Quality of Life Research

Impact of open-label versus blinded study design on patient-reported outcomes data in randomized clinical trials of immunotherapy in advanced or metastatic cancer patients: a systematic review

• Review

Amélie Anota, Astrid Pozet, Hervé Lemasson, Francois-Emery Cotté, Antoine Falcoz, Guillaume Eberst, Guillaume Mouillet, Stéphane Guerzider, Émilie Charton, Virginie Westeel

Comparing the use of patient-reported outcomes in clinical studies in Europe in 2008 and 2018: a literature review

• Open Access
• Review

Guro Lindviksmoen Astrup, Gudrun Rohde, Stein Arne Rimehaug, Marit Helen Andersen, Tomm Bernklev, Kristin Bjordal, Ragnhild Sørum Falk, Nina Marie Høyning Jørgensen, Knut Stavem, Anita Tollisen, Cecilie Delphin Amdal

Measurement properties of patient-reported outcome measures (PROMs) in hyperhidrosis: a systematic review

• Open Access
• Review

Michaela Gabes, Helge Knüttel, Gesina Kann, Christina Tischer, Christian J. Apfelbacher

The ICECAP-A instrument for capabilities: assessment of construct validity and test–retest reliability in a general Dutch population

• Open Access

Pieter J. Rohrbach, Alexandra E. Dingemans, Brigitte A. Essers, Eric F. Van Furth, Philip Spinhoven, Catharina G. M. Groothuis-Oudshoorn, Janine A. Van Til, M. Elske Van den Akker-Van Marle

Inequality and heterogeneity in health-related quality of life: findings based on a large sample of cross-sectional EQ-5D-5L data from the Swedish general population

• Open Access

Fitsum Sebsibe Teni, Ulf-G. Gerdtham, Reiner Leidl, Martin Henriksson, Mimmi Åström, Sun Sun, Kristina Burström

Maintenance of high quality of life as an indicator of resilience during COVID-19 social distancing among community-dwelling older adults in Finland

• Open Access

Kaisa Koivunen, Erja Portegijs, Elina Sillanpää, Johanna Eronen, Katja Kokko, Taina Rantanen

BEAUTY and the breast: is adjuvant chemotherapy the right time for a beauty boost? Lessons learned from a large randomized controlled trial

Mahasti Saghatchian, Benjamin Lacas, Cécile Charles, Amal Ghouadni, Gabrielle Tergemina Clain, Diane Boinon, Suzette Delaloge, Ines Vaz-Luis, Sarah Dauchy, Philippe Amiel

Quality of life among chronic myeloid leukemia patients in the second-line treatment with nilotinib and influential factors

Cuc Thi Thu Nguyen, Binh Thanh Nguyen, Thuy Thi Thu Nguyen, Fabio Petrelli, Stefania Scuri, Iolanda Grappasonni

Health-related quality of life deviations from population norms in patients with lumbar radiculopathy: associations with pain, pain cognitions, and endogenous nociceptive modulation

Wouter Van Bogaert, Koen Putman, Iris Coppieters, Lisa Goudman, Jo Nijs, Maarten Moens, Ronald Buyl, Kelly Ickmans, Eva Huysmans

Quality of life in urologic cancer patients: importance of and satisfaction with specific quality of life domains

• Open Access

Katja Leuteritz, Diana Richter, Anja Mehnert-Theuerkauf, Jens-Uwe Stolzenburg, Andreas Hinz

Improving respiratory muscle strength and health status in burn patients: a randomized controlled trial

Elahe Abazarnejad, Razieh Froutan, Ali Ahmadabadi, Seyed Reza Mazlom

Health-related quality of life among breast cancer patients compared to cancer survivors and age-matched women in the general population in Vietnam

• Open Access

Tran Thu Ngan, Vu Quynh Mai, Hoang Van Minh, Michael Donnelly, Ciaran O’Neill

Dietary patterns and health-related quality of life among Iranian adolescents

Seyedeh-Elaheh Shariati-Bafghi, Bahram Rashidkhani, Javad Salehi Fadardi, Mohammad Safarian, Javad Edalatian, Golnaz Ranjbar, Mohsen Nematy

