Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

25-01-2022 | Original Paper

Resilience and Coping Strategies in Adults with Autism Spectrum Disorder

Auteurs: Parisa Ghanouni, Stephanie Quirke

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2023

Abstract

Individuals with Autism spectrum disorder (ASD) are prone to stress and anxiety affecting their mental health. Although developing coping and resilience are key to cope with stressors of life, limited research exists. We aimed to explore stakeholders’ experiences related to the coping and resilience of adults with ASD. We interviewed 22 participants, including 13 adults with ASD, five parents, and four service provides of adults with ASD from various Canadian provinces. Using thematic analysis, three themes emerged including: (a) societal expectations and conformity, (b) adjusting daily routines, and (c) learning overtime. This study highlights the importance of coping and informs the development of services to help enhance resilience among adults with ASD.

vorige artikel Effects of Parental Involvement in Robot-Assisted Autism Therapy

volgende artikel Brief Report: Above and Beyond Safety: Psychosocial and Biobehavioral Impact of Autism-Assistance Dogs on Autistic Children and their Families

Al-Jadiri, A., Tybor, D. J., Mulé, C., & Sakai, C. (2021). Factors associated with resilience in families of children with autism spectrum disorder. Journal of Developmental & Behavioral Pediatrics, 42(1), 16–22. https://doi.org/10.1097/DBP.0000000000000867CrossRef

Alsehemi, M. A., Abousaadah, M. M., Sairafi, R. A., & Jan, M. M. (2017). Public awareness of autism spectrum disorder. Neurosciences, 22(3), 213–215.CrossRef

Bishop-Fitzpatrick, L., Mazefsky, C. A., Minshew, N. J., & Eack, S. M. (2015). The relationship between stress and social functioning in adults with autism spectrum disorder and without intellectual disability: Stress and social functioning in adults with autism. Autism Research, 8(2), 164–173. https://doi.org/10.1002/aur.1433CrossRef

Bonanno, G. A. (2005). Resilience in the face of potential trauma. Current Directions in Psychological Science, 14(3), 135–138. https://doi.org/10.1111/j.0963-7214.2005.00347.xCrossRef

Cafiero, J. M. (2012). Technology supports for individuals with autism spectrum disorders. Journal of Special Education Technology, 27(1), 64–76. https://doi.org/10.1177/016264341202700106CrossRef

Cage, E., Di Monaco, J., & Newell, V. (2018). Experiences of autism acceptance and mental health in autistic adults. Journal of Autism and Developmental Disorders, 48(2), 473–484. https://doi.org/10.1007/s10803-017-3342-7CrossRef

Camm-Crosbie, L., Bradley, L., Shaw, R., Baron-Cohen, S., & Cassidy, S. (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality. Autism, 23(6), 1431–1441. https://doi.org/10.1177/1362361318816053CrossRef

Campbell-Sills, L., Cohan, S., & Stein, M. (2006). Relationship of resilience to personality, coping, and psychiatric symptoms in young adults. Behaviour Research and Therapy, 44(4), 585–599.CrossRef

CDC, (2021). The Social-Ecological Model: A Framework for Prevention. Retrieved from https://www.cdc.gov/violenceprevention/about/social-ecologicalmodel.html.

Chen, H., Xu, J., Mao, Y., Sun, L., Sun, Y., & Zhou, Y. (2019). Positive coping and resilience as mediators between negative symptoms and disability among patients with schizophrenia. Frontiers in Psychiatry, 10, 641.CrossRef

Cresswell, L., & Cage, E. (2019). ‘Who Am I?’: An exploratory study of the relationships between identity, acculturation and mental health in autistic adolescents. Journal of Autism and Developmental Disorders, 49(7), 2901–2912.CrossRef

Cuzzocrea, F., Murdaca, A. M., Costa, S., Filippello, P., & Larcan, R. (2015). Parental stress, coping strategies and social support in families of children with a disability. Child Care in Practice, 22(1), 3–19. https://doi.org/10.1080/13575279.2015.1064357CrossRef

