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Gepubliceerd in: Journal of Child and Family Studies 2/2013

01-02-2013 | Original Paper

Psychosocial Adaptation of Childhood Cancer Survivors and their Siblings

Auteurs: Chau-kiu Cheung, Bong-ho Mok

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 2/2013

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Abstract

To best use resources in helping childhood cancer survivors, ascertaining the psychosocial adaptation deficit of the survivor is necessary. Psychosocial adaptation comprises a subjective, self-reflective indicator and objective indicators in terms of education, employment, and other achievements. While deficit is possible due to the trauma caused by cancer and its treatment, research evidence for the deficit is required to ascertain its existence. This study represents such a research endeavor based on a survey of 137 childhood cancer survivors and 101 cancer-free siblings of the survivors in Hong Kong, China. Results reveal weak and inconsistent differences in psychosocial adaptation between the survivor and his or her sibling. The effects of cancer treatment and service involvement on psychosocial adaptation were generally sporadic. Age presented the most pervasive influence on psychosocial adaptation. The results imply a justification for current practices in sustaining the psychosocial adaptation of childhood cancer survivors.
Literatuur
go back to reference Anderson-Butcher, D., Newsome, W. S., & Ferrari, T. M. (2003). Participation in boys and girls clubs and relationships to youth outcomes. Journal of Community Psychology, 31, 39–55. CrossRef Anderson-Butcher, D., Newsome, W. S., & Ferrari, T. M. (2003). Participation in boys and girls clubs and relationships to youth outcomes. Journal of Community Psychology, 31, 39–55. CrossRef
go back to reference Andrykowski, M. A., & Burris, J. L. (2010). Use of formal and informal mental health resources by cancer survivors: Differences between rural and nonrural survivors and a preliminary test of the theory of planned behavior. Psycho-Oncology, 19, 1148–1155. PubMedCrossRef Andrykowski, M. A., & Burris, J. L. (2010). Use of formal and informal mental health resources by cancer survivors: Differences between rural and nonrural survivors and a preliminary test of the theory of planned behavior. Psycho-Oncology, 19, 1148–1155. PubMedCrossRef
go back to reference Anthony, E. K., Alter, C. F., & Jenson, J. M. (2009). Development of a risk and resilience-based out-of-school time program for children and youth. Social Work, 54, 45–55. PubMedCrossRef Anthony, E. K., Alter, C. F., & Jenson, J. M. (2009). Development of a risk and resilience-based out-of-school time program for children and youth. Social Work, 54, 45–55. PubMedCrossRef
go back to reference Baer, J. (2002). Is family cohesion a risk or protection factor during adolescent development? Journal of Marriage & Family, 64, 668–675. CrossRef Baer, J. (2002). Is family cohesion a risk or protection factor during adolescent development? Journal of Marriage & Family, 64, 668–675. CrossRef
go back to reference Barnard, W. M. (2004). Parent involvement in elementary school and education attainment. Children & Youth Services Review, 26, 39–62. CrossRef Barnard, W. M. (2004). Parent involvement in elementary school and education attainment. Children & Youth Services Review, 26, 39–62. CrossRef
go back to reference Barnes, M., & Morris, K. (2008). Strategies for the prevention of social exclusion: An analysis of the children’s fund. Journal of Social Policy, 37, 251–270. CrossRef Barnes, M., & Morris, K. (2008). Strategies for the prevention of social exclusion: An analysis of the children’s fund. Journal of Social Policy, 37, 251–270. CrossRef
go back to reference Barrera, M., Jr., Castro, F. G., & Steiker, L. K. H. (2011). A critical analysis of approaches to the development of preventive interventions for subcultural groups. American Journal of Community Psychology, 48, 439–454. PubMedCrossRef Barrera, M., Jr., Castro, F. G., & Steiker, L. K. H. (2011). A critical analysis of approaches to the development of preventive interventions for subcultural groups. American Journal of Community Psychology, 48, 439–454. PubMedCrossRef
go back to reference Baum, A., & Posluszny, D. M. (2001). Traumatic stress as a target for intervention with cancer patients. In A. Baum & B. L. Andersen (Eds.), Psychosocial interventions for cancer (pp. 143–173). Washington, DC: American Psychological Association. CrossRef Baum, A., & Posluszny, D. M. (2001). Traumatic stress as a target for intervention with cancer patients. In A. Baum & B. L. Andersen (Eds.), Psychosocial interventions for cancer (pp. 143–173). Washington, DC: American Psychological Association. CrossRef
go back to reference Bech, P., Lunde, M., & Unden, M. (2002). Social Adaptation Self-evaluation Scale (SASS): Psychometric analysis as outcome measure in the treatment of patients with major depression in the remission phase. International Journal of Psychiatric on Clinical Practice, 6, 141–146. CrossRef Bech, P., Lunde, M., & Unden, M. (2002). Social Adaptation Self-evaluation Scale (SASS): Psychometric analysis as outcome measure in the treatment of patients with major depression in the remission phase. International Journal of Psychiatric on Clinical Practice, 6, 141–146. CrossRef
go back to reference Bloom, H. S., Orr, L. L., Bell, S. H., Cave, G., Dolittle, F., Lin, W., et al. (1997). The benefits and costs of JTPA Title II-A programs: Key findings from the National Job Training Partnership Act Study. Journal of Human Resources, 32, 549–576. CrossRef Bloom, H. S., Orr, L. L., Bell, S. H., Cave, G., Dolittle, F., Lin, W., et al. (1997). The benefits and costs of JTPA Title II-A programs: Key findings from the National Job Training Partnership Act Study. Journal of Human Resources, 32, 549–576. CrossRef
go back to reference Bollen, K. A. (1989). Structural equations with latent variables. New York: Wiley. Bollen, K. A. (1989). Structural equations with latent variables. New York: Wiley.
go back to reference Brehm, J. (1993). The phantom respondents: Opinion survey and political representation. Ann Arbor, MI: University of Michigan Press. Brehm, J. (1993). The phantom respondents: Opinion survey and political representation. Ann Arbor, MI: University of Michigan Press.
