Skip to main content
Top
Gepubliceerd in:

05-06-2018 | Original Paper

Psychometric Properties and Utility of the Social Vulnerability Questionnaire for Individuals with Intellectual and Developmental Disabilities

Auteurs: Marisa H. Fisher, Carolyn M. Shivers, Cynde K. Josol

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2020

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Although it is well-known that individuals with intellectual and developmental disabilities (IDD) are socially vulnerable, the field lacks valid assessments to identify risk factors for victimization. Parents/caregivers of 428 individuals with IDD (ages 12–53) completed the social vulnerability questionnaire (SVQ), a measure developed to assess specific aspects of social vulnerability among individuals with various forms of IDD. This study examined the psychometric structure of the SVQ (exploratory and confirmatory factor analysis), and the utility of the factors of the SVQ as predictors of diagnostic category (through discriminate function analysis). Results provide psychometric support for use of the SVQ and its factors for further research and as part of a clinical assessment battery to assess social vulnerability and to develop interventions.
Literatuur
go back to reference Achenbach, T. M. (1991). Manual for the Child Behavior Checklist/4–18 and 1991 Profile. Burlington, VT: University of Vermont, Department of Psychiatry. Achenbach, T. M. (1991). Manual for the Child Behavior Checklist/4–18 and 1991 Profile. Burlington, VT: University of Vermont, Department of Psychiatry.
go back to reference American Psychiatric Association (2013). Diagnostic and Statistical Manual of Mental Disorders (5th edn. text revised). Washington, DC: American Psychiatric Association. American Psychiatric Association (2013). Diagnostic and Statistical Manual of Mental Disorders (5th edn. text revised). Washington, DC: American Psychiatric Association.
go back to reference Balogh, R., Bretherton, K., Whibley, S., Berney, T., Richold, P., Worsley, C., & Firth, H. (2001). Sexual abuse in children and adolescents with intellectual disability. Journal of Intellectual Disability Research, 45, 194–201.PubMed Balogh, R., Bretherton, K., Whibley, S., Berney, T., Richold, P., Worsley, C., & Firth, H. (2001). Sexual abuse in children and adolescents with intellectual disability. Journal of Intellectual Disability Research, 45, 194–201.PubMed
go back to reference Bauminger, N., Solomon, M., & Rogers, S. J. (2010). Predicting friendship quality in autism spectrum disorders and typical development. Journal of Autism and Developmental Disorders, 40, 751–761.PubMed Bauminger, N., Solomon, M., & Rogers, S. J. (2010). Predicting friendship quality in autism spectrum disorders and typical development. Journal of Autism and Developmental Disorders, 40, 751–761.PubMed
go back to reference Bellugi, U., Wang, P. P., & Jernigan, T. L. (1994). Williams syndrome: An unusual neuropsychological profile. In S. H. Broman & J. Grafman (Eds.), Atypical Cognitive Deficits in Developmental Disorders: Implications for Brain Function (pp. 23–56). Hillsdale, NJ: Lawrence Erlbaum Associates, Inc. Bellugi, U., Wang, P. P., & Jernigan, T. L. (1994). Williams syndrome: An unusual neuropsychological profile. In S. H. Broman & J. Grafman (Eds.), Atypical Cognitive Deficits in Developmental Disorders: Implications for Brain Function (pp. 23–56). Hillsdale, NJ: Lawrence Erlbaum Associates, Inc.
go back to reference Card, N. A., & Hodges, E. V. E. (2007). Victimization within mutually antipathetic peer relationships. Social Development, 16, 479–496. Card, N. A., & Hodges, E. V. E. (2007). Victimization within mutually antipathetic peer relationships. Social Development, 16, 479–496.
go back to reference Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders—Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008. MMWR, 61(3), 1–19. Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders—Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008. MMWR, 61(3), 1–19.
go back to reference Cook, C. R., Williams, K. R., Guerra, N. G., Kim, T. E., & Sadek, S. (2010). Predictors of bullying and victimization in childhood and adolescence: A meta-analytic investigation. School Psychology Quarterly, 25, 65–83. Cook, C. R., Williams, K. R., Guerra, N. G., Kim, T. E., & Sadek, S. (2010). Predictors of bullying and victimization in childhood and adolescence: A meta-analytic investigation. School Psychology Quarterly, 25, 65–83.
