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Gepubliceerd in: Quality of Life Research 10/2013

01-12-2013

Quality of life in nursing homes: results of a qualitative resident survey

Auteurs: Liane Schenk, Roger Meyer, Anja Behr, Adelheid Kuhlmey, Martin Holzhausen

Gepubliceerd in: Quality of Life Research | Uitgave 10/2013

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Abstract

Purpose

The growing importance of residential nursing care has been accompanied by an increasing demand for instruments measuring quality of life in nursing homes. Quality of life is a complex construct with both subjective and objective aspects that does not lend itself to being determined by a single measure. The aim of this study was therefore to identify dimensions of life that nursing home residents perceive as having a particular impact on their overall quality of life.

Methods

Data were obtained from 9 men and 33 women from eight nursing homes by means of semi-structured narrative interviews. The interviews were analyzed using the documentary method.

Results

Ten central dimensions of subjective quality of life were derived from the interview data: social contacts, self-determination and autonomy, privacy, peace and quiet, variety of stimuli and activities, feeling at home, security, health, being kept informed, and meaningful/enjoyable activity. Some of these dimensions are multifaceted and have further subdimensions.

Conclusion

The aspects emerging as relevant to residents’ subjective quality of life extend far beyond care- and health-related aspects. Nevertheless, some of the quality of life dimensions reconstructed are within the direct influence of the home (e.g., variety of stimuli and activities or being kept informed) and can possibly be improved by attending to the residents’ objective situation.
Literatuur
1.
go back to reference Pieper, R., & Vaarama, M. (2008). The concept of care-related quality of life. In M. Vaarama, R. Pieper, & A. Sixsmith (Eds.), Care-related quality of life in old age: Concepts, models and empirical findings (pp. 65–101). New York: Springer Science and Business Media. Pieper, R., & Vaarama, M. (2008). The concept of care-related quality of life. In M. Vaarama, R. Pieper, & A. Sixsmith (Eds.), Care-related quality of life in old age: Concepts, models and empirical findings (pp. 65–101). New York: Springer Science and Business Media.
2.
go back to reference Aberg, A. C., Sidenvall, B., Hepworth, M., O’Reilly, K., & Lithell, H. (2005). On loss of activity and independence, adaptation improves life satisfaction in old age: A qualitative study of patients’ perceptions. Quality of Life Research, 14, 1111–1125.PubMedCrossRef Aberg, A. C., Sidenvall, B., Hepworth, M., O’Reilly, K., & Lithell, H. (2005). On loss of activity and independence, adaptation improves life satisfaction in old age: A qualitative study of patients’ perceptions. Quality of Life Research, 14, 1111–1125.PubMedCrossRef
3.
go back to reference Lang, G., Löger, B., & Amman, A. (2007). Well-being in the nursing home: A methodological approach towards the quality of life. Journal for Public Health, 15, 109–120.CrossRef Lang, G., Löger, B., & Amman, A. (2007). Well-being in the nursing home: A methodological approach towards the quality of life. Journal for Public Health, 15, 109–120.CrossRef
4.
go back to reference Cooney, A., Murphy, K., & O’Shea, E. (2009). Resident perspectives of the determinants of quality of life in residential care in Ireland. Journal of Advanced Nursing, 65(5), 1029–1038.PubMedCrossRef Cooney, A., Murphy, K., & O’Shea, E. (2009). Resident perspectives of the determinants of quality of life in residential care in Ireland. Journal of Advanced Nursing, 65(5), 1029–1038.PubMedCrossRef
5.