go back to reference Brooks, J. E. (2006). Strengthening resilience in children and youths: Maximizing opportunities through the schools. Children & Schools, 28, 69–76. CrossRef Brooks, J. E. (2006). Strengthening resilience in children and youths: Maximizing opportunities through the schools. Children & Schools, 28, 69–76. CrossRef
go back to reference Brown, R. T., Madan-Swain, A., Walco, G. A., Cherrick, I., Ivers, C. E., Conte, P. M., et al. (1998). Cognitive and academic late effects among children previously treated for acute lymphocytic leukemia receiving chemotherapy as CNS prophylaxis. Journal of Pediatric Psychology, 23, 333–340. PubMedCrossRef Brown, R. T., Madan-Swain, A., Walco, G. A., Cherrick, I., Ivers, C. E., Conte, P. M., et al. (1998). Cognitive and academic late effects among children previously treated for acute lymphocytic leukemia receiving chemotherapy as CNS prophylaxis. Journal of Pediatric Psychology, 23, 333–340. PubMedCrossRef
go back to reference Buizer, A. I., de Sonneville, L. M. J., van den Heavel-Eibrink, M. M., & Veerman, A. J. P. (2006). Behavioral and educational limitations after chemotherapy for childhood acute lymphoblastic leukemia or Wilms tumor. Cancer, 106, 2067–2075. PubMedCrossRef Buizer, A. I., de Sonneville, L. M. J., van den Heavel-Eibrink, M. M., & Veerman, A. J. P. (2006). Behavioral and educational limitations after chemotherapy for childhood acute lymphoblastic leukemia or Wilms tumor. Cancer, 106, 2067–2075. PubMedCrossRef
go back to reference Chatwin, J., & Tovey, P. (2004). Complementary and alternative medicine (CAM), cancer and group-based action: A critical review of the literature. European Journal of Cancer Care, 13, 210–218. PubMedCrossRef Chatwin, J., & Tovey, P. (2004). Complementary and alternative medicine (CAM), cancer and group-based action: A critical review of the literature. European Journal of Cancer Care, 13, 210–218. PubMedCrossRef
go back to reference Coady, N., & Lehmann, P. (2008). An overview of and rationale for a generalist-eclectic approach to direct social work practice. In N. Coady & P. Lehmann (Eds.), Theoretical perspectives for direct social work practice: A generalist-eclectic approach (pp. 3–40). New York: Springer. Coady, N., & Lehmann, P. (2008). An overview of and rationale for a generalist-eclectic approach to direct social work practice. In N. Coady & P. Lehmann (Eds.), Theoretical perspectives for direct social work practice: A generalist-eclectic approach (pp. 3–40). New York: Springer.
go back to reference Cohen, A. (2009). Welfare clients’ volunteering as a means of empowerment. Nonprofit & Volunteering Sector Quarterly, 38, 522–534. CrossRef Cohen, A. (2009). Welfare clients’ volunteering as a means of empowerment. Nonprofit & Volunteering Sector Quarterly, 38, 522–534. CrossRef
go back to reference Costa-Requena, G., & Gil, F. (2009). The Mental Adjustment to Cancer Scale: A psychometric analysis in Spanish cancer patients. Psycho-Oncology, 18, 984–991. PubMedCrossRef Costa-Requena, G., & Gil, F. (2009). The Mental Adjustment to Cancer Scale: A psychometric analysis in Spanish cancer patients. Psycho-Oncology, 18, 984–991. PubMedCrossRef
go back to reference Criss, M. M., & Shaw, D. S. (2005). Sibling relationships as contexts for delinquency training in low-income families. Journal of Family Psychology, 19, 592–600. PubMedCrossRef Criss, M. M., & Shaw, D. S. (2005). Sibling relationships as contexts for delinquency training in low-income families. Journal of Family Psychology, 19, 592–600. PubMedCrossRef
go back to reference Dobson, W. L., & Wong, P. T. P. (2008). Women living with HIV: The role of meaning and spirituality. In A. Tomer, G. T. Eliason & P. T. P. Wong (Eds.), Existential and spiritual issues in death attitudes (pp. 173–207). New York: Lawrence Erlbaum. Dobson, W. L., & Wong, P. T. P. (2008). Women living with HIV: The role of meaning and spirituality. In A. Tomer, G. T. Eliason & P. T. P. Wong (Eds.), Existential and spiritual issues in death attitudes (pp. 173–207). New York: Lawrence Erlbaum.
go back to reference Early, T. J., & GlenMaye, L. F. (2000). Valuing families: Social work practice with families from a strengths perspective. Social Work, 45, 118–129. PubMedCrossRef Early, T. J., & GlenMaye, L. F. (2000). Valuing families: Social work practice with families from a strengths perspective. Social Work, 45, 118–129. PubMedCrossRef
go back to reference Eiser, C. (2004). Children with cancer: The quality of life. Mahwah, NJ: Lawrence Erlbaum. Eiser, C. (2004). Children with cancer: The quality of life. Mahwah, NJ: Lawrence Erlbaum.
go back to reference Epstein, W. M. (2003). The futility of pragmatic reform: The casey foundation in New York City. Children & Youth Services Review, 25, 683–701. CrossRef Epstein, W. M. (2003). The futility of pragmatic reform: The casey foundation in New York City. Children & Youth Services Review, 25, 683–701. CrossRef
go back to reference Farrington, D. P., & Welsh, B. C. (2007). Saving children from a life of crime: Early risk factors and effective interventions. New York: Oxford University Press. Farrington, D. P., & Welsh, B. C. (2007). Saving children from a life of crime: Early risk factors and effective interventions. New York: Oxford University Press.
