Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Quality of Life Research 9/2015

01-09-2015

PROMIS® pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions

Auteurs: Darren A. DeWalt, Heather E. Gross, Debbie S. Gipson, David T. Selewski, Esi Morgan DeWitt, Carlton D. Dampier, Pamela S. Hinds, I-Chan Huang, David Thissen, James W. Varni

Gepubliceerd in: Quality of Life Research | Uitgave 9/2015

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

To conduct a comparative analysis of eight pediatric self-report scales for ages 8–17 years from the National Institutes of Health (NIH) Patient Reported Outcomes Measurement Information System (PROMIS®) in six pediatric chronic health conditions, using indicators of disease severity.

Methods

Pediatric patients (N = 1454) with asthma, cancer, chronic kidney disease, obesity, rheumatic disease, and sickle cell disease completed items from the PROMIS pediatric mobility, upper extremity functioning, depressive symptoms, anxiety, anger, peer relationships, pain interference, and fatigue self-report scales. Comparisons within the six pediatric chronic health conditions were conducted by examining differences in groups based on the disease severity using markers of severity that were specific to characteristics of each disease. A comparison was also made across diseases between children who had been recently hospitalized and those who had not.

Results

In general, there were differences in self-reported health outcomes within each chronic health condition, with patients who had higher disease severity showing worse outcomes. Across health conditions, when children with recent hospitalizations were compared with those who had not been hospitalized in the past 6 months, we found significant differences in the expected directions for all PROMIS domains, except anger.

Conclusions

PROMIS measures discriminate between different clinically meaningful subgroups within several chronic illnesses. Further research is needed to determine the responsiveness of the PROMIS pediatric scales to change over time.

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Podotherapeut Totaal

Binnen de bundel kunt u gebruik maken van boeken, tijdschriften, e-learnings, web-tv's en uitlegvideo's. BSL Podotherapeut Totaal is overal toegankelijk; via uw PC, tablet of smartphone.

Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
1.
go back to reference Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., et al. (2007). The patient-reported outcomes measurement information system (PROMIS): Progress of an NIH roadmap cooperative group during its first two years. Medical Care, 45(Suppl 1), S3–S11. PubMedCentralPubMedCrossRef Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., et al. (2007). The patient-reported outcomes measurement information system (PROMIS): Progress of an NIH roadmap cooperative group during its first two years. Medical Care, 45(Suppl 1), S3–S11. PubMedCentralPubMedCrossRef
2.
go back to reference Irwin, D. E., Stucky, B. D., Thissen, D., DeWitt, E. M., Lai, J. S., Yeatts, K., et al. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey. Quality of Life Research, 19, 585–594. PubMedCentralPubMedCrossRef Irwin, D. E., Stucky, B. D., Thissen, D., DeWitt, E. M., Lai, J. S., Yeatts, K., et al. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey. Quality of Life Research, 19, 585–594. PubMedCentralPubMedCrossRef
3.
go back to reference Irwin, D. E., Stucky, B. D., Langer, M. M., Thissen, D., DeWitt, E. M., Lai, J. S., et al. (2010). An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales. Quality of Life Research, 19, 595–607. PubMedCentralPubMedCrossRef Irwin, D. E., Stucky, B. D., Langer, M. M., Thissen, D., DeWitt, E. M., Lai, J. S., et al. (2010). An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales. Quality of Life Research, 19, 595–607. PubMedCentralPubMedCrossRef
4.
go back to reference Varni, J. W., Stucky, B. D., Thissen, D., DeWitt, E. M., Irwin, D. E., Lai, J. S., et al. (2010). PROMIS pediatric pain interference scale: An item response theory analysis of the pediatric pain item bank. Journal of Pain, 11, 1109–1119. PubMedCentralPubMedCrossRef Varni, J. W., Stucky, B. D., Thissen, D., DeWitt, E. M., Irwin, D. E., Lai, J. S., et al. (2010). PROMIS pediatric pain interference scale: An item response theory analysis of the pediatric pain item bank. Journal of Pain, 11, 1109–1119. PubMedCentralPubMedCrossRef
5.
go back to reference DeWitt, E. M., Stucky, B. D., Thissen, D., Irwin, D. E., Langer, M., Varni, J. W., et al. (2011). Construction of the eight-item patient-reported outcomes measurement information system pediatric physical function scales: Built using item response theory. Journal of Clinical Epidemiology, 64, 794–804. PubMedCentralPubMedCrossRef DeWitt, E. M., Stucky, B. D., Thissen, D., Irwin, D. E., Langer, M., Varni, J. W., et al. (2011). Construction of the eight-item patient-reported outcomes measurement information system pediatric physical function scales: Built using item response theory. Journal of Clinical Epidemiology, 64, 794–804. PubMedCentralPubMedCrossRef
6.
go back to reference Irwin, D. E., Stucky, B. D., Langer, M. M., Thissen, D., DeWitt, E. M., Lai, J. S., et al. (2012). PROMIS pediatric anger scale: An item response theory analysis. Quality of Life Research, 21, 697–706. PubMedCentralPubMedCrossRef Irwin, D. E., Stucky, B. D., Langer, M. M., Thissen, D., DeWitt, E. M., Lai, J. S., et al. (2012). PROMIS pediatric anger scale: An item response theory analysis. Quality of Life Research, 21, 697–706. PubMedCentralPubMedCrossRef
7.
go back to reference DeWalt, D. A., Thissen, D., Stucky, B. D., Langer, M. M., DeWitt, E. M., Irwin, D. E., Lai, J. S., Yeatts, K. B., Gross, H. E., Taylor, O., & Varni, J. W. (in press). PROMIS pediatric peer relationships scale: Development of a peer relationships item bank as part of social health measurement. Health Psychology. DeWalt, D. A., Thissen, D., Stucky, B. D., Langer, M. M., DeWitt, E. M., Irwin, D. E., Lai, J. S., Yeatts, K. B., Gross, H. E., Taylor, O., & Varni, J. W. (in press). PROMIS pediatric peer relationships scale: Development of a peer relationships item bank as part of social health measurement. Health Psychology.
8.
go back to reference Lai, J. S., Stucky, B. D., Thissen, D., Varni, J. W., DeWitt, E. M., Irwin, D. E., Yeatts, K. B., & Dewalt, D. A. (in press). Development and psychometric properties of the PROMIS ® pediatric fatigue item banks. Quality of Life Research. Lai, J. S., Stucky, B. D., Thissen, D., Varni, J. W., DeWitt, E. M., Irwin, D. E., Yeatts, K. B., & Dewalt, D. A. (in press). Development and psychometric properties of the PROMIS ® pediatric fatigue item banks. Quality of Life Research.