go back to reference Goffman, A. J. (1961). Asylums: Essays on the social situation of mental patients and other inmates. New York: Doubleday Anchor. Goffman, A. J. (1961). Asylums: Essays on the social situation of mental patients and other inmates. New York: Doubleday Anchor.
6.
go back to reference Heinzelmann, M. (2004). Das Altenheim – immer noch eine „Totale Institution“. Eine Untersuchung des Binnenlebens zweier Altenheime [The old people’s home—still a “total institution”? A study of life in two old people’s homes]. Göttingen: Cuvillier Verlag. Heinzelmann, M. (2004). Das Altenheimimmer noch eine „Totale Institution“. Eine Untersuchung des Binnenlebens zweier Altenheime [The old people’s home—still a “total institution”? A study of life in two old people’s homes]. Göttingen: Cuvillier Verlag.
7.
go back to reference Koch-Straube, U. (2003). Fremde Welt Pflegeheim. Eine ethnologische Studie [The nursing home as an alien world: An ethnological study]. Bern: Huber. Koch-Straube, U. (2003). Fremde Welt Pflegeheim. Eine ethnologische Studie [The nursing home as an alien world: An ethnological study]. Bern: Huber.
8.
go back to reference Gubrium, J. F. (1997). Living and dying at Murray manor (Expanded pbk ed.). Charlotteville: University Press of Virginia. Gubrium, J. F. (1997). Living and dying at Murray manor (Expanded pbk ed.). Charlotteville: University Press of Virginia.
9.
go back to reference Stannard, C. I. (1973). Old folks and dirty work: The social conditions for patient abuse in a nursing home. Social Problems, 20(3), 329–342.CrossRef Stannard, C. I. (1973). Old folks and dirty work: The social conditions for patient abuse in a nursing home. Social Problems, 20(3), 329–342.CrossRef
10.
go back to reference Henderson, J. N., & Vesperi, M. D. (Hg.) (1995). The Culture of long term care. Nursing home ethnography. Westport, Conn: Bergin & Garvey. Henderson, J. N., & Vesperi, M. D. (Hg.) (1995). The Culture of long term care. Nursing home ethnography. Westport, Conn: Bergin & Garvey.
11.
go back to reference Holzhausen, M. (in press). Measuring Quality of Life of Older Adults. In: Michalos, Kahlke & Quinones (Hrsg.). Encyclopedia of quality of life. Heidelberg: Springer. Holzhausen, M. (in press). Measuring Quality of Life of Older Adults. In: Michalos, Kahlke & Quinones (Hrsg.). Encyclopedia of quality of life. Heidelberg: Springer.
12.
go back to reference Lawton, M. P. (1991). A multidimensional view of quality of life in frail elders. In J. E. Birren, J. E. Lubben, J. C. Rowe, & D. E. Deutchmann (Eds.), The concept and measurement of quality of life in the frail elderly (pp. 3–23). San Diego: Academic Press. Lawton, M. P. (1991). A multidimensional view of quality of life in frail elders. In J. E. Birren, J. E. Lubben, J. C. Rowe, & D. E. Deutchmann (Eds.), The concept and measurement of quality of life in the frail elderly (pp. 3–23). San Diego: Academic Press.
13.
go back to reference Lucas, R., & Diener, E. (2008). Subjective well-being. In M. Lewis, J. M. Haviland-Jones, & L. Feldmann Barrett (Eds.), Handbook of emotions (3rd ed., pp. 471–485). New York, NY: Guilford Press. Lucas, R., & Diener, E. (2008). Subjective well-being. In M. Lewis, J. M. Haviland-Jones, & L. Feldmann Barrett (Eds.), Handbook of emotions (3rd ed., pp. 471–485). New York, NY: Guilford Press.
15.
go back to reference Josat, S., Schubert, H.-J., Schnell, M., & Köck, C. M. (2006). Qualitätskriterien, die Altenpflegeheimbewohnern und Angehörigen wichtig sind. Pflege [Quality criteria important to nursing home residents and their relatives]., 19(2), 79–87.PubMed Josat, S., Schubert, H.-J., Schnell, M., & Köck, C. M. (2006). Qualitätskriterien, die Altenpflegeheimbewohnern und Angehörigen wichtig sind. Pflege [Quality criteria important to nursing home residents and their relatives]., 19(2), 79–87.PubMed
16.