Dachez, J., & Ndobo, A. (2018). Coping strategies of adults with high-functioning autism: A qualitative analysis. Journal of Adult Development, 25(2), 86–95. https://doi.org/10.1007/s10804-017-9278-5CrossRef

Denovan, A., & Macaskill, A. (2017). Building resilience to stress through leisure activities: A qualitative analysis. Annals of Leisure Research, 20(4), 446–466. https://doi.org/10.1080/11745398.2016.1211943CrossRef

Desideri, L., Di Santantonio, A., Varrucciu, N., Bonsi, I., & Di Sarro, R. (2020). Assistive technology for cognition to support executive functions in autism: A scoping review. Advances in Neurodevelopmental Disorders, 4(4), 330–343. https://doi.org/10.1007/s41252-020-00163-wCrossRef

Dickter, C. L., Burk, J. A., Zeman, J. L., & Taylor, S. C. (2020). Implicit and explicit attitudes toward autistic adults. Autism in Adulthood, 2(2), 144–151. https://doi.org/10.1089/aut.2019.0023CrossRef

Diener, M. L., Wright, C. A., Wright, S. D., & Anderson, L. L. (2015). Tapping into technical talent: Using technology to facilitate personal, social, and vocational skills in youth with autism spectrum disorder (ASD). In T. A. Cardon (Ed.), Technology and the Treatment of Children with Autism Spectrum Disorder (pp. 97–112). Cham: Springer International Publishing.

Draaisma, D. (2009). Stereotypes of autism. Philosophical Transactions of the Royal Society B: Biological Sciences, 364(1522), 1475–1480. https://doi.org/10.1098/rstb.2008.0324CrossRef

Folkman, S., & Moskowitz, J. (2004). Coping: Pitfalls and promise. Annual Review of Psychology, 55(1), 745–774.CrossRef

French, S., & Swain, J. (2013). Changing relationships for promoting health. In Tidy’s Physiotherapy (pp. 183–205). Elsevier. https://doi.org/10.1016/B978-0-7020-4344-4.00010-9

García-Villamisar, D. A., & Dattilo, J. (2010). Effects of a leisure programme on quality of life and stress of individuals with ASD: Effects of a leisure programme. Journal of Intellectual Disability Research, 54(7), 611–619. https://doi.org/10.1111/j.1365-2788.2010.01289.xCrossRef

Gartrell, D., & Burger Caroine, K. (2014). Fostering resilience: Teaching socio-emotional skills. YC Young Children, 69(3), 92–93.

Gerhardt, P. F., & Lainer, I. (2010). Addressing the needs of adolescents and adults with autism: A crisis on the horizon. Journal of Contemporary Psychotherapy, 41(1), 37–45. https://doi.org/10.1007/s10879-010-9160-2CrossRef

Ghanouni, P., & Hood, G. (2021). Stress, coping, and resiliency among families of individuals with autism: A systematic review. Review Journal of Autism and Developmental Disorder, 8, 389–402. https://doi.org/10.1007/s40489-021-00245-yCrossRef

Gillott, A., & Standen, P. J. (2007). Levels of anxiety and sources of stress in adults with autism. Journal of Intellectual Disabilities, 11(4), 359–370. https://doi.org/10.1177/1744629507083585CrossRef

Goff, B. S., & Springer, N. P. (Eds.). (2017). Intellectual and developmental disabilities: A roadmap for families and professionals (1st ed.). Routledge.

