Quality of Life Research

The next chapter of Quality of Life Research: an update from the editors

• Editorial

Jessica Roydhouse, Brittany Lapin

EuroQol data for assessment of population health needs and instrument evaluation (EQ-DAPHNIE): a study for enhancing population health assessment

• Open Access
• Commentary

Jeffrey A. Johnson, Mathieu F. Janssen, Fatima Al Sayah, Henry Bailey, Mihir Gandhi, Dominik Golicki, Nils Gutacker, Erica Lubetkin, Brendan Mulhern, Fredrick Dermawan Purba, Juan M. Ramos-Goñi, Desiree Scott, Hilary Short, Trudy Sullivan, Rosalie Viney, Zhihao Yang, Victor Zárate

Design and implementation of data quality controls in the EQ-DAPHNIE study: insights from the pilot phase and 15-country analysis

• Open Access

Fatima Al Sayah, Hilary Short, Juan M. Ramos-Goñi, Rosalie Viney, Erica I. Lubetkin, Mathieu F. Janssen, Jeffrey A. Johnson, Jeffrey Johnson, Mathieu F. Janssen, Fatima Al Sayah, Henry Bailey, Mihir Ghandi, Dominik Golicki, Nils Gutacker, Brenden Mulhern, Fredrick Purba, Des Scott, Trudy Sullivan, Zhihao Yang, Victor Zarate, Hilary Short

Health-related quality of life after major extremity trauma: qualitative research with military service members and clinicians to inform measurement of patient-reported outcomes

• Open Access

Callie E. Tyner, Pamela A. Kisala, Jerry Slotkin, Matthew L. Cohen, Jill M. Cancio, Alison L. Pruziner, Christopher L. Dearth, David S. Tulsky

Health-related quality of life measures as predictors for recurrent hospitalization and mortality among patients in heroin-assisted treatment

• Open Access
• Special Section: QoL in Mental Disorders

Francesca Melis, Timo L. Kvamme, Christian Tjagvad, Desiree Eide, Birgitte Thylstrup, Thomas Clausen, Morten Hesse

Health-related quality of life of unemployed individuals diagnosed with a mental illness: a cross-sectional study

• Open Access
• Special Section: QoL in Mental Disorders

A. P. Liegert, F. S. Hussenoeder, M. Koschig, M. Alberti, L. Bieler, C. Rohde, K. Stengler, S. G. Riedel-Heller, I. Conrad

Effectiveness of unguided web-based interventions for the treatment of depressive symptoms in improving the quality of life: a meta-analysis

• Open Access
• Special section: QoL in Mental Disorders

Felix Butt, Jan-Philipp Klein, Cora Schefft, Stephan Köhler

Quality of life measures in treatment for active substance misuse: a scoping review

• Open Access
• Special Section: QoL in Mental Disorders

Anna L. Milliken, Kimberly O. Collamore, Stacy R. Ryan-Pettes

Quality of life of primary caregivers by severity and control of children’s asthma: a systematic review and meta-analysis

• Open Access
• Review

Florian Tomini, Mathura Nagarajah, Sharumilan Ravindran, Borislava Mihaylova

Measurement properties of Chinese-version assessment tools of health-related quality of life in patients with stroke: a systematic review

• Open Access
• Review

Linfei Ding, Yunxun Chen, Yan Zhang, Xin Fu, Qin Liu, Xiaoyu Li

Conceptual framework for caregivers’ quality of life and well-being supporting children with special health and medical needs in East Asia: a systematic review and narrative synthesis

• Open Access
• Review

Emi Kamono, Motoko Tanaka, Honoka Tamori, Manami Takai, Kimiko Honda, Kunio Ogawa, Yoko Ujino, Mai Seino, Takeru Shiroiwa, Eri Hoshino

Systematic reviews of patient-reported outcome measures (PROMs): table templates for effective communication

• Open Access
• Commentary

Ellen B. M. Elsman, Maarten Boers, Caroline B. Terwee, Dorcas Beaton, Inger Abma, Olalekan Lee Aiyegbusi, Alessandro Chiarotto, Kirstie Haywood, Karen Matvienko-Sikar, Ava Mehdipour, Diana M. Oosterveer, Lidwine B. Mokkink, Martin Offringa

The effect of a community-based health behaviour intervention on health-related quality of life in people with Type 2 diabetes in Nepal: a Cluster Randomized Controlled Trial

• Open Access

Ashmita Karki, Corneel Vandelanotte, M. Mamun Huda, Lal B. Rawal

The impact of very preterm vs very low birth weight on early and mid-adulthood preference-based HRQoL outcomes: findings from the Dutch study on preterm and small for gestational age infants

• Open Access

Corneliu Bolbocean, Paula van Dommelen, Stephen O’Neill, Sylvia van der Pal

Developing a quality of life framework from the perspective of laypeople: a qualitative comparison with the EQ-HWB framework

• Open Access

Guangjie Zhang, Yifan Ding, Zhuxin Mao, Zhihao Yang, Nan Luo, Jan Busschbach

Measuring health-related quality of life among school adolescents across Chinese Human Geography Regions: psychometric validation and norm development of the Mandarin Chinese self-reported KID­SCREEN-10 index

Juan Li, Yuhang Zhu, Zhenliang Qiu, Ricky Jeffrey, Zhuang He, Di Wu, Ranran Li, Gaopei Zhu, Anne Kaman, Michael Erhart, Fuyan Shi, Suzhen Wang, Ulrike Ravens-Sieberer

