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Quality of Life Research

Gepubliceerd in:

01-08-2017

Quality of life among German parents of children with cystic fibrosis: the effects of being a single caregiver

Auteurs: Astrid Wallenwein, Mona Schwarz, Lutz Goldbeck

Gepubliceerd in: Quality of Life Research | Uitgave 12/2017

Abstract

Purpose

Quality of life (QoL) has not been studied up to now in single parents of children with cystic fibrosis (CF). We hypothesized lower QoL compared to parents living together with a partner. We explored whether single parents benefit in a comparable manner from a family-oriented inpatient rehabilitation (FOR) program provided in Germany.

Methods

260 parents of a child with CF (0–17 years), 40 of them single parents, were included. Their QoL was compared to partnered parents using Student’s t test for independent samples. The positive impact of the FOR program on parents’ QoL was examined in a subgroup of n = 56 parents using a 2 × 2 analysis of variance with repeated measures on discharge and 6 months later.

Results

Single parents reported significantly lower QoL (M = 54.89; SD = 12.44) than partnered parents (M = 61.55; SD = 15.43; t(258) = −2.581; p = .010). Age of the child or employment status did not impact that difference. In the short term they benefit less from a FOR program than partnered parents (group × time effect: F(1) = 4.832; p = .032), but this was no longer the case at the 6-month follow-up (group × time effect: F(1) = 1.443; p = .235).

Conclusions

Single parents are at risk of lower QoL. CF care teams should help these parents in particular when it comes to accessing social support.

vorige artikel Subjective evaluation of psychosocial well-being in children and youths with overweight or obesity: the impact of multidisciplinary obesity treatment

volgende artikel Maternal mental quality of life mediates the associations between intimate partner abuse against mothers and their children’s behaviours and quality of life in low-income Chinese families

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Titel: Quality of life among German parents of children with cystic fibrosis: the effects of being a single caregiver
Auteurs: Astrid Wallenwein
Mona Schwarz
Lutz Goldbeck
Publicatiedatum: 01-08-2017
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 12/2017
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-017-1662-x

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Abstract

Purpose

Methods

Results

Conclusions

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