go back to reference Davies, M., Udwin, O., & Howlin, P. (1998). Adults with Williams syndrome: Preliminary study of social, emotional and behavioural difficulties. The British Journal of Psychiatry, 172, 273–276.PubMed Davies, M., Udwin, O., & Howlin, P. (1998). Adults with Williams syndrome: Preliminary study of social, emotional and behavioural difficulties. The British Journal of Psychiatry, 172, 273–276.PubMed
go back to reference Dykens, E. M. (2000). Psychopathology in children with intellectual disability. Journal of Child Psychology and Psychiatry, 41, 407–417.PubMed Dykens, E. M. (2000). Psychopathology in children with intellectual disability. Journal of Child Psychology and Psychiatry, 41, 407–417.PubMed
go back to reference Dykens, E. M., Hodapp, R. M., & Finucane, B. (2000). Genetics and Mental Retardation Syndromes: A New Look at Behavior and Treatments. Baltimore: Paul H. Brookes Publishing Company. Dykens, E. M., Hodapp, R. M., & Finucane, B. (2000). Genetics and Mental Retardation Syndromes: A New Look at Behavior and Treatments. Baltimore: Paul H. Brookes Publishing Company.
go back to reference Dykens, E. M., & Lense, M. (2011). Intellectual disabilities and autism spectrum disorder: A cautionary note. In D. Amaral, G. Dawson & D. Geschind (Eds.), Autism Spectrum Disorders (pp. 263–270). Oxford: Oxford University Press. Dykens, E. M., & Lense, M. (2011). Intellectual disabilities and autism spectrum disorder: A cautionary note. In D. Amaral, G. Dawson & D. Geschind (Eds.), Autism Spectrum Disorders (pp. 263–270). Oxford: Oxford University Press.
go back to reference Fabrigar, L. R., Wegener, D. T., MacCallum, R. C., & Strahan, E. J. (1999). Evaluating the use of exploratory factor analysis in psychological research. Psychological Methods, 4, 272–299. Fabrigar, L. R., Wegener, D. T., MacCallum, R. C., & Strahan, E. J. (1999). Evaluating the use of exploratory factor analysis in psychological research. Psychological Methods, 4, 272–299.
go back to reference Fisher, M. H. (2016). Heightened social vulnerability among adults with intellectual and developmental disabilities: Findings, perspectives, and needed interventions. In J. R. Lutzker, K. Guastaferro & M. Graham (Eds.), Maltreatment of People with Intellectual and Developmental Disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities. Fisher, M. H. (2016). Heightened social vulnerability among adults with intellectual and developmental disabilities: Findings, perspectives, and needed interventions. In J. R. Lutzker, K. Guastaferro & M. Graham (Eds.), Maltreatment of People with Intellectual and Developmental Disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.
go back to reference Fisher, M. H., Lough, E. F., Griffin, M. M., & Lane, L. A. (2017). Experiences of bullying for individuals with Williams syndrome: From pain to empowerment. Journal of Mental Health Research in Intellectual Disabilities, 10, 108–125. Fisher, M. H., Lough, E. F., Griffin, M. M., & Lane, L. A. (2017). Experiences of bullying for individuals with Williams syndrome: From pain to empowerment. Journal of Mental Health Research in Intellectual Disabilities, 10, 108–125.
go back to reference Fisher, M. H., & Morin, L. (2017). Addressing social skills deficits in adults with Williams syndrome. Research in Developmental Disabilities, 71, 77–87.PubMed Fisher, M. H., & Morin, L. (2017). Addressing social skills deficits in adults with Williams syndrome. Research in Developmental Disabilities, 71, 77–87.PubMed
go back to reference Fisher, M. H., Moskowitz, A. L., & Hodapp, R. M. (2012). Vulnerability and experiences related to social victimization among individuals with intellectual and developmental disabilities. Journal of Mental Health Research in Intellectual Disabilities, 5, 32–48. Fisher, M. H., Moskowitz, A. L., & Hodapp, R. M. (2012). Vulnerability and experiences related to social victimization among individuals with intellectual and developmental disabilities. Journal of Mental Health Research in Intellectual Disabilities, 5, 32–48.
go back to reference Fisher, M. H., Moskowitz, A. L., & Hodapp, R. M. (2013). Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome. Research in Autism Spectrum Disorders, 7, 931–937.PubMedPubMedCentral Fisher, M. H., Moskowitz, A. L., & Hodapp, R. M. (2013). Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome. Research in Autism Spectrum Disorders, 7, 931–937.PubMedPubMedCentral
go back to reference Greenspan, S. (2006). Functional concepts in mental retardation: Finding the natural essence of an artificial category. Exceptionality, 14, 205–224. Greenspan, S. (2006). Functional concepts in mental retardation: Finding the natural essence of an artificial category. Exceptionality, 14, 205–224.
