Top

Quality of Life Research

Gepubliceerd in:

26-04-2019 | Review

Quality of life assessment scales in polio survivors: a scoping review

Auteurs: Surajo Kamilu Sulaiman, Heather Michelle Aldersey, Nora Fayed, Bashir Kaka, Christiana Okyere

Gepubliceerd in: Quality of Life Research | Uitgave 9/2019

Abstract

Background

Quality of life evaluation is essential to explore the effect of paralytic polio on the daily life experience of the polio survivor. Researchers have employed a range of assessment instruments to evaluate quality of life among polio survivors. Hence, to select the appropriate scale, it is crucial to compare the contents and psychometric properties of these instruments.

Purpose

This scoping review explores quality of life instruments that are used in polio literature and analyzes their contents and psychometric properties using the Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria.

Method

Using the Arksey and O’Malley framework, we conducted a literature search in the following electronic databases Medline, CINAHL, Web of Science, Embase, and Google Scholar to identify relevant studies that focused on quality of life of polio survivors. Of the 88 articles that qualify for full-text screening, 34 studies met our inclusion criteria. Two independent reviewers extracted data from the selected studies via Covidence, a reference manager that allows for blinding of reviews.

Results

Most of the instruments included in this review are generic, self-reported, and multidimensional. Despite having mostly adequate psychometric properties, these properties were not evaluated in polio survivors.

Conclusion

The information provided in this review could be used to guide instrument selection and identify the need to develop a new tool or to adapt a pre-existing scale for measuring quality of life among polio survivors.

vorige artikel Systematic review of the measurement properties of the Depression Anxiety Stress Scales–21 by applying updated COSMIN methodology

volgende artikel Health state utilities associated with attributes of migraine preventive treatments based on patient and general population preferences

Hatami, R., Rassafiani, M., Pishyareh, E., Karami, S., & Hashemi, O. (2015). The effect of community based rehabilitation program on quality of life of people with physical disability in Bostanabad, Tabriz, Iran. Jentashapir Journal of Health Research, 6(3), 2–6.CrossRef

Iemmi, V., Gibson, L., Blanchet, K., Suresh, K., Rath, S., Hartley, S., et al. (2015). Community-based rehabilitation for people with disabilities in low- and middle-income countries. Campbell Systematic Reviews, 15, 177.

Mannan, H., & Turnbull, A. P. (2007). A review of CBR-evaluations: QoL as outcome measure for future evaluations. Asia Pacific Disability Rehabilitation Journal, 18(1), 29–45.

Groce, N. E., Banks, L. M., & Stein, M. A. (2014). Surviving polio in a post-polio world. Social Science and Medicine, 107, 171–178.CrossRefPubMed

Nielsen, N. M., Kay, L., Wanscher, B., Ibsen, R., Kjellberg, J., & Jennum, P. (2016). Long-term socio-economic consequences and health care costs of poliomyelitis: A historical cohort study involving 3606 polio patients. Journal of Neurology, 263(6), 1120–1128.CrossRefPubMed

Verdugo, M. A., Schalock, R. L., Keith, K. D., & Stancliffe, R. J. (2005). Quality of life and its measurement: Important principles and guidelines. Journal of Intellectual Disability Research, 49(10), 707–717.CrossRefPubMed

Brown, J., Bowling, A., & Flynn, T. (2004). Models of quality of life: A taxonomy, overview and systematic review of the literature review. Ageing & Society, 29, 657–678.

Theofilou, P. (2013). Quality of life: Definition and measurement. Europe’s Journal of Psychology, 9(1), 150–162.CrossRef

Post, M. (2014). Definitions of quality of life: What has happened and how to move on. Topics in Spinal Cord Injury Rehabilitation, 20(3), 167–180.CrossRefPubMedPubMedCentral

10.

Moons, P., Budts, W., & De Geest, S. (2006). Critique on the conceptualisation of quality of life: A review and evaluation of different conceptual approaches. International Journal of Nursing Studies, 43(7), 891–901.CrossRefPubMed

11.

Salvador-Carulla, L., Lucas, R., Ayuso-Mateos, J. L., & Miret, M. (2014). Use of the terms “Wellbeing” and “Quality of Life” in health sciences: A conceptual framework. The European Journal of Psychiatry, 28(1), 50–65.CrossRef

12.