Association of healthy eating behaviours and comorbidity on quality of life among adults with beta-thalassemia major: a moderation analysis

Ha-Linh Quach, Thi Ngoc Anh Hoang

Are physical activity, sleep, and joint pain associated with physical function and quality of life in individuals with multimorbidity? A cross-sectional analysis of the MOBILIZE trial

• Open Access

Travis Haber, Alessio Bricca, Michelle Hall, Jan Christian Brønd, Lau Thygesen, Søren T. Skou

Tree-based item-response theory model for evaluating differential item functioning in patient-reported outcome measures: a web-based R Shiny implementation

Olayinka I. Arimoro, Lisa M. Lix, Mark A. Ferro, Matthew T. James, Scott B. Patten, Samuel Wiebe, Colin B. Josephson, Tolulope T. Sajobi

The impact of screening-detected atrial fibrillation and associated outcomes on quality of life

• Open Access

Emilie Katrine Kongebro, Christian Kronborg, Ketil Jørgen Haugan, Claus Graff, Søren Højberg, Derk Krieger, Axel Brandes, Lars Køber, Jesper Hastrup Svendsen, Søren Zöga Diederichsen

Parent/caregiver perspectives of meaningful improvement in functional domains for people with CDKL5 deficiency disorder: a mixed-methods study

• Open Access

Jessica Keeley, Zoe Skoda, Karen Utley, Eric D. Marsh, Gabrielle A. Conecker, JayEtta Hecker, Natasha N. Ludwig, Helen Leonard, Jacinta Saldaris, Peter Jacoby, Sharon Pincus, Tim A. Benke, Scott T. Demarest, Jenny Downs

Patient-reported outcomes and their associated factors at 1- and 2-year follow-up after lumbar spine surgery: a surgery registry study

Ling Jie Cheng, Nick Bansback, Gabriel Ka Po Liu, Wenru Wang, Vivien Xi Wu, Nan Luo, Hwee Weng Dennis Hey

The relationship between patient-reported quality of life and clinician-rated outcome scores in patients with autoimmune encephalitis: a study of the Australian Autoimmune Encephalitis Consortium

• Open Access

Christina Kazzi, Nabil Seery, Sarah Griffith, Robb Wesselingh, Tiffany Rushen, Tracie H. Tan, Katherine Y. Ko, Liora ter Horst, Genevieve Skinner, Laurie McLaughlin, Hannah Ford, Catherine Meade, Marie O’Shea, Katherine Buzzard, Mirasol Forcadela, Andrew Duncan, Anneke van der Walt, Wendyl D’Souza, Udaya Senvieratne, Richard Macdonell, Sudarshini Ramanathan, Stefan Blum, Stephen W. Reddel, Todd A. Hardy, Helmut Butzkueven, Terence J. O’Brien, Rubina Alpitsis, Charles B. Malpas, Mastura Monif

The psychometric performance of the EQ-5D-5L composite and component items in the U.S. General population and by age group

• Open Access

Minh Pham, Benjamin M. Craig, Fanni Rencz

Health-related quality of life of single-person households in the United States: results from the 2014–2023 Behavioral Risk Factor Surveillance System

Seonkyeong Yang, Ilsoo Park, Hyun Jin Song

Uses of the ICECAP measure of capability in adults with neurological health conditions: a scoping review

Jared Brown, Christina Elhatton, Magnus Hasiuk, Sophie Menet-Espina, Olayinka Akinrolie, Hal Loewen, Ruth Barclay

Association between pilonidal sinus disease and depression: a population-based cohort study

• Open Access

Andreas Krieg, Ernst W. Kolbe, Jan H. Wieltsch, Sabine Leerhoff, Sarah Krieg, Karel Kostev

Do generic population utility scores accurately represent real-world experienced health?

J. Felipe Montano-Campos, Anirban Basu

The psychometric performance of the EQ-HWB-9 for measuring health and wellbeing in a general population sample from Australia and New Zealand

• Open Access

Cate Bailey, Karen Trapani, Jonathan N. Davies, Nicholas Van Dam, Julieta Galante, Tessa Peasgood

Comparative analysis of pediatric depression measures in clinical sample: evaluation of the PROMIS pediatric depression short form

• Open Access

Julia Rabin, Catherine Garcia-Goetting, Tareq Yaqub, Marina Teruel, John Lavigne, John Parkhurst

Development of mapping algorithms for gastric cancer: translating EORTC QLQ-C30 and QLQ-STO22 to EQ-5D-5L health utilities

• Open Access

Huali Zhou, Xianxi Liu, Rong Bao, Liping Qiu, Yuhan Zhang, Qiong Gu, Qing Yang

Longitudinal changes in physical and psychological outcomes in spousal vs. non-spousal caregivers for patients with end-stage liver disease

• Open Access

Lissi Hansen, Michael F. Chang, Shirin O. Hiatt, Susan J. Rosenkranz, Nathan F. Dieckmann, Christopher S. Lee

What are the key targets to improve quality of life among MSM living with HIV on antiretroviral therapy? A network analysis

Kedi Jiao, Haitao Wang, Jing Ma, Yuxi Lin, Wenqi Fan, Chunmei Wang, Meizhen Liao, Dianmin Kang, Weiming Tang, Wei Ma

Correction: The PROMIS-16 reproduces the PROMIS-29 physical and mental health summary scores accurately in a probability-based internet panel

• Open Access
• Correction

Ron D. Hays, Patricia M. Herman, Anthony Rodriguez, Mary Slaughter, Chengbo Zeng, Maria Orlando Edelen