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25-03-2020 | Original Paper

Resilience in Familial Caregivers of Children with Developmental Disabilities: A Meta-analysis

Auteurs: Claudia I. Iacob, Eugen Avram, Daniel Cojocaru, Ioana R. Podina

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2020

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Abstract

The aim of this meta-analysis was to investigate factors associated with resilience in familial caregivers of children with developmental disabilities. The protocol was registered in the PROSPERO database, with the registration number CRD42018105180. Several electronic databases were searched for studies. A random-effects meta-analysis was performed on 26 selected studies that associated resilience to an array of other variables (i.e., psychological distress, social support, coping, perceived health, life satisfaction). Overall, the significant pooled effect sizes were small to medium, ranging from r = 0.291 for coping to r = 0.442 for social support. Although the literature on the topic has improved, there is a lot of study heterogeneity and the need for focusing on male caregivers becomes evident.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Voetnoten
1
Though theoretically a minimum of two studies is needed for pooling an effect size, extracting data from three or more studies is recommended for more robust results (Valentine et al. 2010).
 
Literatuur
go back to reference Aranda, M. P., & Knight, B. G. (1997). The influences of ethnicity and culture on the caregiver stress and coping process: A sociocultural review and analysis. The Gerontologist, 37, 342–354.CrossRef Aranda, M. P., & Knight, B. G. (1997). The influences of ethnicity and culture on the caregiver stress and coping process: A sociocultural review and analysis. The Gerontologist, 37, 342–354.CrossRef
go back to reference *Bayrakli, H., & Kaner, S. (2012). Investigating the factors affecting resiliency in mothers of children with and without intellectual disability. Educational Sciences: Theory and Practice, 12(2), 936–943. *Bayrakli, H., & Kaner, S. (2012). Investigating the factors affecting resiliency in mothers of children with and without intellectual disability. Educational Sciences: Theory and Practice, 12(2), 936–943.
go back to reference Borenstein, M., Hedges, L. V., Higgins, J. P. T., & Rothstein, H. R. (2005). Comprehensive meta-analysis, version 2. Englewood: Biostat. Borenstein, M., Hedges, L. V., Higgins, J. P. T., & Rothstein, H. R. (2005). Comprehensive meta-analysis, version 2. Englewood: Biostat.
go back to reference Borenstein, M., Hedges, L. V., Higgins, J. P. T., & Rothstein, H. R. (2009). Introduction to meta-analysis. Hoboken: Wiley.CrossRef Borenstein, M., Hedges, L. V., Higgins, J. P. T., & Rothstein, H. R. (2009). Introduction to meta-analysis. Hoboken: Wiley.CrossRef
go back to reference Brown-Baatjies, O., Fouche, P., & Greeff, A. (2008). The development and relevance of the resiliency model of family stress, adjustment, and adaptation. Acta Academica, 40(1), 78–126. Brown-Baatjies, O., Fouche, P., & Greeff, A. (2008). The development and relevance of the resiliency model of family stress, adjustment, and adaptation. Acta Academica, 40(1), 78–126.
go back to reference Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale: L. Erlbaum Associates. Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale: L. Erlbaum Associates.
go back to reference Cooper, H., Hedges, L. V., & Valentine, J. C. (2009). The handbook of research synthesis and meta-analysis. New York: Russell Sage Foundation. Cooper, H., Hedges, L. V., & Valentine, J. C. (2009). The handbook of research synthesis and meta-analysis. New York: Russell Sage Foundation.
go back to reference *Cripe, C. T. (2013). Family resilience, parental resilience and stress mediation in families with autistic children. Scottsdale: Northcentral University. *Cripe, C. T. (2013). Family resilience, parental resilience and stress mediation in families with autistic children. Scottsdale: Northcentral University.