go back to reference Kelle, U., Niggemann, C., & Metje, B. (2008). Datenerhebung in totalen Institutionen als Forschungsgegenstand einer kritischen gerontologischen Sozialforschung [Data survey in total institutions as a research subject in critical gerontological social research]. In A. Amann & F. Kolland (Eds.), Das erzwungene Paradies des Alters? (pp. 163–193). Wiesbaden: VS Verlag für Sozialwissenschaften.CrossRef Kelle, U., Niggemann, C., & Metje, B. (2008). Datenerhebung in totalen Institutionen als Forschungsgegenstand einer kritischen gerontologischen Sozialforschung [Data survey in total institutions as a research subject in critical gerontological social research]. In A. Amann & F. Kolland (Eds.), Das erzwungene Paradies des Alters? (pp. 163–193). Wiesbaden: VS Verlag für Sozialwissenschaften.CrossRef
17.
go back to reference Bowling, A., Gabriel, Z., Dykes, J., Dowding, L. M., Evans, O., Fleissig, A., et al. (2003). Let’s ask them: A national survey of definitions of quality of life and its enhancement among people aged 65 and over. International Journal of Ageing and Human Development, 56(4), 269–306.CrossRef Bowling, A., Gabriel, Z., Dykes, J., Dowding, L. M., Evans, O., Fleissig, A., et al. (2003). Let’s ask them: A national survey of definitions of quality of life and its enhancement among people aged 65 and over. International Journal of Ageing and Human Development, 56(4), 269–306.CrossRef
18.
go back to reference Kane, R. A., Kling, K. C., Bershadsky, B., Kane, R. L., Giles, K., Degenholtz, H. B., et al. (2003). Quality of life measures for nursing home residents. Journal of Gerontology, 58(3), 240–248. Kane, R. A., Kling, K. C., Bershadsky, B., Kane, R. L., Giles, K., Degenholtz, H. B., et al. (2003). Quality of life measures for nursing home residents. Journal of Gerontology, 58(3), 240–248.
19.
go back to reference Mor, V. (2005). Improving the quality of long-term care with better information. The Milbank Quarterly, 83(3), 333–364.PubMedCrossRef Mor, V. (2005). Improving the quality of long-term care with better information. The Milbank Quarterly, 83(3), 333–364.PubMedCrossRef
20.
go back to reference Saks, K., Tiit, E.-M., Muurinen, S., Mukkila, S., Frommelt, M., & Hammond, M. (2008). Quality of life in institutional care. In M. Vaarama, R. Pieper, & A. Sixsmith (Eds.), Care-related quality of life in old age: Concepts, models and empirical findings (pp. 196–216). New York: Springer Science and Business Media.CrossRef Saks, K., Tiit, E.-M., Muurinen, S., Mukkila, S., Frommelt, M., & Hammond, M. (2008). Quality of life in institutional care. In M. Vaarama, R. Pieper, & A. Sixsmith (Eds.), Care-related quality of life in old age: Concepts, models and empirical findings (pp. 196–216). New York: Springer Science and Business Media.CrossRef
21.
go back to reference Garre-Olmo, J., López-Pousa, S., Turon-Estrada, A., Juvinyà, D., Ballester, D., & Vilalta-Franch, J. (2012). Environmental determinants of quality of life in nursing home residents with severe dementia. Journal of America Geriatrics Society, 60(7), 1230–1236.CrossRef Garre-Olmo, J., López-Pousa, S., Turon-Estrada, A., Juvinyà, D., Ballester, D., & Vilalta-Franch, J. (2012). Environmental determinants of quality of life in nursing home residents with severe dementia. Journal of America Geriatrics Society, 60(7), 1230–1236.CrossRef
22.
go back to reference Cummins, R. A. (2000). Objective and subjective quality of life: An interactive model. Social Indicators Research, 52, 55–72.CrossRef Cummins, R. A. (2000). Objective and subjective quality of life: An interactive model. Social Indicators Research, 52, 55–72.CrossRef
23.
