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Gepubliceerd in: Journal of Autism and Developmental Disorders 1/2016

18-08-2015 | Original Paper

Predictors of Age of Diagnosis for Children with Autism Spectrum Disorder: The Role of a Consistent Source of Medical Care, Race, and Condition Severity

Auteurs: Natacha D. Emerson, Holly E. R. Morrell, Cameron Neece

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2016

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Abstract

Having a consistent source of medical care may facilitate diagnosis of autism spectrum disorders (ASD). This study examined predictors of age of ASD diagnosis using data from the 2011–2012 National Survey of Children’s Health. Using multiple linear regression analysis, age of diagnosis was predicted by race, ASD severity, having a consistent source of care (CSC), and the interaction between these variables after controlling for birth cohort, birth order, poverty level, parental education, and health insurance. While African American children were diagnosed earlier than Caucasians, this effect was moderated by ASD severity and CSC. Having a CSC predicted earlier diagnosis for Caucasian but not African American children. Both physician and parent behaviors may contribute to diagnostic delays in minority children.
Literatuur
go back to reference Adler, N. E., & Rehkopf, D. H. (2008). US disparities in health: Descriptions, causes, and mechanisms. Annual Review of Public Health, 29, 235–252.PubMedCrossRef Adler, N. E., & Rehkopf, D. H. (2008). US disparities in health: Descriptions, causes, and mechanisms. Annual Review of Public Health, 29, 235–252.PubMedCrossRef
go back to reference Adler, N. E., & Stewart, J. (2010). Health disparities across the lifespan: Meaning, methods, and mechanisms. Annals of the New York Academy of Sciences, 1186(1), 5–23.PubMedCrossRef Adler, N. E., & Stewart, J. (2010). Health disparities across the lifespan: Meaning, methods, and mechanisms. Annals of the New York Academy of Sciences, 1186(1), 5–23.PubMedCrossRef
go back to reference American Academy of Pediatrics Council on Children with Disabilities. (2005). Care coordination in the medical home: Integrating health and related systems of care for children with special health care needs. Pediatrics, 116(5), 1238.CrossRef American Academy of Pediatrics Council on Children with Disabilities. (2005). Care coordination in the medical home: Integrating health and related systems of care for children with special health care needs. Pediatrics, 116(5), 1238.CrossRef
go back to reference Baker, D. W., Stevens, C. D., & Brook, R. H. (1994). Regular source of ambulatory care and medical care utilization by patients presenting to a public hospital emergency department. Journal of the American Medical Association, 271(24), 1909–1912.PubMedCrossRef Baker, D. W., Stevens, C. D., & Brook, R. H. (1994). Regular source of ambulatory care and medical care utilization by patients presenting to a public hospital emergency department. Journal of the American Medical Association, 271(24), 1909–1912.PubMedCrossRef
go back to reference Barbaresi, W. J., Katusic, S. K., & Voigt, R. G. (2006). Autism: A review of the state of the science for pediatric primary health care clinicians. Archives of Pediatrics and Adolescent Medicine, 160(11), 1167–1175.PubMedCrossRef Barbaresi, W. J., Katusic, S. K., & Voigt, R. G. (2006). Autism: A review of the state of the science for pediatric primary health care clinicians. Archives of Pediatrics and Adolescent Medicine, 160(11), 1167–1175.PubMedCrossRef
go back to reference Bazargan, M., Norris, K., Bazargan-Hejazi, S., Akhanjee, L., Calderon, J. L., Safvati, S. D., & Baker, R. S. (2005). Alternative healthcare use in the under-served population. Ethnicity & Disease, 15, 531–539. Bazargan, M., Norris, K., Bazargan-Hejazi, S., Akhanjee, L., Calderon, J. L., Safvati, S. D., & Baker, R. S. (2005). Alternative healthcare use in the under-served population. Ethnicity & Disease, 15, 531–539.
