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Gepubliceerd in: Journal of Child and Family Studies 8/2018

05-04-2018 | Original Paper

Predicting Potentially Harmful Psychological and Physical Behaviours by Parental Caregivers toward Children with Autism Spectrum Disorder

Auteur: Brian Lovell

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 8/2018

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Abstract

Mistreatment of dementia patients by spousal care providers is fairly common. Caregivers’ characteristics, particularly their psychosocial, physical and cognitive functioning, and coping behaviours, predict reports of elder mistreatment. Parental caregivers of children with autism spectrum disorder (ASD) however, despite the similarities they share with dementia caregivers, have not been studied in this context. A sample of N = 95 caregivers of children with ASD completed an online survey assessing: (a) psychosocial, physical and cognitive functioning, and (b) coping behaviours. Caregivers also: (c) rated the extent to which they used potentially harmful psychological (e.g., screamed at the child) and physical (e.g., slapped the child) behaviours to cope with caregiving challenges over the last 12 months. Rates of potentially harmful psychological and physical behaviours were extremely low. However, 95% of caregivers reported using at least one potentially harmful psychological behaviour at some point in the last 12 months, and almost 38% reported using at least one potentially harmful physical behaviour. Mediation analysis yielded an indirect effect of psychological distress on potentially harmful psychological behaviours through disengaged coping. In conclusion, rates of potentially harmful behaviours appear to be low in the context of caring for a child with ASD. Caregivers reporting increased psychological distress were more likely to use potentially harmful psychological behaviours, and this effect was partially mediated by greater use of disengaged coping.
Literatuur
go back to reference Addington, J., Coldham, E. L., Jones, B., Ko, T., & Addington, D. (2003). The first episode of psychosis: The experience of relatives. ACTA Psychiatrica Scandinavica, 108, 285–289. Addington, J., Coldham, E. L., Jones, B., Ko, T., & Addington, D. (2003). The first episode of psychosis: The experience of relatives. ACTA Psychiatrica Scandinavica, 108, 285–289.
go back to reference Baron, R. B., & Kenny, D. A. (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51(6), 1173–118.CrossRefPubMed Baron, R. B., & Kenny, D. A. (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51(6), 1173–118.CrossRefPubMed
go back to reference Beach, S. R., Schulz, R., Williamson, G. M., Miller, S., Weiner, M. F., & Lance, C. E. (2005). Risk factors for potentially harmful informal caregiver behaviour. Journal of the American Geriatric Society, 53(2), 255–261.CrossRef Beach, S. R., Schulz, R., Williamson, G. M., Miller, S., Weiner, M. F., & Lance, C. E. (2005). Risk factors for potentially harmful informal caregiver behaviour. Journal of the American Geriatric Society, 53(2), 255–261.CrossRef
go back to reference Brand, C., Barry, L., & Gallagher, S. (2014). Social support mediates the association between benefit finding and quality of life in caregivers. Journal of Health Psychology, 6, 1–11. Brand, C., Barry, L., & Gallagher, S. (2014). Social support mediates the association between benefit finding and quality of life in caregivers. Journal of Health Psychology, 6, 1–11.
go back to reference Broadbent, D. E., Cooper, P. F., FitzGerald, P., & Parkes, K. R. (1982). The Cognitive Failures Questionnaire (CFQ) and its correlates. British Journal of Clinical Psychology, 21, 1–16.CrossRefPubMed Broadbent, D. E., Cooper, P. F., FitzGerald, P., & Parkes, K. R. (1982). The Cognitive Failures Questionnaire (CFQ) and its correlates. British Journal of Clinical Psychology, 21, 1–16.CrossRefPubMed
go back to reference Brunes, D., Pillemer, K., Caccamise, P. L., Mason, A., Henderson, C. R., & Berman, J., et al. (2015). Prevalence of and risk factors for elder abuse and neglect in the community: A population-based study. American Geriatrics Society, 53(2), 255–261. Brunes, D., Pillemer, K., Caccamise, P. L., Mason, A., Henderson, C. R., & Berman, J., et al. (2015). Prevalence of and risk factors for elder abuse and neglect in the community: A population-based study. American Geriatrics Society, 53(2), 255–261.