9.
go back to reference Walsh, T. R., Irwin, D. E., Meier, A., Varni, J. W., & DeWalt, D. A. (2008). The use of focus groups in the development of the PROMIS pediatrics item bank. Quality of Life Research, 17, 725–735. PubMedCentralPubMedCrossRef Walsh, T. R., Irwin, D. E., Meier, A., Varni, J. W., & DeWalt, D. A. (2008). The use of focus groups in the development of the PROMIS pediatrics item bank. Quality of Life Research, 17, 725–735. PubMedCentralPubMedCrossRef
10.
go back to reference Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes, 7(3), 1–10. Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes, 7(3), 1–10.
11.
go back to reference Reise, S. P., & Waller, N. G. (2009). Item response theory and clinical measurement. Annual Review of Clinical Psychology, 5, 27–48. PubMedCrossRef Reise, S. P., & Waller, N. G. (2009). Item response theory and clinical measurement. Annual Review of Clinical Psychology, 5, 27–48. PubMedCrossRef
12.
go back to reference Embretson, S. E., & Reise, S. P. (2000). Item response theory for psychologists. Mahwah: Erlbaum. Embretson, S. E., & Reise, S. P. (2000). Item response theory for psychologists. Mahwah: Erlbaum.
13.
go back to reference Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 generic core scales. Health and Quality of Life Outcomes, 5(43), 1–15. PubMedCentralPubMedCrossRef Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 generic core scales. Health and Quality of Life Outcomes, 5(43), 1–15. PubMedCentralPubMedCrossRef
14.
go back to reference Dampier, C., Lieff, S., LeBeau, P., Rhee, S., McMurray, M., Rogers, Z., et al. (2010). Health-related quality of life in children with sickle cell disease: A report from the comprehensive sickle cell centers clinical trial consortium. Pediatric Blood & Cancer, 55(3), 485–494. CrossRef Dampier, C., Lieff, S., LeBeau, P., Rhee, S., McMurray, M., Rogers, Z., et al. (2010). Health-related quality of life in children with sickle cell disease: A report from the comprehensive sickle cell centers clinical trial consortium. Pediatric Blood & Cancer, 55(3), 485–494. CrossRef
15.
go back to reference Sung, L., Klaassen, R. J., Dix, D., Pritchard, S., Yanofsky, R., Dzolganovski, B., et al. (2009). Identification of paediatric cancer patients with poor quality of life. British Journal of Cancer, 100(1), 82–88. PubMedCentralPubMedCrossRef Sung, L., Klaassen, R. J., Dix, D., Pritchard, S., Yanofsky, R., Dzolganovski, B., et al. (2009). Identification of paediatric cancer patients with poor quality of life. British Journal of Cancer, 100(1), 82–88. PubMedCentralPubMedCrossRef
16.
go back to reference Weissberg-Benchell, J., Nansel, T., Holmbeck, G., Chen, R., Anderson, B., Wysocki, T., Laffel, L., & Steering Committee of the Family Management of Diabetes, S. (2009). Generic and diabetes-specific parent-child behaviors and quality of life among youth with type 1 diabetes. Journal of Pediatric Psychology, 34(9), 977–988. CrossRef Weissberg-Benchell, J., Nansel, T., Holmbeck, G., Chen, R., Anderson, B., Wysocki, T., Laffel, L., & Steering Committee of the Family Management of Diabetes, S. (2009). Generic and diabetes-specific parent-child behaviors and quality of life among youth with type 1 diabetes. Journal of Pediatric Psychology, 34(9), 977–988. CrossRef
17.
go back to reference Gerson, A. C., Wentz, A., Abraham, A. G., Mendley, S. R., Hooper, S. R., Butler, R. W., et al. (2010). Health-related quality of life of children with mild to moderate chronic kidney disease. Pediatrics, 125(2), e349–e357. PubMedCentralPubMedCrossRef Gerson, A. C., Wentz, A., Abraham, A. G., Mendley, S. R., Hooper, S. R., Butler, R. W., et al. (2010). Health-related quality of life of children with mild to moderate chronic kidney disease. Pediatrics, 125(2), e349–e357. PubMedCentralPubMedCrossRef
18.
go back to reference Tsiros, M. D., Olds, T., Buckley, J. D., Grimshaw, P., Brennan, L., Walkley, J., et al. (2009). Health-related quality of life in obese children and adolescents. International Journal of Obesity (London), 33(4), 387–400. CrossRef Tsiros, M. D., Olds, T., Buckley, J. D., Grimshaw, P., Brennan, L., Walkley, J., et al. (2009). Health-related quality of life in obese children and adolescents. International Journal of Obesity (London), 33(4), 387–400. CrossRef
19.