go back to reference Murphy, K., O’Shea, E., & Cooney, A. (2007). Quality of life for older people living in long-stay settings in Ireland. Journal of Clinical Nursing, 16, 2167–2177.PubMedCrossRef Murphy, K., O’Shea, E., & Cooney, A. (2007). Quality of life for older people living in long-stay settings in Ireland. Journal of Clinical Nursing, 16, 2167–2177.PubMedCrossRef
24.
go back to reference Wingenfeld, K. (2003). Studien zur Nutzerperspektive in der Pflege [Studies on the user perspective in nursing care]. Bielefeld: Veröffentlichungsreihe des Instituts für Pflegewissenschaft an der Universität Bielefeld. Wingenfeld, K. (2003). Studien zur Nutzerperspektive in der Pflege [Studies on the user perspective in nursing care]. Bielefeld: Veröffentlichungsreihe des Instituts für Pflegewissenschaft an der Universität Bielefeld.
25.
go back to reference Gerritsen, D. L., Steverink, N., Ooms, M. E., & Ribbe, M. W. (2004). Finding a useful conceptual basis for enhancing the quality of life of nursing home residents. Quality of Life Research, 13, 611–624.PubMedCrossRef Gerritsen, D. L., Steverink, N., Ooms, M. E., & Ribbe, M. W. (2004). Finding a useful conceptual basis for enhancing the quality of life of nursing home residents. Quality of Life Research, 13, 611–624.PubMedCrossRef
26.
go back to reference O’Boyle, C. (1997). Measuring the quality of later life. Philosophical Transactions of the Royal Society London, 352, 1871–1879.CrossRef O’Boyle, C. (1997). Measuring the quality of later life. Philosophical Transactions of the Royal Society London, 352, 1871–1879.CrossRef
27.
go back to reference Gabriel, Z., & Bowling, A. (2004). Quality of life from the perspective of older people. Ageing & Society, 24, 675–691.CrossRef Gabriel, Z., & Bowling, A. (2004). Quality of life from the perspective of older people. Ageing & Society, 24, 675–691.CrossRef
28.
go back to reference Robichaud, L., Durand, P. J., Bédard, R., & Ouellet, J.-P. (2006). Quality of life indicators in long term care: Opinions of elderly residents and their families. Canadian Journal of Occupational Therapy, 73(4), 245–251.CrossRef Robichaud, L., Durand, P. J., Bédard, R., & Ouellet, J.-P. (2006). Quality of life indicators in long term care: Opinions of elderly residents and their families. Canadian Journal of Occupational Therapy, 73(4), 245–251.CrossRef
29.
go back to reference Kelle, U., & Kluge, S. (2010). Vom Einzelfall zum Typus. Fallvergleich und Fallkontrastierung in der qualitativen Sozialforschung [From case to type: Case comparison and case contrast in qualitative social research]. Wiesbaden: VS Verlag für Sozialwissenschaften. Kelle, U., & Kluge, S. (2010). Vom Einzelfall zum Typus. Fallvergleich und Fallkontrastierung in der qualitativen Sozialforschung [From case to type: Case comparison and case contrast in qualitative social research]. Wiesbaden: VS Verlag für Sozialwissenschaften.
30.
go back to reference Bohnsack, R. (1997). Dokumentarische Methode [The documentary method]. In R. Hitzler & A. Honer (Eds.), Sozialwissenschaftliche Hermeneutik (pp. 191–211). Opladen: Leske und Budrich.CrossRef Bohnsack, R. (1997). Dokumentarische Methode [The documentary method]. In R. Hitzler & A. Honer (Eds.), Sozialwissenschaftliche Hermeneutik (pp. 191–211). Opladen: Leske und Budrich.CrossRef
31.
go back to reference Bohnsack, R., Pfaff, N., & Weller, W. (Eds.). (2010). Qualitative analysis and documentary method in international educational research. Germany: Opladen. Bohnsack, R., Pfaff, N., & Weller, W. (Eds.). (2010). Qualitative analysis and documentary method in international educational research. Germany: Opladen.
33.
