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Quality of Life Research
Gepubliceerd in: Quality of Life Research 8/2011

01-10-2011

Quality of life: a key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes

Auteurs: Emilie Cappe, Marion Wolff, René Bobet, Jean-Louis Adrien

Gepubliceerd in: Quality of Life Research | Uitgave 8/2011

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Abstract

Purpose

Our primary objective was to identify cognitive and behavioural profiles that affect adjustment, in order to make relevant recommendations about support and assistance for parents of autistic children.

Method

One hundred and sixty French parents completed a battery of questionnaires and self-report measures developed or adapted to assess (1) the child and family situations; (2) perceived stress; (3) perceived social support; (4) perceived control; (5) coping strategies; and (6) quality of life.

Results

The psychometric properties of the instruments we used proved to be adequate. Our results support the pre-existing data and our findings may prove to be of interest to clinicians. Our primary finding was that emotion-focused coping strategies seem to be less effective. Parents who employed emotion-focused strategies were more stressed and more disturbed in most parts of their life. They also experienced more guilt and reported more false beliefs about PDD.

Conclusions

Our data underscore the need for psychoeducation programmes for parents, focused on handling stress and emotions, modifying false beliefs and solving the daily problems that arise from PDD. We propose a 5-axis intervention model for parents of children with PDD, based on cognitive–behavioural therapies and on a stress management programme.
vorige artikel Does the subjective quality of life of children with specific learning disabilities (SpLD) agree with their parents’ proxy reports?
volgende artikel Children and adolescents’ health-related quality of life in relation to eczema, asthma and hay fever: results from a population-based cross-sectional study
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Metagegevens
Titel
Quality of life: a key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes
Auteurs
Emilie Cappe
Marion Wolff
René Bobet
Jean-Louis Adrien
Publicatiedatum
01-10-2011
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 8/2011
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-011-9861-3

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