeborn, D., & Dyches, T. T. (2011). Religiosity, spirituality, and marital relationships of parents raising a typically developing child or a child with a disability. Journal of Family Nursing, 17, 82–104. doi:10.1177/1074840710394856.PubMedCrossRef Parker, J., Mandleco, B., Roper, S. O., Freeborn, D., & Dyches, T. T. (2011). Religiosity, spirituality, and marital relationships of parents raising a typically developing child or a child with a disability. Journal of Family Nursing, 17, 82–104. doi:10.​1177/​1074840710394856​.PubMedCrossRef
go back to reference Sawyer, M. G., Bittman, M., La Greca, A. M., Crettenden, A. D., Harchak, T. F., & Martin, J. (2010). Time demands of caring for children with autism: What are the implications for maternal mental health? Journal of Autism and Developmental Disorders, 40, 620–628. doi:10.1007/s10803-009-0912-3.PubMedCrossRef Sawyer, M. G., Bittman, M., La Greca, A. M., Crettenden, A. D., Harchak, T. F., & Martin, J. (2010). Time demands of caring for children with autism: What are the implications for maternal mental health? Journal of Autism and Developmental Disorders, 40, 620–628. doi:10.​1007/​s10803-009-0912-3.PubMedCrossRef
go back to reference SPSS Inc. (2009). PASW Statistics 18. New York, NY: Prentice Hall. SPSS Inc. (2009). PASW Statistics 18. New York, NY: Prentice Hall.
go back to reference Stalker, K. (1988). Family-based respite care for children with severe learning difficulties: An evaluation of the Lothian scheme. Social Services Research, 1, 1–10. Stalker, K. (1988). Family-based respite care for children with severe learning difficulties: An evaluation of the Lothian scheme. Social Services Research, 1, 1–10.
go back to reference Stalker, K., & Robinson, C. (1994). Parents’ views of different respite care services. Mental Handicap Research, 7, 97–117.CrossRef Stalker, K., & Robinson, C. (1994). Parents’ views of different respite care services. Mental Handicap Research, 7, 97–117.CrossRef
go back to reference Thompson, D., & Emira, M. (2011). “They say every child matters, but they don’t”: An investigation into parental and carer perceptions of access to leisure facilities and respite care for children and young people with autistic spectrum disorder (ASD) or attention deficit, hyperactivity disorder (ADHD). Disability & Society, 26, 65–78. doi:10.1080/09687599.2011.529667.CrossRef Thompson, D., & Emira, M. (2011). “They say every child matters, but they don’t”: An investigation into parental and carer perceptions of access to leisure facilities and respite care for children and young people with autistic spectrum disorder (ASD) or attention deficit, hyperactivity disorder (ADHD). Disability & Society, 26, 65–78. doi:10.​1080/​09687599.​2011.​529667.CrossRef
go back to reference Touliatos, J., Perlmutter, B. F., & Straus, M. A. (1990). Handbook of family measurement techniques. Thousand Oaks, CA: Sage. Touliatos, J., Perlmutter, B. F., & Straus, M. A. (1990). Handbook of family measurement techniques. Thousand Oaks, CA: Sage.
go back to reference Welch, V., Hatton, C., Emerson, E., Robertson, J., Collins, M., Langer, S., et al. (2012). Do short break and respite services for families with a disabled child in England make a difference to siblings? A qualitative analysis of sibling and parent responses. Children and Youth Services Review, 34, 451–459.CrossRef Welch, V., Hatton, C., Emerson, E., Robertson, J., Collins, M., Langer, S., et al. (2012). Do short break and respite services for families with a disabled child in England make a difference to siblings? A qualitative analysis of sibling and parent responses. Children and Youth Services Review, 34, 451–459.CrossRef
go back to reference Zloty, A., Roger, K., & Lobchuk, M. A. (2011). Model for the development of caregiver networks. Work: A Journal of Prevention Assessment & Rehabilitation, 40, 51–61. Zloty, A., Roger, K., & Lobchuk, M. A. (2011). Model for the development of caregiver networks. Work: A Journal of Prevention Assessment & Rehabilitation, 40, 51–61.
Metagegevens
Titel
Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders
Auteurs
Amber Harper
Tina Taylor Dyches
James Harper
Susanne Olsen Roper
Mikle South
Publicatiedatum
01-11-2013
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2013
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-013-1812-0

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