Quality of Life Research

Changes in health-related quality of life during outpatient rehabilitation: a prospective observational cohort study in four patient groups

• Open Access

Daniëlla M. Oosterveer, Maud E. H. Ophelders, Bianca M. P. Mourits, Eline W. M. Scholten, Johanna M. A. Visser-Meily, Joris A de Graaf

Quality of life among older informal caregivers in Sweden: the role of loneliness and social isolation

• Open Access

Mariam Kirvalidze, Maider Mateo-Abad, Giorgi Beridze, Amaya Bernal-Alonso, Maria João Forjaz, Carmen Rodríguez-Blázquez, Amaia Calderón-Larrañaga

Patients’ interpretations of individual PROMIS-10 Global Health items: a cognitive interview study in high-impact chronic pain

• Open Access

Emily Sophia Madley, Henrik Bjarke Vaegter, Line Marie Saugmann Razinak, Daniel Broholm, Sophie Lykkegaard Ravn

Air pollution and heat wave seriously affect the quality of life of children with obstructive sleep apnea

Huilei Wu, Xiaorong Fu, Qingqing Yu, Zhenhui Yang, Xiaolong Su, Weidong Wu, Guofu Zhang, Hui Wu

Generic instruments for assessing self-management abilities and behaviors in patients with chronic diseases: a COnsensus-based standards for the selection of health measurement INstruments (COSMIN)-based systematic review

• Review

Ke Liu, Guangyan Meng, Caixia Li, Shuyi Wang, Xianwen Fan, Qirong Chen

Health-related quality of life in patients receiving medicinal cannabis: systematic review and meta-analysis of primary research findings 2015–2025

• Open Access
• Review

Margaret-Ann Tait, Louise Acret, Daniel S. J. Costa, Rachel Campbell, Kate White, Claudia Rutherford

Mixed-Methods to Define Meaningful Change using Exit Interviewand Clinical Trial Data in Patients with Tenosynovial Giant Cell Tumor (TGCT)

• Open Access

Heather L. Gelhorn, Katelyn N. Cutts, Brooke Harrow, Christopher Tait, Amanda Saunders, Tsion Fikre, Yipin Han, Nicholas A. Zeringo, Michiel Van De Sande, William Tap, Hans Gelderblom, Nicholas Bernthal

Analysis of quality-adjusted survival time without symptoms or toxicity for pembrolizumab plus chemotherapy as treatment for previously untreated participants with advanced or metastatic esophageal cancer

• Open Access

Ying Zhang, Marc Diez Garcia, Sukrut Shah, Seongjung Joo, Adriana Valderrama, Shujing Zhang, Peter C. Enzinger

Impact of adverse childhood experiences on health-related quality of life in Australian women with endometriosis: a population-based cohort study

• Open Access

Dereje G. Gete, Jenny Doust, Sally Mortlock, Jason Abbott, Gita D. Mishra

Unconscious death thoughts: Do they play a role in time trade-off and visual analogue scale scores for health?

• Open Access

Peep Stalmeier, Fanni Rencz, Bastiaan Rutjens, Bram Roudijk

Predicting health-related quality of life for patients with gastroesophageal cancer

• Open Access

Steven C. Kuijper, Irene Cara, Gijs Geleijnse, Marije Slingerland, Grard A. P. Nieuwenhuijzen, Sjoerd M. Lagarde, Bastiaan R. Klarenbeek, Ewout A. Kouwenhoven, Richard van Hillegersberg, Rob H. A. Verhoeven, Hanneke W. M. van Laarhoven

Testing culturally relevant EQ-5D-5L bolt-ons for the Chinese general population: first quantitative phase of a mixed methods study

Jingzhi Fan, Zhuxin Mao, Fanni Rencz, Zhihao Yang, Nan Luo, Pei Wang

Longitudinal associations between congruence in dyadic care type and health-related quality of life among multiple chronic conditions patient–caregiver dyads

Maddalena De Maria, Jeffrey E. Stokes, Manuela Saurini, Ercole Vellone, Davide Ausili, Maria Matarese, Harleah G. Buck, Elliane Irani

Is EQ-5D-5L sensitive enough to detect treatment-related changes in health status of prostate cancer patients? A nationwide Norwegian longitudinal study from the prostate cancer registry

• Open Access

Marjolein M. Iversen, J. Kirkeleit, T. M. Norekvål, K. Oterhals, Y. Gjelsvik, T. B. Johannesen, K. Breivik

Psychometric properties comparison of EQ-5D-Y-3L and CHU9D in children and adolescents across different BMI classifications in Jiangsu, China

Junyan Liang, Huibin Dong, Juan Yang, Xinpeng Xu, Qifeng Wu, Minjia Gu, Honggang Yi, Li Liu, Hua You

Making sense of PROM outcomes: a mixed method study to optimize graphical visualization formats for children

• Open Access

Selina Limmen, Maud M. van Muilekom, Dorinde L. Korteling, Lorynn Teela, Maarten Boers, Caroline B. Terwee, Hedy A. van Oers, Lotte Haverman, Michiel A. J. Luijten

Predicting health-related quality of life two years post-diagnosis across seven cancer types: using machine learning to identify vulnerable patients

• Open Access

Willemijn F. Oudijk, Belle H. de Rooij, Koen J. van Benthem, Rampal S. Etienne, Simone Oerlemans, Helena M. Verkooijen, Katja K. H. Aben, Geraldine R. Vink, Anne M. May, Floortje Mols, Dimitris Katsimpokis, Nicole P. M. Ezendam

Health-related quality of life among adults with chronic diseases: a linked, retrospective cohort study using the EQ-5D-5L in Queensland, Australia

