Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

22-10-2015 | Original Paper

Respite Care for Single Mothers of Children with Autism Spectrum Disorders

Auteurs: Tina Taylor Dyches, Ruthann Christensen, James M. Harper, Barbara Mandleco, Susanne Olsen Roper

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2016

Abstract

Single mothers of children with autism spectrum disorders are rarely studied, yet they may experience unique stressors. Researchers asked 122 single mothers to complete questionnaires concerning respite care, daily hassles/uplifts, depression, and caregiver burden. More than half (59.8 %) accessed respite care, which was provided for 1 h per day, often by multiple sources (41 %), such as grandparents and community agencies; most were satisfied with this care. Most mothers (77 %) were at risk for clinical depression. While uplifts were negatively correlated with depression, hassles and caregiver burden were positively correlated with depression. Respite care was positively related to daily uplifts, and uplifts mediated the relationship between respite care and depression. Recommendations for researchers, policymakers, and school personnel are offered.

vorige artikel The Generality of Interview-Informed Functional Analyses: Systematic Replications in School and Home

volgende artikel Pharmacological Modulation of GABA Function in Autism Spectrum Disorders: A Systematic Review of Human Studies

Atkins, R. (2010). Self-efficacy and the promotion of health for depressed single mothers. Mental Health in Family Medicine, 7, 155–168.PubMedCentralPubMed

Bailey, D. B., Golden, R. N., Roberts, J., & Ford, A. (2007). Maternal depression and developmental disability: Research critique. Mental Retardation and Developmental Disabilities Research Reviews, 13, 321–329.CrossRefPubMed

Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107, 433–444. doi:10.1352/0895-8017(2002)107<0433:BPAPSI>2.0.CO;2.CrossRefPubMed

Baker, B., Blacher, J., & Olsson, M. B. (2005). Preschool children with and without developmental delay: Behaviour problems, parents’ optimism, and well-being. Journal of Intellectual Disability Research, 49, 575–590. doi:10.1111/j.1365-2788.2005.00691.x.CrossRefPubMed

Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K. A., Edelbrock, C., & Low, C. (2003). Preschool children with and without developmental delay: Behavior problems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217–230. doi:10.1046/j.1365-2788.2003.00484.x.CrossRefPubMed

Barrett, S., & Heubeck, B. G. (2000). Relationships between school hassles and uplifts and anxiety and conduct problems in grades 3 and 4. Journal of Applied Developmental Psychology, 21, 537–554.CrossRef

Benson, P. R., & Kersh, J. (2011). Marital quality and psychological adjustment among mothers of children with ASD: Cross-sectional and longitudinal adjustment. Journal of Autism and Developmental Disorders, 41, 1675–1685. doi:10.1007/s10803-011-1198-9.CrossRefPubMed

Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism: The International Journal of Research and Practice, 8, 409–423. doi:10.1177/1362361304047224.CrossRef

Cadman, T., Eklund, H., Howley, D., Hayward, H., Clarke, H., Findon, J., & Glaser, K. (2012). Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom. Journal of the American Academy of Child and Adolescent Psychiatry, 51, 879–888. doi:10.1016/j.jaac.2012.06.017.CrossRefPubMed

Cairney, J., Boyle, M., Offord, D., & Racine, Y. (2003). Stress, social support and depression in single and married mothers. Social Psychiatry and Psychiatric Epidemiology, 38, 442–449. doi:10.1007/s00127-003-0661-0.CrossRefPubMed

Carter, A. S., Martínez-Pedraza, F. D., & Gray, S. A. (2009). Stability and individual change in depressive symptoms among mothers raising young children with ASD: Maternal and child correlates. Journal of Clinical Psychology, 65, 1270–1280. doi:10.1002/jclp.20634.CrossRefPubMed

Cooper, C. E., McLanahan, S. S., Meadows, S. O., & Brooks-Gunn, J. (2009). Family structure transitions and maternal parenting stress. Journal of Marriage and Family, 71, 558–574. doi:10.1111/j.1741-3737/2009.00619.x.PubMedCentralCrossRefPubMed

Copeland, D. (2005). Differences in parenting stress between married and single first time mothers at six to eight weeks after birth. Issues in Comprehensive Pediatric Nursing, 28, 139–152. doi:10.1080/01460860500227556.CrossRefPubMed

Cowen, P. S., & Reed, D. A. (2002). Effects of respite care for children with developmental disabilities: Evaluation of an intervention for at risk families. Public Health Nursing, 19, 272–283. doi:10.1046/j.1525-1446.2002.19407.x.CrossRefPubMed

Crowe, T. K., & Florez, S. I. (2006). Time use of mothers with school-age children: A continuing impact of a child’s disability. American Journal of Occupational Therapy, 60, 194–203. doi:10.1111/j.1469-8749.1993.tb11700.x.CrossRefPubMed

Dale, E., Jahoda, A., & Knott, F. (2006). Mothers’ attributions following their child’s diagnosis of autistic spectrum disorder: Exploring links with maternal levels of stress, depression and expectations about their child’s future. Autism: The International Journal of Research and Practice, 10, 463–479. doi:10.1177/1362361306066600.CrossRef

Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291. doi:10.1007/s10803-007-0512-z.CrossRefPubMed

Ekas, N., & Whitman, T. L. (2010). Autism symptom topography and maternal socioemotional functioning. American Journal on Intellectual and Developmental Disabilities, 115, 234–249. doi:10.1352/1944-7558-115.3.234.CrossRefPubMed

Grall, T. (2013). Custodial mothers and fathers and their child support: 2011. Washington, DC: U.S. Department of Commerce, Economics and Statistics Administration, U.S. Census Bureau. Retrieved from www.census.gov/prod/2013pubs/p60-246.pdf.

