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Quality of Life Research

Gepubliceerd in:

04-12-2017

Quality of life of French Canadian parents raising a child with autism spectrum disorder and effects of psychosocial factors

Auteurs: Émilie Cappe, Nathalie Poirier, Carol Sankey, Andréa Belzil, Carmen Dionne

Gepubliceerd in: Quality of Life Research | Uitgave 4/2018

Abstract

Purpose

This study aimed to investigate the quality of life of parents of a child with autism spectrum disorder in Quebec.

Methods

Seventy-seven participants completed a questionnaire with socio-biographic information and five self-assessed scales, to measure perceived stress, social support and control, coping strategies, and quality of life.

Results

Perception of their child’s autonomy level, of the severity of the disorder, of the family’s income, as well as changes in their professional or familial organization influenced parents’ quality of life. Perceiving their situation as a threat predicted poor quality of life, whereas satisfaction of social support predicted good quality of life. In addition, parents who used problem solving and support-seeking coping strategies had a better relationship with their child, whereas those who used more emotion-centered coping strategies struggled. Lastly, parents who felt they had the power to contribute to their child’s development were more satisfied and less disturbed.

Conclusions

Beyond the parents’ actual situation, our results underscore the importance of paying attention to their own perception of the situation in order to provide them with appropriate support.

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Titel: Quality of life of French Canadian parents raising a child with autism spectrum disorder and effects of psychosocial factors
Auteurs: Émilie Cappe
Nathalie Poirier
Carol Sankey
Andréa Belzil
Carmen Dionne
Publicatiedatum: 04-12-2017
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 4/2018
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-017-1757-4

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Andere artikelen Uitgave 4/2018

Association between secondhand smoke exposure and quality of life in pregnant women and postpartum women and the consequences on the newborns

Cross-cultural adaptation and measurement properties of generic and cancer-related patient-reported outcome measures (PROMs) for use with cancer patients in Brazil: a systematic review

Correction to: Impact of an electronic monitoring device and behavioural feedback on adherence to multiple sclerosis therapies in youth: results of a randomized trial

Careless responding in internet-based quality of life assessments

Modernizing quality of life assessment: development of a multidimensional computerized adaptive questionnaire for patients with schizophrenia

Measurement invariance and general population reference values of the PROMIS Profile 29 in the UK, France, and Germany