• Open Access

Takuto Endo, Susan Linden Clemens

Qualitative testing of the EQ-HWB-9 with a ‘blank’ EQ-HWB VAS and EQ-5D-5L with skin bolt-ons in a rare genetic skin disease population

• Open Access

Zseraldin Metyovinyi, Dóra Plázár, Krisztina Becker, Márta Medvecz, Fanni Rencz

Quality of life, anxiety and cancer worry following hereditary cancer testing: a 6-month Swedish follow-up study

• Open Access

Ylva Heyman, Hanna Röjlar, Carolina Hawranek, Barbro Numan Hellquist, Anna Rosén

Muscle quality during cancer treatment and associations with health-related quality of life

• Open Access

Jacob L. Rodrigues, Nathaniel S. O’Connell, Arnethea L. Sutton, Kathryn J. Ruddy, Kathryn E. Weaver, Glenn J. Lesser, Bonnie Ky, Ralph B. D’Agostino Jr., W. Gregory Hundley, Moriah P. Bellissimo

Quality of life in oncology drug approvals: evidence from Swiss decisions in relation to global regulatory trends

• Open Access

Alexander Horst, Nicolas Löffler-Perez, Ulrich-Peter Rohr, Katarzyna Wac

Weighted predictive modelling estimation of patient acceptable symptom state for forgotten joint score, Oxford hip score, and EuroQol health index 3 and 12 months after total hip arthroplasty in a United Kingdom cohort

• Open Access

Glory Uche Abugu, Nicholas Holloway, Philip Riches, Jon Clarke, Mario Ettore Giardini, Swati Chopra

Needs and health-related quality of life domains relevant to people in Europe with advanced cancer in need of palliative care: a systematic review of qualitative research

• Open Access
• Review

Catalina Lizano-Barrantes, Clara Amat-Fernandez, Olatz Garin, Ricardo Luer-Aguila, Yolanda Pardo, Leslye Rojas-Concha, Melissa S.Y. Thong, Giovanni Apolone, Cinzia Brunelli, Augusto Caraceni, Norbert Couespel, Nanne Bos, Mogens Groenvold, Stein Kaasa, Gennaro Ciliberto, Claudio Lombardo, Ricardo Pietrobon, Gabriella Pravettoni, Aude Sirven, Hugo Vachon, Alexandra Gilbert, Galina Velikova, Montse Ferrer, Tudor Ciuleanu, Milana Mitrić, Ivica Ratosa, Michal Chovanec, Maria Vieito, Héctor Aguilar, Eva Ruiz, Karin Ahlberg, Eda Tanrikulu Simsek, Mahmut Gumus, Inke van Braak, Caitriona Higgins, Laura Pinnavaia, Carina Dantas, Tapani Kalmi

The association among psychological factors, pain severity and quality of life in people living beyond adolescent and young adult cancer: a systematic review and meta-analysis

• Review

Min Yang, Lore Smeets, Ishtiaq Ahmed, Emma Rheel, Kelly Ickmans, Sophie Pleysier, Eva Roose

Balancing ideals and realities: health care professionals’ perspectives of and attitudes toward digital patient-centered cancer care

• Open Access

Elias David Lundereng, Alen Brkic, Kate Absolom, Elisabeth Andvik, Kim Beernaert, Kathrin Cresswell, Olav Faisal Dajani, Nienke De Glas, Marie Fallon, Victoria Freitas-Durks, Kristin Vassbotn Guldhav, Marianne Jensen Hjermstad, Stein Kaasa, Geana Paula Kurita, Jo-Åsmund Lund, Nicoleta Mitrea, Steven Olde Damink, Ørnulf Paulsen, Guro Meldre Pedersen, Terese Solvoll Skåre, Tonje Lundeby, Kate Absolom, Morten Andresen, Marek Atter, Dag Ausen, Sara Bea, Kim Beernaert, Augusto Caraceni, Andres Cervantes, Kathrin Cresswell, Olav Dajani, Judith de Vos-Geelen, Luc Deliens, Felicity Evans, Marie Fallon, Victoria Freitas Durks, Teresa Serra Cassano, Inez Gonzalez-Barrallo, Peter Hall, Marianne Jensen Hjermstad, Marisol Huerta, Kristin Solheim Hustad, An Jacobs, Stein Kaasa, Lisa Heide Koteng, Geana Paula Kurita, Henrik Larsen, Ulrik Lassen, Nicola Jane Latino, Tonje Lundeby, Camilla Charlotte Lykke, Giacomo Massa, Ulla Mathiesen, Nicoleta Mitrea, Daniela Mosoiu, Steven Olde Damink, Helle Pappot, Koen Pardon, Cathy Payne, Oana Predoiu, Anne-Lore Scherrens, Morena Shkodra, Per Sjøgren, Eivind Storaas, Amaia Urrizola, Peder Heyderdahl Utne, Femke Van Landschoot, Galina Velikova, Lorraine Warrington, Naomi White, Robin Williams, Adam Stuart Dowrick, Ragnhild Lund Schultz, Julia Götz, Patrick Schneier, Jeanette Müller, Julien Luyten, Anouk de Wilde

Correction: Exploring the lived experiences of women with metastatic breast cancer and their HRQoL questionnaire preferences: a qualitative study

• Open Access
• Correction

Lærke Tolstrup, Marianne Vogsen, Malene G. Hildebrandt, Regina Wittchen Sørensen, Roma Maguire, Karin B. Dieperink

Correction: Validity of EQ-5D-5L breathing and cognition bolt-ons in non-hospitalized patients after COVID-19

• Open Access
• Correction

Knut Stavem, Andrew M. Garratt