go back to reference Becerra, T. A., von Ehrenstein, O. S., Heck, J. E., Olsen, J., Arah, O. A., Jeste, S. S., et al. (2014). Autism spectrum disorders and race, ethnicity, and nativity: A population-based study. Pediatrics, 134(1), e63–e71.PubMedPubMedCentralCrossRef Becerra, T. A., von Ehrenstein, O. S., Heck, J. E., Olsen, J., Arah, O. A., Jeste, S. S., et al. (2014). Autism spectrum disorders and race, ethnicity, and nativity: A population-based study. Pediatrics, 134(1), e63–e71.PubMedPubMedCentralCrossRef
go back to reference Billstedt, E., Gillberg, I. C., & Gillberg, C. (2005). Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35(3), 351–360.PubMedCrossRef Billstedt, E., Gillberg, I. C., & Gillberg, C. (2005). Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35(3), 351–360.PubMedCrossRef
go back to reference Bisgaier, J., & Rhodes, K. V. (2011). Auditing access to specialty care for children with public insurance. New England Journal of Medicine, 364(24), 2324–2333.PubMedCrossRef Bisgaier, J., & Rhodes, K. V. (2011). Auditing access to specialty care for children with public insurance. New England Journal of Medicine, 364(24), 2324–2333.PubMedCrossRef
go back to reference Blackwell, D. L., Martinez, M. E., Gentleman, J. F., Sanmartin, C., & Berthelot, J. M. (2009). Socioeconomic status and utilization of health care services in Canada and the United States: Findings from a binational health survey. Medical Care, 47(11), 1136–1146.PubMedCrossRef Blackwell, D. L., Martinez, M. E., Gentleman, J. F., Sanmartin, C., & Berthelot, J. M. (2009). Socioeconomic status and utilization of health care services in Canada and the United States: Findings from a binational health survey. Medical Care, 47(11), 1136–1146.PubMedCrossRef
go back to reference Blumberg, S. J., Foster, E. B., Frasier, A. M., Satorius, J., Skalland, B. J., Nysse-Carris, K. L., et al. (2012). Design and operation of the National Survey of Children’s Health, 2007: Program and collection procedures. (Vital and Health Statistics No. 55). Hyattsville, MD: Centers for Disease Control and Prevention National Center for Health Statistics. Blumberg, S. J., Foster, E. B., Frasier, A. M., Satorius, J., Skalland, B. J., Nysse-Carris, K. L., et al. (2012). Design and operation of the National Survey of Children’s Health, 2007: Program and collection procedures. (Vital and Health Statistics No. 55). Hyattsville, MD: Centers for Disease Control and Prevention National Center for Health Statistics.
go back to reference Boss, E. F., Smith, D. F., & Ishman, S. L. (2011). Racial/ethnic and socioeconomic disparities in the diagnosis and treatment of sleep-disordered breathing in children. International Journal of Pediatric Otorhinolaryngology, 75(3), 299–307.PubMedCrossRef Boss, E. F., Smith, D. F., & Ishman, S. L. (2011). Racial/ethnic and socioeconomic disparities in the diagnosis and treatment of sleep-disordered breathing in children. International Journal of Pediatric Otorhinolaryngology, 75(3), 299–307.PubMedCrossRef
go back to reference Boudreau, A. A., Goodman, E., Kurowski, D., Perrin, J. M., Cooley, W. C., & Kuhlthau, K. (2014). Care coordination and unmet specialty care among children with special health care needs. Pediatrics, 133(6), 1046–1053.PubMedCrossRef Boudreau, A. A., Goodman, E., Kurowski, D., Perrin, J. M., Cooley, W. C., & Kuhlthau, K. (2014). Care coordination and unmet specialty care among children with special health care needs. Pediatrics, 133(6), 1046–1053.PubMedCrossRef
go back to reference Bright Futures Steering Committee, & Medical Home Initiatives for Children With Special Needs Project Advisory Committee. (2006). Identifying infants and young children with developmental disorders in the medical home: An algorithm for developmental surveillance and screening. Pediatrics, 118(1), 405–420.CrossRef Bright Futures Steering Committee, & Medical Home Initiatives for Children With Special Needs Project Advisory Committee. (2006). Identifying infants and young children with developmental disorders in the medical home: An algorithm for developmental surveillance and screening. Pediatrics, 118(1), 405–420.CrossRef
go back to reference Broder-Fingert, S., Shui, A., Pulcini, C. D., Kurowski, D., & Perrin, J. M. (2013). Racial and ethnic differences in subspecialty service use by children with autism. Pediatrics, 132(1), 94–100.PubMedCrossRef Broder-Fingert, S., Shui, A., Pulcini, C. D., Kurowski, D., & Perrin, J. M. (2013). Racial and ethnic differences in subspecialty service use by children with autism. Pediatrics, 132(1), 94–100.PubMedCrossRef
go back to reference Buescher, A. V. S., Cidav, Z., Knapp, M., & Mandell, D. S. (2014). Costs of autism spectrum disorders in the United Kingdom and the United States. JAMA Pediatrics, 168(8), 721–728.PubMedCrossRef Buescher, A. V. S., Cidav, Z., Knapp, M., & Mandell, D. S. (2014). Costs of autism spectrum disorders in the United Kingdom and the United States. JAMA Pediatrics, 168(8), 721–728.PubMedCrossRef
go back to reference Burgess, D. J., Ding, Y., Hargreaves, M., van Ryn, M., & Phelan, S. (2008). The association between perceived discrimination and underutilization of needed medical and mental health care in a multi-ethnic community sample. Journal of Health Care for the Poor and Underserved, 19(3), 894–911.PubMedCrossRef Burgess, D. J., Ding, Y., Hargreaves, M., van Ryn, M., & Phelan, S. (2008). The association between perceived discrimination and underutilization of needed medical and mental health care in a multi-ethnic community sample. Journal of Health Care for the Poor and Underserved, 19(3), 894–911.PubMedCrossRef
go back to reference Carr, T., & Lord, C. (2013). Longitudinal study of perceived negative impact in African American and Caucasian mothers of children with autism spectrum disorder. Autism, 17(4), 405–417.PubMedCrossRef Carr, T., & Lord, C. (2013). Longitudinal study of perceived negative impact in African American and Caucasian mothers of children with autism spectrum disorder. Autism, 17(4), 405–417.PubMedCrossRef
go back to reference Casagrande, S. S., Gary, T. L., LaVeist, T. A., Gaskin, D. J., & Cooper, L. A. (2007). Perceived discrimination and adherence to medical care in a racially integrated community. Journal of General Internal Medicine, 22(3), 389–395.PubMedPubMedCentralCrossRef Casagrande, S. S., Gary, T. L., LaVeist, T. A., Gaskin, D. J., & Cooper, L. A. (2007). Perceived discrimination and adherence to medical care in a racially integrated community. Journal of General Internal Medicine, 22(3), 389–395.PubMedPubMedCentralCrossRef
go back to reference Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report, Surveillance Summaries, 63(2), 6–21. Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report, Surveillance Summaries, 63(2), 6–21.