go back to reference Hinds, P. S., Nuss, S. L., Ruccione, K. S., Withycombe, J. S., Jacobs, S., Deluca, H., et al. (2013). PROMIS pediatric measures in pediatric oncology: Valid and clinically feasible indicators of patient-reported outcomes. Pediatric Blood & Cancer, 60(3), 402–408. CrossRef Hinds, P. S., Nuss, S. L., Ruccione, K. S., Withycombe, J. S., Jacobs, S., Deluca, H., et al. (2013). PROMIS pediatric measures in pediatric oncology: Valid and clinically feasible indicators of patient-reported outcomes. Pediatric Blood & Cancer, 60(3), 402–408. CrossRef
20.
go back to reference Gipson, D. S., Selewski, D. T., Massengill, S. F., Wickman, L., Messer, K. L., Herreshoff, E., et al. (2013). Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study. Health and quality of life outcomes, 11, 30. PubMedCentralPubMedCrossRef Gipson, D. S., Selewski, D. T., Massengill, S. F., Wickman, L., Messer, K. L., Herreshoff, E., et al. (2013). Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study. Health and quality of life outcomes, 11, 30. PubMedCentralPubMedCrossRef
21.
go back to reference Selewski, D. T., Collier, D. N., MacHardy, J., Gross, H. E., Pickens, E. M., Cooper, A. W., et al. (2013). Promising insights into the health related quality of life for children with severe obesity. Health and quality of life outcomes, 11, 29. PubMedCentralPubMedCrossRef Selewski, D. T., Collier, D. N., MacHardy, J., Gross, H. E., Pickens, E. M., Cooper, A. W., et al. (2013). Promising insights into the health related quality of life for children with severe obesity. Health and quality of life outcomes, 11, 29. PubMedCentralPubMedCrossRef
22.
go back to reference Liu, A. H., Zeiger, R., Sorkness, C., Mahr, T., Ostrom, N., Burgess, S., et al. (2007). Development and cross-sectional validation of the childhood asthma control test. Journal of Allergy and Clinical Immunology, 119, 817–825. PubMedCrossRef Liu, A. H., Zeiger, R., Sorkness, C., Mahr, T., Ostrom, N., Burgess, S., et al. (2007). Development and cross-sectional validation of the childhood asthma control test. Journal of Allergy and Clinical Immunology, 119, 817–825. PubMedCrossRef
23.
go back to reference Menard, J. C., Hinds, P. S., Jacobs, S. S., Cranston, K., Wang, J., DeWalt, D. A., & Gross, H. E. (2014). Feasibility and acceptability of the patient-reported outcomes measurement information system measures in children and adolescents in active cancer treatment and survivorship. Cancer Nursing, 37(1), 66–74. PubMedCrossRef Menard, J. C., Hinds, P. S., Jacobs, S. S., Cranston, K., Wang, J., DeWalt, D. A., & Gross, H. E. (2014). Feasibility and acceptability of the patient-reported outcomes measurement information system measures in children and adolescents in active cancer treatment and survivorship. Cancer Nursing, 37(1), 66–74. PubMedCrossRef
24.
go back to reference Schwartz, G. J., Haycock, G. B., Edelmann, C. M., & Spitzer, A. (1976). A simple estimate of glomerular filtration rate in children derived from body length and plasma creatinine. Pediatrics, 58, 259–263. PubMed Schwartz, G. J., Haycock, G. B., Edelmann, C. M., & Spitzer, A. (1976). A simple estimate of glomerular filtration rate in children derived from body length and plasma creatinine. Pediatrics, 58, 259–263. PubMed
25.
go back to reference Singh, G., Athreya, B. H., Fries, J. F., & Goldsmith, D. P. (1994). Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis and Rheumatism, 37, 1761–1769. PubMedCrossRef Singh, G., Athreya, B. H., Fries, J. F., & Goldsmith, D. P. (1994). Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis and Rheumatism, 37, 1761–1769. PubMedCrossRef
26.
go back to reference Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the patient-report outcomes measurement information system (PROMIS). Medical Care, 45(suppl 1), S22–S31. PubMedCrossRef Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the patient-report outcomes measurement information system (PROMIS). Medical Care, 45(suppl 1), S22–S31. PubMedCrossRef
27.
go back to reference Cai, L. (2010). Metropolis–Hastings Robbins–Monro algorithm for confirmatory item factor analysis. Journal of Educational and Behavioral Statistics, 35, 307–335. CrossRef Cai, L. (2010). Metropolis–Hastings Robbins–Monro algorithm for confirmatory item factor analysis. Journal of Educational and Behavioral Statistics, 35, 307–335. CrossRef
28.
