Quality of Life Research

Advancing response-shift assessment: insights and directions from a series of ISOQOL SIG meetings

• Letter to the Editor

I-Chan Huang, Gudrun E. Rohde, Justin N. Baker

A systematic review of outcome measurement instruments used in pouch anal and vaginal fistulae: a COSMIN-based analysis

• Open Access
• Review

Easan Anand, Shivani Joshi, Lillian Reza, Kapil Sahnan, Phillip Lung, Ailsa Hart, Phil Tozer

Strategies to promote the completion of patient-reported outcome measures by culturally and linguistically diverse and Indigenous Peoples in clinical care settings: A systematic review

• Open Access
• Review

Jessica Nikolovski, Bora Kim, Rachael L. Morton, Rebecca Mercieca-Bebber, Jean-Frédéric Levesque, Melissa Tinsley, Kim Sutherland, Brad Rossiter, Margaret Fagan, Gill Hartas, Claudia Rutherford

Placebo response variability on health-related quality of life outcomes in irritable bowel syndrome: an arm-based network meta-analysis

• Review

Zhenzhi Wang, Yukun Chen, Xinyu Li, Li Lin, Bozhu Chen, Min Chen, Hui Zheng

Examining differential item functioning in self-reported health survey data: via multilevel modeling

• Review

Dandan Chen Kaptur, Yiqing Liu, Bradley Kaptur, Nicholas Peterman, Jinming Zhang, Justin L. Kern, Carolyn Anderson

Understanding the health-related quality of life impacts of caring for children and adolescents with rare progressive life-limiting conditions: key challenges and future research priorities

• Open Access
• Commentary

Philip A. Powell, Jill Carlton, Tessa Peasgood, Fleur Chandler, Josie Godfrey, Emily Reuben

Evaluating the content validity of the EQ-5D-Y for Chinese children and adolescents

• Open Access

Yifan Ding, Guangjie Zhang, Zhihao Yang, Yue Sun, Anle Shen, Zhuxin Mao, Pei Wang, Jan Busschbach

Correction to: Evaluating the content validity of the EQ-5D-Y for Chinese children and adolescents

• Open Access
• Correction

Yifan Ding, Guangjie Zhang, Zhihao Yang, Yue Sun, Anle Shen, Zhuxin Mao, Pei Wang, Jan Busschbach

Enabling six- to ten-year-old children to self-report their wellbeing and quality of life: development and psychometric investigation of an age-adapted and video-assisted version of the KIDSCREEN-27

• Open Access

Mette Kurtzhals, Paulina Sander Melby, Peter Elsborg, Peter Bentsen, Caroline Eckert, Malte Nejst Larsen, Glen Nielsen

Psychometric properties of the Hebrew KIDSCREEN 52, 27 and 10 items: a cross-sectional study of self and parents reports in youth with and without physical disabilities

Sharon Barak, Jana Landa, Etzyona Eisenstein, Dafna Guttman, Tamar Silberg

Young children (6–7 years) can meaningfully participate in cognitive interviews assessing comprehensibility in health-related quality of life domains: a qualitative study

• Open Access

Victoria Gale, Philip A. Powell, Jill Carlton

Family functioning and health-related quality of life in children and young adults with Marfan syndrome

Lauren S. Crafts, Lynn A. Sleeper, Karen Uzark, Andrew M. Atz, Timothy J. Bradley, Elizabeth Cappella, Veronica Fettig, Georgeann Keh Teng Groh, Michelle S. Hamstra, Christina Hartje-Dunn, Jami C. Levine, Ian Lindsay, Aaron K. Olson, Gretchen MacCarrick, Larry W. Markham, Tonia Morrison, Reed E. Pyeritz, Seda Tierney, Ronald V. Lacro

Recovery trajectories after a serious injury or illness: a longitudinal evaluation of health-related quality of life in an Australian cohort

• Open Access

Clifford Afoakwah, Paul Kuwornu, Isaac Koomson, David Brain, Qing Xia, Steven McPhail, Kirsten Vallmuur