go back to reference Chan, L., Hart, L. G., & Goodman, D. C. (2006). Geographic access to health care for rural Medicare beneficiaries. Journal of Rural Health, 22(2), 140–146.PubMedCrossRef Chan, L., Hart, L. G., & Goodman, D. C. (2006). Geographic access to health care for rural Medicare beneficiaries. Journal of Rural Health, 22(2), 140–146.PubMedCrossRef
go back to reference Coker, T. R., Elliott, M. N., Kataoka, S., Schwebel, D. C., Mrug, S., Grunbaum, J. A., et al. (2009). Racial/ethnic disparities in the mental health care utilization of fifth grade children. Academic Pediatrics, 9(2), 89–96.PubMedPubMedCentralCrossRef Coker, T. R., Elliott, M. N., Kataoka, S., Schwebel, D. C., Mrug, S., Grunbaum, J. A., et al. (2009). Racial/ethnic disparities in the mental health care utilization of fifth grade children. Academic Pediatrics, 9(2), 89–96.PubMedPubMedCentralCrossRef
go back to reference Cook, N. L., Ayanian, J. Z., Orav, E. J., & Hicks, L. S. (2009). Differences in specialist consultations for cardiovascular disease by race, ethnicity, gender, insurance status, and site of primary care. Circulation, 119(18), 2463–2470.PubMedCrossRef Cook, N. L., Ayanian, J. Z., Orav, E. J., & Hicks, L. S. (2009). Differences in specialist consultations for cardiovascular disease by race, ethnicity, gender, insurance status, and site of primary care. Circulation, 119(18), 2463–2470.PubMedCrossRef
go back to reference Cook, B. L., Barry, C. L., & Busch, S. H. (2013). Racial/Ethnic disparity trends in children’s mental health care access and expenditures from 2002 to 2007. Health Services Research, 48(1), 129–149.PubMedPubMedCentralCrossRef Cook, B. L., Barry, C. L., & Busch, S. H. (2013). Racial/Ethnic disparity trends in children’s mental health care access and expenditures from 2002 to 2007. Health Services Research, 48(1), 129–149.PubMedPubMedCentralCrossRef
go back to reference Cummings, J. R., Lavarreda, S. A., Rice, T., & Brown, E. R. (2009). The effects of varying periods of uninsurance on children’s access to health care. Pediatrics, 123(3), e411–e418.PubMedCrossRef Cummings, J. R., Lavarreda, S. A., Rice, T., & Brown, E. R. (2009). The effects of varying periods of uninsurance on children’s access to health care. Pediatrics, 123(3), e411–e418.PubMedCrossRef
go back to reference Daniels, A. M., & Mandell, D. S. (2013). Children’s compliance with American Academy of Pediatrics’ well-child care visit guidelines and the early detection of autism. Journal of Autism and Developmental Disorders, 43(12), 2844–2854.PubMedCrossRef Daniels, A. M., & Mandell, D. S. (2013). Children’s compliance with American Academy of Pediatrics’ well-child care visit guidelines and the early detection of autism. Journal of Autism and Developmental Disorders, 43(12), 2844–2854.PubMedCrossRef
go back to reference DeVoe, J. E., Baez, A., Angier, H., Krois, L., Edlund, C., & Carney, P. A. (2007). Insurance + access ≠ health care: Typology of barriers to health care access for low-income families. The Annals of Family Medicine, 5(6), 511–518.PubMedCrossRef DeVoe, J. E., Baez, A., Angier, H., Krois, L., Edlund, C., & Carney, P. A. (2007). Insurance + access ≠ health care: Typology of barriers to health care access for low-income families. The Annals of Family Medicine, 5(6), 511–518.PubMedCrossRef
go back to reference DeVoe, J. E., Petering, R., & Krois, L. (2008). A usual source of care: Supplement or substitute for health insurance among low-income children? Medical Care, 46(10), 1041–1048.PubMedCrossRef DeVoe, J. E., Petering, R., & Krois, L. (2008). A usual source of care: Supplement or substitute for health insurance among low-income children? Medical Care, 46(10), 1041–1048.PubMedCrossRef
go back to reference DeVoe, J. E., Tillotson, C. J., & Wallace, L. S. (2009). Children’s receipt of health care services and family health insurance patterns. The Annals of Family Medicine, 7(5), 406–413.PubMedCrossRef DeVoe, J. E., Tillotson, C. J., & Wallace, L. S. (2009). Children’s receipt of health care services and family health insurance patterns. The Annals of Family Medicine, 7(5), 406–413.PubMedCrossRef