go back to reference Cai, L., Thissen, D., & du Toit, S. H. C. (2011). IRTPRO for windows [Computer software]. Scientific Software International: Lincolnwood. Cai, L., Thissen, D., & du Toit, S. H. C. (2011). IRTPRO for windows [Computer software]. Scientific Software International: Lincolnwood.
29.
go back to reference Everhart, R. S., & Fiese, B. H. (2009). Asthma severity and child quality of life in pediatric asthma: A systematic review. Patient Education and Counseling, 75, 162–168. PubMedCrossRef Everhart, R. S., & Fiese, B. H. (2009). Asthma severity and child quality of life in pediatric asthma: A systematic review. Patient Education and Counseling, 75, 162–168. PubMedCrossRef
30.
go back to reference Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5, 35–46. PubMedCrossRef Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5, 35–46. PubMedCrossRef
31.
go back to reference Ji, Y., Chen, S., Li, K., Xiao, N., Yang, X., Zheng, S., & Xiao, X. (2011). Measuring health-related quality of life in children with cancer living in mainland China: Feasibility, reliability and validity of the Chinese Mandarin version of PedsQL 4.0 generic core scales and 3.0 cancer module. Health and Quality of Life Outcomes, 9, 103. PubMedCentralPubMedCrossRef Ji, Y., Chen, S., Li, K., Xiao, N., Yang, X., Zheng, S., & Xiao, X. (2011). Measuring health-related quality of life in children with cancer living in mainland China: Feasibility, reliability and validity of the Chinese Mandarin version of PedsQL 4.0 generic core scales and 3.0 cancer module. Health and Quality of Life Outcomes, 9, 103. PubMedCentralPubMedCrossRef
32.
go back to reference Bhatia, S., Jenney, M. E. M., Wu, E., Bogue, M. K., Rockwood, T. H., Feusner, J. H., et al. (2004). The Minneapolis–Manchester quality of life instrument: Reliability and validity of the youth form. Journal of Pediatrics, 145, 39–46. PubMedCrossRef Bhatia, S., Jenney, M. E. M., Wu, E., Bogue, M. K., Rockwood, T. H., Feusner, J. H., et al. (2004). The Minneapolis–Manchester quality of life instrument: Reliability and validity of the youth form. Journal of Pediatrics, 145, 39–46. PubMedCrossRef
33.
go back to reference Eiser, C., Hill, J. J., & Vance, Y. H. (2000). Examining the psychological consequences of surviving childhood cancer: Systematic review as a research method in pediatric psychology. Journal of Pediatric Psychology, 25, 449–460. PubMedCrossRef Eiser, C., Hill, J. J., & Vance, Y. H. (2000). Examining the psychological consequences of surviving childhood cancer: Systematic review as a research method in pediatric psychology. Journal of Pediatric Psychology, 25, 449–460. PubMedCrossRef
34.
go back to reference Zeltzer, L. K., Lu, Q., Leisenring, W., Tsao, J. C., Recklitis, C., Armstrong, G., et al. (2008). Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study. Cancer Epidemiol Biomarkers Prevention, 17(2), 435–446. CrossRef Zeltzer, L. K., Lu, Q., Leisenring, W., Tsao, J. C., Recklitis, C., Armstrong, G., et al. (2008). Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study. Cancer Epidemiol Biomarkers Prevention, 17(2), 435–446. CrossRef
35.
go back to reference Zebrack, B. J., & Chesler, M. A. (2002). Quality of life in childhood cancer survivors. Psychooncology, 11(2), 132–141. PubMedCrossRef Zebrack, B. J., & Chesler, M. A. (2002). Quality of life in childhood cancer survivors. Psychooncology, 11(2), 132–141. PubMedCrossRef
36.
go back to reference Gerson, A. C., Wentz, A., Abraham, A. G., Mendley, S. R., Hooper, S. R., Butler, R. W., et al. (2010). Health-related quality of life of children with mild to moderate chronic kidney disease. Pediatrics, 125, e349–e357. PubMedCentralPubMedCrossRef Gerson, A. C., Wentz, A., Abraham, A. G., Mendley, S. R., Hooper, S. R., Butler, R. W., et al. (2010). Health-related quality of life of children with mild to moderate chronic kidney disease. Pediatrics, 125, e349–e357. PubMedCentralPubMedCrossRef
37.
go back to reference Heath, J., Mackinlay, D., Watson, A. R., Hames, A., Wirz, L., Scott, S., et al. (2011). Self-reported quality of life in children and young people with chronic kidney disease. Pediatric Nephrology, 26, 767–773. PubMedCrossRef Heath, J., Mackinlay, D., Watson, A. R., Hames, A., Wirz, L., Scott, S., et al. (2011). Self-reported quality of life in children and young people with chronic kidney disease. Pediatric Nephrology, 26, 767–773. PubMedCrossRef
38.