Griffith, G. M., Hastings, R. P., Nash, S., & Hill, C. (2010). Using matched groups to explore child behavior problems and maternal well-being in children with down syndrome and autism. Journal of Autism and Developmental Disorders, 40, 610–619. doi:10.1007/s10803-009-0906-1.CrossRefPubMed

Harper, A., Dyches, T. T., Harper, J., Roper, S. O., & South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43, 2604–2616. doi:10.1007/s10803-013-1812-0.CrossRefPubMed

Hastings, R. P., Kovshoff, H., Ward, N. J., degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644. doi:10.1007/s10803-005-0007-8.CrossRefPubMed

Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107, 116–127. doi:10.1177/1744629505053930.CrossRefPubMed

Hoffman, C. D., Sweeney, D. P., Hodge, D., Lopez-Wagner, M. C., & Looney, L. (2009). Parenting stress and closeness: Mothers of typically developing children and mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 24, 178–187. doi:10.1177/1088357609338715.CrossRef

Huang, J., Porterfield, S., Jonson-Reid, M., & Drake, B. (2012). AFDC/TANF exits and re-entries for families raising children with educational disabilities. Children and Youth Services Review, 34, 1756–1761. doi:10.1016/j.childyouth.2012.05.011.PubMedCentralCrossRefPubMed

Jeans, L. M., Santos, R. M., Laxman, D. J., McBride, B. A., & Dyer, W. J. (2013). Examining ECLS-B: Maternal stress and depressive symptoms when raising children with ASD. Topics in Early Childhood Special Education, 33, 162–171. doi:10.1177/0271121413481680.CrossRef

Jubber, A. P., Olsen Roper, S., Yorgason, J. B., Poulsen, F. O., & Mandleco, B. L. (2013). Individual and family predictors of psychological control in parents raising children with type 1 diabetes. Families, Systems, and Health, 31, 142–155. doi:10.1037/a0032498.CrossRefPubMed

Kersh, J., Hedvat, T., Hauser-Cram, P., & Warfield, M. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50, 883–893. doi:10.1111/j.1365-2788.2006.00906.x.CrossRefPubMed

Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41, 1214–1227. doi:10.1007/s10803-010-1140-6.CrossRefPubMed

Kim, H., Chang, M., Rose, K., & Kim, S. (2012). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68, 846–855. doi:10.1111/j.1365-2648.2011.05787.x.CrossRefPubMed

Kline, R. B. (2010). Principles and practice of structural equation modeling (3rd ed.). New York, NY: Guilford.

Lazarus, R. S. (1984). Puzzles in the study of daily hassles. Journal of Behavioural Medicine, 7, 375–389. doi:10.1007/BF00845271.CrossRef

Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal and coping. New York, NY: Springer.

Lazarus, R. S., Kanner, A. D., & Folkman, S. (1980). Emotions: A cognitive-phenomenological analysis. In R. Plutchik & H. Kellerman (Eds.), Theories of emotions (pp. 189–217). New York, NY: Academic Press.CrossRef

Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183. doi:10.1111/j.1365-2788.2005.00732.x.CrossRefPubMed

Lee, L. C., Harrington, R. A., Louie, B. B., & Newschaffer, C. J. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38, 1147–1160. doi:10.1007/s10803-007-0491-0.CrossRefPubMed

McCubbin, H. I., & Patterson, J. M. (1983). The family stress process. Marriage and Family Review, 6(1–2), 7–37. doi:10.1300/J002v06n01_02.CrossRef

Montes, G., & Halterman, J. (2008). Child care problems and employment among families with preschool-aged children with autism in the United States. Pediatrics, 122, e202–e208. doi:10.1542/peds.2007-3037.CrossRefPubMed

Mullins, L. L., Aniol, K., Boyd, M. L., Page, M. C., & Chaney, J. M. (2002). The influence of respite care on psychological distress in parents of children with developmental disabilities: A longitudinal study. Children’s Services: Social Policy, Research, and Practice, 5, 123–138.CrossRef

Muthén, L. K., & Muthén, B. O. (2007). Mplus user’s guide (5th ed.). Los Angeles, CA: Muthén & Muthén.