go back to reference Friedman, L. N., & Bleiberg, M. S. (2002). The long-term sustainability of after-school programs: The After-school Corporation’s strategy. New Directions for Youth Development, 94, 19–89. PubMedCrossRef Friedman, L. N., & Bleiberg, M. S. (2002). The long-term sustainability of after-school programs: The After-school Corporation’s strategy. New Directions for Youth Development, 94, 19–89. PubMedCrossRef
go back to reference Gerhardt, C. A., Dixon, M., Miller, K., Vannatta, K., Valerius, K. S., Correll, J., et al. (2007). Educational and occupational outcomes among survivors of childhood cancer during the transition to emerging adulthood. Journal of Developmental and Behavioral Pediatrics, 28, 448–455. PubMedCrossRef Gerhardt, C. A., Dixon, M., Miller, K., Vannatta, K., Valerius, K. S., Correll, J., et al. (2007). Educational and occupational outcomes among survivors of childhood cancer during the transition to emerging adulthood. Journal of Developmental and Behavioral Pediatrics, 28, 448–455. PubMedCrossRef
go back to reference Glicken, M. D. (2004). Using the strengths perspective in social work practice: A positive approach for the helping profession. Boston, MA: Pearson. Glicken, M. D. (2004). Using the strengths perspective in social work practice: A positive approach for the helping profession. Boston, MA: Pearson.
go back to reference Gottlieb, B. H., & Wachala, E. D. (2007). Cancer support groups: A critical review of empirical studies. Psycho-Oncology, 16, 379–400. PubMedCrossRef Gottlieb, B. H., & Wachala, E. D. (2007). Cancer support groups: A critical review of empirical studies. Psycho-Oncology, 16, 379–400. PubMedCrossRef
go back to reference Granzin, K. L., & Haggard, L. M. (2000). An integrative explanation for quality of life: development and test of a structural model. In E. Diener & D. R. Rahtz (Eds.), Advances in quality of life theory and research (pp. 31–64). Dordrecht, Netherlands: Kluwer. CrossRef Granzin, K. L., & Haggard, L. M. (2000). An integrative explanation for quality of life: development and test of a structural model. In E. Diener & D. R. Rahtz (Eds.), Advances in quality of life theory and research (pp. 31–64). Dordrecht, Netherlands: Kluwer. CrossRef
go back to reference Hardin, J. W., & Hilbe, J. M. (2003). Generalized estimating equations. Boca Raton, FL: Chapman. Hardin, J. W., & Hilbe, J. M. (2003). Generalized estimating equations. Boca Raton, FL: Chapman.
go back to reference Hardoy, I. (2005). Impact of multiple labour market programmes on multiple outcomes: The case of Norwegian youth programmes. Labour, 19, 425–467. CrossRef Hardoy, I. (2005). Impact of multiple labour market programmes on multiple outcomes: The case of Norwegian youth programmes. Labour, 19, 425–467. CrossRef
go back to reference Harper, C., Marcus, R., & Moore, K. (2003). Enduring poverty and the conditions of childhood: Lifecourse and intergenerational poverty transmission. World Development, 31, 535–554. CrossRef Harper, C., Marcus, R., & Moore, K. (2003). Enduring poverty and the conditions of childhood: Lifecourse and intergenerational poverty transmission. World Development, 31, 535–554. CrossRef
go back to reference Harzing, A.-W. (1997). Response rates in international mail surveys: Results of a 22-country study. International Business Review, 6, 641–665. CrossRef Harzing, A.-W. (1997). Response rates in international mail surveys: Results of a 22-country study. International Business Review, 6, 641–665. CrossRef
go back to reference Hayes, E., & Way, W. (2003). Low-income African American Women's cultural models of work: Implications for education-for-work policies and practice. Journal of Education & Work, 16, 363–383. CrossRef Hayes, E., & Way, W. (2003). Low-income African American Women's cultural models of work: Implications for education-for-work policies and practice. Journal of Education & Work, 16, 363–383. CrossRef
go back to reference Helgeson, V. S., Cohen, S., Schulz, R., & Yasko, J. (1999). Education and peer discussion group interventions and adjustment to breast cancer. Archives of General Psychiatry, 56, 340–347. PubMedCrossRef Helgeson, V. S., Cohen, S., Schulz, R., & Yasko, J. (1999). Education and peer discussion group interventions and adjustment to breast cancer. Archives of General Psychiatry, 56, 340–347. PubMedCrossRef
go back to reference Helgeson, V. S., Cohen, S., Schulz, R., & Yasko, J. (2001). Group support interventions for people with cancer. In A. Baum & B. L. Andersen (Eds.), Psychosocial interventions for cancer (pp. 269–286). Washington, DC: American Psychological Association. CrossRef Helgeson, V. S., Cohen, S., Schulz, R., & Yasko, J. (2001). Group support interventions for people with cancer. In A. Baum & B. L. Andersen (Eds.), Psychosocial interventions for cancer (pp. 269–286). Washington, DC: American Psychological Association. CrossRef
go back to reference Houston, S. (2010). Building resilience in a children’s home: Results from an action research project. Child & Family Social Work, 15, 357–368. CrossRef Houston, S. (2010). Building resilience in a children’s home: Results from an action research project. Child & Family Social Work, 15, 357–368. CrossRef
go back to reference Houtzager, B. A., Oort, F. J., Hoekstra-Weebers, J. E. M. H., Caron, H. N., Grootenhuis, M. A., & Last, B. F. (2004). Coping and family functioning predict longitudinal psychological adaptation of siblings of childhood cancer patients. Journal of Pediatric Psychology, 29, 591–605. PubMedCrossRef Houtzager, B. A., Oort, F. J., Hoekstra-Weebers, J. E. M. H., Caron, H. N., Grootenhuis, M. A., & Last, B. F. (2004). Coping and family functioning predict longitudinal psychological adaptation of siblings of childhood cancer patients. Journal of Pediatric Psychology, 29, 591–605. PubMedCrossRef
go back to reference Jagendorf, J., & Malekoff, A. (2000). Groups-on-the-go: Spontaneously formed mutual aid groups for adolescents in distress. Social Work with Groups, 22(4), 15–32. CrossRef Jagendorf, J., & Malekoff, A. (2000). Groups-on-the-go: Spontaneously formed mutual aid groups for adolescents in distress. Social Work with Groups, 22(4), 15–32. CrossRef
go back to reference Johnson, N., Jenkinson, S., Kendall, I., Bradshaw, Y., & Biackmore, M. (1998). Regulating for quality in the voluntary sector. Journal of Social Policy, 27, 307–328. CrossRef Johnson, N., Jenkinson, S., Kendall, I., Bradshaw, Y., & Biackmore, M. (1998). Regulating for quality in the voluntary sector. Journal of Social Policy, 27, 307–328. CrossRef
go back to reference Jones, R. (1987). Like distant relative: Adolescents, perceptions of social work and social workers. Aldershot: Gower. Jones, R. (1987). Like distant relative: Adolescents, perceptions of social work and social workers. Aldershot: Gower.