go back to reference Cantwell, J., Muldoon, O. T., & Gallagher, S. (2014). Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 35, 2215–2223.CrossRefPubMed Cantwell, J., Muldoon, O. T., & Gallagher, S. (2014). Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 35, 2215–2223.CrossRefPubMed
go back to reference Cheng, S. T., Nam, I., & Kwok, T. (2013). Caregiver forgiveness is associated with less burden and potentially harmful behaviours. Aging and Mental Health, 17(8), 930–934.CrossRefPubMed Cheng, S. T., Nam, I., & Kwok, T. (2013). Caregiver forgiveness is associated with less burden and potentially harmful behaviours. Aging and Mental Health, 17(8), 930–934.CrossRefPubMed
go back to reference Cooper, C., Selwood, A., Blanchard, M., Walker, Z., Blizard, R., & Livingston, G. (2010). The determinants of family carers’ abusive behaviour to people with dementia: Results of the CARD study. Journal of Affective Disorders, 121, 136–142.CrossRefPubMed Cooper, C., Selwood, A., Blanchard, M., Walker, Z., Blizard, R., & Livingston, G. (2010). The determinants of family carers’ abusive behaviour to people with dementia: Results of the CARD study. Journal of Affective Disorders, 121, 136–142.CrossRefPubMed
go back to reference Crespo, M., & Fernández-Lansa, V. (2014). Factors associated with anger and anger expression in caregivers of elderly relatives. Aging and Mental Health, 18(4), 454–462.CrossRefPubMed Crespo, M., & Fernández-Lansa, V. (2014). Factors associated with anger and anger expression in caregivers of elderly relatives. Aging and Mental Health, 18(4), 454–462.CrossRefPubMed
go back to reference Cunningham, C. (2006). Understanding challenging behaviour in patients with dementia. Nursing Standard, 20(47), 42–45.CrossRefPubMed Cunningham, C. (2006). Understanding challenging behaviour in patients with dementia. Nursing Standard, 20(47), 42–45.CrossRefPubMed
go back to reference Dong, X. (2015). Elder abuse in Chinese populations: A global review. Journal of Elderly Abuse and Neglect, 27(3), 196–232.CrossRef Dong, X. (2015). Elder abuse in Chinese populations: A global review. Journal of Elderly Abuse and Neglect, 27(3), 196–232.CrossRef
go back to reference Donnellan, W. J., Bennett, K. M., & Soulsby, L. (2016). Family close but friends closer: Exploring social support and resilience in older spousal dementia carers. Aging and Mental Health, 20, 1–7.CrossRef Donnellan, W. J., Bennett, K. M., & Soulsby, L. (2016). Family close but friends closer: Exploring social support and resilience in older spousal dementia carers. Aging and Mental Health, 20, 1–7.CrossRef
go back to reference Downes, C., Fealy, G., Phelan, A., Donnelly, N.A., & Lafferty, A. (2013). Abuse of older people with dementia: A review. NCPOP, University College Dublin. Downes, C., Fealy, G., Phelan, A., Donnelly, N.A., & Lafferty, A. (2013). Abuse of older people with dementia: A review. NCPOP, University College Dublin.
go back to reference Fabiano, G. A., Pelham, W. E., Manos, M. J., Gnagy, E. M., Chronis, A. M., & Onyango, A. N., et al. (2004). An evaluation of three time-out procedures for children with attention-deficit/hyperactivity disorder. Behavior Therapy, 35(3), 449–469.CrossRef Fabiano, G. A., Pelham, W. E., Manos, M. J., Gnagy, E. M., Chronis, A. M., & Onyango, A. N., et al. (2004). An evaluation of three time-out procedures for children with attention-deficit/hyperactivity disorder. Behavior Therapy, 35(3), 449–469.CrossRef
go back to reference Feast, A., Orrell, M., Charlesworth, G., Melunsky, N., Poland, F., & Moniz-Cook, E. (2016). Behavioural and psychological symptoms in dementia and the challenges for family carers: A systematic review. British Journal of Psychiatry, 208(5), 429–434.CrossRefPubMed Feast, A., Orrell, M., Charlesworth, G., Melunsky, N., Poland, F., & Moniz-Cook, E. (2016). Behavioural and psychological symptoms in dementia and the challenges for family carers: A systematic review. British Journal of Psychiatry, 208(5), 429–434.CrossRefPubMed
go back to reference Fletcher, P. C., Markoulakis, R., & Bryden, P. J. (2012). The costs of caring for a child with an autism spectrum disorder. Issues in Comprehensive Paediatric Nursing, 35(1), 45–69.CrossRef Fletcher, P. C., Markoulakis, R., & Bryden, P. J. (2012). The costs of caring for a child with an autism spectrum disorder. Issues in Comprehensive Paediatric Nursing, 35(1), 45–69.CrossRef
