Top

Journal of Autism and Developmental Disorders

04-07-2024 | Original Article

Psychometric Properties of the Portuguese Version of the Quality of Life in Autism Questionnaire (QoLA)

Auteurs: Khawana Faker, Viviane Andrade Cancio de Paula, Monica Almeida Tostes

Gepubliceerd in: Journal of Autism and Developmental Disorders

Abstract

The aim of this study was to cross-culturally adapt and validate of the Brazilian Portuguese version of the Quality of Life in Autism Questionnaire (QoLA) among parents of children ASD. The translated version was administered to 91 parents (Male: 4, Female: 85, other: 2) of individuals diagnosed with ASD. Among these, 22 completed the questionnaire twice, providing data for the assessment of test–retest reliability (ICC). The B-QoLA score ranged from 41 to 122, with a mean (SD) of 74.3 ± 18.5 in Part A and ranged from 22 to 94, with a mean (SD) of 61.6 ± 16.4, in Part B. Cronbach’s alpha coefficient was 0.94 for Part A, 0.92 for Part B and 0.94 for total B-QoLA, indicating excellent internal consistency. Test–retest reliability was assessed using the intraclass correlation coefficient, which was 0.96 for the total scale, 0.94 for Part A, and 0.95 for Part B. Part A-X2 (df) = 297, (167), X2/2 = 1.7, CFI = 0.85, TLI = 0.84, GFI = 0.78, AGFI = 0.75, and RMSEA (95%CI) = 0.09 (0.07-0.11); Part B-X2 (df) = 297, (167), X2/2 = 1.7, CFI = 0.85, TLI = 0.84, GFI = 0.78, AGFI = 0.75, and RMSEA (95%CI) = 0.09 (0.07-0.11), thus indicating moderate fit of the model. The Brazilian version of the QoLA shows encouraging psychometric properties on each of the two subscales, showing strong internal consistency and good construct validity.

Alleen toegankelijk voor geautoriseerde gebruikers

American Psychiatric Association (2022). Diagnostic and statistical manual of mental disorders (5th ed., text rev.) https://doi.org/10.1176/appi.books.9780890425787

Asahar, S. F., Melek, K. A., & Isa, M. R. (2021). Quality of life and child’s autism-specific difficulties among Malaysian main caregivers: A cross-sectional study. International Journal of Environmental Research and Public Health, 18, 9861. https://doi.org/10.3390/ijerph18189861CrossRefPubMedPubMedCentral

Bagozzi, R. P., Yi, Y., & Phillips, L. W. (1991). Assessing construct validity in organizational research. Administrative Science Quarterly, 36(3), 421. https://doi.org/10.2307/2393203CrossRef

Bohadana, G., Morrissey, S., & Paynter, J. (2019). Self-compassion: A novel predictor of stress and quality of life in parents of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 49(10), 4039–4052. https://doi.org/10.1007/s10803-019-04121-xCrossRefPubMed

Cronbach, L. J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16(3), 297–334. https://doi.org/10.1007/bf02310555CrossRef

Crowell, J. A., Keluskar, J., & Gorecki, A. (2019). Parenting behavior and the development of children with autism spectrum disorder. Comprehensive Psychiatry, 90(1), 21–29. https://doi.org/10.1016/j.comppsych.2018.11.007CrossRefPubMed

de Souza, A. C., Alexandre, N. M. C., Guirardello, E. D. B., de Souza, A. C., Alexandre, N. M. C., & Guirardello, E. D. B. (2017). Psychometric properties in instruments evaluation of reliability and validity. Epidemiology and Health Services, 26(3), 649–659. https://doi.org/10.5123/s1679-49742017000300022CrossRef

Eapen, V., Črnčec, R., Walter, A., & Tay, K. P. (2014). Conceptualisation and development of a quality of life measure for parents of children with autism spectrum disorder. Autism Research and Treatment, 2014, 1–11. https://doi.org/10.1155/2014/160783CrossRef

Eapen, V., Karlov, L., John, J. R., Beneytez, C., Grimes, P. Z., Kang, Y. Q., Mardare, I., Minca, D. G., Voicu, L., Malek, K. A., Ramkumar, A., Stefanik, K., Gyori, M., & Volgyesi-Molnar, M. (2023). Quality of life in parents of autistic children: A cross-cultural perspective. Frontiers in Psychology. https://doi.org/10.3389/fpsyg.2023.1022094CrossRefPubMedPubMedCentral

Faker, K., Tostes, M. A., & Paula, V. A. C. (2018). Impact of untreated dental caries on oral health-related quality of life of children with special health care needs. Brazilian Oral Research. https://doi.org/10.1590/1807-3107bor-2018.vol32.0117CrossRefPubMed

Faker, K., Tostes, M. A., & Paula, V. A. C. (2022). Oral health-related quality of life among autistic children compared to children without autism in Brazil. International Journal of Clinical Dentistry, 15(1), 27–37.