go back to reference Kacen, L., & Bakshy, I. (2005). Institutional narrative in the discourse between oncology social workers and cancer patients’ self-help organization. Qualitative Health Research, 15, 861–880. PubMedCrossRef Kacen, L., & Bakshy, I. (2005). Institutional narrative in the discourse between oncology social workers and cancer patients’ self-help organization. Qualitative Health Research, 15, 861–880. PubMedCrossRef
go back to reference Lafer, G. (2002). The job training charade. Ithaca, NY: Cornell University Press. Lafer, G. (2002). The job training charade. Ithaca, NY: Cornell University Press.
go back to reference Lakin, R., & Mahoney, A. (2006). Empowering youth to change their world: Identifying key components of a community service program to promote positive development. Journal of School Psychology, 44, 513–531. CrossRef Lakin, R., & Mahoney, A. (2006). Empowering youth to change their world: Identifying key components of a community service program to promote positive development. Journal of School Psychology, 44, 513–531. CrossRef
go back to reference Langeveld, N. E., Ubbink, M. C., Last, B. F., Grootenhus, M. A., Voute, P. A., & De Haan, R. J. (2003). Educational achievement, employment and living situation in long-term young adult survivors of childhood cancer in the Netherlands. Psycho-Oncology, 12, 213–225. PubMedCrossRef Langeveld, N. E., Ubbink, M. C., Last, B. F., Grootenhus, M. A., Voute, P. A., & De Haan, R. J. (2003). Educational achievement, employment and living situation in long-term young adult survivors of childhood cancer in the Netherlands. Psycho-Oncology, 12, 213–225. PubMedCrossRef
go back to reference Larson, R. W., Hansen, D. M., & Moneta, G. (2006). Differing profiles of developmental experiences across types of organized youth’s activities. Developmental Psychology, 42, 849–863. PubMedCrossRef Larson, R. W., Hansen, D. M., & Moneta, G. (2006). Differing profiles of developmental experiences across types of organized youth’s activities. Developmental Psychology, 42, 849–863. PubMedCrossRef
go back to reference Leigh, D. E. (2000). Training programs for dislocated workers. In B. S. Barnow & C. T. King (Eds.), Improving the odds: Increasing the effectiveness of publicly funded training (pp. 227–259). Washington, DC: Urban Institute. Leigh, D. E. (2000). Training programs for dislocated workers. In B. S. Barnow & C. T. King (Eds.), Improving the odds: Increasing the effectiveness of publicly funded training (pp. 227–259). Washington, DC: Urban Institute.
go back to reference Lepore, S. J., & Kernan, W. D. (2009). Positive life change and the social context of illness: An expanded social-cognitive processing model. In C. L. Park, S. C. Lechner, M. H. Antoni, & A. L. Stanton (Eds.), Medical illness and positive life change: Can crisis lead to psychological personal transformation? (pp. 139–152). Washington, DC: American Psychological Association. CrossRef Lepore, S. J., & Kernan, W. D. (2009). Positive life change and the social context of illness: An expanded social-cognitive processing model. In C. L. Park, S. C. Lechner, M. H. Antoni, & A. L. Stanton (Eds.), Medical illness and positive life change: Can crisis lead to psychological personal transformation? (pp. 139–152). Washington, DC: American Psychological Association. CrossRef
go back to reference Lerman, R. I. (2000). Employment and training programs for out-of-school youth: Past effects and lessons for the future. In B. S. Barnow & C. T. King (Eds.), Improving the odds: Increasing the effectiveness of publicly funded training (pp. 185–207). Washington, DC: Urban Institute. Lerman, R. I. (2000). Employment and training programs for out-of-school youth: Past effects and lessons for the future. In B. S. Barnow & C. T. King (Eds.), Improving the odds: Increasing the effectiveness of publicly funded training (pp. 185–207). Washington, DC: Urban Institute.
go back to reference Lindenberg, S. (2001). Social rationality versus rational egoism. In J. H. Turner (Ed.), Handbook of sociological theory (pp. 635–668). New York: Kluwer. Lindenberg, S. (2001). Social rationality versus rational egoism. In J. H. Turner (Ed.), Handbook of sociological theory (pp. 635–668). New York: Kluwer.
go back to reference Lynch, L. M. (2000). Trends in and consequences of investments in children. In S. Danizer & J. Waldfogel (Eds.), Securing the future: Investing in children from birth to college (pp. 19–46). New York: Russell Sage. Lynch, L. M. (2000). Trends in and consequences of investments in children. In S. Danizer & J. Waldfogel (Eds.), Securing the future: Investing in children from birth to college (pp. 19–46). New York: Russell Sage.
go back to reference Madan-Swain, A., Brown, R. T., Foster, M. A., Vega, R., Byars, K., Rsdenberger, W., et al. (2000). Identity in adolescent survivors of childhood cancer. Journal of Pediatric Psychology, 25, 105–115. PubMedCrossRef Madan-Swain, A., Brown, R. T., Foster, M. A., Vega, R., Byars, K., Rsdenberger, W., et al. (2000). Identity in adolescent survivors of childhood cancer. Journal of Pediatric Psychology, 25, 105–115. PubMedCrossRef
go back to reference Mahoney, J. L., Stattin, H., & Lord, H. (2004). Unstructured youth recreation centre participation and antisocial behaviour development: Selection influences and the moderating role of antisocial peers. International Journal of Behavioral Development, 28, 553–560. CrossRef Mahoney, J. L., Stattin, H., & Lord, H. (2004). Unstructured youth recreation centre participation and antisocial behaviour development: Selection influences and the moderating role of antisocial peers. International Journal of Behavioral Development, 28, 553–560. CrossRef
go back to reference Malekoff, A. (2004). Strengths-based group work with children and adolescents. In C. D. Garoin, L. M. Gutierrez, & M. J. Galinsky (Eds.), Handbook of social work with groups (pp. 227–244). New York: Guilford. Malekoff, A. (2004). Strengths-based group work with children and adolescents. In C. D. Garoin, L. M. Gutierrez, & M. J. Galinsky (Eds.), Handbook of social work with groups (pp. 227–244). New York: Guilford.