go back to reference Gallagher, S., Phillips, A. C., Oliver, C., & Carroll, D. (2008). Predictors of psychological morbidity in parents of children with intellectual disabilities. Journal of Paediatric Psychology, 33(10), 1129–1136.CrossRef Gallagher, S., Phillips, A. C., Oliver, C., & Carroll, D. (2008). Predictors of psychological morbidity in parents of children with intellectual disabilities. Journal of Paediatric Psychology, 33(10), 1129–1136.CrossRef
go back to reference Gallagher, S., & Whiteley, J. (2012). Social support is associated with blood pressure responses in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 33, 2099–2105.CrossRefPubMed Gallagher, S., & Whiteley, J. (2012). Social support is associated with blood pressure responses in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 33, 2099–2105.CrossRefPubMed
go back to reference Garcés, J., Carretero, S., Ródenas, F., & Alemán, C. (2010). A review of programs to alleviate the burden of informal caregivers of dependent persons. Archives of Gerontology and Geriatrics, 50, 254–259.CrossRefPubMed Garcés, J., Carretero, S., Ródenas, F., & Alemán, C. (2010). A review of programs to alleviate the burden of informal caregivers of dependent persons. Archives of Gerontology and Geriatrics, 50, 254–259.CrossRefPubMed
go back to reference Griffith, G. M., Hastings, R. P., & Petalas, M. A. (2014). Brief report: Fathers’ and mothers’ ratings of behavioural and emotional problems in siblings of children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 44(5), 1230–1235.CrossRefPubMed Griffith, G. M., Hastings, R. P., & Petalas, M. A. (2014). Brief report: Fathers’ and mothers’ ratings of behavioural and emotional problems in siblings of children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 44(5), 1230–1235.CrossRefPubMed
go back to reference Gudmundson, J. A., & Leerkes, E. M. (2012). Links between mothers’ coping styles, toddler reactivity, and sensitivity to toddler’s negative emotions. Infant Behaviour and Development, 35(1), 158–166.CrossRef Gudmundson, J. A., & Leerkes, E. M. (2012). Links between mothers’ coping styles, toddler reactivity, and sensitivity to toddler’s negative emotions. Infant Behaviour and Development, 35(1), 158–166.CrossRef
go back to reference Hayes, A.F. (2012). PROCESS: A versatile computational tool for observed variable mediation, moderation, and conditional process modelling. www.afhayes.com/. Hayes, A.F. (2012). PROCESS: A versatile computational tool for observed variable mediation, moderation, and conditional process modelling. www.afhayes.com/.
go back to reference Joling, K. J., van Marwijk, H. W. J., Veldhuijzen, A. E., van der Horst, H. E., Scheltens, P., & Smit, F., et al. (2015). The two-year incidence of depression and anxiety disorders in spousal caregivers of persons with dementia: Who is at the greatest risk? American Journal of Geriatric Psychiatry, 23(3), 293–303.CrossRefPubMed Joling, K. J., van Marwijk, H. W. J., Veldhuijzen, A. E., van der Horst, H. E., Scheltens, P., & Smit, F., et al. (2015). The two-year incidence of depression and anxiety disorders in spousal caregivers of persons with dementia: Who is at the greatest risk? American Journal of Geriatric Psychiatry, 23(3), 293–303.CrossRefPubMed
go back to reference Kishimoto, Y., Terada, S., Takeda, N., Oshima, E., Honda, H., & Yoshida, H., et al. (2013). Abuse of people with cognitive impairment by family caregivers in Japan: A cross-sectional study. Psychiatry Research, 209, 699–704.CrossRefPubMed Kishimoto, Y., Terada, S., Takeda, N., Oshima, E., Honda, H., & Yoshida, H., et al. (2013). Abuse of people with cognitive impairment by family caregivers in Japan: A cross-sectional study. Psychiatry Research, 209, 699–704.CrossRefPubMed
go back to reference Lovell, B., Elliot, H., Che Sung Liu, C., & Wetherell, M. A. (2014). Memory failures for everyday tasks in caregivers of children with autism. Research in Developmental Disabilities, 35, 3057–3061.CrossRefPubMed Lovell, B., Elliot, H., Che Sung Liu, C., & Wetherell, M. A. (2014). Memory failures for everyday tasks in caregivers of children with autism. Research in Developmental Disabilities, 35, 3057–3061.CrossRefPubMed
go back to reference Lovell, B., Moss, M., & Wetherell, M. A. (2012). The psychosocial, endocrine and immune consequences of caring for a child with autism or ADHD. Psychoneuroendocrinology, 37(4), 534–542.CrossRefPubMed Lovell, B., Moss, M., & Wetherell, M. A. (2012). The psychosocial, endocrine and immune consequences of caring for a child with autism or ADHD. Psychoneuroendocrinology, 37(4), 534–542.CrossRefPubMed
