Quality of Life Research

Implementation of PRISMA-COSMIN for OMIs 2024 to strengthen evidence-based health-related research in China: comments from the Chinese PRO SIG

• Letter to the Editor

Wenjie Duan, Ziqian Ma

Proxy reporting in health: a scoping review of instructions, perspectives, and reporting experiences

• Open Access
• Review

Henok Dagne, Kathleen Doherty, Julie Campbell, Alice Saul, Jessica Roydhouse

A patient first perspective of sleep disturbance across therapeutic areas: a systematic literature review of qualitative studies

• Open Access
• Review

Kyle Riedmann, Sean Gay, Sarah Averill Lott, Jonathan Berent, Derek L. Buhl, Joseph M. Dzierzewski, Nina Shaafi Kabiri, Frank Kramer, Michael Kremliovsky, Christian Seitz, Dries Testelmans, Kevin Thomas, Herman de Vries, Piper Fromy

A COSMIN systematic review of generic patient-reported outcome measures in Switzerland

• Open Access
• Review

Thanh Elsener, Matthew Kerry, Nikola Biller-Andorno

Interpreting the meaningfulness of treatment effects estimated in parallel groups designs: comment on Trigg et al.

• Commentary

Kevin Weinfurt

Explanation & Elaboration document of the COSMIN Reporting Guideline 2.0 for studies on measurement properties of patient-reported outcome measures

Guilherme Tavares de Arruda, Caroline B. Terwee, Ellen B. M. Elsman, Mariana Arias Avila, Joel J. Gagnier, Lidwine B. Mokkink, Almir Vieira Dibai-Filho, Andrew D. Firth, Ava Mehdipour, Christos Mousoulis, Conrad J. Harrison, John Devin Peipert, Karen Matvienko-Sikar, Kirstie L. Haywood, Leonie H. Klaufus, Letícia Bojikian Calixtre, Luiz A. Brusaca, Mark A. Dubbelman, Nan Luo, Patricia Driusso, Sandrine Herbelet

COSMIN reporting guideline for studies on measurement properties of patient‑reported outcome measures: version 2.0

Joel J. Gagnier, Guilherme Tavares de Arruda, Caroline B. Terwee, Lidwine B. Mokkink, Ellen B. M. Elsman, Andrew D. Firth, Ava Mehdipour, Cheryl D. Coon, Jakob Bue Bjorner, John Devin Peipert, Kirstie L. Haywood, Melanie J. Calvert, Martin Offringa, Mariana A. Avila, Olalekan Lee Aiyegbusi, Bryce B. Reeve, Rasa Ruseckaite, Christian Apfelbacher, Richard Sawatzky, Dorcas Beaton, Sara Ahmed

The caregiver burden of idiopathic inflammatory myopathies

Parker Brady, Roberto Sergio Hernandez, Amber Salter, Catherine Hua, Lynn Wilson, Manuel Lubinus, Yuan-Pai Hu, Dhruv Nandakumar, Abhiram R. Bhashyam, Salman Bhai

The humanistic burden of focal segmental glomerulosclerosis on patients and care-partners in the United States

• Open Access

Justyna Szklarzewicz, Ute Floege, Daniel Gallego, Keisha Gibson, Kamyar Kalantar-Zadeh, Kelly Helm, Dale Robinson, Bonnie Schneider, Philip Smith, Kjell Tullus, Ali Poyan-Mehr, Bruce Hendry, Bridget L. Balkaran, Adam K. Jauregui, Aolin Wang, Ian Nason, Nisha C. Hazra, Chunyi Xu, Jingyi Liu, Zheng-Yi Zhou, Mark Bensink

Reporting heterogeneity and health measurement bias in older adults: nationwide cross-sectional study

Qingwen Deng, Yu Xia, Yi Yang, Shimeng Liu, Yingyao Chen

Health-related quality of life after spontaneous subarachnoid hemorrhage – a prospective cohort study

• Open Access

Verena Rass, Anna Berek, Klaus Altmann, Elisabeth Goettfried, Philipp Kindl, Raimund Helbok, Alois Schiefecker, Bettina Pfausler, Laura Zamarian, Ronny Beer