go back to reference Mangum, G. L. (2000). Reflections on training policies and programs. In B. S. Barnow & C. T. King (Eds.), Improving the odds: Increasing the effectiveness of publicly funded training (pp. 293–333). Washington, DC: Urban Institute. Mangum, G. L. (2000). Reflections on training policies and programs. In B. S. Barnow & C. T. King (Eds.), Improving the odds: Increasing the effectiveness of publicly funded training (pp. 293–333). Washington, DC: Urban Institute.
go back to reference Matthews, T. L., & Howell, F. M. (2006). Promoting civic culture: The transmission of civic involvement from parent to child. Sociological Focus, 39, 19–35. CrossRef Matthews, T. L., & Howell, F. M. (2006). Promoting civic culture: The transmission of civic involvement from parent to child. Sociological Focus, 39, 19–35. CrossRef
go back to reference Maurice-Stam, H., Oort, F. J., Last, B. F., & Grootenhuis, M. A. (2008). Emotional functioning of parents of children with cancer: The first five years of continuous remission after the end of treatment. Psycho-Oncology, 17, 448–459. PubMedCrossRef Maurice-Stam, H., Oort, F. J., Last, B. F., & Grootenhuis, M. A. (2008). Emotional functioning of parents of children with cancer: The first five years of continuous remission after the end of treatment. Psycho-Oncology, 17, 448–459. PubMedCrossRef
go back to reference McDowell, M. E., Occhipinti, S., Ferguson, M., Dunn, J., & Chambers, S. K. (2010). Predictors of change in unmet supportive care needs in cancer. Psycho-Oncology, 19, 508–516. PubMedCrossRef McDowell, M. E., Occhipinti, S., Ferguson, M., Dunn, J., & Chambers, S. K. (2010). Predictors of change in unmet supportive care needs in cancer. Psycho-Oncology, 19, 508–516. PubMedCrossRef
go back to reference McGoldrick, D., Neal, C., & Whiteson, M. (2008). Advocacy and adolescent young adult cancer survivors. Pediatric Blood & Cancer, 50, 1109–1111. CrossRef McGoldrick, D., Neal, C., & Whiteson, M. (2008). Advocacy and adolescent young adult cancer survivors. Pediatric Blood & Cancer, 50, 1109–1111. CrossRef
go back to reference Mulrooney, D., Dover, D. C., Li, S., Yasui, Y., Ness, K. K., Mertens, A. C., et al. (2008). Twenty years of follow-up among survivors of childhood and young adult acute myeloid leukemia. Cancer, 112, 2071–2079. PubMedCrossRef Mulrooney, D., Dover, D. C., Li, S., Yasui, Y., Ness, K. K., Mertens, A. C., et al. (2008). Twenty years of follow-up among survivors of childhood and young adult acute myeloid leukemia. Cancer, 112, 2071–2079. PubMedCrossRef
go back to reference Muthen, L. K., & Muthen, B. O. (2006). Mplus user’s guide. Los Angeles, CA: Muthen & Muthen. Muthen, L. K., & Muthen, B. O. (2006). Mplus user’s guide. Los Angeles, CA: Muthen & Muthen.
go back to reference Napoles-Springer, A. C. O., O’Brien, H., Diaz-Mendez, M., & Perez-Stable, E. J. (2007). Use of cancer support groups among Latina breast cancer survivors. Journal of Cancer Survivorship, 1, 113–204. CrossRef Napoles-Springer, A. C. O., O’Brien, H., Diaz-Mendez, M., & Perez-Stable, E. J. (2007). Use of cancer support groups among Latina breast cancer survivors. Journal of Cancer Survivorship, 1, 113–204. CrossRef
go back to reference Nelson, J. A., & Eckstein, D. (2008). A service-learning model for at-risk adolescents. Education & Treatment of Children, 31, 223–237. CrossRef Nelson, J. A., & Eckstein, D. (2008). A service-learning model for at-risk adolescents. Education & Treatment of Children, 31, 223–237. CrossRef
go back to reference Norcross, J. C. (2006). Integrating self-help into psychotherapy: 16 practical suggestions. Professional Psychology, 37, 683–693. CrossRef Norcross, J. C. (2006). Integrating self-help into psychotherapy: 16 practical suggestions. Professional Psychology, 37, 683–693. CrossRef
go back to reference Oeffinger, K., Mertens, A. C., Sklar, C. A., Kowashima, T., Hudson, M. M., Meadows, A., et al. (2006). Chronic health conditions in adult survivors of childhood cancer. New England Journal of Medicine, 355, 1572–1582. PubMedCrossRef Oeffinger, K., Mertens, A. C., Sklar, C. A., Kowashima, T., Hudson, M. M., Meadows, A., et al. (2006). Chronic health conditions in adult survivors of childhood cancer. New England Journal of Medicine, 355, 1572–1582. PubMedCrossRef
go back to reference Olsson, C. A., Bond, L., Burns, J. M., Vella-Brodick, D. A., & Sawyer, S. M. (2003). Adolescent resilience: A concept analysis. Journal of Adolescence, 26, 1–11. PubMedCrossRef Olsson, C. A., Bond, L., Burns, J. M., Vella-Brodick, D. A., & Sawyer, S. M. (2003). Adolescent resilience: A concept analysis. Journal of Adolescence, 26, 1–11. PubMedCrossRef
go back to reference Pang, J. W. Y., Friedman, D. L., Whitton, J. A., Stovall, M., Mertens, A. C., Robison, L. L., et al. (2008). Employment status among adult survivors in the childhood cancer survivor study. Pediatric Blood & Cancer, 50, 104–110. CrossRef Pang, J. W. Y., Friedman, D. L., Whitton, J. A., Stovall, M., Mertens, A. C., Robison, L. L., et al. (2008). Employment status among adult survivors in the childhood cancer survivor study. Pediatric Blood & Cancer, 50, 104–110. CrossRef
go back to reference Parcel, T. L., & Dufur, M. J. (2001). Capital at home and at school: Effects on child social adjustment. Journal of Marriage & the Family, 63, 32–47. CrossRef Parcel, T. L., & Dufur, M. J. (2001). Capital at home and at school: Effects on child social adjustment. Journal of Marriage & the Family, 63, 32–47. CrossRef