Garip, Y., Eser, F., Bodur, H., Baskan, B., Sivas, F., & Yilmaz, O. (2017). Health related quality of life in Turkish polio survivors: Impact of post-polio on the health related quality of life in terms of functional status, severity of pain, fatigue, and social, and emotional functioning. Revista Brasileira de Reumatologia, 57(1), 1–7.CrossRefPubMed

13.

Lund, M. L., & Lexell, J. (2011). Life satisfaction in persons with late effects of polio. Applied Research in Quality of Life, 6(1), 71–80.CrossRef

14.

Saeki, S., & Hachisuka, K. (2006). Factors associated with Quality of life of polio survivors in Japan. JJOMT, 54, 84–90.

15.

Shiri, S., Wexler, I. D., Feintuch, U., Meiner, Z., & Schwartz, I. (2012). Post-polio syndrome: Impact of hope on quality of life. Disability and Rehabilitation, 34(10), 824–830.CrossRefPubMed

16.

Lexell, J., & Brogårdh, C. (2012). Life satisfaction and self-reported impairments in persons with late effects of polio. Annals of Physical and Rehabilitation Medicine, 55(9–10), 577–589.CrossRefPubMed

17.

Yang, E. J., Lee, S. Y., Kim, K., Jung, S. H., Jang, S. N., Han, S. J., et al. (2015). Factors associated with reduced quality of life in polio survivors in Korea. PLoS ONE, 10(6), 1–11.

18.

Atwal, A., Giles, A., Spiliotopoulou, G., Plastow, N., & Wilson, L. (2013). Living with polio and postpolio syndrome in the United Kingdom. Scandinavian Journal of Caring Sciences, 27(2), 238–245.CrossRefPubMed

19.

Spiliotopoulou, G., Fowkes, C., & Atwal, A. (2012). Assistive technology and prediction of happiness in people withpost-polio syndrome. Disability and Rehabilitation: Assistive Technology, 7(3), 199–204.PubMed

20.

Winberg, C., Flansbjer, U. B., Carlsson, G., Rimmer, J., & Lexell, J. (2014). Physical activity in persons with late effects of polio: A descriptive study. Disability and Health Journal, 7(3), 302–308.CrossRefPubMed

21.

Ahlström, G., & Karlsson, U. (2000). Disability and quality of life in individuals with postpolio syndrome. Disability and Rehabilitation, 22(9), 416–422.CrossRefPubMed

22.

Jacob, T., & Shapira, A. (2010). Quality of life and health conditions reported from two postpolio clinics in Israel. Journal of Rehabilitation Medicine, 42(4), 377–379.CrossRefPubMed

23.

Farbu, E., & Gilhus, N. E. (2002). Education, occupation, and perception of health amongst previous polio patients compared to their siblings. European Journal of Neurology, 9(3), 233–241.CrossRefPubMed

24.

Kemp, J. B., & Krause, J. S. (1999). Depression and life satisfaction among people ageing with post-polio and spinal cord injury. Disability and Rehabilitation, 21(5–6), 241–249.CrossRefPubMed

25.

Stuifbergen, A. K., Seraphine, A., Harrison, T., & Adachi, E. (2005). An explanatory model of health promotion and quality of life for persons with post-polio syndrome. Social Science and Medicine, 60(2), 383–393.CrossRefPubMed

26.

Harrison, T. C., & Stuifbergen, A. K. (2006). Life purpose: Effect on functional decline and quality of life in polio survivors. Rehabilitation Nursing, 31(4), 149–154.CrossRefPubMed

27.

Stuifbergen, A. K. (2005). Secondary conditions and life satisfaction among polio survivors. Rehabilitation Nursing, 30(5), 173–179.CrossRefPubMed

28.

Kling, C., Persson, A., & Gardulf, A. (2000). The health-related quality of life of patients suffering from the late effects of polio (post-polio). Journal of Advanced Nursing, 32(1), 164–173.CrossRefPubMed

29.

Geyh, S., Cieza, A., Kollerits, B., Grimby, G., & Stucki, G. (2007). Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): A systematic review. Quality of Life Research, 16(5), 833–851.CrossRefPubMed

30.

Krančiukaitė, D., & Rastenytė, D. (2006). Measurement of quality of life in stroke patients. Medicina (Kaunas, Lithuania), 42(9), 709–716.

31.

Bandari, D. S., Vollmer, T. L., Khatri, B. O., & Tyry, T. (2010). Assessing quality of life in patients with multiple sclerosis. International Journal of MS Care, 12, 34–41.CrossRef

32.