go back to reference Greenspan, S., Loughlin, G., & Black, R. S. (2001). Credulity and gullibility in people with developmental disorders: A framework for future research. In L. M. Glidden (Ed.), International Review of Research in Mental Retardation (Vol. 25, pp. 101–135). San Diego, CA: Academic Press. Greenspan, S., Loughlin, G., & Black, R. S. (2001). Credulity and gullibility in people with developmental disorders: A framework for future research. In L. M. Glidden (Ed.), International Review of Research in Mental Retardation (Vol. 25, pp. 101–135). San Diego, CA: Academic Press.
go back to reference Hillier, L. W., Fulton, R. S., Fulton, L. A., Graves, T. A., Pepin, K. H., Wagner-McPherson, C., … Minx, P. (2003). The DNA sequence of human chromosome 7. Nature, 424, 157–164.PubMed Hillier, L. W., Fulton, R. S., Fulton, L. A., Graves, T. A., Pepin, K. H., Wagner-McPherson, C., … Minx, P. (2003). The DNA sequence of human chromosome 7. Nature, 424, 157–164.PubMed
go back to reference Hu, L. T., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6, 1–55. Hu, L. T., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6, 1–55.
go back to reference Jawaid, A., Riby, D. M., Owens, J., White, S. W., Tarar, T., & Schulz, P. E. (2012). ‘Too withdrawn’ or ‘too friendly’: Considering social vulnerability in two neurodevelopmental disorders. Journal of Intellectual Disability Research, 56, 335–350.PubMed Jawaid, A., Riby, D. M., Owens, J., White, S. W., Tarar, T., & Schulz, P. E. (2012). ‘Too withdrawn’ or ‘too friendly’: Considering social vulnerability in two neurodevelopmental disorders. Journal of Intellectual Disability Research, 56, 335–350.PubMed
go back to reference Jones, W., Bellugi, U., Lai, Z., Chiles, M., Reilly, J., Lincoln, A., & Adolphs, R. (2000). II. Hypersociability in Williams syndrome. Journal of Cognitive Neuroscience, 12(Supplement 1), 30–46.PubMed Jones, W., Bellugi, U., Lai, Z., Chiles, M., Reilly, J., Lincoln, A., & Adolphs, R. (2000). II. Hypersociability in Williams syndrome. Journal of Cognitive Neuroscience, 12(Supplement 1), 30–46.PubMed
go back to reference Kasari, C., Locke, J., Gulsrud, A., & Rotherman-Fuller, E. (2011). Social networks and friendships at school: Comparing children with and without ASD. Journal of Autism and Developmental Disorders, 41, 533–544.PubMed Kasari, C., Locke, J., Gulsrud, A., & Rotherman-Fuller, E. (2011). Social networks and friendships at school: Comparing children with and without ASD. Journal of Autism and Developmental Disorders, 41, 533–544.PubMed
go back to reference Klein-Tasman, B. P., Li-Barber, K. T., & Magargee, E. T. (2011). Honing in on the social phenotype in Williams syndrome using multiple measures and multiple raters. Journal of Autism and developmental Disorders, 41, 341–351.PubMedPubMedCentral Klein-Tasman, B. P., Li-Barber, K. T., & Magargee, E. T. (2011). Honing in on the social phenotype in Williams syndrome using multiple measures and multiple raters. Journal of Autism and developmental Disorders, 41, 341–351.PubMedPubMedCentral
go back to reference Klein-Tasman, B. P., & Mervis, C. B. (2003). Distinctive personality characteristics of 8-, 9-, and 10-year-olds with Williams syndrome. Developmental Neuropsychology, 23, 269–290.PubMed Klein-Tasman, B. P., & Mervis, C. B. (2003). Distinctive personality characteristics of 8-, 9-, and 10-year-olds with Williams syndrome. Developmental Neuropsychology, 23, 269–290.PubMed
go back to reference Locke, J., Ishijima, E., Kasari, C., & London, N. (2010). Loneliness, friendship quality, and the social networks of adolescents with high-functioning autism in an inclusive school setting. Journal of Research in Special Educational Needs, 10, 74–81. Locke, J., Ishijima, E., Kasari, C., & London, N. (2010). Loneliness, friendship quality, and the social networks of adolescents with high-functioning autism in an inclusive school setting. Journal of Research in Special Educational Needs, 10, 74–81.