go back to reference Parry, C. (2003). Embracing uncertainty: An exploration of the experiences of childhood cancer survivors. Qualitative Health Research, 13, 227–246. PubMedCrossRef Parry, C. (2003). Embracing uncertainty: An exploration of the experiences of childhood cancer survivors. Qualitative Health Research, 13, 227–246. PubMedCrossRef
go back to reference Pinto, B. M., Trunzo, J. J., Reiss, P., & Shiu, S. Y. (2002). Exercise participation after diagnosis of breast cancer: Trends and effects on mood and quality of life. Psycho-Oncology, 11, 389–400. PubMedCrossRef Pinto, B. M., Trunzo, J. J., Reiss, P., & Shiu, S. Y. (2002). Exercise participation after diagnosis of breast cancer: Trends and effects on mood and quality of life. Psycho-Oncology, 11, 389–400. PubMedCrossRef
go back to reference Pittman, K. J. (2004). Reflections on the road not (yet) taken: How a centralized public strategy can help youth work focus on work. New Directions for Youth Development, 104, 87–99. PubMedCrossRef Pittman, K. J. (2004). Reflections on the road not (yet) taken: How a centralized public strategy can help youth work focus on work. New Directions for Youth Development, 104, 87–99. PubMedCrossRef
go back to reference Punyko, J. A., Gurney, J. G., Baker, K. S., Hayashi, R. J., Hudson, M. M., Liu, Y., et al. (2007). Physical impairment and social adaptation in adult survivors of childhood and adolescent rhabdomyosarcoma: A report from the childhood cancer survivors study. Psycho-Oncology, 16, 26–37. PubMedCrossRef Punyko, J. A., Gurney, J. G., Baker, K. S., Hayashi, R. J., Hudson, M. M., Liu, Y., et al. (2007). Physical impairment and social adaptation in adult survivors of childhood and adolescent rhabdomyosarcoma: A report from the childhood cancer survivors study. Psycho-Oncology, 16, 26–37. PubMedCrossRef
go back to reference Quin, S. (2004). The long-term psychosocial effects of cancer diagnosis and treatment on children and their families. Social Work in Health Care, 39(1/2), 129–149. PubMed Quin, S. (2004). The long-term psychosocial effects of cancer diagnosis and treatment on children and their families. Social Work in Health Care, 39(1/2), 129–149. PubMed
go back to reference Recklitis, C., Varda, J. V. C., Ng, A., Mauch, P., & Bober, S. (2010). Sexual functioning in long-term survivors of Hodgkin’s lymphoma. Psycho-Oncology, 19, 1229–1233. PubMedCrossRef Recklitis, C., Varda, J. V. C., Ng, A., Mauch, P., & Bober, S. (2010). Sexual functioning in long-term survivors of Hodgkin’s lymphoma. Psycho-Oncology, 19, 1229–1233. PubMedCrossRef
go back to reference Redd, W. H., Duttamel, K. N., Vickberg, S. M. J., Ostroff, J. L., Smith, M. Y., Jacobsen, P. B., et al. (2001). Long-term adjustment in cancer survivors: Integration of classical-conditioning and cognitive-processing models. In A. Baum & B. L. Andersen (Eds.), Psychosocial interventions for cancer (pp. 77–97). Washington, DC: American Psychological Association. CrossRef Redd, W. H., Duttamel, K. N., Vickberg, S. M. J., Ostroff, J. L., Smith, M. Y., Jacobsen, P. B., et al. (2001). Long-term adjustment in cancer survivors: Integration of classical-conditioning and cognitive-processing models. In A. Baum & B. L. Andersen (Eds.), Psychosocial interventions for cancer (pp. 77–97). Washington, DC: American Psychological Association. CrossRef
go back to reference Rey-Casserly, C., & Meadows, M. E. (2008). Developmental perspectives on optimizing educational and vocational outcomes in child and adult survivors of cancer. Developmental Disabilities Research Reviews, 14, 243–250. PubMedCrossRef Rey-Casserly, C., & Meadows, M. E. (2008). Developmental perspectives on optimizing educational and vocational outcomes in child and adult survivors of cancer. Developmental Disabilities Research Reviews, 14, 243–250. PubMedCrossRef
go back to reference Ripke, M. N., Huston, A. C., & Casey, D. M. (2006). Low-income children’s activity participation as a predictor of psychosocial and academic outcomes in middle childhood and adolescence. In A. C. Huston & M. N. Ripke (Eds.), Developmental contexts in middle childhood: Bridges to adolescence and adulthood (pp. 260–282). Cambridge, UK: Cambridge University Press. CrossRef Ripke, M. N., Huston, A. C., & Casey, D. M. (2006). Low-income children’s activity participation as a predictor of psychosocial and academic outcomes in middle childhood and adolescence. In A. C. Huston & M. N. Ripke (Eds.), Developmental contexts in middle childhood: Bridges to adolescence and adulthood (pp. 260–282). Cambridge, UK: Cambridge University Press. CrossRef
go back to reference Roffman, R. (2004). Psychoeducational groups. In C. D. G. L. M. Gutierrez & M. J. Galinsky (Eds.), Handbook of social work with groups (pp. 160-175). New York: Guilford. Roffman, R. (2004). Psychoeducational groups. In C. D. G. L. M. Gutierrez & M. J. Galinsky (Eds.), Handbook of social work with groups (pp. 160-175). New York: Guilford.
go back to reference Rosoff, P. M. (2006). The two-edged sword of curing childhood cancer. New England Journal of Medicine, 355, 1522–1523. PubMedCrossRef Rosoff, P. M. (2006). The two-edged sword of curing childhood cancer. New England Journal of Medicine, 355, 1522–1523. PubMedCrossRef
go back to reference Rubbins, S. P., Chatterjee, P., & Canda, E. R. (2006). Contemporary human behavior theory: A critical perspective for social work. Boston, MA: Pearson. Rubbins, S. P., Chatterjee, P., & Canda, E. R. (2006). Contemporary human behavior theory: A critical perspective for social work. Boston, MA: Pearson.