go back to reference Behr, A., Meyer, R., Holzhausen, M., Kuhlmey, A., & Schenk, L. (2013) Die Intimsphäre - Eine wichtige Dimension der Lebensqualität von Pflegeheimbewohnern [Privacy. A most important dimension for the quality of life of nursing home residents]. Zeitschrift für Gerontologie und Geriatrie. doi:10.1007/s00391-012-0464-6. Behr, A., Meyer, R., Holzhausen, M., Kuhlmey, A., & Schenk, L. (2013) Die Intimsphäre - Eine wichtige Dimension der Lebensqualität von Pflegeheimbewohnern [Privacy. A most important dimension for the quality of life of nursing home residents]. Zeitschrift für Gerontologie und Geriatrie. doi:10.​1007/​s00391-012-0464-6.
34.
go back to reference Nohl, A.-M. (2008). Interview und dokumentarische Methode. Anleitungen für die Forschungspraxis [Interview and documentary method: Instructions for research practice]. (2nd ed.). Wiesbaden: VS Verlag für Sozialwissenschaften. Nohl, A.-M. (2008). Interview und dokumentarische Methode. Anleitungen für die Forschungspraxis [Interview and documentary method: Instructions for research practice]. (2nd ed.). Wiesbaden: VS Verlag für Sozialwissenschaften.
35.
go back to reference Estermann, J., & Kneubühler, H.-K. (2008). Warum Lebensqualität im Pflegeheim bedeutsam ist und wie sie gemessen werden kann [Why the Quality of Life in Nursing Homes Is Important, and How It Can Be Measured]. Swiss Journal of Sociology, 34(1), 187–210. Estermann, J., & Kneubühler, H.-K. (2008). Warum Lebensqualität im Pflegeheim bedeutsam ist und wie sie gemessen werden kann [Why the Quality of Life in Nursing Homes Is Important, and How It Can Be Measured]. Swiss Journal of Sociology, 34(1), 187–210.
36.
go back to reference Estermann, J., & Kneubühler, H. (2006). How to measure quality of nursing. European Journal of Public Health, 16(1), 38. Estermann, J., & Kneubühler, H. (2006). How to measure quality of nursing. European Journal of Public Health, 16(1), 38.
37.
go back to reference Kane, R. A. (2001). Long-term care and a good quality of life: Bringing them closer together. The Gerontologist, 41(3), 293–304.PubMedCrossRef Kane, R. A. (2001). Long-term care and a good quality of life: Bringing them closer together. The Gerontologist, 41(3), 293–304.PubMedCrossRef
38.
go back to reference Mattiasson, A.-C., & Andersson, L. (1997). Quality of nursing home care assessed by competent nursing home patients. Journal of Advanced Nursing, 26, 1117–1124.PubMed Mattiasson, A.-C., & Andersson, L. (1997). Quality of nursing home care assessed by competent nursing home patients. Journal of Advanced Nursing, 26, 1117–1124.PubMed
39.
go back to reference Saks, K., & Tiit, E.-M. (2008). Subjective quality of life of care-dependent older people in five European Union countries. In M. Vaarama, R. Pieper, & A. Sixsmith (Eds.), Care-related quality of life in old age: Concepts, models and empirical findings (pp. 153–165). New York: Springer Science and Business Media. Saks, K., & Tiit, E.-M. (2008). Subjective quality of life of care-dependent older people in five European Union countries. In M. Vaarama, R. Pieper, & A. Sixsmith (Eds.), Care-related quality of life in old age: Concepts, models and empirical findings (pp. 153–165). New York: Springer Science and Business Media.
40.
go back to reference Ball, M. M., Whittington, F. J., Perkins, M. M., Patterson, V. L., Hollingsworth, C., King, S. V., et al. (2000). Quality of life in assisted living facilities: Viewpoints of residents. Journal of Applied Gerontology, 19(304), 304–325.CrossRef Ball, M. M., Whittington, F. J., Perkins, M. M., Patterson, V. L., Hollingsworth, C., King, S. V., et al. (2000). Quality of life in assisted living facilities: Viewpoints of residents. Journal of Applied Gerontology, 19(304), 304–325.CrossRef
Metagegevens
Titel
Quality of life in nursing homes: results of a qualitative resident survey
Auteurs
Liane Schenk
Roger Meyer
Anja Behr
Adelheid Kuhlmey
Martin Holzhausen
Publicatiedatum
01-12-2013
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 10/2013
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0400-2

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