Werhagen, L., & Borg, K. (2013). Impact of pain on quality of life in patients with post-polio syndrome. Journal of Rehabilitation Medicine, 45(2), 161–163.CrossRefPubMed

33.

Souza, A. C., Alexandre, N. M., & Guirardello, E. B. (2017). Psychometric properties in instruments evaluation of reliability and validity. Epidemiologia e Serviços de Saúde, 26(3), 649.CrossRefPubMed

34.

Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.CrossRef

35.

Ierssel Van, J., Sveistrup, H., & Marshall, S. (2018). Identifying the concepts contained within health-related quality of life outcome measures in concussion research using the International Classification of Functioning, Disability, and Health as a reference: A systematic review. Quality of Life Research, 27(12), 3071.CrossRefPubMed

36.

Tricco, A. C., Lillie, E., Zarin, W., Brien, K. K. O., Colquhoun, H. & Levac, D., et al. (2018). PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and explanation. Annals of Internal Medicine, 169, 467–473.CrossRefPubMed

37.

Bakas, T., McLennon, S. M., Carpenter, J. S. Buelow, J. M., Otte, J. L., Hanna, K. M. et al. (2012). Systematic review of health-related quality of life models. Health and Quality of Life Outcomes, 10(1), 134 (2012)CrossRefPubMedPubMedCentral

38.

Kostanjsek, N. (2011). Use of The International Classification of Functioning, Disability and Health (ICF) as a conceptual framework and common language for disability statistics and health information systems. BMC Public Health, 11(Suppl 4), S3.CrossRefPubMedPubMedCentral

39.

Barcaccia, B., Esposito, G., Matarese, M., Bertolaso, M., Elvira, M., & De Marinis, M. G. (2013). Defining quality of life: A wild-goose chase? Europe’s Journal of Psychology, 9(1), 185–203.CrossRef

40.

Ahmad, T., Arif, S., Chaudary, N., & Anjum, S. (2014). Epidemiological characteristics of poliomyelitis during the 21st Century (2000–2013). International Journal of Public Health Science, 3(3), 143–157.

41.

Center for Disease Control and Prevention. (2015). Poliomyelitis. In J. Hamborsky, A. Kroger, & S. Wolfe (Eds.), Epidemiology and prevention of vaccine-preventable diseases (13th ed., pp. 297–310). Washington DC: Center for Disease Control and Prevention.

42.

Mokkink, L. B., Terwee, C. B., Knol, D. L., Stratford, P. W., Alonso, J., Patrick, D. L., et al. (2010). The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: A clarification of its content. BMC Medical Research Methodology, 10(22), 8.

43.

Terwee, C. B., Mokkink, L. B., Knol, D. L., & Ostelo, R. W. J. G. (2012). Rating the methodological quality in systematic reviews of studies on measurement properties: A scoring system for the COSMIN checklist. Quality of Life Research, 21, 651–657.CrossRefPubMed

44.

Prinsen, C. A. C., Vohra, S., Rose, M. R., Boers, M., Tugwell, P., Clarke, M., et al. (2016). How to select outcome measurement instruments for outcomes included in a “Core Outcome Set” - a practical guideline. Trials, 17(1), 449–458.CrossRefPubMedPubMedCentral

45.

Östlund, G., Wahlin, Å., Sunnerhagen, K. S., & Borg, K. (2011). Post-polio syndrome: Fatigued patients a specific subgroup? Journal of Rehabilitation Medicine, 43(1), 39–45.CrossRefPubMed

46.

Vasiliadis, H. M., Collet, J. P., Shapiro, S., Venturini, A., & Trojan, D. A. (2002). Predictive factors and correlates for pain in postpoliomyelitis syndrome patients. Archives of Physical Medicine and Rehabilitation, 83(8), 1109–1115.CrossRefPubMed

47.

Jung, T. D., Broman, L., Stibrant-Sunnerhagen, K., Gonzalez, H., & Borg, K. (2014). Quality of life in Swedish patients with post-polio syndrome with a focus on age and sex. International Journal of Rehabilitation Research, 37(2), 173–179.CrossRefPubMed

48.

Trojan, D. A., Collet, J., Pollak, M. N., Shapiro, S., Jubelt, B., Miller, R. G., et al. (2001). Serum insulin-like growth factor-I (IGF-I) does not correlate positively with isometric strength, fatigue, and quality of life in post-polio syndrome. Journal of the Neurological Sciences, 182(2), 107–115.CrossRefPubMed

49.