go back to reference Lough, E., & Fisher, M. H. (2016). Parent and self-report ratings on the perceived levels of social vulnerability of adults with Williams syndrome. Journal of Autism and Developmental Disorders, 46, 3424–3433.PubMed Lough, E., & Fisher, M. H. (2016). Parent and self-report ratings on the perceived levels of social vulnerability of adults with Williams syndrome. Journal of Autism and Developmental Disorders, 46, 3424–3433.PubMed
go back to reference Mervis, C. B., Morris, C. A., Klein-Tasman, B. P., Bertrand, J., Kwitny, S., Appelbaum, L. G., & Rice, C. E. (2003). Attentional characteristics of infants and toddlers with Williams syndrome during triadic interactions. Developmental Neuropsychology, 23, 243–268.PubMed Mervis, C. B., Morris, C. A., Klein-Tasman, B. P., Bertrand, J., Kwitny, S., Appelbaum, L. G., & Rice, C. E. (2003). Attentional characteristics of infants and toddlers with Williams syndrome during triadic interactions. Developmental Neuropsychology, 23, 243–268.PubMed
go back to reference Mutton, D., Alberman, E., & Hook, E. B. (1996). Cytogenetic and epidemiological findings in Down syndrome, England and Wales 1989 to 1993. National Down Syndrome Cytogenetic Register and the Association of Clinical Cytogeneticists. Journal of Medical Genetics, 33, 387–394.PubMedPubMedCentral Mutton, D., Alberman, E., & Hook, E. B. (1996). Cytogenetic and epidemiological findings in Down syndrome, England and Wales 1989 to 1993. National Down Syndrome Cytogenetic Register and the Association of Clinical Cytogeneticists. Journal of Medical Genetics, 33, 387–394.PubMedPubMedCentral
go back to reference Myers, B., Mackintosh, V., & Goin-Kochel, R. (2009). My greatest joy and my greatest heart ache: Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives. Research in Autism Spectrum Disorders, 3, 670–684. Myers, B., Mackintosh, V., & Goin-Kochel, R. (2009). My greatest joy and my greatest heart ache: Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives. Research in Autism Spectrum Disorders, 3, 670–684.
go back to reference National Research Council (2001). Crime victims with developmental disabilities: Report of a workshop. committee on law and Justice. J. Petersilia, J. Foote & N. A. Crowell (Eds.), Commission on Behavioral and Social Sciences and Education. Washington, DC: National Academy Press. National Research Council (2001). Crime victims with developmental disabilities: Report of a workshop. committee on law and Justice. J. Petersilia, J. Foote & N. A. Crowell (Eds.), Commission on Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.
go back to reference Nettelbeck, T., & Wilson, C. (2002). Personal vulnerability to victimization of people with mental retardation. Trauma, Violence, & Abuse, 3, 289–306. Nettelbeck, T., & Wilson, C. (2002). Personal vulnerability to victimization of people with mental retardation. Trauma, Violence, & Abuse, 3, 289–306.
go back to reference Petitpierre, G., Masse, M., Martini-Willemin, B., & Delessert, Y. (2013). A complementarity of social and legal perspectives on what is abusive practice and what constitutes abuse. Journal of Policy and Practice in Intellectual Disabilities, 10, 196–206. Petitpierre, G., Masse, M., Martini-Willemin, B., & Delessert, Y. (2013). A complementarity of social and legal perspectives on what is abusive practice and what constitutes abuse. Journal of Policy and Practice in Intellectual Disabilities, 10, 196–206.
go back to reference Porter, M. A., Coltheart, M., & Langdon, R. (2007). The neuropsychological basis of hypersociability in Williams and Down syndrome. Neuropsychologia, 45, 2839–3849.PubMed Porter, M. A., Coltheart, M., & Langdon, R. (2007). The neuropsychological basis of hypersociability in Williams and Down syndrome. Neuropsychologia, 45, 2839–3849.PubMed
go back to reference Presson, A. P., Partyka, G., Jensen, K. M., Devine, O. J., Rasmussen, S. A., McCabe, L. L., & McCabe, E. R. (2013). Current estimate of Down syndrome population prevalence in the United States. The Journal of Pediatrics, 163, 1163–1168.PubMedPubMedCentral Presson, A. P., Partyka, G., Jensen, K. M., Devine, O. J., Rasmussen, S. A., McCabe, L. L., & McCabe, E. R. (2013). Current estimate of Down syndrome population prevalence in the United States. The Journal of Pediatrics, 163, 1163–1168.PubMedPubMedCentral
go back to reference Ranick, J., Persicke, A., Tarbox, J., & Kornack, J. A. (2013). Teaching children with autism to detect and respond to deceptive statements. Research in Autism Spectrum Disorders, 7, 503–508. Ranick, J., Persicke, A., Tarbox, J., & Kornack, J. A. (2013). Teaching children with autism to detect and respond to deceptive statements. Research in Autism Spectrum Disorders, 7, 503–508.