go back to reference Dias, R., Santos, R. L., Sousa, M. F., Nogueira, M. M., Torres, B., Belfort, T., et al. (2015). Resilience of caregivers of people with dementia: A systematic review of biological and psychosocial determinants. Trends in Psychiatry and Psychotherapy, 37(1), 12–19.CrossRef Dias, R., Santos, R. L., Sousa, M. F., Nogueira, M. M., Torres, B., Belfort, T., et al. (2015). Resilience of caregivers of people with dementia: A systematic review of biological and psychosocial determinants. Trends in Psychiatry and Psychotherapy, 37(1), 12–19.CrossRef
go back to reference *Duca, D. S. (2015). Family resilience and parental stress: the effects on marital relationship in the context of a child diagnosed with an autism spectrum disorder. Annals of the Al. I. Cuza University, Psychology Series, 24(1), 71–90. *Duca, D. S. (2015). Family resilience and parental stress: the effects on marital relationship in the context of a child diagnosed with an autism spectrum disorder. Annals of the Al. I. Cuza University, Psychology Series, 24(1), 71–90.
go back to reference *Farrell, A. F., Bowen, G. L., & Swick, D. C. (2014). Network supports and resiliency among U.S. military spouses with children with special health care needs: Support and resiliency in military spouses with CSHCN. Family Relations, 63(1), 55–70. https://doi.org/10.1111/fare.12045.CrossRef *Farrell, A. F., Bowen, G. L., & Swick, D. C. (2014). Network supports and resiliency among U.S. military spouses with children with special health care needs: Support and resiliency in military spouses with CSHCN. Family Relations, 63(1), 55–70. https://​doi.​org/​10.​1111/​fare.​12045.CrossRef
go back to reference Gauvin-Lepage, J., Lefebre, H., & Malo, D. (2015). Family resilience following a physical trauma and efficient support interventions: A critical literature review. Journal of Rehabilitation, 81(3), 34–42. Gauvin-Lepage, J., Lefebre, H., & Malo, D. (2015). Family resilience following a physical trauma and efficient support interventions: A critical literature review. Journal of Rehabilitation, 81(3), 34–42.
go back to reference *Ginevra, M. C., Di Maggio, I., Santilli, S., Sgaramella, T. M., Nota, L., & Soresi, S. (2017). Career adaptability, resilience, and life satisfaction: A mediational analysis in a sample of parents of children with mild intellectual disability. Journal of Intellectual & Developmental Disability. https://doi.org/10.3109/13668250.2017.1293236.CrossRef *Ginevra, M. C., Di Maggio, I., Santilli, S., Sgaramella, T. M., Nota, L., & Soresi, S. (2017). Career adaptability, resilience, and life satisfaction: A mediational analysis in a sample of parents of children with mild intellectual disability. Journal of Intellectual & Developmental Disability. https://​doi.​org/​10.​3109/​13668250.​2017.​1293236.CrossRef
go back to reference Global Burden of Disease Child and Adolescent Health Collaboration, Kassebaum, N., Kyu, H. H., Zoeckler, L., Olsen, H. E., Thomas, K., … Vos, T. (2017). Child and adolescent health from 1990 to 2015: Findings from the global burden of diseases, injuries, and risk factors 2015 study. JAMA Pediatrics, 171(6), 573. https://doi.org/10.1001/jamapediatrics.2017.0250 Global Burden of Disease Child and Adolescent Health Collaboration, Kassebaum, N., Kyu, H. H., Zoeckler, L., Olsen, H. E., Thomas, K., … Vos, T. (2017). Child and adolescent health from 1990 to 2015: Findings from the global burden of diseases, injuries, and risk factors 2015 study. JAMA Pediatrics, 171(6), 573. https://​doi.​org/​10.​1001/​jamapediatrics.​2017.​0250
go back to reference Goddard, L., Davidson, P. M., Daly, J., & Mackey, S. (2008). People with an intellectual disability in the discourse of chronic and complex conditions: An invisible group? Australian Health Review: A Publication of the Australian Hospital Association, 32(3), 405–414.CrossRef Goddard, L., Davidson, P. M., Daly, J., & Mackey, S. (2008). People with an intellectual disability in the discourse of chronic and complex conditions: An invisible group? Australian Health Review: A Publication of the Australian Hospital Association, 32(3), 405–414.CrossRef
go back to reference Gottlieb, B. H., & Bergen, A. E. (2010). Social support concepts and measures. Journal of Psychosomatic Research, 69, 511–520.CrossRef Gottlieb, B. H., & Bergen, A. E. (2010). Social support concepts and measures. Journal of Psychosomatic Research, 69, 511–520.CrossRef