go back to reference Dosreis, S., Weiner, C. L., Johnson, L., & Newschaffer, C. J. (2006). Autism spectrum disorder screening and management practices among general pediatric providers. Journal of Developmental and Behavioral Pediatrics, 27(2), S88–S94.PubMedCrossRef Dosreis, S., Weiner, C. L., Johnson, L., & Newschaffer, C. J. (2006). Autism spectrum disorder screening and management practices among general pediatric providers. Journal of Developmental and Behavioral Pediatrics, 27(2), S88–S94.PubMedCrossRef
go back to reference Durkin, M. S., Maenner, M. J., Meaney, F. J., Levy, S. E., DiGuiseppi, C., Nicholas, J. S., et al. (2010). Socioeconomic inequality in the prevalence of autism spectrum disorder: Evidence from a U.S. cross-sectional study. PLoS ONE, 5(7), 1–8.CrossRef Durkin, M. S., Maenner, M. J., Meaney, F. J., Levy, S. E., DiGuiseppi, C., Nicholas, J. S., et al. (2010). Socioeconomic inequality in the prevalence of autism spectrum disorder: Evidence from a U.S. cross-sectional study. PLoS ONE, 5(7), 1–8.CrossRef
go back to reference Eldevik, S., Hastings, R. P., Hughes, J. C., Jahr, E., Eikeseth, S., & Cross, S. (2009). Meta-analysis of early intensive behavioral intervention for children with autism. Journal of Clinical Child and Adolescent Psychology, 38(3), 439–450.PubMedCrossRef Eldevik, S., Hastings, R. P., Hughes, J. C., Jahr, E., Eikeseth, S., & Cross, S. (2009). Meta-analysis of early intensive behavioral intervention for children with autism. Journal of Clinical Child and Adolescent Psychology, 38(3), 439–450.PubMedCrossRef
go back to reference Facione, N. C., & Facione, P. A. (2007). Perceived prejudice in healthcare and women's health protective behavior. Nursing Research, 56(3), 175–184.PubMedCrossRef Facione, N. C., & Facione, P. A. (2007). Perceived prejudice in healthcare and women's health protective behavior. Nursing Research, 56(3), 175–184.PubMedCrossRef
go back to reference Filipek, P. A., Accardo, P. J., Ashwal, S., Baranek, G. T., Cook, E. H., Dawson, G., et al. (2000). Practice parameter: Screening and diagnosis of autism Report of the Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society. Neurology, 55(4), 468–479.PubMedCrossRef Filipek, P. A., Accardo, P. J., Ashwal, S., Baranek, G. T., Cook, E. H., Dawson, G., et al. (2000). Practice parameter: Screening and diagnosis of autism Report of the Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society. Neurology, 55(4), 468–479.PubMedCrossRef
go back to reference Fiscella, K., Franks, P., Doescher, M. P., & Saver, B. G. (2002). Disparities in health care by race, ethnicity, and language among the insured: Findings from a national sample. Medical Care, 40(1), 52–59.PubMedCrossRef Fiscella, K., Franks, P., Doescher, M. P., & Saver, B. G. (2002). Disparities in health care by race, ethnicity, and language among the insured: Findings from a national sample. Medical Care, 40(1), 52–59.PubMedCrossRef
go back to reference Fiscella, K., Franks, P., Gold, M. R., & Clancy, C. M. (2014). Inequality in quality: Addressing socioeconomic, racial, and ethnic disparities in health care. Policy Perspectives, 283(19), 2579–2584. Fiscella, K., Franks, P., Gold, M. R., & Clancy, C. M. (2014). Inequality in quality: Addressing socioeconomic, racial, and ethnic disparities in health care. Policy Perspectives, 283(19), 2579–2584.
go back to reference Flores, G. (2010). Technical report: Racial and ethnic disparities in the health and health care of children. Pediatrics, 125(4), e979–e1020.PubMedCrossRef Flores, G. (2010). Technical report: Racial and ethnic disparities in the health and health care of children. Pediatrics, 125(4), e979–e1020.PubMedCrossRef
go back to reference Flores, G., & Lin, H. (2013). Trends in racial/ethnic disparities in medical and oral health, access to care, and use of services in US children: Has anything changed over the years? International Journal for Equity in Health, 12(10), 9276-12. Flores, G., & Lin, H. (2013). Trends in racial/ethnic disparities in medical and oral health, access to care, and use of services in US children: Has anything changed over the years? International Journal for Equity in Health, 12(10), 9276-12.
