Top

Quality of Life Research

Gepubliceerd in:

01-02-2009

Quality of life and self-esteem of persons with paraplegia living in São Paulo, Brazil

Auteurs: Leila Blanes, Maria Isabel S. Carmagnani, Lydia M. Ferreira

Gepubliceerd in: Quality of Life Research | Uitgave 1/2009

Abstract

Purpose

To evaluate the quality of life (QoL) and self-esteem of paraplegic persons.

Methods

The sample consisted of 60 outpatients with traumatic paraplegia living in São Paulo, Brazil, from whom clinical and demographic data were obtained. QoL was assessed by the 36-item Short-Form (SF-36) health survey questionnaire, and self-esteem was measured by Rosenberg’s Self-Esteem (RSE) scale. Statistical analysis was performed using Student’s t-test, analysis of variance and Fisher’s least significant difference (LSD) test at a significance level of 5%.

Results

Participants were predominately men (86.7%) with a mean age of 32.9 (standard deviation [SD] = 9.47) years, low education level and low income. The SF-36 dimensions that received the lowest scores were physical functioning, role physical and role emotional. Cronbach’s alpha for the SF-36 questionnaire was 0.80. A significant statistical difference was found between the presence of pressure ulcers and low scores on mental health (P = 0.001), as determined by Student’s t-test. The mean self-esteem score was 8.35 and there was a significant statistical difference between low self-esteem scores and occupation (P = 0.008).

Conclusion

Participants reported low QoL and self-esteem. The results provide background information that may be useful in the development of strategies to reduce the impact of spinal cord injury (SCI) on the life and health of persons with SCI, improving their QoL.

vorige artikel Impact of family income and sickle cell disease on the health-related quality of life of children

volgende artikel Psychological insulin resistance: patient beliefs and implications for diabetes management

Kennedy, P. (Ed.). (2007). Psychological management of physical disabilities. A practitioner’s guide. London: Routledge.

Dijkers, M. (1997). Quality of life after spinal cord injury: A meta analysis of the effects of disablement components. Spinal Cord, 35, 829–840. doi:10.1038/sj.sc.3100571.PubMedCrossRef

de Azevedo, G. R., & Santos, V. L. C. G. (2006). (Handicapped) Caregiver: The social representations of family members about the caregiving process. Revista Latino-Americana de Enfermagem, 14, 770–780. doi:10.1590/S0104-11692006000500020.PubMedCrossRef

Whalley Hammell, K. (2007). Quality of life after spinal cord injury: A meta-synthesis of qualitative findings. Spinal Cord, 45, 124–139. doi:10.1038/sj.sc.3101992.PubMedCrossRef

Whalley Hammell, K. (2007). Experience of rehabilitation following spinal cord injury: A meta-synthesis of qualitative findings. Spinal Cord, 45, 260–274. doi:10.1038/sj.sc.3102034.

Ku, J. H. (2007). Health-related quality of life in patients with spinal cord injury: Review of the Short Form 36-health questionnaire survey. Yonsei Medical Journal, 48, 360–370. doi:10.3349/ymj.2007.48.3.360.PubMedCrossRef

Barros Filho, T. E. P. (1990). Estudo epidemiológico dos pacientes com traumatismo da columa vertebral e déficit neurológico, internados no Instituto de Ortopedia e Traumatologia do Hospital das Clínicas da Faculdade de Medicina da USP. Revista do Hospital das Clinicas; Faculdade de Medicina da Universidade de São Paulo, 445, 123–126.

Vall, J., Braga, V. A. B., & de Almeida, P. C. (2006). Estudo da qualidade de vida em pessoas com lesão medular traumática. Arquivos de Neuro-Psiquiatria, 64, 451–455. doi:10.1590/S0004-282X2006000300019.PubMedCrossRef

Nogueira, P. C., Caliri, M. H. L., & Haas, V. J. (2006). Profile of patients with spinal cord injuries and occurrence of pressure ulcer at a university hospital. Revista Latino-Americana de Enfermagem, 14, 372–377. doi:10.1590/S0104-11692006000300010.PubMedCrossRef

10.

Kreuter, M., Siösteen, A., Erkholm, B., Byström, U., & Brown, D. J. (2005). Health and quality of life of persons with spinal cord lesion in Australia and Sweden. Spinal Cord, 43, 123–129. doi:10.1038/sj.sc.3101692.PubMedCrossRef

11.

da Silva Bampi, L. N., Guilhem, D., & Lima, D. D. (2008). Quality of live in people with traumatic spinal cord injury: A study with WHOQOL-bref. Revista Brasileira de Epidemiologia, 11, 67–77. doi:10.1590/S1415-790X2008000100006.

12.

de Campos, M. F., Ribeiro, A. T., Listik, S., de Brito Pereira, C. A., de Andrade Sobrinho, J., & Rapoport, A. (2008). Epidemiology of spine injuries. Revista do Colégio Brasileiro de Cirurgiões, 35, 88–93. doi:10.1590/S0100-69912008000200005.CrossRef

13.

Carcinoni, M., & Caliri, M. H. L., & Nascimento, M. S. (2005). Ocorrência de úlcera de pressão em indivíduos com lesão traumática da medula espinhal. Revista Mineira de Enfermagem, 9, 29–34.

14.

Ware, J. E. Jr., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care, 30, 473–483. doi:10.1097/00005650-199206000-00002.PubMedCrossRef

15.

Ciconelli, R. M., Ferraz, M. B., Santos, W., Meinão, I., & Quaresma, M. R. (1999). Brazilian-Portuguese version of the SF-36. A reliable and valid quality of life outcome measure. Revista Brasileira de Reumatologia, 39, 143–150.

