Quality of Life Research

Health-related quality of life of informal carers in ALS: a systematic review of person reported outcome measures

• Open Access
• Review

Rosie Bamber, Theocharis Stavroulakis, Christopher McDermott, Jill Carlton

Quality of patient-reported outcome measures and treatment effects: a review of orthopaedic randomized trials

• Review

Joel J. Gagnier, Edith Otalike, Andrew D. Firth

Quality-of-life measures in pharmacogenomic studies: a systematic review

• Open Access
• Review

Shen Chi Ng, Nathan He, Patrick Fu, Senuri Mahavithana, Seoyoung Jang, Dina Abushanab, Zanfina Ademi

Implementation of standardized HRQoL measurement for Chinese ischemic stroke patients: comments on Wang et al.’s longitudinal multi‑center study

• Letter to the Editor

Sadia Farhana

Putting CATs and item banks to work: How to construct predictive and sensitive PROMIS screeners for use in ambulatory oncology

• Open Access

Benjamin D. Schalet, Michael A. Kallen, Laura M. Perry, Sofia F. Garcia, David Cella

A novel CAT method for QoL screening: proof-of-principle study with comparisons to standard methods

• Open Access

Anastasios Psychogyiopoulos, Niels Smits, L. Andries van der Ark

Tree-based latent variable model for assessing differential item functioning in patient-reported outcome measures: a simulation study

Olayinka I. Arimoro, Lisa M. Lix, Scott B. Patten, Rick Sawatzky, Veronique Sebille, Juxin Liu, Samuel Wiebe, Colin B. Josephson, Tolulope T. Sajobi

Challenges in interpreting individual-level changes in health-related quality of life in patients with glioma using minimally important differences (MIDs) and a 4-point Likert scale

• Open Access

Ogechukwu A. Asogwa, Johan A. F. Koekkoek, Marthe C. M. Peeters, Hanneke Zwinkels, Maaike J. Vos, Linda Dirven, Martin J. B. Taphoorn

Psychometric properties of the ICECAP-SCM capability-wellbeing measure in specialist palliative care units in Austria

• Open Access

Elisabeth Saly, Judit Simon, Karin Brenner, Bert Engelhardt, Gudrun Kreye, Rudolf Likar, Eva Katharina Masel, Veronika Mosich, Mario Molnar, Andrea Passini, Claudia Fischer

Validity evidence for the use of the Pediatric Quality of Life Inventory, the Revised Children’s Anxiety and Depression Scale-25, and the Columbia-Suicide Severity Rating Scale in measurement-based care in intensive outpatient child and adolescent mental health care

• Open Access

Erin McCabe, Whitney Hindmarch, Bishnu Bajgain, Johanna Jacob, Paul D. Arnold, Iliana Ortega, Michele Dyson, Deborah McNeil, Gina Dimitropoulos, Ryan Clements, Maria J. Santana, Jennifer D. Zwicker

Identifying and developing culturally relevant EQ-5D-5L bolt-on items for Chinese population: qualitative phase of a mixed-methods study

Jingzhi Fan, Zhuxin Mao, Xinyi Song, Fanni Rencz, Zhihao Yang, Nan Luo, Pei Wang

Does context matter? A discrete choice experiment investigating the impact of palliative context on EQ-5D-5L health state valuation

• Open Access

Irina Kinchin, Peiwen Jiang, Deborah Street, Richard Norman, David Currow, Meera Agar, Charles Normand, Bridget Johnston, Peter May, Rosalie Viney, Brendan Mulhern

Aphasia-specific or generic outcomes? a comparison of two health-related quality of life instruments for economic evaluations of aphasia treatments

• Open Access

Sally Zingelman, Sarah J. Wallace, Joosup Kim, Sam Harvey, Miranda L. Rose, John E. Pierce, Kathleen L. Bagot, Dominique A. Cadilhac

Differences in health state valuation for small, low-risk thyroid cancer between general population and cancer survivors: a cross-sectional analysis

• Open Access

Kendyl Carlisle, Rebecca Kowalski, Aprill N. Park, Salome Ricci, Kai Sun, Carrie Cunningham, Julia F. Slejko, C. Daniel Mullins, Yinin Hu

High societal costs and reduced health-related quality of life in inflammatory and systemic immune disease-associated dilated cardiomyopathies

• Open Access

Maurits Sikking, Isabell Wiethoff, Michiel Henkens, Silvia Evers, Sophie Stroeks, Max Venner, Jerremy Weerts, Hans-Peter Brunner-la Rocca, Christian Knackstedt, Vanessa van Empel, Michelle Michels, Stephane Heymans, Mickaël Hiligsmann, Job Verdonschot

Self-reported quality of recovery after radical prostatectomy—a prospective cohort study

• Open Access

Marlene Fischer, Josephine Küllmei, Linda Krause, Peipei Wei, Ursula Kahl, Elena Kainz, Caspar Mewes, Markus Graefen, Alexander Haese, Christian Zöllner, Lili Plümer

Dynamics and determinants of long-term quality of life in children and adolescents with type 1 diabetes: real-world evidence from China

Fang Chen, Li Fan, Xia Li, Yuting Xie, Juan Li, Huiting Weng, Rong Xu, Fang Liu

Microbiome impacts quality of life in patients with endometrial cancer and benign gynecological conditions

• Open Access

Nina J. Gautam, Nicole R. Jimenez, Paweł Łaniewski, Haiyan Cui, Denise J. Roe, Dana M. Chase, Melissa M. Herbst-Kralovetz

Examining quality of life by recovery status among college students with a history of substance use

Fares Qeadan, Naya Lipkens, Benjamin Tingey

The role of occurrence and co-occurrence of adverse childhood experiences on oral health-related quality of life among adolescents

Thaís Gioda Noronha-Ramos, Jessica Klöckner Knorst, Everton Daniel Rauber, Bruno Emmanuelli, Thiago Machado Ardenghi, Fernanda Tomazoni

Changes in health-related quality of life and inequality in China: evidence from a nationwide repeated cross-sectional survey (2021–2023)

• Open Access

Qiang Yao, Xiaodan Zhang, Siyuan Fan, Yibo Wu, Chaojie Liu

Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study

• Open Access

Sulayman Chowdhury, Patricia Cubi-Molla, David Mott

Health-related quality of life and sexual function among women with overweight or obesity and urinary incontinence: a cross-sectional study

• Open Access

Zhao Tian, Xiuqi Wang, Linru Fu, Zhe Du, Tangdi Lin, Wei Chen, Zhijing Sun

Optimizing presentation formats for SF-6Dv2 health status valuation: a qualitative study using cognitive interviews

Jahyun Cho, Eun-Young Bae, Min-Woo Jo, Minsu Ock

Exploring subjective constructions of quality of life in patients, carers and the healthy general public: a Q-methodological study

Zhuxin Mao, Aureliano Paolo Finch, Shenaz Ahmed, Guangjie Zhang, Yifan Ding, Zhihao Yang