go back to reference Fountain, C., King, M. D., & Bearman, P. S. (2011). Age of diagnosis for autism: Individual and community factors across 10 birth cohorts. Journal of Epidemiology and Community Health, 65(6), 503–510.PubMedPubMedCentralCrossRef Fountain, C., King, M. D., & Bearman, P. S. (2011). Age of diagnosis for autism: Individual and community factors across 10 birth cohorts. Journal of Epidemiology and Community Health, 65(6), 503–510.PubMedPubMedCentralCrossRef
go back to reference Gill, J. M., Mainous, A. G, I. I. I., & Nsereko, M. (2000). The effect of continuity of care on emergency department use. Archives of Family Medicine, 9(4), 333.PubMedCrossRef Gill, J. M., Mainous, A. G, I. I. I., & Nsereko, M. (2000). The effect of continuity of care on emergency department use. Archives of Family Medicine, 9(4), 333.PubMedCrossRef
go back to reference Goin-Kochel, R. P., Mackintosh, V. H., & Myers, B. J. (2006). How many doctors does it take to make an autism spectrum diagnosis? Autism, 10(5), 439–451.PubMedCrossRef Goin-Kochel, R. P., Mackintosh, V. H., & Myers, B. J. (2006). How many doctors does it take to make an autism spectrum diagnosis? Autism, 10(5), 439–451.PubMedCrossRef
go back to reference Gourdine, R. M., & Algood, C. L. (2014). Autism in the African American population. In V. B. Patel, V. R. Preedy, & C. R. Martin (Eds.), Comprehensive guide to autism (pp. 2455–2467). New York, NY: Springer. Gourdine, R. M., & Algood, C. L. (2014). Autism in the African American population. In V. B. Patel, V. R. Preedy, & C. R. Martin (Eds.), Comprehensive guide to autism (pp. 2455–2467). New York, NY: Springer.
go back to reference Harstad, E., Huntington, N., Bacic, J., & Barbaresi, W. (2013). Disparity of care for children with parent-reported autism spectrum disorders. Academic Pediatrics, 13(4), 334–339.PubMedCrossRef Harstad, E., Huntington, N., Bacic, J., & Barbaresi, W. (2013). Disparity of care for children with parent-reported autism spectrum disorders. Academic Pediatrics, 13(4), 334–339.PubMedCrossRef
go back to reference Heidgerken, A. D., Geffken, G., Modi, A., & Frakey, L. (2005). A survey of autism knowledge in a health care setting. Journal of Autism and Developmental Disorders, 35(3), 323–330.PubMedCrossRef Heidgerken, A. D., Geffken, G., Modi, A., & Frakey, L. (2005). A survey of autism knowledge in a health care setting. Journal of Autism and Developmental Disorders, 35(3), 323–330.PubMedCrossRef
go back to reference Herlihy, L. E., Brooks, B., Dumont-Mathieu, T., Barton, M. L., Fein, D., Chen, C. M., & Robins, D. L. (2014). Standardized screening facilitates timely diagnosis of autism spectrum disorders in a diverse sample of low-risk toddlers. Journal of Developmental and Behavioral Pediatrics, 35(2), 85–92.PubMedPubMedCentralCrossRef Herlihy, L. E., Brooks, B., Dumont-Mathieu, T., Barton, M. L., Fein, D., Chen, C. M., & Robins, D. L. (2014). Standardized screening facilitates timely diagnosis of autism spectrum disorders in a diverse sample of low-risk toddlers. Journal of Developmental and Behavioral Pediatrics, 35(2), 85–92.PubMedPubMedCentralCrossRef
go back to reference Johnson, C. P., & Myers, S. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120(5), 1183–1215.PubMedCrossRef Johnson, C. P., & Myers, S. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120(5), 1183–1215.PubMedCrossRef
go back to reference Kalb, L. G., Freedman, B., Foster, C., Menon, D., Landa, R., Kishfy, L., & Law, P. (2012). Determinants of appointment absenteeism at an outpatient pediatric autism clinic. Journal of Developmental and Behavioral Pediatrics, 33(9), 685–697.PubMedCrossRef Kalb, L. G., Freedman, B., Foster, C., Menon, D., Landa, R., Kishfy, L., & Law, P. (2012). Determinants of appointment absenteeism at an outpatient pediatric autism clinic. Journal of Developmental and Behavioral Pediatrics, 33(9), 685–697.PubMedCrossRef
go back to reference Keenan, M., Dillenburger, K., Doherty, A., Byrne, T., & Gallagher, S. (2010). The experiences of parents during diagnosis and forward planning for children with autism spectrum disorder. Journal of Applied Research in Intellectual Disabilities, 23(4), 390–397.CrossRef Keenan, M., Dillenburger, K., Doherty, A., Byrne, T., & Gallagher, S. (2010). The experiences of parents during diagnosis and forward planning for children with autism spectrum disorder. Journal of Applied Research in Intellectual Disabilities, 23(4), 390–397.CrossRef
go back to reference King, T. M., Tandon, S. D., Macias, M. M., Healy, J. A., Duncan, P. M., Swigonski, N. L., et al. (2010). Implementing developmental screening and referrals: Lessons learned from a national project. Pediatrics, 125(2), 350–360.PubMedCrossRef King, T. M., Tandon, S. D., Macias, M. M., Healy, J. A., Duncan, P. M., Swigonski, N. L., et al. (2010). Implementing developmental screening and referrals: Lessons learned from a national project. Pediatrics, 125(2), 350–360.PubMedCrossRef
go back to reference Kuhlthau, K., Nyman, R. M., Ferris, T. G., Beal, A. C., & Perrin, J. M. (2004). Correlates of use of specialty care. Pediatrics, 113(3), e249–e255.PubMedCrossRef Kuhlthau, K., Nyman, R. M., Ferris, T. G., Beal, A. C., & Perrin, J. M. (2004). Correlates of use of specialty care. Pediatrics, 113(3), e249–e255.PubMedCrossRef
go back to reference Lee, C., Ayers, S. L., & Kronenfeld, J. J. (2009). The association between perceived provider discrimination, health care utilization, and health status in racial and ethnic minorities. Ethnicity & Disease, 19(3), 330. Lee, C., Ayers, S. L., & Kronenfeld, J. J. (2009). The association between perceived provider discrimination, health care utilization, and health status in racial and ethnic minorities. Ethnicity & Disease, 19(3), 330.