Firmino, R. T., Granville-Garcia, A. F., McGrath, C. P., Bendo, C. B., Ferreira, F. M., & Paiva, S. M. (2019). Validation for Brazilian Portuguese language of the Hong Kong Oral Health Literacy Assessment Task for Paediatric Dentistry (BOHLAT-P). International Journal of Paediatric Dentistry, 30(2), 234–243. https://doi.org/10.1111/ipd.12585CrossRefPubMed

Guillemin, F., Bombardier, C., & Beaton, D. (1993). Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines. Journal of Clinical Epidemiology, 46(12), 1417–1432. https://doi.org/10.1016/0895-4356(93)90142-nCrossRefPubMed

Herdman, M., Fox-Rushby, J., & Badia, X. (1997). “Equivalence” and the translation and adaptation of health-related quality of life questionnaires. Quality of Life Research, 6(3), 237–247. https://doi.org/10.1023/a:1026410721664CrossRefPubMed

Hosseini, S.-S., Beheshti, S.-Z., Eapen, V., Almasi-Hashiani, A., & Maroufizadeh, S. (2021). Reliability and validity of the persian version of the quality of life in autism questionnaire (QoLA)—Parent Version in Iranian Mothers. Research Square. https://doi.org/10.21203/rs.3.rs-404187/v1CrossRef

Hu, L., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6(1), 1–55. https://doi.org/10.1080/10705519909540118CrossRef

Kang, H., & Ahn, J. W. (2021). Model setting and interpretation of results in research using structural equation modeling: A checklist with guiding questions for reporting. Asian Nursing Research, 15(3), 157–162. https://doi.org/10.1016/j.anr.2021.06.001CrossRefPubMed

Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15(3), 247–277. https://doi.org/10.1007/s10567-012-0119-6CrossRefPubMed

Kuru, N., & Piyal, B. (2019). Perceived social support and quality of life of parents of children with Autism. Nigerian Journal of Clinical Practice, 21(9), 1182–1189. https://doi.org/10.4103/njcp.njcp_13_18CrossRef

Leadbitter, K., Aldred, C., McConachie, H., Le Couteur, A., Kapadia, D., Charman, T., Macdonald, W., Salomone, E., Emsley, R., & Green, J. (2017). The autism family experience questionnaire (AFEQ): An ecologically-valid, parent-nominated measure of family experience, quality of life and prioritised outcomes for early intervention. Journal of Autism and Developmental Disorders, 48(4), 1052–1062. https://doi.org/10.1007/s10803-017-3350-7CrossRefPubMedCentral

Li, L., Zeng, L., Lin, Z.-J., Cazzell, M., & Liu, H. (2015). Tutorial on use of intraclass correlation coefficients for assessing intertest reliability and its application in functional near-infrared spectroscopy–based brain imaging. Journal of Biomedical Optics, 20(5), 050801. https://doi.org/10.1117/1.jbo.20.5.050801CrossRef

Lord, C., Brugha, T. S., Charman, T., Cusack, J., Dumas, G., Frazier, T., Jones, E. J. H., Jones, R. M., Pickles, A., State, M. W., Taylor, J. L., & Veenstra-VanderWeele, J. (2020). Autism spectrum disorder. Nature Reviews Disease Primers, 6(1), 1–23. https://doi.org/10.1038/s41572-019-0138-4CrossRef

McConachie, H., Mason, D., Parr, J. R., Garland, D., Wilson, C., & Rodgers, J. (2017). Enhancing the validity of a quality of life measure for autistic people. Journal of Autism and Developmental Disorders, 48(5), 1596–1611. https://doi.org/10.1007/s10803-017-3402-zCrossRefPubMedCentral

Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., Bouter, L. M., & Vet, D. (2010a). The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: An international Delphi study. Quality of Life Research, 19(4), 539–549. https://doi.org/10.1007/s11136-010-9606-8CrossRefPubMedPubMedCentral

Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., Bouter, L. M., & Vet, D. (2010b). The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. Journal of Clinical Epidemiology, 63(7), 737–745. https://doi.org/10.1016/j.jclinepi.2010.02.006CrossRefPubMed

Nunnally, J. C., & Bernstein, I. H. (1978). Psychometric Theory. McGraw-Hill.

Özgür, B., Aksu, H., & Eser, E. (2017). Turkish validity and reliability of quality of life in autism questionnaire-parent version. Anatolian Journal of Psychiatry, 18(2), 1. https://doi.org/10.5455/apd.249390CrossRef

Shamsudin, I. D., Yu, M.-L., & Brown, D. (2018). Translation, cross-cultural adaptation and validation of the quality of life in autism questionnaire (QoLA) from English into the Malay Language. Journal of Occupational Therapy, Schools, & Early Intervention, 12(2), 253–272. https://doi.org/10.1080/19411243.2018.1538842CrossRef

Shi, D., Lee, T., & Maydeu-Olivares, A. (2019). Understanding the model size effect on SEM fit indices. Educational and Psychological Measurement, 79(2), 310–334. https://doi.org/10.1177/0013164418783530CrossRefPubMed

Silveira, J. O., Cota, L. O. M., Bendo, C. B., Faria, S. F. S., Costa, D., & Oliveira, F. (2020). Validation of the Brazilian version of the Halitosis Associated Life-Quality Test (HALT). Brazilian Oral Research. https://doi.org/10.1590/1807-3107bor-2020.vol34.0098CrossRefPubMed

Tesch, F. C., de Oliveira, B. H., & Leo, A. (2008). Semantic equivalence of the Portuguese version of the early childhood oral health impact scale. Notebooks of Public Health, 24(8), 1897–1909. https://doi.org/10.1590/s0102-311x2008000800018CrossRef

World Health Organization. (2023). International Statistical Classification of Diseases and Related Health Problems, 11th Revision (ICD-11). WHO.

Titel: Psychometric Properties of the Portuguese Version of the Quality of Life in Autism Questionnaire (QoLA)
Auteurs: Khawana Faker
Viviane Andrade Cancio de Paula
Monica Almeida Tostes
Publicatiedatum: 04-07-2024
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-024-06428-w

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen