Quality of Life Research

Psychometric properties, and cultural appropriateness, of patient reported outcome measures for use in primary healthcare: a scoping review

• Open Access
• Review

Christopher M. Doran, Jamie Bryant, Erika Langham, Roxanne Bainbridge, Anthony Shakeshaft, Breanne Hobden, Sara Farnbach, Megan Freund

Disutilities of treatment-related attributes for type 2 diabetes mellitus: a systematic review

• Review

Shitong Xie, Xinran Liu, Meixuan Li, Jing Wu

Exploring the origin and conceptual framework of the EQ VAS

• Open Access
• Review

Ling-Hsiang Chuang, Paul Kind, Thomas Kohlmann, You-Shan Feng

Depicting patient-reported outcome measures within directed acyclic graphs: practice and implications for causal reasoning

• Open Access
• Commentary

Matthew Franklin, Tessa Peasgood, Peter W. G. Tennant

Use of a generic Paediatric Patient Reported Outcome Measure (P-PROM) in Routine hospital Outpatient Care for Kids (ROCK): A qualitative exploration of adolescent, caregiver and service provider perspectives (P-PROM ROCK Phase 1)

• Open Access

Renee Jones, Kim Dalziel, Harriet Hiscock, Alexander van Heudsen, Nancy Devlin

“If we ask, we must act”: co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2)

• Open Access

Renee Jones, Kim Dalziel, Harriet Hiscock, Karen McLean, Diana Truong, Andrew Tuan Phuong Dao, Kathe Holmes, Kath Feely, Jessica Taranto, Abby Palmer, Tanya Wolfe, Penny Richards Fowler, Kirsten Pini, Max Pini, Einat Martonovich-Lantsberg, Joanna Lawrence, Misel Trajanovska, Adele Berry, Valerie Sung, Sebastian King, Nancy Devlin

Developing and testing a patient-reported outcome measure for patients with sleep disturbances using EQ-5D and condition-specific bolt-ons: a mixed method study

Ai-Ping Chua, Aureliano Paolo Finch, Shaffinaz Abd Rahman, Mary Anne Relimbo Dela Cruz, Emelita Naval Montaniel, Kaayathiri Ravichandran, Nan Luo

Long-COVID symptom burden and the experience of adversity: the importance of response-shift effects over 3 years of the pandemic

Carolyn E. Schwartz, Katrina Borowiec, Bruce D. Rapkin

Frequency and severity response scales for pain and discomfort: psychometric insights from EQ-HWB

• Open Access

Soumana C. Nasser, A. Simon Pickard, Jonathan L. Nazari, Maja Kuharic

How well do participants understand the questions asked in the Online Personal Utility Functions (OPUF) approach? A cognitive debrief of the EQ-HWB-S (EQ Health and Wellbeing Short version) valuation

• Open Access

Tessa Peasgood, Nancy Devlin, Kristina Ludwig, Ole Marten, Emily McDool, Paul Schneider, Koonal Shah, Clara Mukuria

Anchor questions to improve patient-reported outcome measure interpretability in patients undergoing knee or hip arthroplasty - a mixed-methods content validity, construct validity, and reliability study

• Open Access

Lasse K. Harris, Trine S. Larsen, Berend Terluin, Henrik H. Lauridsen, Anders Troelsen, Lina H. Ingelsrud

Quality of life and access to treatment for patients with multiple sclerosis during economic crisis: the Lebanese experience

Maya Zeineddine, Ghida Ismail, Malak Issa, Taghrid El-Hajj, Hassan Tfaily, Mohamad Dassouki, Elie Assaf, Halim Abboud, Pascale Salameh, Amal Al-Hajje, Farid Boumediene, Bassem Yamout

Impact of early-life food deprivation on health-related quality of life among older people in China: evidence from CHARLS

Jingwen Liu, Wenfeng Lu, Yue Wang, Yaqi Wang, Xueying Xu, Yuan He, Qingyun Lv, Hairong Chang, Yue Zhao, Xiaonan Zhang, Xiaoying Zang, Na Wei

Factors influencing participation in home, school, and community settings by 6- to 9-year-old children born preterm: a qualitative descriptive study

• Open Access

Tiffany K. Bradshaw, James T. D. Gibbons, Andrew C. Wilson, Amber Bates, Shannon J. Simpson, Jenny Downs

Customizing workflows for electronic patient-reported outcome (ePRO) symptom monitoring using the action, actor, context, target, time (AACTT) framework

• Open Access

Julia Lai-Kwon, Claudia Rutherford, Michael Jefford, Iris Zhang, Catherine Devereux, Dishan Herath, Kate Burbury, Stephanie Best

Health-related quality of life trajectories in older adult long-term survivors of colorectal cancer

Sherry A. Burrell, Margaret M. Brace, Gabrielle E. Sasso, Meredith MacKenzie Greenle

Adherence to daily electronic symptom screening in pediatric cancer: associations with time, location and pain

• Open Access

Jonas Dreher, Andreas Meryk, Johannes M. Giesinger, Verena Schneeberger-Carta, David Riedl, Alexandra Haid, Gabriele Kropshofer, Benjamin Hetzer, Gerhard Rumpold, Bernhard Holzner, Roman Crazzolara, Jens Lehmann

The comprehensibility and feasibility of the modified brief pain inventory and fear of pain questionnaire adapted for children and young people with cerebral palsy

• Open Access

Meredith Grace Smith, Rachel J. Gibson, Mathew Schibani, Remo N. Russo, Abirami Thirumanickam, Adrienne R. Harvey

Associations between dyadic coping, mutuality, and quality of life among maintenance hemodialysis patients and caregivers: an actor–partner interdependence mediation model

Yan Liu, Zhenying Wei, Libao Jing, Zhun Sui, Pengcheng Fu, Xiurong Chen, Guiling Yu

Neurocognitive impairment and patient-proxy agreement on health-related quality of life evaluations in recurrent high-grade glioma patients

• Open Access

Ivan Caramanna, Martin Klein, Martin van den Bent, Ahmed Idbaih, Martin J. B. Taphoorn, Linda Dirven, Thierry Gorlia, Jaap C. Reijneveld

A qualitative study on the return to work experiences and views of young and middle-aged patient with chronic kidney disease

Jiaxing Zhou, Yi Wen, Difei Duan, Wenqiao Li, Lian Xue, Dengyan Ma

Correction: Quality of life among women with symptomatic, screen‑detected, and interval breast cancer, and for women without breast cancer: a retrospective cross‑sectional study from Norway

• Open Access
• Correction

Nataliia Moshina, Ragnhild S. Falk, Edoardo Botteri, Marthe Larsen, Lars A. Akslen, John A. Cairns, Solveig Hofvind