Halstead, E., Ekas, N., Hastings, R. P., & Griffith, G. M. (2018). Associations between resilience and the well-being of mothers of children with autism spectrum disorder and other developmental disabilities. Journal of Autism and Developmental Disorders, 48(4), 1108–1121. https://doi.org/10.1007/s10803-017-3447-zCrossRef

Hedley, D., Uljarević, M., Foley, K.-R., Richdale, A., & Trollor, J. (2018). Risk and protective factors underlying depression and suicidal ideation in Autism Spectrum Disorder. Depression and Anxiety, 35(7), 648–657. https://doi.org/10.1002/da.22759CrossRef

Hedley, D., Uljarević, M., Wilmot, M., Richdale, A., & Dissanayake, C. (2017). Brief report: Social support, depression and suicidal ideation in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(11), 3669–3677. https://doi.org/10.1007/s10803-017-3274-2CrossRef

Higgins, J. M., Arnold, S. R., Weise, J., Pellicano, E., & Trollor, J. N. (2021). Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout. Autism. https://doi.org/10.1177/13623613211019858CrossRef

Hoover, D. W., & Kaufman, J. (2018). Adverse childhood experiences in children with autism spectrum disorder. Current Opinion in Psychiatry, 31(2), 128–132. https://doi.org/10.1097/YCO.0000000000000390CrossRef

Iwasaki, Y., MacTavish, J., & MacKay, K. (2010). Building on strengths and resilience: Leisure as a stress survival strategy. British Journal of Guidance & Counselling, 33(1), 81–100.CrossRef

Kaboski, J., McDonnell, C. G., & Valentino, K. (2017). Resilience and autism spectrum disorder: Applying developmental psychopathology to optimal outcome. Review Journal of Autism and Developmental Disorders, 4(3), 175–189. https://doi.org/10.1007/s40489-017-0106-4CrossRef

Khanna, R., Jariwala-Parikh, K., West-Strum, D., & Mahabaleshwarkar, R. (2014). Health-related quality of life and its determinants among adults with autism. Research in Autism Spectrum Disorders, 8(3), 157–167. https://doi.org/10.1016/j.rasd.2013.11.003CrossRef

Khor, A. S., Melvin, G. A., Reid, S. C., & Gray, K. M. (2014). Coping, daily hassles and behavior and emotional problems in adolescents with high-functioning autism/asperger’s disorder. Journal of Autism and Developmental Disorders, 44(3), 593–608. https://doi.org/10.1007/s10803-013-1912-xCrossRef

Kimhi, S., & Eshel, Y. (2015). The missing link in resilience research. Psychological Inquiry, 26(2), 181–186. https://doi.org/10.1080/1047840X.2014.1002378CrossRef

Lai, M.-C., Kassee, C., Besney, R., Bonato, S., Hull, L., Mandy, W., Szatmari, P., & Ameis, S. H. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: A systematic review and meta-analysis. The Lancet Psychiatry, 6(10), 819–829. https://doi.org/10.1016/S2215-0366(19)30289-5CrossRef

Leadbitter, K., Buckle, K. L., Ellis, C., & Dekker, M. (2021). Autistic self-advocacy and the neurodiversity movement: Implications for autism early intervention research and practice. Frontiers in Psychology, 12, 635690. https://doi.org/10.3389/fpsyg.2021.635690CrossRef

Ledesma, J. (2014). Conceptual frameworks and research models on resilience in leadership. SAGE Open, 4(3), 215824401454546.CrossRef

Lee, G. K., Thomeer, M. L., Lopata, C., Schiavo, A. L., Smerbeck, A. M., Volker, M. A., Smith, R. A., & Mirwis, J. E. (2012). Coping strategies and perceived coping effectiveness for social stressors among children with HFASDs: A brief report. Children Australia, 37(3), 108–114. https://doi.org/10.1017/cha.2012.29CrossRef

Maddox, B. B., & Gaus, V. L. (2019). Community mental health services for autistic adults: Good news and bad news. Autism in Adulthood, 1(1), 15–19. https://doi.org/10.1089/aut.2018.0006CrossRef

Maich, K. (2014). Autism spectrum disorders in popular media: Storied reflections of societal views. Brock Education Journal. https://doi.org/10.26522/brocked.v23i2.311CrossRef

Marcus, L. M. (1984). Coping with Burnout. In E. Schopler & G. B. Mesibov (Eds.), The Effects of Autism on the Family (pp. 311–326). US: Springer.CrossRef

Martin, D, N. & Bassman, M. (2013). The ever-changing social perception of autism spectrum disorders in the United States. http://uncw.edu/csurf/Explorations/documents/DanielleMartin.pdf.