go back to reference *Grant, S., Cross, E., Wraith, J. E., Jones, S., Mahon, L., Lomax, M., … Hare, D. (2013). Parental social support, coping strategies, resilience factors, stress, anxiety and depression levels in parents of children with MPS III (Sanfilippo syndrome) or children with intellectual disabilities (ID). Journal of Inherited Metabolic Disease, 36, 281–291. *Grant, S., Cross, E., Wraith, J. E., Jones, S., Mahon, L., Lomax, M., … Hare, D. (2013). Parental social support, coping strategies, resilience factors, stress, anxiety and depression levels in parents of children with MPS III (Sanfilippo syndrome) or children with intellectual disabilities (ID). Journal of Inherited Metabolic Disease, 36, 281–291.
go back to reference Hauge, L. J., Kornstad, T., Nes, R. B., Kristensen, P., Irgens, L. M., Eskedal, L. T., et al. (2013). The impact of a child’s special health care needs on maternal work participation during early motherhood: Child special health care needs and maternal work participation. Pediatric and Perinatal Epidemiology, 27(4), 353–360. https://doi.org/10.1111/ppe.12063.CrossRefPubMed Hauge, L. J., Kornstad, T., Nes, R. B., Kristensen, P., Irgens, L. M., Eskedal, L. T., et al. (2013). The impact of a child’s special health care needs on maternal work participation during early motherhood: Child special health care needs and maternal work participation. Pediatric and Perinatal Epidemiology, 27(4), 353–360. https://​doi.​org/​10.​1111/​ppe.​12063.CrossRefPubMed
go back to reference Hawken, T., Turner-Cobb, J., & Barnett, J. (2018). Coping and adjustment in caregivers: A systematic review. Health Psychology Open, 5(2), 2055102918810659.CrossRef Hawken, T., Turner-Cobb, J., & Barnett, J. (2018). Coping and adjustment in caregivers: A systematic review. Health Psychology Open, 5(2), 2055102918810659.CrossRef
go back to reference Horwitz, A. V. (2007). Distinguishing distress from disorder as psychological outcomes of stressful social arrangements. Health, 11, 273–289.CrossRef Horwitz, A. V. (2007). Distinguishing distress from disorder as psychological outcomes of stressful social arrangements. Health, 11, 273–289.CrossRef
go back to reference Hunter, C. (2012). Is resilience still a useful concept when working with children and young people? Australian Institute of Family Studies, 12, 45. Hunter, C. (2012). Is resilience still a useful concept when working with children and young people? Australian Institute of Family Studies, 12, 45.
go back to reference Joling, K. J., Windle, G., Dröes, R.-M., Meiland, F., van Hout, H. P. J., MacNeil Vroomen, J., et al. (2016). Factors of resilience in informal caregivers of people with dementia from Integrative International Data Analysis. Dementia and Geriatric Cognitive Disorders, 42(3–4), 198–214. https://doi.org/10.1159/000449131.CrossRefPubMed Joling, K. J., Windle, G., Dröes, R.-M., Meiland, F., van Hout, H. P. J., MacNeil Vroomen, J., et al. (2016). Factors of resilience in informal caregivers of people with dementia from Integrative International Data Analysis. Dementia and Geriatric Cognitive Disorders, 42(3–4), 198–214. https://​doi.​org/​10.​1159/​000449131.CrossRefPubMed
go back to reference Lai, W. W., & Oei, T. P. S. (2014). Coping in parents and caregivers of children with Autism Spectrum Disorders (ASD): A review. Review Journal of Autism and Developmental Disorders, 1, 207–224.CrossRef Lai, W. W., & Oei, T. P. S. (2014). Coping in parents and caregivers of children with Autism Spectrum Disorders (ASD): A review. Review Journal of Autism and Developmental Disorders, 1, 207–224.CrossRef
go back to reference Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer Pub. Co. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer Pub. Co.
go back to reference *Mathew, R. T., & Nair, B. P. (2017). Quality of life and resilience in relation to perceived social support among mothers of children with learning disability. Indian Journal of Health & Wellbeing, 8(7), 665–667. *Mathew, R. T., & Nair, B. P. (2017). Quality of life and resilience in relation to perceived social support among mothers of children with learning disability. Indian Journal of Health & Wellbeing, 8(7), 665–667.