Blood ammonia and eye-hand coordination negatively affect health-related quality of life in women with minimal hepatic encephalopathy

• Open Access

Daniela Batallas, Juan José Gallego, Franc Casanova-Ferrer, Alessandra Fiorillo, Pablo Rivas-Diaz, Adrià López-Gramaje, Yaiza M. Arenas, Luis Aparicio, Desamparados Escudero-García, Lucía Durbán, María-Pilar Rios, Salvador Benlloch, Amparo Urios, Vanesa Hidalgo, Carmina Montoliu, Alicia Salvador

Impact of a minimal monitoring HCV treatment approach on Health-Related Quality of Life

Thiago S. Torres, Pooja T. Saha, Laura Smeaton, Chanelle Wimbish, Dimas Alexandre Kliemann, Anchalee Avihingsanon, Cissy Kityo, Jaclyn Ann Bennet, Marije Van Schalkwyk, Benjamin Linas, Estevao Portela Nunes, Gregory K. Robbins, David Wyles, Susanna Naggie, Mark Sulkowski, Sandra Wagner Cardoso, Sunil Solomon

Trajectory of quality of life among patients with cancer at the end of life: a longitudinal survey study

• Open Access

Henriette Tind Hasse, Trine Kjær, Søren Rud Kristensen

Associations between financial toxicity, health-related quality of life, and well-being in Indonesian patients with breast cancer

• Open Access

Stevanus Pangestu, Fredrick Dermawan Purba, Hari Setyowibowo, Clara Mukuria, Fanni Rencz

Relationship between core symptoms, function, and quality of life in colorectal cancer patients: a network analysis

Wenqian Qi, Ruzhen Zhou, Qun Qiu, Jing Cui

Development of self-report measures of physical, mental, and emotional fatigability: the michigan fatigability index (MIFI)

Anna L. Kratz, Noelle E. Carlozzi, Susan L. Murphy, Tiffany J. Braley, Daniel Whibley, David A. Williams, Nora E. Fritz, Michael Kallen

Determining minimal clinically important differences in ecological momentary assessment measures of fatigue in people with multiple sclerosis

• Open Access

Sonia Sharma, Tiffany J. Braley, Kevin N. Alschuler, Dawn M. Ehde, Anna L. Kratz

Health-related social needs mitigate ethnoracial inequities in patient-reported mental health

Manraj N. Kaur, Chengbo Zeng, Sri Harshini Malapati, Nadine J. McCleary, Peter Meyers, Allison S. Bryant, Andrea L. Pusic, Maria O. Edelen

Effect of impairment on health-related quality of life in people with multiple sclerosis: association of functional systems and EQ-5D-5L index values in a cross-sectional study

• Open Access

Richard Schmidt, Andreas Starke, Natalie Bednarz, Florian Then Bergh

Valuing health‐related quality of life: an EQ‐5D‐5L value set for Morocco

• Open Access

Asmaa Azizi, Amal Boutib, Doha Achak, Fredrick Dermawan Purba, Fanni Rencz, Elmadani Saad, Abderraouf Hilali, Samir Ahid, Chakib Nejjari, Elly A. Stolk, Bram Roudijk, Ibtissam Youlyouz-Marfak, Abdelghafour Marfak

A weighted predictive modeling method for estimating thresholds of meaningful within-individual change for patient-reported outcomes

Chong-Ye Zhao, Min-Qian Yan, Xiao-Han Xu, Chun-Quan Ou

Feasibility of implementing a codesigned patient reported outcome measures (PROMs) collection system for older adults in acute and sub-acute hospital settings

David A. Snowdon, Lucy Marsh, Velandai Srikanth, Richard Beare, Rebecca Barnden, Emily Parker, Nadine E. Andrew

Patient experience of alpha-1 antitrypsin deficiency-associated liver disease: a qualitative study

• Open Access

Virginia C. Clark, Suna Park, Robert Krupnick, Nicole Sparling, Jason Ritchie, Chitra Karki, Justin A. Reynolds