Masi, A., DeMayo, M. M., Glozier, N., & Guastella, A. J. (2017). An overview of autism spectrum disorder, heterogeneity and treatment options. Neuroscience. Bulletin, 33(2), 183–193.

Masten, A. S. (2001). Ordinary magic: Resilience processes in development. American Psychologist, 56(3), 227–238.CrossRef

Masten, A. S. (2018). Resilience theory and research on children and families: Past, present, and promise. Journal of Family Theory and Review, 10(1), 12–31.CrossRef

Masten, A., & Motti-Stefanidi, F. (2020). Multisystem resilience for children and youth in disaster: Reflections in the context of COVID-19. Adversity and Resilience Science, 1(2), 95–106.CrossRef

Mather, N., & Ofiesh, N. (2005). Resilience and the Child with Learning Disabilities. In S. Goldstein & R. B. Brooks (Eds.), Handbook of Resilience in Children (pp. 239–255). US: Springer.CrossRef

Matson, J. L., & Kozlowski, A. M. (2011). The increasing prevalence of autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 418–425. https://doi.org/10.1016/j.rasd.2010.06.004CrossRef

Mazurek, M. O. (2013). Social media use among adults with autism spectrum disorders. Computers in Human Behavior, 29(4), 1709–1714. https://doi.org/10.1016/j.chb.2013.02.004CrossRef

McCrimmon, A. W., Matchullis, R. L., & Altomare, A. A. (2014). Resilience and emotional intelligence in children with high-functioning autism spectrum disorder. Developmental Neurorehabilitation. https://doi.org/10.3109/17518423.2014.927017CrossRef

Migerode, F., Maes, B., Buysse, A., & Brondeel, R. (2012). Quality of life in adolescents with a disability and their parents: The mediating role of social support and resilience. Journal of Developmental and Physical Disabilities, 24(5), 487–503. https://doi.org/10.1007/s10882-012-9285-1CrossRef

Morrow Kerns, C. M., Newschaffer, C. J., Berkowitz, S., & Lee, B. K. (2017). Brief report: Examining the association of autism and adverse childhood experiences in the national survey of children’s health: The important role of income and co-occurring mental health conditions. Journal of Autism and Developmental Disorders, 47(7), 2275–2281. https://doi.org/10.1007/s10803-017-3111-7CrossRef

Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773CrossRef

Onyishi, C. N., & Sefotho, M. M. (2019). Predictive impact of resilience on depressive symptoms in adolescents with high functioning autism spectrum disorders. Global Journal of Health Science, 11(14), 73. https://doi.org/10.5539/gjhs.v11n14p73CrossRef

Raymaker, D. M., Teo, A. R., Steckler, N. A., Lentz, B., Scharer, M., Delos Santos, A., Kapp, S. K., Hunter, M., Joyce, A., & Nicolaidis, C. (2020). “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining autistic burnout. Autism in Adulthood, 2(2), 132–143. https://doi.org/10.1089/aut.2019.0079CrossRef

Rosino, M. (2016). ABC-X model of family stress and coping. Encyclopedia of Family Studies. https://doi.org/10.1002/9781119085621.wbefs313CrossRef

Rosqvist, H. B. (2012). Normal for an Asperger: Notions of the meanings of diagnoses among adults with asperger syndrome. Intellectual and Developmental Disabilities, 50(2), 120–128. https://doi.org/10.1352/1934-9556-50.2.120CrossRef