go back to reference Schalock, R. L., Borthwick-Duffy, S. A., Bradley, V. J., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., … Yeager, M. H. (2010). Intellectual Disability: Definition, Classification, and Systems of Supports (11th edn.). Washington, DC: AAIDD. Schalock, R. L., Borthwick-Duffy, S. A., Bradley, V. J., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., … Yeager, M. H. (2010). Intellectual Disability: Definition, Classification, and Systems of Supports (11th edn.). Washington, DC: AAIDD.
go back to reference Sobsey, R. (1994). Violence and Abuse in the Lives of People with Disabilities: The End of Silent Acceptance? Baltimore, MD: Paul H Brookes Publishing. Sobsey, R. (1994). Violence and Abuse in the Lives of People with Disabilities: The End of Silent Acceptance? Baltimore, MD: Paul H Brookes Publishing.
go back to reference Sofronoff, K., Dark, E., & Stone, V. (2011). Social vulnerability and bullying in children with Asperger syndrome. Autism, 15, 355–372.PubMed Sofronoff, K., Dark, E., & Stone, V. (2011). Social vulnerability and bullying in children with Asperger syndrome. Autism, 15, 355–372.PubMed
go back to reference Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland Adaptive Behavior Scales- Second Edition. Minneapolis, MN: Pearson Assessments. Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland Adaptive Behavior Scales- Second Edition. Minneapolis, MN: Pearson Assessments.
go back to reference Sterzing, P. R., Shattuck, P. T., Narendorf, S. C., Wagner, M., & Cooper, B. P. (2012). Bullying involvement and autism spectrum disorders: Prevalence and correlates of bullying involvement among adolescents with an autism spectrum disorder. Archives of Pediatrics and Adolescent Medicine, 166, 1058–1064.PubMed Sterzing, P. R., Shattuck, P. T., Narendorf, S. C., Wagner, M., & Cooper, B. P. (2012). Bullying involvement and autism spectrum disorders: Prevalence and correlates of bullying involvement among adolescents with an autism spectrum disorder. Archives of Pediatrics and Adolescent Medicine, 166, 1058–1064.PubMed
go back to reference Sullivan, P. M., & Knutson, J. F. (2000). Maltreatment and disabilities: A population-based epidemiological study. Child Abuse & Neglect, 24, 1257–1273. Sullivan, P. M., & Knutson, J. F. (2000). Maltreatment and disabilities: A population-based epidemiological study. Child Abuse & Neglect, 24, 1257–1273.
go back to reference Thurman, A. J., & Fisher, M. H. (2015). The Williams syndrome social phenotype: Disentangling the contributions of social interest and social difficulties. International Review of Research in Developmental Disabilities, 49, 191–227. Thurman, A. J., & Fisher, M. H. (2015). The Williams syndrome social phenotype: Disentangling the contributions of social interest and social difficulties. International Review of Research in Developmental Disabilities, 49, 191–227.
go back to reference Ticoll, M. (1994). Violence and People with Disabilities: A Review of the Literature. Ottawa: National Clearinghouse on Family Violence. Ticoll, M. (1994). Violence and People with Disabilities: A Review of the Literature. Ottawa: National Clearinghouse on Family Violence.
go back to reference White, C., Holland, E., Marsland, D., & Oakes, P. (2003). The identification of environments and cultures that promote the abuse of people with intellectual disabilities: A review of the literature. Journal of Applied Research in Intellectual Disabilities, 16, 1–9. White, C., Holland, E., Marsland, D., & Oakes, P. (2003). The identification of environments and cultures that promote the abuse of people with intellectual disabilities: A review of the literature. Journal of Applied Research in Intellectual Disabilities, 16, 1–9.
go back to reference Wilson, C., Seaman, L., & Nettelbeck, T. (1996). Vulnerability to criminal exploitation: Influence of interpersonal competence differences among people with mental retardation. Journal of Intellectual Disability Research, 40, 8–16.PubMed Wilson, C., Seaman, L., & Nettelbeck, T. (1996). Vulnerability to criminal exploitation: Influence of interpersonal competence differences among people with mental retardation. Journal of Intellectual Disability Research, 40, 8–16.PubMed
Metagegevens
Titel
Psychometric Properties and Utility of the Social Vulnerability Questionnaire for Individuals with Intellectual and Developmental Disabilities
Auteurs
Marisa H. Fisher
Carolyn M. Shivers
Cynde K. Josol
Publicatiedatum
05-06-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-018-3636-4

Andere artikelen Uitgave 7/2020

Journal of Autism and Developmental Disorders 7/2020 Naar de uitgave