go back to reference Russell, H., & O’Connell, P. J. (2001). Getting a Job in Europe: The transition from unemployment to work among young people in nine European countries. Work, Employment & Society, 15, 1–24. CrossRef Russell, H., & O’Connell, P. J. (2001). Getting a Job in Europe: The transition from unemployment to work among young people in nine European countries. Work, Employment & Society, 15, 1–24. CrossRef
go back to reference Scales, P. C., Roehlkepartain, E. C., Neal, M., Kielsmeiar, J. C., & Benson, P. L. (2006). Reducing academic achievement gaps: The role of community service and service learning. Journal of Experiential Education, 29, 38–60. Scales, P. C., Roehlkepartain, E. C., Neal, M., Kielsmeiar, J. C., & Benson, P. L. (2006). Reducing academic achievement gaps: The role of community service and service learning. Journal of Experiential Education, 29, 38–60.
go back to reference Scheier, M. F., & Carver, C. S. (2001). Adapting to cancer: The importance of hope and purpoe. In A. Baum & B. L. Andersen (Eds.), Psychosocial interventions for cancer (pp. 15–36). Washington, DC: American Psychological Association. CrossRef Scheier, M. F., & Carver, C. S. (2001). Adapting to cancer: The importance of hope and purpoe. In A. Baum & B. L. Andersen (Eds.), Psychosocial interventions for cancer (pp. 15–36). Washington, DC: American Psychological Association. CrossRef
go back to reference Schoeni, R. F., & Ross, K. E. (2005). Material assistance from families during the transition to adulthood. In R. A. Settersten Jr, F. F. Furstenberg Jr, & R. G. Rumbaut (Eds.), On the frontier of adulthood: theory, research, and public policy (pp. 396–416). Chicago, IL: University of Chicago Press. Schoeni, R. F., & Ross, K. E. (2005). Material assistance from families during the transition to adulthood. In R. A. Settersten Jr, F. F. Furstenberg Jr, & R. G. Rumbaut (Eds.), On the frontier of adulthood: theory, research, and public policy (pp. 396–416). Chicago, IL: University of Chicago Press.
go back to reference Schopler, J. H., & Galinsky, M. J. (2005). Meeting practice needs: Conceptualizing the open-ended group. Social Work with Groups, 28(3/4), 49–68. Schopler, J. H., & Galinsky, M. J. (2005). Meeting practice needs: Conceptualizing the open-ended group. Social Work with Groups, 28(3/4), 49–68.
go back to reference Seider, S. (2007). Catalyzing a commitment to community service in emerging adults. Journal of Adolescent Research, 22, 612–639. CrossRef Seider, S. (2007). Catalyzing a commitment to community service in emerging adults. Journal of Adolescent Research, 22, 612–639. CrossRef
go back to reference Serbin, L. A., & Karp, J. (2004). The intergenerational transfer of psychosocial risk: Mediators of vulnerability and resilience. Annual Review of Psychology, 55, 333–363. PubMedCrossRef Serbin, L. A., & Karp, J. (2004). The intergenerational transfer of psychosocial risk: Mediators of vulnerability and resilience. Annual Review of Psychology, 55, 333–363. PubMedCrossRef
go back to reference Shankar, S., Robison, L., Jenney, M. E. M., Rockwood, T. H., Wu, E., Peusner, J., et al. (2005). Health-related quality of life in young survivors of childhood cancer using the Minneapolis-Manchester Quality of Life-Youth Form. Pediatrics, 115, 435–442. PubMedCrossRef Shankar, S., Robison, L., Jenney, M. E. M., Rockwood, T. H., Wu, E., Peusner, J., et al. (2005). Health-related quality of life in young survivors of childhood cancer using the Minneapolis-Manchester Quality of Life-Youth Form. Pediatrics, 115, 435–442. PubMedCrossRef
go back to reference Simons, L., & Cleary, B. (2006). The influence of service learning on students’ personal and social development. College Teaching, 54, 307–319. CrossRef Simons, L., & Cleary, B. (2006). The influence of service learning on students’ personal and social development. College Teaching, 54, 307–319. CrossRef
go back to reference Sobell, M. B., Sobell, L. C., & Leo, G. L. (2000). Does enhanced social support improve outcomes for problem drinkers in guided self-change treatment? Journal of Behavior Therapy & Experimental Psychiatry, 31, 41–54. CrossRef Sobell, M. B., Sobell, L. C., & Leo, G. L. (2000). Does enhanced social support improve outcomes for problem drinkers in guided self-change treatment? Journal of Behavior Therapy & Experimental Psychiatry, 31, 41–54. CrossRef
go back to reference Spencer, R. (2007). Naturally occurring mentoring relationships involving youth. In T. D. Allen & L. T. Eby (Eds.), The Blackwell handbook of mentoring: A multiple perspectives approach (pp. 99–117). Oxford, UK: Blackwell. Spencer, R. (2007). Naturally occurring mentoring relationships involving youth. In T. D. Allen & L. T. Eby (Eds.), The Blackwell handbook of mentoring: A multiple perspectives approach (pp. 99–117). Oxford, UK: Blackwell.
