Quality of Life Research

Understanding the burden of congenital cytomegalovirus (cCMV) infection: concept elicitation interviews with caregivers of pediatric cCMV patients and development of a conceptual disease model

• Open Access

Brooke M. Currie, Georges Van Kriekinge, Aurélie Pimienta, Cory D. Saucier, K. D. Jacobs, Laura Tesler Waldman, Christine M. Salvatore

Assessing the assessment: a scoping review of the mode of patient-reported outcome assessment in solid cancer clinical trials

• Open Access

Niclas Hubel, Daniela Krepper, Lotte van der Weijst, Abigirl Machingura, Claudia Seidl, Samuel M. Vorbach, Michelle Veil, Johannes M. Giesinger, Monika Sztankay, Scottie Kern, Deborah Fitzsimmons, Dagmara Kuliś, Madeline Pe, Bernhard Holzner, Jens Lehmann

Biases in the measurement of health-related quality of life in the EQ-5D-5L among those with serious physical traumatic injuries: the ADVANCE cohort study

• Open Access

Daniel Dyball, Susie Schofield, Howard Burdett, Pete LeFeuvre, Alexander N. Bennett, Paul Cullinan, Christopher J. Boos, Anthony M. J. Bull, Nicola T. Fear

Quality of life surveys developed or validated in children or youth with special healthcare needs: a scoping review

Stefanie G. Ames, Margaret Comeau, Christie Piper, Bethlynn Vergo Houlihan, Kirk Bjella, Hannah Friedman, Steph Lomangino, Isabel K. Taylor, Charlene Shelton, Christopher J. Stille

Circadian preference and quality of life in adults with autism spectrum disorder: a Brazilian cross-sectional self-reported survey

• Open Access

Júlia Grillo Lima, Mônica Thaís S. Macedo, Thais de Oliveira F. Baldo, Marcelo Perim Baldo

Comorbidity patterns and health-related quality of life in a cohort of Australian women cancer survivors

• Open Access

Haoyu Zhang, Xue Qin Yu, Michael David, Julie Byles, Mei Ling Yap, Julia Steinberg, Claudia Rutherford, Emily Banks, Karen Canfell, Md Mijanur Rahman

The impact of testing positive versus negative for COVID-19 on health-related quality of life: cross-sectional evidence from the Alberta post-COVID-19 follow-up survey

• Open Access

Erin Kirwin, Elham Adibnia, Megan Wiggins, Beate Sander, Feng Xie, Arto Ohinmaa, Jeffrey A. Johnson, Colleen Norris, Ellen Rafferty, Shannon E. MacDonald, Jeff Round

Real-world evaluation of health-related quality of life in hematology patients treated with rituximab: results of a multicentric cross-sectional cohort study

Silvana A. M. Urru, Flavia Mayer, Stefania Spila Alegiani, Francesca Paoloni, Anna Guella, Roberta Murru, Giampaolo Bucaneve, Giulio Formoso, Vito Racanelli, Anna Forti, Claudio Fozza, Giuseppe Longo, Chiara Fulgenzio, Felice Musicco, Annalisa Campomori

Dual trajectories of capacity management behavior and quality of life in hemodialysis patients: a longitudinal study

Mengyuan Zhang, Yingying Cai, Yue Hou, Bin Ma, Ou Chen

The minimal clinically important difference for the patient activation measure in a culturally and linguistically diverse cohort with chronic conditions

• Open Access

Robert Boland, Joseph Descallar, Justine M. Naylor, Gavin Williams, Bernadette Brady

Transcultural translation and adaptation of EuroQol’s EQ-5D-5L for Nepal: process description and recommendations for an interpretation guide

Ritika Singh, Kalpana Bhattarai, Dristy Gurung, Mani Neupane, Sarah Derrett, Bianca Smit, Sauharda Rai, Brandon A. Kohrt