Siqueira, S., & Ahmed, M. (2012). Meditation as a potential therapy for autism: A review. Autism Research and Treatment, 2012, 1–11. https://doi.org/10.1155/2012/835847CrossRef

Southwick, S., Bonanno, G., Masten, A., Panter-Brick, C., & Yehuda, R. (2014). Resilience definitions, theory, and challenges: Interdisciplinary perspectives. European Journal of Psychotraumatology, 5(1), 25338–25414.CrossRef

Stacey, T.-L., Froude, E. H., Trollor, J., & Foley, K.-R. (2018). Leisure participation and satisfaction in autistic adults and neurotypical adults. Autism, 23(4), 993–1004. https://doi.org/10.1177/1362361318791275CrossRef

Steinhardt, M., & Dolbier, C. (2008). Evaluation of a resilience intervention to enhance coping strategies and protective factors and decrease symptomatology. Journal of American College Health, 56(4), 445–453.CrossRef

Test, D. W., Fowler, C. H., Wood, W. M., Brewer, D. M., & Eddy, S. (2005). A conceptual framework of self-advocacy for students with disabilities. Remedial and Special Education, 26(1), 43–54. https://doi.org/10.1177/07419325050260010601CrossRef

Teti, M., Cheak-Zamora, N., Lolli, B., & Maurer-Batjer, A. (2016). Reframing autism: Young adults with autism share their strengths through photo-stories. Journal of Pediatric Nursing, 31(6), 619–629. https://doi.org/10.1016/j.pedn.2016.07.002CrossRef

Treweek, C., Wood, C., Martin, J., & Freeth, M. (2019). Autistic people’s perspectives on stereotypes: An interpretative phenomenological analysis. Autism, 23(3), 759–769. https://doi.org/10.1177/1362361318778286CrossRef

Ungar, M. (2015). Social ecological complexity and resilience processes. The Behavioral and Brain Sciences, 38, E124.CrossRef

Ungar, M. (2019). Designing resilience research: Using multiple methods to investigate risk exposure, promotive and protective processes, and contextually relevant outcomes for children and youth. Child Abuse & Neglect, 96, 104098.CrossRef

Ungar, M., Ghazinour, M., & Richter, J. (2013). Annual Research Review: What is resilience within the social ecology of human development? Journal of Child Psychology and Psychiatry, 54(4), 348–366.CrossRef

Whiteley, P., Carr, K., & Shattock, P. (2019). Is autism inborn and lifelong for everyone? Neuropsychiatric Disease and Treatment, 15, 2885–2891. https://doi.org/10.2147/NDT.S221901CrossRef

Woods, R. (2017). Exploring how the social model of disability can be re-invigorated for autism: In response to Jonathan Levitt. Disability & Society, 32(7), 1090–1095. https://doi.org/10.1080/09687599.2017.1328157CrossRef

Titel: Resilience and Coping Strategies in Adults with Autism Spectrum Disorder
Auteurs: Parisa Ghanouni
Stephanie Quirke
Publicatiedatum: 25-01-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 1/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05436-y

Andere artikelen Uitgave 1/2023

Use of a Best Practice Alert (BPA) to Increase Diversity Within a US-Based Autism Research Cohort

Original Paper

Perceptions of the Professionals and Parents of Children with Autism Spectrum Disorders About Autism Services; A Qualitative Study

Original Paper

Utilization of a Best Practice Alert (BPA) at Point-of-Care for Recruitment into a US-Based Autism Research Study

Original Paper

Parent-Led Cognitive Behavioural Therapy for Children with Autism Spectrum Conditions. A Pilot Study

Original Paper

Impact of the COVID-19 Pandemic on Daily Life: Diverse Experiences for Autistic Adults

Original Paper

Telehealth Interventions to Promote Health and Behavior-Related Outcomes in Adolescents with Autism Spectrum Disorder

Original Paper