16.

Rosenberg, M. (1965). Society and adolescent self image. Princeton: Princeton University Press, 326 pp.

17.

Dini, G. M. (2004). Adaptação cultural e Validação da versão brasileira da Escala de Auto-Estima de Rosenberg. Revista da Sociedade Brasileira de Cirurgia Plástica, 19, 41–52.

18.

Veiga, D. F., Sabino Neto, M., Ferreira, L. M., Garcia, E. B., Veiga Filho, J., Novo, N. F., et al. (2004). Quality of life outcomes after pedicled TRAM flap delayed breast reconstruction. British Journal of Plastic Surgery, 57, 252–257. doi:10.1016/j.bjps.2003.12.029.PubMedCrossRef

19.

Blanes, L., Carmagnani, M. I. S., & Ferreira, L. M. (2007). Health-related quality of life of primary caregivers of persons with paraplegia. Spinal Cord, 45, 399–403. doi:10.1038/sj.sc.3102038.PubMedCrossRef

20.

Craig, A. R., Hancock, K. M., & Dickson, H. G. (1994). A longitudinal investigation into anxiety and depression in the first 2 years following a spinal cord injury. Paraplegia, 32, 675–679.PubMed

21.

Putzke, J. D., Richards, J. S., Hicken, B. L., & DeVivo, M. J. (2002). Predictors of life satisfaction: A spinal cord injury cohort study. Archives of Physical Medicine and Rehabilitation, 83, 555–561. doi:10.1053/apmr.2002.31173.PubMedCrossRef

22.

Piazza, D., Holcombe, J., Foote, A., Paul, P., Love, S., & Daffin, P. (1991). Hope, social support and self-esteem of patients with spinal cord injuries. The Journal of Neuroscience Nursing, 23, 224–230.PubMed

23.

DeVivo, M. J., & Fine, P. R. (1985). Spinal cord injury: Its short-term impact on marital status. Archives of Physical Medicine and Rehabilitation, 66, 501–504.PubMed

24.

DeVivo, M. J., Hawkins, L. N., Richards, J. S., & Go, B. K. (1995). Outcomes of post-spinal cord injury marriages. Archives of Physical Medicine and Rehabilitation, 76, 130–138. doi:10.1016/S0003-9993(95)80022-0.PubMedCrossRef

25.

Krause, J. S., Vines, C. L., Farley, T. L., Sniezek, J., & Coker, J. (2001). An exploratory study of pressure ulcers after spinal cord injury: Relationship to protective behaviors and risk factors. Archives of Physical Medicine and Rehabilitation, 82, 107–113. doi:10.1053/apmr.2001.18050.PubMedCrossRef

26.

Blanes, L., Duarte, I. S., Calil, J. A., & Ferreira, L. M. (2004). Clinical and epidemiologic evaluation of pressure ulcers in patients at the Hospital São Paulo. Revista da Associação Médica Brasileira, 50, 182–187.PubMedCrossRef

27.

Pinchcofsky-Devin, G. D., & Kaminski, M. V. Jr. (1986). Correlation of pressure sores and nutritional status. Journal of the American Geriatrics Society, 34(6), 435–440.PubMed

28.

Henwood, P., & Ellis, J. A. (2004). Chronic neuropathic pain in spinal cord injury: The patient’s perspective. Pain Research & Management, 9, 39–45.

29.

Byrne, D. W., & Salzberg, C. A. (1996). Major risk factors for pressure ulcers in the spinal cord disabled: A literature review. Spinal Cord, 34, 255–263.PubMed

30.

Salzberg, C. A., Byrne, D. W., Cayten, C., van Niewerburgh, P. P., Murphy, J. G., & Viehbeck, M. (1996). A new pressure ulcer risk assessment scale for individuals with spinal cord injury. American Journal of Physical Medicine and Rehabilitation, 75, 96–104. doi:10.1097/00002060-199603000-00004.PubMedCrossRef

31.

Clark, F. A., Jackson, J. M., Scott, M. D., Carlson, M. E., Atkins, M. S., Uhles-Tanaka, D., et al. (2006). Data-based models of how pressure ulcers develop in daily-living contexts of adults with spinal cord injury. Archives of Physical Medicine and Rehabilitation, 87, 1516–1525. doi:10.1016/j.apmr.2006.08.329.PubMedCrossRef

32.

Clipp, E. C., & George, L. K. (1990). Caregiver needs and patterns of social support. Journal of Gerontology, 45, S102–S111.PubMed

33.

Morris, R. G., Morris, L. W., & Britton, P. G. (1988). Factors affecting the emotional wellbeing of the caregivers of dementia sufferers. The British Journal of Psychiatry, 153, 147–156. doi:10.1192/bjp.153.2.147.PubMedCrossRef

Titel: Quality of life and self-esteem of persons with paraplegia living in São Paulo, Brazil
Auteurs: Leila Blanes
Maria Isabel S. Carmagnani
Lydia M. Ferreira
Publicatiedatum: 01-02-2009
Uitgeverij: Springer Netherlands
Gepubliceerd in: Quality of Life Research / Uitgave 1/2009
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-008-9411-9

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Purpose

Methods

Results

Conclusion

Log in om toegang te krijgen

Andere artikelen Uitgave 1/2009

Importance of patient-centered care in enhancing patient well-being: a cancer survivor’s perspective

Using patient-reported outcomes in clinical practice: challenges and opportunities

Impact of family income and sickle cell disease on the health-related quality of life of children

Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples

Psychological insulin resistance: patient beliefs and implications for diabetes management

A conceptual framework for patient–provider communication: a tool in the PRO research tool box