Engagement is more than a checkbox: a patient’s perspective

• Letter to the Editor

Hugo de Oliveira Campos

Understanding decision-making strategies in discrete choice experiment tasks when valuing health states that include duration, a cognitive interview study with Australian adults

• Open Access

Tessa Peasgood, Jill Carlton, Richard Norman, Donna Rowen, Marcel Jonker

Effects of nonpharmacological interventions on post-stroke quality of life: a systematic review, meta-analysis, and meta-regression

• Review

Ha-Young Park, Insun Yeom

Cancer-specific or generic preference-based measures in oncology? A validity comparison across six commonly diagnosed cancers

Yiyin Cao, Sakhno Alina, Zitong Li, Haofei Li, Jiaxuan Shi, Runhong Li, Weidong Huang, Hongjuan Yu

The semantic differential questionnaire format warrants consideration for use in healthcare settings

• Open Access

Ariel Pons, Kate Sneddon, Gillian Whalley, Crispin Jenkinson, David Morley, Sean Coffey

The adult social care outcomes toolkit easy read for older people (ASCOT-ER OP): an exploratory factor analysis and Rasch validation study

• Open Access

Stacey Rand, James Caiels, Rasa Mikelyte, Ann-Marie Towers

Post-COVID-19 physical and mental quality of life: a latent profile analysis and predictive factors

• Open Access

Marco Viola, Silvia Testa, Carlotta Sacerdote, Manolis Kogevinas, Eva Pagano, Rosalba Rosato

Mapping the neglected topic in head and neck paraganglioma research: a PRISMA scoping review on quality of life

• Open Access
• Review

Djenghiz P. S. Samlal, Marina Hristova, Angelika Albrecht, Joerg Schipper, Thijs T. G. Jansen, Corinne P. A. Delsing, Henricus P. M. Kunst

Additional interventions for enhancing the quality-of-life of older adults using hearing aids: a systematic review and narrative synthesis

• Open Access
• Review

Minji Kang, Yunji Han, Hyejoon Kim

Impact of body weight on quality of life trajectories following metabolic bariatric surgery in individuals with obesity: a longitudinal study

Shu-Fen Wu, Ruey-Hsia Wang, Tien-Chou Soong, Yen-Hao Su, Shu-Fen Wung, Pei-Chao Lin

Muscle quality beyond muscle mass: implications for health-related quality of life in breast cancer survivors

• Letter to the Editor

Ozden Altundag, Kadri Altundag

Estimating the minimal clinically important difference for the Myasthenia Gravis Quality of Life revised scale (MG-QOL15R)

• Open Access

Ângela Jornada Ben, Febe Brackx, Glenn Phillips, Carolina Barnett-Tapia, Cynthia Qi, Fanni Rencz, Sarah Dewilde

Qualitative insights from patient/caregivers, and clinicians on routine use of the EQ-5D-Y-5L in clinical paediatric care—results from a pilot feasibility and acceptability trial

• Open Access

Renee Jones, Kathe Holmes, Nancy Devlin, Kim Dalziel, Harriet Hiscock

Selecting the optimal MIC for five patient-reported outcome measures in patients with upper extremity injuries, using a systematic search and step-by-step decision tree

• Open Access
• Review

S. G. J. Suus van Bruggen, F. L. Floortje Opperman, E. P. Ilse Jansma, C. M. Charlotte Lameijer, F. W. Frank Bloemers, C. B. Caroline Terwee

Correction: Evaluating the psychometric properties of patient-reported outcome measurements for urolithiasis: a COSMIN-based systematic review

• Correction

Xue Wang, Ting Wang, Yi Zhou, Xuechao Liu, Lu Han, Yixuan Yang, Jun Xue, Li Fu, Shen Gao

Correction: Health-related quality of life in patients receiving medicinal cannabis: systematic review and meta-analysis of primary research findings 2015–2025

• Open Access
• Correction

Margaret-Ann Tait, Louise Acret, Daniel S. J. Costa, Rachel Campbell, Kate White, Claudia Rutherford