Bertolasi, L., Frasson, E., Turri, M., Gajofatto, A., Bordignon, M., Zanolin, E., et al. (2013). A randomized controlled trial of IV immunoglobulin in patients with postpolio syndrome. Journal of the Neurological Sciences, 330(1–2), 94–99.CrossRefPubMed

50.

Murray, D., Hardiman, O., & Meldrum, D. (2014). Assessment of subjective and motor fatigue in Polio survivors, attending a Postpolio clinic, comparison with healthy controls and an exploration of clinical correlates. Physiotherapy Theory and Practice, 30(4), 229–235.CrossRefPubMed

51.

Finch, L. E., Venturini, A., Mayo, N. E., & Trojan, D. A. (2004). Effort-limited treadmill walk test: Reliability and validity in subjects with postpolio syndrome. American Journal of Physical Medicine and Rehabilitation, 83(8), 613–623.CrossRefPubMed

52.

Skough, K., Krossén, C., Heiwe, S., Theorell, H., & Borg, K. (2008). Effects of resistance training in combination with coenzyme Q10 supplementation in patients with post-polio: A pilot study. Journal of Rehabilitation Medicine, 40(9), 773–775.CrossRefPubMed

53.

Koopman, F. S., Voorn, E. L., Beelen, A., Bleijenberg, G., De Visser, M., Brehm, M. A., et al. (2015). No reduction of severe fatigue in patients with postpolio syndrome by exercise therapy or cognitive behavioral therapy. Neurorehabilitation and Neural Repair, 30(5), 402–410.CrossRefPubMed

54.

Östlund, G., Wahlin, Å., Sunnerhagen, K. S., & Borg, K. (2008). Vitality among Swedish patients with post-polio: A physiological phenomenon. Journal of Rehabilitation Medicine, 40(9), 709–714.CrossRefPubMed

55.

Kaponides, G., Gonzalez, H., Olsson, T., & Borg, K. (2006). Effect of intravenous immunoglobulin in patients with post-polio syndrome—An uncontrolled pilot study. Journal of Rehabilitation Medicine, 38(2), 138–140.CrossRefPubMed

56.

Legters, K., Verbus, N. B., Kitchen, S., Tomecsko, J., & Urban, N. (2006). Fear of falling, balance confidence and health-related quality of life in individuals with postpolio syndrome. Physiotherapy Theory and Practice, 22(3), 127–135.CrossRefPubMed

57.

Vreede, K. S., Broman, L., & Borg, K. (2016). Long-term follow-up of patients with prior polio over A 17-year period. Journal of Rehabilitation Medicine, 48(4), 359–364.CrossRefPubMed

58.

Bertelsen, M., Broberg, S., & Madsen, E. (2009). Outcome of physiotherapy as part of a multidisciplinary rehabilitation in an unselected polio population with one-year follow-up: An uncontrolled study. Journal of Rehabilitation Medicine, 41(1), 85–87.CrossRefPubMed

59.

Vasconcelos, O. M., Prokhorenko, O. A., Salajegheh, M. K., Kelley, K. F., Livornese, K., Olsen, C. H., et al. (2007). Modafinil for treatment of fatigue in post-polio syndrome: A randomized controlled trial. Neurology, 68(20), 1680–1686.CrossRefPubMed

60.

Gonzalez, H., Stibrant Sunnerhagen, K., Sjoberg, I., Kaponides, G., Olsson, T., & Borg, K. (2006). Intravenous immunoglobulin for post-polio syndrome: A randomised controlled trial. The Lancet Neurology, 5(6), 493–500.CrossRefPubMed

61.

Gonzalez, H., Khademi, M., Borg, K., & Olsson, T. (2012). Intravenous immunoglobulin treatment of the post-polio syndrome: Sustained effects on quality of life variables and cytokine expression after one year follow up. Journal of Neuroinflammation, 9(1), 167.CrossRefPubMedPubMedCentral

62.

On, A. Y., Oncu, J., & Uludag, B. (2005). Effects of lamotrigine on the symptoms and life qualities of patients with post polio syndrome: A randomized, controlled study. NeuroRehabilitation, 20(4), 245–251.PubMed

63.