go back to reference Schwimmer, J. B., Burwinkle, T. M., & Varni, J. W. (2003). Health-related quality of life of severely obese children and adolescents. JAMA, 289, 1813–1819. PubMedCrossRef Schwimmer, J. B., Burwinkle, T. M., & Varni, J. W. (2003). Health-related quality of life of severely obese children and adolescents. JAMA, 289, 1813–1819. PubMedCrossRef
39.
go back to reference Williams, J., Wake, M., Hesketh, K., Maher, E., & Waters, E. (2005). Health-related quality of life of overweight and obese children. JAMA, 293, 70–76. PubMedCrossRef Williams, J., Wake, M., Hesketh, K., Maher, E., & Waters, E. (2005). Health-related quality of life of overweight and obese children. JAMA, 293, 70–76. PubMedCrossRef
40.
go back to reference Varni, J. W., Limbers, C. A., Bryant, W. P., & Wilson, D. P. (2010). The PedsQL™ multidimensional fatigue scale in pediatric obesity: Feasibility, reliability, and validity. International Journal of Pediatric Obesity, 5, 34–42. PubMedCrossRef Varni, J. W., Limbers, C. A., Bryant, W. P., & Wilson, D. P. (2010). The PedsQL™ multidimensional fatigue scale in pediatric obesity: Feasibility, reliability, and validity. International Journal of Pediatric Obesity, 5, 34–42. PubMedCrossRef
41.
go back to reference Ul-Haq, Z., Mackay, D. F., Fenwick, E., & Pell, J. P. (2013). Meta-analysis of the association between body mass index and health-related quality of life among children and adolescents, assessed using the pediatric quality of life inventory index. Journal of Pediatrics, 162, 280–286. PubMedCrossRef Ul-Haq, Z., Mackay, D. F., Fenwick, E., & Pell, J. P. (2013). Meta-analysis of the association between body mass index and health-related quality of life among children and adolescents, assessed using the pediatric quality of life inventory index. Journal of Pediatrics, 162, 280–286. PubMedCrossRef
42.
go back to reference Varni, J. W., Seid, M., Knight, T. S., Burwinkle, T. M., Brown, J., & Szer, I. S. (2002). The PedsQL™ in pediatric rheumatology: Reliability, validity, and responsiveness of the pediatric quality of life inventory™ generic core scales and rheumatology module. Arthritis and Rheumatism, 46, 714–725. PubMedCrossRef Varni, J. W., Seid, M., Knight, T. S., Burwinkle, T. M., Brown, J., & Szer, I. S. (2002). The PedsQL™ in pediatric rheumatology: Reliability, validity, and responsiveness of the pediatric quality of life inventory™ generic core scales and rheumatology module. Arthritis and Rheumatism, 46, 714–725. PubMedCrossRef
43.
go back to reference Seid, M., Opipari, L., Huange, B., Brunner, H. I., & Lovell, D. J. (2009). Disease control and health-related quality of life in juvenile idiopathic arthritis. Arthritis and Rheumatism, 61, 393–399. PubMedCrossRef Seid, M., Opipari, L., Huange, B., Brunner, H. I., & Lovell, D. J. (2009). Disease control and health-related quality of life in juvenile idiopathic arthritis. Arthritis and Rheumatism, 61, 393–399. PubMedCrossRef
44.
go back to reference Ringold, S., Wallace, C. A., & Rivara, F. P. (2009). Health-related quality of life, physical function, fatigue, and disease activity in children with established polyarticular juvenile idiopathic arthritis. Journal of Rheumatology, 36, 1330–1336. PubMedCrossRef Ringold, S., Wallace, C. A., & Rivara, F. P. (2009). Health-related quality of life, physical function, fatigue, and disease activity in children with established polyarticular juvenile idiopathic arthritis. Journal of Rheumatology, 36, 1330–1336. PubMedCrossRef
45.
go back to reference Dampier, C., Lieff, S., Lebeau, P., Rhee, S., McMurray, M., Rogers, Z., et al. (2010). Health-related quality of life in children with sickle cell disease: A report from the comprehensive sickle cell centers clinical trial consortium. Pediatric Blood & Cancer, 55, 485–494. CrossRef Dampier, C., Lieff, S., Lebeau, P., Rhee, S., McMurray, M., Rogers, Z., et al. (2010). Health-related quality of life in children with sickle cell disease: A report from the comprehensive sickle cell centers clinical trial consortium. Pediatric Blood & Cancer, 55, 485–494. CrossRef
Metagegevens
Titel
PROMIS® pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions
Auteurs
Darren A. DeWalt
Heather E. Gross
Debbie S. Gipson
David T. Selewski
Esi Morgan DeWitt
Carlton D. Dampier
Pamela S. Hinds
I-Chan Huang
David Thissen
James W. Varni
Publicatiedatum
01-09-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 9/2015
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-0953-3