Measuring the health outcomes of Chinese ischemic stroke patients based on the data from a longitudinal multi-center study

• Open Access

Luying Wang, Xin Guan, Jiting Zhou, Hongfei Hu, Wei Liu, Qiran Wei, Yining Huang, Weiping Sun, Xuejing Jin, Hongchao Li

Effects of WeChat-based EPIC training on health-related quality of life, attribution and life attitude in women newly diagnosed with breast cancer: a clinical randomized controlled trial

Kaina Zhou, Xiao Wang, Yan Wang, Ailan Liu

Association between sarcopenic obesity, obesity, sarcopenia and quality of life in middle-aged and older Chinese: the Guangzhou Biobank Cohort Study

• Open Access

Jing Yi Chen, Jiao Wang, Ya Li Jin, Kar Keung Cheng, Tai Hing Lam, Wei Sen Zhang, Lin Xu

Health-related quality of life and economic impacts in adults with transfusion-dependent β-thalassemia: findings from a prospective longitudinal real-world study

• Open Access

Jennifer Drahos, Adriana Boateng-Kuffour, Melanie Calvert, Laurice Levine, Neelam Dongha, Nanxin Li, Zahra Pakbaz, Farrukh T. Shah, Nick Ainsworth, Antony P. Martin

Health-related quality of life and economic impacts in adults with sickle cell disease with recurrent vaso-occlusive crises: findings from a prospective longitudinal real-world survey

• Open Access

Jennifer Drahos, Adriana Boateng-Kuffour, Melanie Calvert, Ashley Valentine, Anthony Mason, Nanxin Li, Zahra Pakbaz, Farrukh T. Shah, Nick Ainsworth, Antony P. Martin

Understanding data visualization techniques in qualitative studies used to develop and validate patient-reported outcome measures: a targeted literature review

Caroline Seo, Sophia Hu, Bellinda L. King-Kallimanis, Ashley E. Chang, Antoine Regnault, Amitai S. Miller, Manraj N. Kaur

Quality of life and cost-utility analysis in patients with femoral neck fracture: a propensity score matching study comparing monopolar hemiarthroplasty and total hip arthroplasty

Juan Miguel Gómez-Palomo, Ana Martínez-Crespo, Julieta Passini-Sánchez, Nikita Ignatyev-Simonov, Plácido Zamora-Navas, Enrique Guerado

Longitudinal impact of stigma resistance on mental health among individuals with mental disorders

• Open Access

Kevin Ka Shing Chan, Jack Ka Chun Tsui

Multi-dimensional frailty and Oral Health-Related Quality-of-Life in older adults: a cross-sectional study

• Open Access

Ana Cristina Mafla, Mauricio Herrera-López, Bruno Gutiérrez-Quiceno, Nico De Witte, Falk Schwendicke

Evaluating an electronic patient-reported outcome monitoring system in patients with prostate cancer in routine clinical care: a prospective observational study

• Open Access

Samuel M. Vorbach, Francesco Sparano, Stefanie Kreissl, David Riedl, Manuel P. Sarcletti, Angela Ginestet, Bernhard Holzner, Ute Ganswindt, Jens Lehmann

The moderating effect of family socioeconomic status in the relationship between health-related behaviors and quality of life among the Hakka older adults in Fujian, China

• Open Access

Rongrong Liu, Jinghong Huang, Longhua Cai, Wenji Qiu, Xiaojun Liu

Exploratory analysis of electronic patient-reported outcomes collection: comparing online and in-clinic modalities in cancer care

• Open Access

Eric Adjei Boakye, Mrudula Nair, Nada Al-Antary, Carl Wilson, Katelyn Kerr, Theresa M. Zatirka, Kelly A. Hirko, Farah Elsiss, Steven S. Chang, Benjamin Movsas, Michael Ryan, Samantha Tam

Health-related quality of life among patients with rheumatoid arthritis in Zanzibar: a prospective cohort study

• Open Access

Sanaa S. Said, Kjell Arne Johansson, Tone Wikene Nystad, Johnson Jeremia Mshiu, Bjorg-Tilde Svanes Fevang