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Gepubliceerd in: Quality of Life Research 8/2011

01-10-2011

Quality of life among parents of children with cancer or brain tumors: the impact of child characteristics and parental psychosocial factors

Auteurs: Kristin Litzelman, Kris Catrine, Ronald Gangnon, Whitney P. Witt

Gepubliceerd in: Quality of Life Research | Uitgave 8/2011

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Abstract

Purpose

Understanding the impact of childhood cancer on the family is increasingly important. This study aimed to (1) examine the relationship between child clinical characteristics and health-related quality of life (QOL) among parents of children with cancer or brain tumors, and (2) determine how parental psychosocial factors impact this relationship.

Methods

Using a within-group approach, this study examined 75 children with cancer or brain tumors and their parent. In-person interviewer-assisted surveys assessed sociodemographics, psychosocial factors, and QOL. Child clinical characteristics were obtained through medical record abstraction. Regressions were performed to determine factors related to parental QOL.

Results

Children’s activity limitation and active treatment status were associated with worse parental mental QOL (5.4 and 4.4 points lower, respectively; P < 0.05). Adding parental psychosocial characteristics to the model eliminated the relationship between child clinical characteristics and parental mental QOL (P > 0.05 for all child characteristics).

Conclusions

While child clinical characteristics appear to be related to poor parental QOL, this relationship was mediated by caregiver burden and stress. Interventions to reduce burden and stress may mitigate the deleterious effects of caregiving. Systematic screening of parents’ mental and physical health may facilitate interventions and improve the health and well-being of parents and children.
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Metagegevens
Titel
Quality of life among parents of children with cancer or brain tumors: the impact of child characteristics and parental psychosocial factors
Auteurs
Kristin Litzelman
Kris Catrine
Ronald Gangnon
Whitney P. Witt
Publicatiedatum
01-10-2011
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 8/2011
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-011-9854-2