go back to reference Lillie-Blanton, M., & Hoffman, C. (2005). The role of health insurance coverage in reducing racial/ethnic disparities in health care. Health Affairs, 24(2), 398–408.PubMedCrossRef Lillie-Blanton, M., & Hoffman, C. (2005). The role of health insurance coverage in reducing racial/ethnic disparities in health care. Health Affairs, 24(2), 398–408.PubMedCrossRef
go back to reference Matson, J. L., Wilkins, J., & Gonzalez, M. (2008). Early identification and diagnosis in autism spectrum disorders in young children and infants: How early is too early? Research in Autism Spectrum Disorders, 2(1), 75–84.CrossRef Matson, J. L., Wilkins, J., & Gonzalez, M. (2008). Early identification and diagnosis in autism spectrum disorders in young children and infants: How early is too early? Research in Autism Spectrum Disorders, 2(1), 75–84.CrossRef
go back to reference Mayer, M. L., Skinner, A. C., & Slifkin, R. T. (2004). Unmet need for routine and specialty care: Data from the National Survey of Children with Special Health Care Needs. Pediatrics, 113(2), e109–e115.PubMedCrossRef Mayer, M. L., Skinner, A. C., & Slifkin, R. T. (2004). Unmet need for routine and specialty care: Data from the National Survey of Children with Special Health Care Needs. Pediatrics, 113(2), e109–e115.PubMedCrossRef
go back to reference Murphy, M. M., Simons, J. P., Ng, S. C., McDade, T. P., Smith, J. K., Shah, S. A., et al. (2009). Racial differences in cancer specialist consultation, treatment, and outcomes for locoregional pancreatic adenocarcinoma. Annals of Surgical Oncology, 16(11), 2968–2977.PubMedCrossRef Murphy, M. M., Simons, J. P., Ng, S. C., McDade, T. P., Smith, J. K., Shah, S. A., et al. (2009). Racial differences in cancer specialist consultation, treatment, and outcomes for locoregional pancreatic adenocarcinoma. Annals of Surgical Oncology, 16(11), 2968–2977.PubMedCrossRef
go back to reference 2011/12 National Survey of Children’s Health. Maternal and Child Health Bureau in collaboration with the National Center for Health Statistics. 2011/12 NSCH SPSS Indicator Data Set prepared by the Data Resource Center for Child and Adolescent Health, Child and Adolescent Health Measurement Initiative. www.childhealthdata.org. 2011/12 National Survey of Children’s Health. Maternal and Child Health Bureau in collaboration with the National Center for Health Statistics. 2011/12 NSCH SPSS Indicator Data Set prepared by the Data Resource Center for Child and Adolescent Health, Child and Adolescent Health Measurement Initiative. www.​childhealthdata.​org.