Predictors of pain persistence and disability in high-school students with chronic neck pain at 6-month follow-up

Rosa Andias, Anabela G. Silva

The impact of CNS-directed treatment on quality of life in childhood cancer survivors

Keagan G. Lipak, Joseph R. Rausch, Rachel S. Fisher, Kemar V. Prussien, Olivia E. Clark, Ansley E. Kenney, Alexandra C. Himelhoch, Randal S. Olshefski, Leena Nahata, Kathryn Vannatta, Bruce E. Compas, Cynthia A. Gerhardt

Assessing anger and irritability in children: psychometric evaluation and normative data for the German version of the PROMIS® Parent Proxy Anger Scale

• Open Access

Anne Kaman, Christiane Otto, Janine Devine, Michael Erhart, Manfred Döpfner, Tobias Banaschewski, Anja Görtz-Dorten, Charlotte Hanisch, Michael Kölch, Veit Roessner, Ulrike Ravens-Sieberer

Methodological approach for determining the Minimal Important Difference and Minimal Important Change scores for the European Organisation for Research and Treatment of Cancer Head and Neck Cancer Module (EORTC QLQ-HN43) exemplified by the Swallowing scale

• Open Access

Susanne Singer, Eva Hammerlid, Iwona M. Tomaszewska, Cecilie Delphin Amdal, Kristin Bjordal, Bente Brokstad Herlofson, Marcos Santos, Joaquim Castro Silva, Hisham Mehanna, Amy Fullerton, Christine Brannan, Loreto Fernandez Gonzalez, Johanna Inhestern, Monica Pinto, Juan I. Arraras, Noam Yarom, Pierluigi Bonomo, Ingo Baumann, Razvan Galalae, Ourania Nicolatou-Galitis, Naomi Kiyota, Judith Raber-Durlacher, Dina Salem, Alexander Fabian, Andreas Boehm, Sanja Krejovic-Trivic, Wei-Chu Chie, Katherine Taylor, Christian Simon, Lisa Licitra, Allen C. Sherman

The expanded prostate cancer index composite short form (EPIC-26) for measuring health-related quality of life: content analysis of patients’ spontaneous comments written in survey margins

• Open Access

Anna-Maija Talvitie, Hanna Ojala, Teuvo Tammela, Ilkka Pietilä

Psychometric properties of the Chinese version of the Courtauld Emotional Control Scale in women newly diagnosed with breast cancer

Yao Liu, Yan Han, Xiang Wang, Yaoxin Chen, Qingqian Mo, Lingyan Li, Yuping Wang, Jie Fan, Yanjie Yang, Tamini Soondrum, Xiongzhao Zhu

Equivalence testing of a newly developed interviewer-led telephone script for the EORTC QLQ-C30

• Open Access

Claire Piccinin, Madeline Pe, Dagmara Kuliś, James W. Shaw, Sally J. Wheelwright, Andrew Bottomley

Assessing measurement invariance in the EORTC QLQ-C30

• Open Access

Janneke van Roij, Jacobien M. Kieffer, Lonneke van de Poll-Franse, Olga Husson, Natasja J. H. Raijmakers, John Gelissen

Measurement properties of the ICECAP-A capability well-being instrument among dermatological patients

• Open Access

Fanni Rencz, Ariel Z. Mitev, Balázs Jenei, Valentin Brodszky

Efficient and precise Ultra-QuickDASH scale measuring lymphedema impact developed using computerized adaptive testing

• Open Access

Cai Xu, Mark V. Schaverien, Joani M. Christensen, Chris J. Sidey-Gibbons

Psychometric properties of the spinal cord injury-quality of life (SCI-QOL) Resilience item bank in a sample with spinal cord injury and chronic pain

Duygu Kuzu, Michael A. Kallen, Claire Z. Kalpakjian, Anna L. Kratz

Psychometric validation of the EORTC QLQ-HCC18 in patients with previously treated unresectable hepatocellular carcinoma

• Open Access

Daniel Serrano, Lauren Podger, Gisoo Barnes, James Song, Boxiong Tang