go back to reference Stam, H., Grootenhuis, M. A., & Last, B. F. (2005). The course of life of survivors of childhood cancer. Psycho-Oncology, 14, 227–238. PubMedCrossRef Stam, H., Grootenhuis, M. A., & Last, B. F. (2005). The course of life of survivors of childhood cancer. Psycho-Oncology, 14, 227–238. PubMedCrossRef
go back to reference Taieb, O., Moro, M. R., Boubet, T., Revah-Levy, A., & Flament, M. F. (2003). Posttraumatic stress symptoms after childhood cancer. European Child and Adolescent Psychiatry, 12, 5–264. CrossRef Taieb, O., Moro, M. R., Boubet, T., Revah-Levy, A., & Flament, M. F. (2003). Posttraumatic stress symptoms after childhood cancer. European Child and Adolescent Psychiatry, 12, 5–264. CrossRef
go back to reference Takeuchi, R., Tesluk, P. E., Yun, S., & Lepak, D. P. (2005). An integrative view of international experience. Academy of Management Journal, 48, 85–100. CrossRef Takeuchi, R., Tesluk, P. E., Yun, S., & Lepak, D. P. (2005). An integrative view of international experience. Academy of Management Journal, 48, 85–100. CrossRef
go back to reference Taylor, C. L. C., Kulik, J., Badr, H., Smith, M., Basen-Engquist, K., Penedo, F., et al. (2007). A social comparison theory analysis of group composition and efficacy of cancer support group programs. Social Science and Medicine, 65, 262–273. CrossRef Taylor, C. L. C., Kulik, J., Badr, H., Smith, M., Basen-Engquist, K., Penedo, F., et al. (2007). A social comparison theory analysis of group composition and efficacy of cancer support group programs. Social Science and Medicine, 65, 262–273. CrossRef
go back to reference Trevithick, P. (2003). Effective relationship-based practice: A theoretical exploration. Journal of Social Work Practice, 17, 163–176. CrossRef Trevithick, P. (2003). Effective relationship-based practice: A theoretical exploration. Journal of Social Work Practice, 17, 163–176. CrossRef
go back to reference Tulchinsky, T. H., & Varavikova, E. A. (2000). The new public health: An introduction for the 21st century. San Diego, CA: Academic Press. Tulchinsky, T. H., & Varavikova, E. A. (2000). The new public health: An introduction for the 21st century. San Diego, CA: Academic Press.
go back to reference Vanderbilt-Adriance, E., & Shaw, D. S. (2008). Protective factors and the development of resilience in the context of neighborhood disadvantage. Journal of Abnormal Child Psychology, 36, 887–901. PubMedCrossRef Vanderbilt-Adriance, E., & Shaw, D. S. (2008). Protective factors and the development of resilience in the context of neighborhood disadvantage. Journal of Abnormal Child Psychology, 36, 887–901. PubMedCrossRef
go back to reference Waddan, A. (2003). Redesigning the welfare construct in theory and practice: Just what is going on in the USA? Journal of Social Policy, 32, 19–32. CrossRef Waddan, A. (2003). Redesigning the welfare construct in theory and practice: Just what is going on in the USA? Journal of Social Policy, 32, 19–32. CrossRef
go back to reference Walsh, T., & Lord, B. (2004). Client satisfaction and empowerment through social work intervention. Social Work in Health Care, 38(4), 37–56. PubMedCrossRef Walsh, T., & Lord, B. (2004). Client satisfaction and empowerment through social work intervention. Social Work in Health Care, 38(4), 37–56. PubMedCrossRef
go back to reference Youniss, J., McLellar, J. A., Su, Y., & Yates, M. (1999). The skills of community service in identity development: Normative, unconventional, and deviant orientations. Journal of Adolescent Research, 14, 248–261. CrossRef Youniss, J., McLellar, J. A., Su, Y., & Yates, M. (1999). The skills of community service in identity development: Normative, unconventional, and deviant orientations. Journal of Adolescent Research, 14, 248–261. CrossRef
go back to reference Zabalegui, A., Sanchez, S., Sanchez, P. D., & Juando, C. (2005). Nursing and cancer support group. Journal of Advanced Nursing, 51, 369–381. PubMedCrossRef Zabalegui, A., Sanchez, S., Sanchez, P. D., & Juando, C. (2005). Nursing and cancer support group. Journal of Advanced Nursing, 51, 369–381. PubMedCrossRef
go back to reference Zaff, J. F., Moore, K. A., Papillo, A. R., & Williams, S, Jr. (2003). Implications of extracurricular activity participation during adolescence on positive outcomes. Journal of Adolescent Research, 18, 599–630. CrossRef Zaff, J. F., Moore, K. A., Papillo, A. R., & Williams, S, Jr. (2003). Implications of extracurricular activity participation during adolescence on positive outcomes. Journal of Adolescent Research, 18, 599–630. CrossRef
go back to reference Zebrack, B. J., & Chesler, M. A. (2000). Managed care: The new context for social work in health care: implications for survivors of childhood cancer and their families. Social Work in Health Care, 31(2), 89–103. PubMedCrossRef Zebrack, B. J., & Chesler, M. A. (2000). Managed care: The new context for social work in health care: implications for survivors of childhood cancer and their families. Social Work in Health Care, 31(2), 89–103. PubMedCrossRef
go back to reference Zebrack, B. J., & Chesler, M. (2001). Health-related worries, self-image, and life outlooks of long-term survivors’ of childhood cancer. Health and Social Work, 26, 245–256. PubMedCrossRef Zebrack, B. J., & Chesler, M. (2001). Health-related worries, self-image, and life outlooks of long-term survivors’ of childhood cancer. Health and Social Work, 26, 245–256. PubMedCrossRef
go back to reference Zebrack, B. J., Zevon, M. A., Turk, N., Nogarajan, R., Whitton, J., Robison, L. L., et al. (2007). Psychological distress in long-term survivors of solid tumors diagnoses in childhood: A report from the childhood cancer survivor study. Pediatric Blood & Cancer, 49, 47–51. CrossRef Zebrack, B. J., Zevon, M. A., Turk, N., Nogarajan, R., Whitton, J., Robison, L. L., et al. (2007). Psychological distress in long-term survivors of solid tumors diagnoses in childhood: A report from the childhood cancer survivor study. Pediatric Blood & Cancer, 49, 47–51. CrossRef
go back to reference Zoerink, D. A., Magafos, A. H., & Pawelko, K. A. (1997). Empowering youth at risk through community service. Child & Youth Care Forum, 26, 127–138. CrossRef Zoerink, D. A., Magafos, A. H., & Pawelko, K. A. (1997). Empowering youth at risk through community service. Child & Youth Care Forum, 26, 127–138. CrossRef
Metagegevens
Titel
Psychosocial Adaptation of Childhood Cancer Survivors and their Siblings
Auteurs
Chau-kiu Cheung
Bong-ho Mok
Publicatiedatum
01-02-2013
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 2/2013
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-012-9575-3