go back to reference Pedersen, A., Pettygrove, S., Meaney, F. J., Mancilla, K., Gotschall, K., Kessler, D. B., et al. (2012). Prevalence of autism spectrum disorders in Hispanic and non-Hispanic white children. Pediatrics, 129(3), e629–e635.PubMedCrossRef Pedersen, A., Pettygrove, S., Meaney, F. J., Mancilla, K., Gotschall, K., Kessler, D. B., et al. (2012). Prevalence of autism spectrum disorders in Hispanic and non-Hispanic white children. Pediatrics, 129(3), e629–e635.PubMedCrossRef
go back to reference Pinto-Martin, J. A., Young, L. M., Mandell, D. S., Poghosyan, L., Giarelli, E., & Levy, S. E. (2008). Screening strategies for autism spectrum disorders in pediatric primary care. Journal of Developmental & Behavioral Pediatrics, 29(5), 345–350.CrossRef Pinto-Martin, J. A., Young, L. M., Mandell, D. S., Poghosyan, L., Giarelli, E., & Levy, S. E. (2008). Screening strategies for autism spectrum disorders in pediatric primary care. Journal of Developmental & Behavioral Pediatrics, 29(5), 345–350.CrossRef
go back to reference Raphael, J. L., Guadagnolo, B. A., Beal, A. C., & Giardino, A. P. (2009). Racial and ethnic disparities in indicators of a primary care medical home for children. Academic Pediatrics, 9(4), 221–227.PubMedCrossRef Raphael, J. L., Guadagnolo, B. A., Beal, A. C., & Giardino, A. P. (2009). Racial and ethnic disparities in indicators of a primary care medical home for children. Academic Pediatrics, 9(4), 221–227.PubMedCrossRef
go back to reference Rogers, S. J., & Vismara, L. A. (2008). Evidence-based comprehensive treatments for early autism. Journal of Clinical Child and Adolescent Psychology, 37(1), 8–38.PubMedPubMedCentralCrossRef Rogers, S. J., & Vismara, L. A. (2008). Evidence-based comprehensive treatments for early autism. Journal of Clinical Child and Adolescent Psychology, 37(1), 8–38.PubMedPubMedCentralCrossRef
go back to reference Sansosti, F. J., Lavik, K. B., & Sansosti, J. M. (2012). Family experiences through the autism diagnostic process. Focus on Autism and Other Developmental Disabilities, 27(2), 81–92.CrossRef Sansosti, F. J., Lavik, K. B., & Sansosti, J. M. (2012). Family experiences through the autism diagnostic process. Focus on Autism and Other Developmental Disabilities, 27(2), 81–92.CrossRef
go back to reference Sell, N. K., Giarelli, E., Blum, N., Hanlon, A. L., & Levy, S. E. (2012). A comparison of autism spectrum disorder DSM-IV criteria and associated features among African American and white children in Philadelphia County. Disability and Health Journal, 5(1), 9–17.PubMedCrossRef Sell, N. K., Giarelli, E., Blum, N., Hanlon, A. L., & Levy, S. E. (2012). A comparison of autism spectrum disorder DSM-IV criteria and associated features among African American and white children in Philadelphia County. Disability and Health Journal, 5(1), 9–17.PubMedCrossRef
go back to reference Shattuck, P. T., Durkin, M., Maenner, M., Newschaffer, C., Mandell, D. S., Wiggins, L., et al. (2009). Timing of identification among children with an autism spectrum disorder: Findings from a population-based surveillance study. Journal of the American Academy of Child & Adolescent Psychiatry, 48(5), 474–483.CrossRef Shattuck, P. T., Durkin, M., Maenner, M., Newschaffer, C., Mandell, D. S., Wiggins, L., et al. (2009). Timing of identification among children with an autism spectrum disorder: Findings from a population-based surveillance study. Journal of the American Academy of Child & Adolescent Psychiatry, 48(5), 474–483.CrossRef
go back to reference Shields, A. E., Comstock, C., & Weiss, K. B. (2004). Variations in asthma care by race/ethnicity among children enrolled in a state Medicaid program. Pediatrics, 113(3), 496–504.PubMedCrossRef Shields, A. E., Comstock, C., & Weiss, K. B. (2004). Variations in asthma care by race/ethnicity among children enrolled in a state Medicaid program. Pediatrics, 113(3), 496–504.PubMedCrossRef
go back to reference Starfield, B., & Shi, L. (2004). The medical home, access to care, and insurance: A review of evidence. Pediatrics, 113(4), 1493–1498.PubMed Starfield, B., & Shi, L. (2004). The medical home, access to care, and insurance: A review of evidence. Pediatrics, 113(4), 1493–1498.PubMed
go back to reference Steyerberg, E. W., Neville, B., Weeks, J. C., & Earle, C. C. (2007). Referral patterns, treatment choices, and outcomes in locoregional esophageal cancer: A population-based analysis of elderly patients. Journal of Clinical Oncology, 25(17), 2389–2396.PubMedCrossRef Steyerberg, E. W., Neville, B., Weeks, J. C., & Earle, C. C. (2007). Referral patterns, treatment choices, and outcomes in locoregional esophageal cancer: A population-based analysis of elderly patients. Journal of Clinical Oncology, 25(17), 2389–2396.PubMedCrossRef
go back to reference Strickland, B. B., Singh, G. K., Kogan, M. D., Mann, M. Y., van Dyck, P. C., & Newacheck, P. W. (2009). Access to the medical home: New findings from the 2005–2006 National Survey of Children with Special Health Care Needs. Pediatrics, 123(6), e996–e1004.PubMedCrossRef Strickland, B. B., Singh, G. K., Kogan, M. D., Mann, M. Y., van Dyck, P. C., & Newacheck, P. W. (2009). Access to the medical home: New findings from the 2005–2006 National Survey of Children with Special Health Care Needs. Pediatrics, 123(6), e996–e1004.PubMedCrossRef