Oncu, J., Durmaz, B., & Karapolat, H. (2009). Short-term effects of aerobic exercise on functional capacity, fatigue, and quality of life in patients with post-polio syndrome. Clinical Rehabilitation, 23(2), 155–163.CrossRefPubMed

64.

On, A. Y., Oncu, J., Atamaz, F., & Durmaz, B. (2006). Impact of post-polio-related fatigue on quality of life. Journal of Rehabilitation Medicine, 38(5), 329–332.CrossRefPubMed

65.

Epstein, J., Santo, R. M., & Guillemin, F. (2015). A review of guidelines for cross-cultural adaptation of questionnaires could not bring out a consensus. Journal of Clinical Epidemiology, 68(4), 435–441.CrossRefPubMed

66.

Bentzen, N., Christiansen, T., McColl, E., & Meadows, K. (1998). Selection and cross-cultural adaptation of health outcome measures. The European Journal of General Practice, 4(1), 27–33.CrossRef

67.

Kaka, B., Ogwumike, O., & Adeniyi, A. F. (2011). Factors associated with health-related quality of life among post-paralytic polio survivors in Nigeria. AJPARS, 3(1), 17–22.

68.

Adegoke, B. O. A., Oni, A. A., Gbiri, C. A., & Akosile, C. O. (2012). Paralytic poliomyelitis: Quality of life of adolescent survivors. Hong Kong Physiotherapy Journal, 30(2), 93–98.CrossRef

69.

Donaldson, L. J., & Hayes, K. (2018). Eradicating polio The sprint at the end of the marathon. British Medical Journal, 361(May), 10–11.

70.

Haywood, K., Garratt, L., & Fitzpatrick, A. (2005). Quality of life in older people: A structured review of generic self-assessed health instruments. Quality of Life Research, 14(7), 1651–1668.CrossRefPubMed

71.

Coons, S. J., Rao, S., Keininger, D. L., & Hays, R. D. (2000). A comparative review of generic quality-of-life instruments. Pharmacoeconomics, 17(1), 13–35.CrossRefPubMed

72.

Ware, J. E. J., & Sherbourne, C. D. (1992). The MOS 36-ltem Short-Form Health Survey (SF-36): I. Conceptual framework and item selection. Medical Care, 30(6), 473–483.CrossRefPubMed

73.

Ware, J. E. (2000). SF-36 health survey update. Spine, 25(24), 3130–3139.CrossRefPubMed

74.

Fawkes, C. (2013). SF-36. National Council For Osteopathic Research.

75.

Fayed, N., De Camargo, O. K., Kerr, E., Rosenbaum, P., Dubey, A., Bostan, C., et al. (2012). Generic patient-reported outcomes in child health research: A review of conceptual content using World Health Organization definitions. Developmental Medicine and Child Neurology, 54, 1085–1095.CrossRefPubMed

76.

Streiner, D. L., Norman, G. R., & Cairney, J. (2015). Health measurement scales a practical guide to their development and use (5th ed., p. 415). Oxford: Oxford University Press.

77.

Kalpakjian, C. Z., & Lequerica, A. (2006). Quality of Life and menopause in women with physical disabilities. Journal of Women’s Health, 15(9), 1014–1027.CrossRefPubMed

78.

Kathleen, N. L., Aaronson, N. K., Alonso, J., Burnam, M. A., Patrick, D. L., Pen-in, E. B., et al. (1996). Evaluating quality-of-life and health status instruments: Development of scientific review criteria. Clinical Therapeutics, 18(5), 979–992.CrossRef

79.

Gandek, B., Sinclair, S. J., Kosinski, M., & Ware, J. E. (2004). Psychometric evaluation of the SF-36 health survey in medicare managed care. Health Care Financing Review, 25(4), 5–25.PubMedPubMedCentral

80.

Steffen, T., & Seney, M. (2008). Test-retest reliability and minimal detectable change on balance and ambulation tests, the 36-item short- form health survey, and the unified Parkinson disease rating scale in people with Parkinsonism. Physical Therapy, 88(6), 733–746.CrossRefPubMed

81.

Lin, M.-R., Hwang, H.-F., Chen, C.-Y., & Chiu, W.-T. (2007). Comparisons of the brief form of the World Health Organization Quality of Life and Short Form-36 for persons with spinal cord injuries. American Journal of Physical Medicine and Rehabilitation, 86(2), 104–113.CrossRefPubMed

82.

