Quality of Life Research

Use of the adult social care outcomes toolkit (ASCOT) in research studies: an international scoping review

• Open Access
• Review

Stacey Rand, Nick Smith, Elizabeth Welch, Stephen Allan, James Caiels, Ann-Marie Towers

An international compendium of health state utilities in people with HIV: a systematic review

• Open Access
• Review

Edith Poku, Matthew Franklin, Emma Simpson, Louise Falzon, Ian Jacob, Christina Donatti

A systematic review of patient-reported outcome measures (PROMs) to assess health-related quality of life (HRQoL) for breast cancer patients who are undertaking adjuvant endocrine therapy

Rila Su, Claire Snyder, Albert W. Wu, Alden L. Gross, Jiafu Ji, Jiaming Zhang, Laura Morlock

A literature review exploring whether meaningful change threshold estimates for patient-reported outcome (PRO) measures vary depending on baseline severity

• Review

Joel Sims, Andrew Trigg, Jessica Flynn, Aoife Lydon, Natasha Griffiths, Kim Cocks, Rob Arbuckle

The social determinants of health-related quality of life among people with chronic disease: a systematic literature review

• Open Access
• Review

Terhi Kangas, Sara-Lynn Milis, Katrien Vanthomme, Hadewijch Vandenheede

Recreational physical activity and health-related quality of life among breast cancer survivors: a systematic review

• Open Access
• Review

Emma Tian, Oliver W. A. Wilson, Kaitlyn M. Wojcik, Gisela Butera, Jacob Schneider, Laura Q. Rogers, Wendy Demark-Wahnefried, Jinani Jayasekera

Predictors of survival among head and neck cancer patients after radiotherapy based on health-related quality of life indices and symptoms-specific outcomes: a systematic review

• Review

Siti Nur Akmal Ghazali, Hanani Abdul Manan, Caryn Mei Hsien Chan, Marfu’ah Nik Eezamuddeen, Noorazrul Yahya

Commentary on “Predictors of survival among head and neck cancer patients after radiotherapy based on health-related quality of life indices and symptoms-specific outcomes: a systematic review”

• Letter to the Editor

Efsun Somay, Erkan Topkan, Ugur Selek

Self-reported quality of life in progressive cognitive decline—let’s not throw the baby out with the bathwater

• Open Access
• Commentary

Irina Kinchin

Development and initial validation of the health-related quality of life pictorial inventory for children (HEALTH-PIC)

• Open Access

Tracy C. W. Tang, Mun Wong, Jian-Bin Li, Derwin K. C. Chan

Correction to: Development and initial validation of the health-related quality of life pictorial inventory for children (HEALTH-PIC)

• Open Access
• Correction

Tracy C. W. Tang, Mun Wong, Jian-Bin Li, Derwin K. C. Chan

Psychometric analysis of the Neuro-QoL Fatigue in generalized Myasthenia Gravis (gMG) using data from a phase 3 trial

Anthony Raborn, Andrea Savord, Carrie R. Houts, Sheryl Pease, Kayla Scippa, Sindhu Ramchandren

Equivalence of psychiatric structured interviews and symptom checklists in predicting health-related quality of life in children with chronic physical illness

Mark A. Ferro, Christy K. Y. Chan, Alex W. Luther

Validation of the ecological momentary well-being instrument (EMOWI) in Canadian adolescents

Marie Buzzi, Karen A. Patte, Yan Kestens, Grégory Moullec, Laetitia Minary, Jennifer O’Loughlin, Scott T. Leatherdale, Nelly Agrinier, Jonathan Epstein

Psychometric testing of two respiratory bolt-on items to EQ-5D-5L in patients with obstructive airway diseases

Ai-Ping Chua, Mathieu F. Janssen, Ling-Jie Cheng, Jan V. Busschbach, Nan Luo

Process evaluation of a person-centred outcome measures-based quality improvement program in a hospital-based palliative care in mainland China

• Open Access

Yunyun Dai, Jinfeng Ding, Yongyi Chen, David Holloway, Junchen Guo, Yu Cheng, Claire E Johnson

Collecting patient-reported outcomes data in transgender and gender diverse adults seeking surgery: barriers and facilitators from the patient perspective

Sophia Hu, Amitai S. Miller, Michael N. Parisi, William R. Boysen, Devin Coon, Andrea L. Pusic, Manraj N. Kaur

Patients’ experiences of responding to a Patient-Reported Outcome Measure for palliative care: a mixed method study

• Open Access

Jahan Shabnam, Mette Raunkiær, Maiken Bang Hansen, Mogens Grønvold, Anders Løkke, Edina Nikolett Barna, Camilla Lykke, Tina Broby Mikkelsen, Cecilie Lindstöm Egholm

Can patient-reported data improve predictions about who will be a high-need, high-cost patient in British Columbia?

Logan Trenaman, Daphne Guh, Stirling Bryan, Kimberlyn McGrail, Mohammad Ehsanul Karim, Rick Sawatzky, Maggie Yu, Marilyn Parker, Kathleen Wheeler, Mark Harrison

Profiles of quality of life among US young adult cancer survivors and their associations with potential psychosocial intervention targets of hope and psychological flexibility

Carla J. Berg, Laura C. Schubel, Darcey M. McCready, Sheena Shajan, Palash Bhanot, Campbell Dopke, Afrah Howlader, Pamela S. Hinds, Jennifer Levine, Maureen E. Lyon, Pavani Chalasani, Hannah Arem

A nationwide, longitudinal collection of patient-reported outcomes from prostate cancer patients and controls

• Open Access

Y. M. Gjelsvik, T. Å. Myklebust, S. D. Fosså, E. S. Haug, R. Kvåle, G. Ursin, T. B. Johannesen

Family quality of life after brain injuries: a qualitative study on the perspectives of family members

• Open Access

José Luis Castillo, Alba Aza, María Fernández, Mari Storli Rasmussen, Nada Andelic, Miguel Ángel Verdugo

Lived experiences of the sexual and reproductive health consequences of parkinson’s disease and their impact on health-related quality of life in Ethiopia

Arefayne Alenko, Morankar Sudhakar, Legese Chelkeba, Ines Keygnaert