go back to reference Toomey, S. L., Chien, A. T., Elliott, M. N., Ratner, J., & Schuster, M. A. (2013). Disparities in unmet need for care coordination: The national survey of children’s health. Pediatrics, 131(2), 217–224.PubMedCrossRef Toomey, S. L., Chien, A. T., Elliott, M. N., Ratner, J., & Schuster, M. A. (2013). Disparities in unmet need for care coordination: The national survey of children’s health. Pediatrics, 131(2), 217–224.PubMedCrossRef
go back to reference Trivedi, A. N., & Ayanian, J. Z. (2006). Perceived discrimination and use of preventive health services. Journal of General Internal Medicine, 21(6), 553–558.CrossRef Trivedi, A. N., & Ayanian, J. Z. (2006). Perceived discrimination and use of preventive health services. Journal of General Internal Medicine, 21(6), 553–558.CrossRef
go back to reference Vismara, L. A., & Rogers, S. J. (2010). Behavioral treatments in autism spectrum disorder: What do we know? Annual Review of Clinical Psychology, 6, 447–468.PubMedCrossRef Vismara, L. A., & Rogers, S. J. (2010). Behavioral treatments in autism spectrum disorder: What do we know? Annual Review of Clinical Psychology, 6, 447–468.PubMedCrossRef
go back to reference Visser, S. N., Danielson, M. L., Bitsko, R. H., Holbrook, J. R., Kogan, M. D., Ghandour, R. M., et al. (2014). Trends in the parent-report of health care provider-diagnosed and medicated attention-deficit/hyperactivity disorder: United states, 2003–2011. Journal of the American Academy of Child & Adolescent Psychiatry, 53(1), 34–46.CrossRef Visser, S. N., Danielson, M. L., Bitsko, R. H., Holbrook, J. R., Kogan, M. D., Ghandour, R. M., et al. (2014). Trends in the parent-report of health care provider-diagnosed and medicated attention-deficit/hyperactivity disorder: United states, 2003–2011. Journal of the American Academy of Child & Adolescent Psychiatry, 53(1), 34–46.CrossRef
go back to reference Wagner, J., & Abbott, G. (2007). Depression and depression care in diabetes relationship to perceived discrimination in African Americans. Diabetes Care, 30(2), 364–366.PubMedCrossRef Wagner, J., & Abbott, G. (2007). Depression and depression care in diabetes relationship to perceived discrimination in African Americans. Diabetes Care, 30(2), 364–366.PubMedCrossRef
go back to reference Zimmerman, F. J. (2005). Social and economic determinants of disparities in professional help-seeking for child mental health problems: Evidence from a national sample. Health services research, 40(5 pt 1), 1514–1533.PubMedPubMedCentralCrossRef Zimmerman, F. J. (2005). Social and economic determinants of disparities in professional help-seeking for child mental health problems: Evidence from a national sample. Health services research, 40(5 pt 1), 1514–1533.PubMedPubMedCentralCrossRef
go back to reference Zuckerman, K. E., Mattox, K., Donelan, K., Batbayar, O., Baghaee, A., & Bethell, C. (2013). Pediatrician identification of Latino children at risk for autism spectrum disorder. Pediatrics, 132(3), 445–453.PubMedPubMedCentralCrossRef Zuckerman, K. E., Mattox, K., Donelan, K., Batbayar, O., Baghaee, A., & Bethell, C. (2013). Pediatrician identification of Latino children at risk for autism spectrum disorder. Pediatrics, 132(3), 445–453.PubMedPubMedCentralCrossRef
go back to reference Zuckerman, K. E., Nelson, K., Bryant, T. K., Hobrecker, K., Perrin, J. M., & Donelan, K. (2011). Specialty referral communication and completion in the community health center setting. Academic Pediatrics, 11(4), 288–296.PubMedCrossRef Zuckerman, K. E., Nelson, K., Bryant, T. K., Hobrecker, K., Perrin, J. M., & Donelan, K. (2011). Specialty referral communication and completion in the community health center setting. Academic Pediatrics, 11(4), 288–296.PubMedCrossRef
go back to reference Zuvekas, S. H., & Taliaferro, G. S. (2003). Pathways to access: Health insurance, the health care delivery system, and racial/ethnic disparities, 1996–1999. Health Affairs, 22(2), 139–153.PubMedCrossRef Zuvekas, S. H., & Taliaferro, G. S. (2003). Pathways to access: Health insurance, the health care delivery system, and racial/ethnic disparities, 1996–1999. Health Affairs, 22(2), 139–153.PubMedCrossRef
go back to reference Zwaigenbaum, L., Bryson, S., & Garon, N. (2013). Early identification of autism spectrum disorders. Behavioural Brain Research, 251, 133–146.PubMedCrossRef Zwaigenbaum, L., Bryson, S., & Garon, N. (2013). Early identification of autism spectrum disorders. Behavioural Brain Research, 251, 133–146.PubMedCrossRef
Metagegevens
Titel
Predictors of Age of Diagnosis for Children with Autism Spectrum Disorder: The Role of a Consistent Source of Medical Care, Race, and Condition Severity
Auteurs
Natacha D. Emerson
Holly E. R. Morrell
Cameron Neece
Publicatiedatum
18-08-2015
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 1/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-015-2555-x

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