go back to reference National Research Council (US) Committee on the Role of Human Factors in Home Health Care. (2010). Informal caregivers in the United States: Prevalence, caregiver characteristics, and ability to provide care. In The Role of Human Factors in Home Health Care: Workshop Summary. National Academies Press. National Research Council (US) Committee on the Role of Human Factors in Home Health Care. (2010). Informal caregivers in the United States: Prevalence, caregiver characteristics, and ability to provide care. In The Role of Human Factors in Home Health Care: Workshop Summary. National Academies Press.
go back to reference Pedraz-Petrozzi, B., Elyamany, O., Rummel, C., & Mulert, C. (2020). Effects of inflammation on the kynurenine pathway in schizophrenia—A systematic review. Journal of Neuroinflammation, 56(1), 1–17. Pedraz-Petrozzi, B., Elyamany, O., Rummel, C., & Mulert, C. (2020). Effects of inflammation on the kynurenine pathway in schizophrenia—A systematic review. Journal of Neuroinflammation, 56(1), 1–17.
go back to reference Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11(2), 92–98. https://doi.org/10.1111/jppi.12072.CrossRef Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11(2), 92–98. https://​doi.​org/​10.​1111/​jppi.​12072.CrossRef
go back to reference Podina, I. R., Vîslă, A., Fodor, L., & Flückiger, C. (2019). Is there a sleeper effect of exposure-based vs cognitive-only intervention for anxiety disorders? A longitudinal multilevel meta-analysis. Clinical Psychology Review, 73, 101774.CrossRef Podina, I. R., Vîslă, A., Fodor, L., & Flückiger, C. (2019). Is there a sleeper effect of exposure-based vs cognitive-only intervention for anxiety disorders? A longitudinal multilevel meta-analysis. Clinical Psychology Review, 73, 101774.CrossRef
go back to reference *Rajan, A. M., Romate, J., & Srikrishna, G. (2016). Resilience of parents having children with intellectual disability: Influence of parent and child related demographic factors. Indian Journal of Health & Wellbeing, 7(7), 707–710. *Rajan, A. M., Romate, J., & Srikrishna, G. (2016). Resilience of parents having children with intellectual disability: Influence of parent and child related demographic factors. Indian Journal of Health & Wellbeing, 7(7), 707–710.
go back to reference Reinhard, S. C., Given, B., Petlick, N. H., & Bemis, A. (2008). Supporting family caregivers in providing care. In Patient safety and quality: An evidence-based handbook for nurses (pp. 341–404). Agency for Healthcare Research and Quality (US). Reinhard, S. C., Given, B., Petlick, N. H., & Bemis, A. (2008). Supporting family caregivers in providing care. In Patient safety and quality: An evidence-based handbook for nurses (pp. 341–404). Agency for Healthcare Research and Quality (US).
go back to reference *Ruiz-Robledillo, N., De Andrés-García, S., Pérez-Blasco, J., González-Bono, E., & Moya-Albiol, L. (2014). Highly resilient coping entails better perceived health, high social support and low morning cortisol levels in parents of children with autism spectrum disorder. Research in Developmental Disabilities, 35(3), 686–695. https://doi.org/10.1016/j.ridd.2013.12.007.CrossRefPubMed *Ruiz-Robledillo, N., De Andrés-García, S., Pérez-Blasco, J., González-Bono, E., & Moya-Albiol, L. (2014). Highly resilient coping entails better perceived health, high social support and low morning cortisol levels in parents of children with autism spectrum disorder. Research in Developmental Disabilities, 35(3), 686–695. https://​doi.​org/​10.​1016/​j.​ridd.​2013.​12.​007.CrossRefPubMed
go back to reference *Tam, G. W. B. (2016). Examining the relationship between optimism, resilience, and parenting stress of parents of children with Autism Spectrum Disorder. San Diego: Northcentral University. *Tam, G. W. B. (2016). Examining the relationship between optimism, resilience, and parenting stress of parents of children with Autism Spectrum Disorder. San Diego: Northcentral University.
go back to reference World Health Organization, & World Bank (Eds.). (2011). World report on disability. World Health Organization. World Health Organization, & World Bank (Eds.). (2011). World report on disability. World Health Organization.
Metagegevens
Titel
Resilience in Familial Caregivers of Children with Developmental Disabilities: A Meta-analysis
Auteurs
Claudia I. Iacob
Eugen Avram
Daniel Cojocaru
Ioana R. Podina
Publicatiedatum
25-03-2020
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-020-04473-9

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