Quality of Life Research

• Open Access
• Review

Measurement properties of utility-based health-related quality of life measures in cardiac rehabilitation and secondary prevention programs: a systematic review

Norma B. Bulamu, Lemlem G. Gebremichael, Sonia Hines, Christine Mpundu-Kaambwa, Vincent Pearson, Hila A. Dafny, Maria Alejandra Pinero de Plaza, Alline Beleigoli, Billingsley Kaambwa, Jeroen M. Hendriks, Robyn A. Clark

• Review

Health state utility values in patients with Ankylosing Spondylitis: a systematic review and meta-analysis

JunChao Feng, KunTing Zhang, Lei Dou, Zhao Shi, Gang Chen, Shunping Li

• Review

Effect of breathing exercises on patients with interstitial lung disease: A systematic review and meta-analysis

Jia Fan, Yuyang Chang, Siming Cheng, Bing Liang, Danhua Qu

• Open Access

Introduction and validation of the open symptom framework: a public domain modular framework for patient-reported measurement of symptoms related to cancer and its treatment

C. Gibbons, G. Brown, S. C. Lu, A. Elrick, Y. Tang, M. Kaufman, M. Williams, C. Xu, C. Harrison, C. Swisher

• Open Access
• Correction

Correction: Introduction and validation of the open symptom framework: a public domain modular framework for patient-reported measurement of symptoms related to cancer and its treatment

C. Gibbons, G. Brown, S. C. Lu, A. Elrick, Y. Tang, M. Kaufman, M. Williams, C. Xu, C. Harrison, C. Swisher

Development of a PROMIS multidimensional cancer-related fatigue (mCRF) form using modern psychometric techniques

Cai Xu, Chris Sidey-Gibbons, Tamara E. Lacourt

How do patients interpret and respond to a novel patient-reported eastern cooperative oncology group performance status (ECOG)?

Rebecca Fillipo, Thomas W. Leblanc, Katelyn E. Plyler, Cara Arizmendi, Debra M. Henke, Theresa Coles

• Open Access

Relationship between reasons for intermittent missing patient-reported outcomes data and missing data mechanisms

Lene Kongsgaard Nielsen, Rebecca Mercieca-Bebber, Sören Möller, Louise Redder, Mary Jarden, Christen Lykkegaard Andersen, Henrik Frederiksen, Asta Svirskaite, Trine Silkjær, Morten Saaby Steffensen, Per Trøllund Pedersen, Maja Hinge, Mikael Frederiksen, Bo Amdi Jensen, Carsten Helleberg, Anne Kærsgaard Mylin, Niels Abildgaard, Madeleine T. King

• Open Access

Adaptation and content validation of measure yourself medical outcomes profile (MYMOP) for 7–11 year-old children

S. Ishaque, R. M. Roberts, J. Karnon, D. Thomas, A. B. Salter

• Open Access

Population-level norm values by EQ-5D-3L in Hungary - a comparison of survey results from 2022 with those from 2000

András Inotai, Dávid Nagy, Zoltán Kaló, Zoltán Vokó

Health-related quality of life in pregnant women with type 1 diabetes and associations with maternal and neonatal complications

Yixin Gong, Yujie Liu, Jing Wang, Tian Wei, Jinhua Yan, Daizhi Yang, Xueying Zheng, Jianping Weng, Sihui Luo

• Open Access

Factors associated with self-rated health in people with late-stage parkinson’s and cognitive impairment

Jennifer S. Pigott, Megan Armstrong, Nathan Davies, Daniel Davis, Bastiaan R. Bloem, Stefan Lorenzl, Wassilios G. Meissner, Per Odin, Joaquim J. Ferreira, Richard Dodel, Anette Schrag

Assessment of psychometric performance for the Chinese version of the Brief Inventory of Perceived Stress integrating exploratory graph analysis and confirmatory factor analysis

Runtang Meng, Chen Jiang, Daniel Yee Tak Fong, Igor Portoghese, Yihong Zhu, Karen Spruyt, Haiyan Ma

Demonstrating responsiveness of the pediatric cardiac quality of life inventory in children and adolescents undergoing arrhythmia ablation, heart transplantation, and valve surgery

Amy M. O’Connor, Amy Cassedy, Mitchell Cohen, Caren Goldberg, Jacqueline Lamour, William Mahle, Lynn Mahony, Kathleen Mussatto, Jane Newburger, Marc E. Richmond, Maully Shah, Kiona Allen, Brian Wolfe, Gil Wernovsky, Jo Wray, Bradley S. Marino

• Open Access

Quality of life outcomes for informal carers of long-term care service users in Austria, England and Finland

Ismo Linnosmaa, Lien Nguyen, Hanna Jokimäki, Eirini-Christina Saloniki, Juliette Malley, Birgit Trukeschitz, Assma Hajji, Julien Forder

• Open Access

Illness presentation and quality of life in myalgic encephalomyelitis/chronic fatigue syndrome and post COVID-19 condition: a pilot Australian cross-sectional study

Breanna Weigel, Natalie Eaton-Fitch, Kiran Thapaliya, Sonya Marshall-Gradisnik

Portrait of mental health identified by people with the post-covid syndrome

Nancy E. Mayo, Stanley Hum, Mohamad Matout, Lesley K Fellows, Marie-Josée Brouillette

Disabled from work and depressed: cognitive factors associated with exacerbated or attenuated depression over the COVID-19 pandemic

Carolyn E. Schwartz, Katrina Borowiec

• Open Access

Perceived health-related quality of life in people living with HIV co-infected with SARS-CoV-2 in France

Yvenie Amboise, Issifou Yaya, Lisa. Yombo-Kokule, Guillaume Roucoux, Arnaud Nze Ossima, Marie Preau, James W. Griffith, Fabienne Marcellin, Olivier Chassany, Antoine Cheret, Martin Duracinsky

• Open Access

The relationship between healthcare access and change in health-related quality-of-life among the general population of five countries during the COVID-19 pandemic

Nadja Alexandrov, Emily Stella Scott, Mathieu F. Janssen, Erica I. Lubetkin, John N. Yfantopoulos, Gouke J. Bonsel, Juanita A. Haagsma

Androgen deprivation therapy in advanced prostate cancer: insights from a real-world patient survey on health-related quality of life and information and communication sources

Renée Bultijnck, Luc De Laere, Rony De Grande, Thijs Develter, Sophie Vantieghem, Pieter Uvin, Christophe Ghysel, Bram De Laere

• Open Access

Lower extremity physical function and quality of life in patients with stroke: a longitudinal cohort study

Michelle Ryan, Roland Rössler, Nikki Rommers, Laura Iendra, Eva-Maria Peters, Reto W. Kressig, Arno Schmidt-Trucksäss, Stefan T. Engelter, Nils Peters, Timo Hinrichs

• Open Access

What are the perspectives of patients with hand and wrist conditions, chronic pain, and patients recovering from stroke on the use of patient and outcome information in everyday care? A Mixed-Methods study

Grada R. Arends, Nina L. Loos, Yara E. van Kooij, Kasia Tabeau, Willemijn A. de Ridder, Ruud W. Selles, Joris Veltkamp, Robbert M. Wouters

• Open Access
• Correction

Correction: What are the perspectives of patients with hand and wrist conditions, chronic pain, and patients recovering from stroke on the use of patient and outcome information in everyday care? A Mixed-Methods study

Grada R. Arends, Nina L. Loos, Yara E. van Kooij, Kasia Tabeau, Willemijn A. de Ridder, Ruud W. Selles, Joris Veltkamp, Robbert M. Wouters