Mcnaughton, H. K., Weatherall, M., & Mcpherson, K. M. (2005). Functional measures across neurologic disease states: Analysis of factors in common. Archives of Physical Medicine and Rehabilitation, 86, 2184–2188.CrossRefPubMed

83.

Forchheimer, M., McAweeney, M., & Tate, D. (2004). Use of the SF-36 among persons with spinal cord injury. American Journal of Physical Medicine and Rehabilitation, 83(5), 390–395.CrossRefPubMed

84.

Leonardi, M., Raggi, A., Pagani, M., Carella, F., Soliveri, P., Albanese, A., et al. (2012). Parkinsonism and related disorders relationships between disability, quality of life and prevalence of nonmotor symptoms in Parkinson’ s disease. Parkinsonism & Related Disorders, 18(1), 35–39.CrossRef

85.

Baro, E., Ferrer, M., Vazquez, O., Miralles, R., Pont, A., Esperanza, A., et al. (2006). Using the Nottingham Health Profile (NHP) among older adult inpatients with Varying Cognitive Function. Quality of Life Research, 15, 575–585.CrossRefPubMed

86.

Jans, M. P., Schellevis, Ë. G., & Van, Eijk J. T. M. (1999). The Nottingham Health Profile: Score distribution, internal consistency and and validity in asthma and COPD patients. Quality of Life Research, 8, 501–507.CrossRefPubMed

87.

Demet, K., Guillemin, F., & Martinet, N. (2002). Nottingham Health Profile: Reliability in a sample of 542 subjects with major amputation of one or several limbs. Prosthetics and Orthotics International, 26, 120–123.CrossRefPubMed

88.

Beaton, D. E., Hogg-Johnson, S., & Bombardier, C. (1997). Evaluating changes in health status: Reliability and responsiveness. Journal of Clinical Epidemiology, 50(1), 79–93.CrossRefPubMed

89.

Ferrans, C. E., & Powers, M. J. (1992). Psychometric assessment of the Quality of Life Index. Research in Nursing & Health, 15(1), 29–38.CrossRef

90.

Stuifbergen, A. K., & Roberts, G. J. (1997). Health promotion practices of women with multiple sclerosis. Archives of Physical Medicine and Rehabilitation, 78(Supplement), 3–9.CrossRef

91.

Ferrans, C. E., & Powers, M. J. (2007). The Quality of Life Index: Development and psychometric properties. Nursing Research, 1(88), 32–37.

92.

May, L. A., & Warren, S. (2002). Original Article Measuring quality of life of persons with spinal cord injury: External and structural validity. Spinal Cord, 40, 341–351.CrossRefPubMed

93.

Marti, C., Hensler, S., Herren, D. B., Niedermann, K., & Marks, M. (2016). JHS (E) measurement properties of the EuroQoL EQ-5D-5L to assess. Journal of Hand Surgery (European Volume), 41(9), 957–962.CrossRef

94.

Conner-spady, B. L., Marshall, D. A., Bohm, E., Dunbar, M. J., Loucks, L., Al, Khudairy A., et al. (2015). Reliability and validity of the EQ-5D-5L compared to the EQ-5D- 3L in patients with osteoarthritis referred for hip and knee replacement. Quality of Life Research, 24, 1775–1784.CrossRefPubMed

95.

Brazier, J., Jones, N., & Kind, P. (1993). Testing the validity of the euroqol and comparing it with the SF-36 health survey questionnaire. Quality of Life Research, 2(3), 169–180.CrossRefPubMed

96.

Sonntag, M., Konnopka, A., Leichsenring, F., Salzer, S., Beutel, M. E., Herpertz, S., et al. (2013). Reliability, validity and responsiveness of the EQ-5D in assessing and valuing health status in patients with social phobia. Health and Quality of Life Outcomes, 11(215), 1–9.

97.

Kaasa, S., Mastekaasa, A., & Naess, S. (1988). Quality of life of lung cancer patients in a randomized clinical trial evaluated by a psychosocial well-being questionnaire. Acta Oncologica, 27, 335–342.CrossRefPubMed

98.

Kaasa, S., Mastekaasa, A., Stokke, I., & Naess, S. (1988). Validation of a Quality of Life Questionnaire for use in clinical trials for treatment of patients with inoperable lung cancer. European Journal of Cancer and Clinical Oncology, 24(4), 691–701.CrossRefPubMed

99.

WHOQOL. (1998). Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment. Psychological Medicine, 28, 551–558.CrossRef

100.