Osborne, C., Berger, L., & Magnuson, K. (2012). Family structure transitions and changes in maternal resources and well-being. Demography, 49(1), 23–47. doi:10.1007/s13524-011-0080-x.PubMedCentralCrossRefPubMed

Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome: An application of the double ABCX model of family adjustment. Autism: The International Journal of Research and Practice, 9, 191–212. doi:10.1177/1362361305049033.CrossRef

Platt, C., Roper, S., Mandleco, B., & Freeborn, D. (2014). Sibling cooperative and externalizing behaviors in families raising children with disabilities. Nursing Research, 63, 235–242. doi:10.1097/NNR.0000000000000046.CrossRefPubMed

Preacher, K. J., & Hayes, A. F. (2008). Asymptotic and resampling strategies for assessing and comparing indirect effects in multiple mediator models. Behavior Research Methods, 40, 879–891. doi:10.3758/BRM.40.3.879.CrossRefPubMed

Radloff, L. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401. doi:10.1177/014662167700100306.CrossRef

Rao, P., & Beidel, D. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33, 437–451. doi:10.1177/0145445509336427.CrossRefPubMed

Robinson, B. C. (1983). Validation of a caregiver strain index. Journal of Gerontology, 38, 344–348. doi:10.1093/geronj/38.3.344.CrossRefPubMed

Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119, 114–121. doi:10.1542/peds.2006-2089Q.CrossRef

Siman-Tov, A. (2011). Stress and personal resource as predictors of the adjustment of parents to autistic children: A multivariate model. Journal of Autism and Developmental Disorders, 41, 879–890. doi:10.1007/s10803-010-1112-x.CrossRefPubMed

Singer, G. H. S. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal of Mental Retardation, 111, 155–169.CrossRefPubMed

Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38, 876–889. doi:10.1007/s10803-007-0461-6.PubMedCentralCrossRefPubMed

Sorensen, S., Pinquart, M., & Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42, 356–372. doi:10.1093/geront/42.3.356.CrossRefPubMed

Strunk, J. (2010). Respite care for families of special needs children: A systematic review. Journal of Developmental and Physical Disabilities, 22, 615–630. doi:10.1007/s10882-010-9190-4.CrossRef

Stuart, M., & McGrew, J. H. (2009). Caregiver burden after receiving a diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 3, 86–89. doi:10.1016/j.rasd.2008.04.006.CrossRef

Teitler, J. O., Reichman, N. E., & Nepomnyaschy, L. (2004). Sources of support, child care, and hardship among unwed mothers, 1999–2001. Social Service Review, 78, 125–148. doi:10.1086/380770.CrossRef

Thompson, M. E. (1989). Psychological well-being among mothers with school age children: Evolving family structures. Social Forces, 67, 715–730. doi:10.2307/2579539.CrossRef

Touliatos, J., Perlmutter, B. F., & Straus, M. A. (Eds.). (1990). Handbook of family measurement techniques. Newbury Park, CA: Sage.

U.S. Census Bureau, Table F-10. (2014). Presence of children under 18 years old all families by median and mean income: 1974 to 2013. Retrieved from http://www.census.gov/hhes/www/income/data/historical/families/.

U.S. Department of Health and Human Services. (2013). 2013 Poverty guidelines. Retrieved from http://aspe.hhs.gov/poverty/13poverty.cfm#thresholds.

Vespa, J., Lewis, J. M., & Kreider, R. M. (2013). America’s families and living arrangements: 2012. Washington, DC: U.S. Census Bureau. Retrieved from http://www.census.gov/library/publications/2013/demo/p20-570.html.

Vohra, R., Madhavan, S., Sambamoorthi, U., & St. Peter, C. (2014). Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism: The International Journal of Research and Practice, 18, 815–826. doi:10.1177/1362361313512902.CrossRef

Wang, J. (2004). The difference between single and married mothers in the 12-month prevalence of major depressive syndrome, associated factors and mental health service utilization. Social Psychiatry and Psychiatric Epidemiology, 39, 26–32. doi:10.1007/s00127-004-0699-7.CrossRefPubMed

Weitlauf, A. S., Vehorn, A. C., Taylor, J. L., & Warren, Z. E. (2012). Relationship satisfaction, parenting stress, and depression in mothers of children with autism. Autism, 18, 194–198. doi:10.1177/1362361312458039.CrossRefPubMed

Titel: Respite Care for Single Mothers of Children with Autism Spectrum Disorders
Auteurs: Tina Taylor Dyches
Ruthann Christensen
James M. Harper
Barbara Mandleco
Susanne Olsen Roper
Publicatiedatum: 22-10-2015
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 3/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-015-2618-z

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 3/2016

Trajectories, Long-Term Outcomes and Family Experiences of 76 Adults with Autism Spectrum Disorder

Uh, Um, and Autism: Filler Disfluencies as Pragmatic Markers in Adolescents with Optimal Outcomes from Autism Spectrum Disorder

Relationship Between Self-Reported Health and Stress in Mothers of Children with Autism Spectrum Disorders

Participation in Daily Activities of Young Adults with High Functioning Autism Spectrum Disorder

Brief Report: Whole Blood Serotonin Levels and Gastrointestinal Symptoms in Autism Spectrum Disorder

The Effect of Karate Techniques Training on Communication Deficit of Children with Autism Spectrum Disorders