Berlim, M. T., Pavanello, D. P., Caldieraro, M. A. K., & Fleck, M. P. A. (2005). Reliability and validity of the WHOQOL BREF in a sample of Brazilian outpatients with major depression. Quality of Life Research, 14, 561–564.CrossRefPubMed

101.

Skevington, S. M., Lotfy, M., & Connell, K. A. O. (2004). The World Health Organization’ s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial A Report from the WHOQOL Group. Quality of Life Research, 13, 299–310.CrossRefPubMed

102.

Cummins, R. A., McCabe, M. P., & Romeo, Y. (1994). The Comprehensive Quality of Life Scale (Comqol): Instrument development and psychometric evaluation on college staff and students. Educational and Psychological Measurement, 54(2), 372–382.CrossRef

103.

Gullone, E., & Cummins, R. A. (1999). The comprehensive quality of life scale: A psychometric evaluation with an adolescent sample. Behaviour Change, 16(2), 127–139.CrossRef

104.

Cummins, R. A. (1997). Self-rated Quality of life Scales for people with an intellectual disability: A review. Journal of Applied Research in Intellectual Disabilities, 1(3), 199–216.CrossRef

105.

Galanakis, M., Lakioti, A., Pezirkianidis, C., Karakasidou, E., & Stalikas, A. (2017). Reliability and Validity of the Satisfaction with Life Scale (SWLS) in a Greek Sample. International Journal of Humanities and Social Studies, 5(2), 120–127.

106.

Post, M. W., Van Leeuwen, C. M., Van Koppenhagen, C. F., & De Groot, S. (2012). Validity of the life satisfaction questions, the life satisfaction questionnaire, and the satisfaction with life scale in persons with spinal cord injury. Archives of Physical Medicine and Rehabilitation, 93(10), 1832–1837.CrossRefPubMed

107.

López-ortega, M., Torres-castro, S., & Rosas-carrasco, O. (2016). Psychometric properties of the Satisfaction with Life Scale (SWLS): Secondary analysis of the Mexican Health and Aging Study. Health and Quality of Life Outcomes, 14(170), 1–7.

108.

Pavot, W., & Diener, E. (2009). Review of the satisfaction with life scale. Social Indicators Research Series, 39, 101.CrossRef

109.

Brorsson, B., Ifver, J., & Hays, R. D. (1993). The Swedish health-related quality of life survey. Quality of Life Research, 2(1), 33–45.CrossRefPubMed

110.

Ware, J. E., Kosinski, M., & Keller, S. D. (1996). A 12-Item Short-Form Health Survey: Construction of scales and preliminary tests of reliability and validity. Medical Care, 34(3), 220–233.CrossRefPubMed

111.

Huo, T., Guo, Y., Shenkman, E., & Muller, K. (2018). Assessing the reliability of the short form 12 (SF-12) health survey in adults with mental health conditions: A report from the wellness incentive and navigation (WIN) study. Health and Quality of Life Outcomes, 16(34), 1–8.

112.

Hayes, C. J., Bhandari, N. R., Kathe, N., & Payakachat, N. (2017). Reliability and validity of the medical outcomes study short form-12 version 2 (SF-12v2) in adults with non-cancer pain. Healthcare, 5(22), 1–12.

113.

Salyers, M. P., Bosworth, H. B., Swanson, J. W., Lamb-Pagone, J., & Osher, F. C. (2000). Reliability and validity of the SF-12 Health Survey among people with severe mental illness. Medical Care, 38(11), 1141–1150.CrossRefPubMed

Titel: Quality of life assessment scales in polio survivors: a scoping review
Auteurs: Surajo Kamilu Sulaiman
Heather Michelle Aldersey
Nora Fayed
Bashir Kaka
Christiana Okyere
Publicatiedatum: 26-04-2019
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 9/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-019-02185-x

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Background

Purpose

Method

Results

Conclusion

Log in om toegang te krijgen

Andere artikelen Uitgave 9/2019

Sports participation and health-related quality of life: a longitudinal observational study in children

A psychometric evaluation of the Chinese version of the Nursing Home Adjustment Scale

Status of inflammation in relation to health related quality of life in hepatocellular carcinoma patients

Use of an expert panel to identify domains and indicators of delirium severity

Association of the built environments and health-related quality of life in community-dwelling older adults: a cross-sectional study

Cutoff of the Zarit Burden Interview in predicting depression and anxiety