go back to reference Lovell, B., Moss, M., & Wetherell, M. A. (2016). Assessing the feasibility and efficacy of written benefit-finding for caregivers of children with autism: A pilot study. Journal of Family Studies, 22(1), 32–42.CrossRef Lovell, B., Moss, M., & Wetherell, M. A. (2016). Assessing the feasibility and efficacy of written benefit-finding for caregivers of children with autism: A pilot study. Journal of Family Studies, 22(1), 32–42.CrossRef
go back to reference Lovell, B., & Wetherell, M. A. (2011). The caregiver control model of chronic stress: Endocrine and immune implications in elderly and non-elderly caregivers. Neuroscience and Biobehavioural Review, 35(6), 1342–1352.CrossRef Lovell, B., & Wetherell, M. A. (2011). The caregiver control model of chronic stress: Endocrine and immune implications in elderly and non-elderly caregivers. Neuroscience and Biobehavioural Review, 35(6), 1342–1352.CrossRef
go back to reference Lovell, B., & Wetherell, M. A. (2015). Child behaviour problems mediate the association between coping and perceived stress in caregivers of children with autism. Research in Autism Spectrum Disorders, 20, 17–23.CrossRef Lovell, B., & Wetherell, M. A. (2015). Child behaviour problems mediate the association between coping and perceived stress in caregivers of children with autism. Research in Autism Spectrum Disorders, 20, 17–23.CrossRef
go back to reference Luong, J., Yoder, M. K., & Canham, D. (2009). Southeast Asian parents raising a child with autism: A qualitative investigation of coping styles. Journal of School Nursing, 25(3), 222–229.CrossRefPubMed Luong, J., Yoder, M. K., & Canham, D. (2009). Southeast Asian parents raising a child with autism: A qualitative investigation of coping styles. Journal of School Nursing, 25(3), 222–229.CrossRefPubMed
go back to reference Miller, L. S., Lewis, M. S., Williamson, G. M., Lance, C. E., Dooley, W. K., & Schulz, R., et al. (2006). Caregiver cognitive status and potentially harmful caregiver behaviour. Aging and Mental Health, 10(2), 125–133.CrossRefPubMed Miller, L. S., Lewis, M. S., Williamson, G. M., Lance, C. E., Dooley, W. K., & Schulz, R., et al. (2006). Caregiver cognitive status and potentially harmful caregiver behaviour. Aging and Mental Health, 10(2), 125–133.CrossRefPubMed
go back to reference Perez-Rojo, G., Izal, M., Montorio, I., & Penhale, B. (2009). Risk factors of elder abuse in a community dwelling Spanish sample. Archives of Gerontology and Geriatrics, 49, 17–21.CrossRefPubMed Perez-Rojo, G., Izal, M., Montorio, I., & Penhale, B. (2009). Risk factors of elder abuse in a community dwelling Spanish sample. Archives of Gerontology and Geriatrics, 49, 17–21.CrossRefPubMed
go back to reference Reips, U. D. (2002). Standards for internet-based experimenting. Experimental Psychology, 49(4), 243–256.CrossRefPubMed Reips, U. D. (2002). Standards for internet-based experimenting. Experimental Psychology, 49(4), 243–256.CrossRefPubMed
go back to reference Schat, A. C., Kelloway, E. K., & Desmarais, S. (2005). The physical health questionnaire (PHQ): Construct validation of a self-report scale of somatic symptoms. Journal of Occupational Health Psychology, 10(4), 363.CrossRefPubMed Schat, A. C., Kelloway, E. K., & Desmarais, S. (2005). The physical health questionnaire (PHQ): Construct validation of a self-report scale of somatic symptoms. Journal of Occupational Health Psychology, 10(4), 363.CrossRefPubMed
go back to reference Shaffer, D. R., Dooley, K., & Williamson, G. L. (2007). Endorsement of proactively aggressive caregiving strategies moderates the relation between caregiver mental health and potentially harmful caregiving behaviour. Psychology and Aging, 22(3), 494–504.CrossRefPubMed Shaffer, D. R., Dooley, K., & Williamson, G. L. (2007). Endorsement of proactively aggressive caregiving strategies moderates the relation between caregiver mental health and potentially harmful caregiving behaviour. Psychology and Aging, 22(3), 494–504.CrossRefPubMed
go back to reference Straus, M. A. (1979). Measuring intrafamily conflict and violence: The Conflict Tactics Scales. Journal of Marriage and the Family, 41, 75–88.CrossRef Straus, M. A. (1979). Measuring intrafamily conflict and violence: The Conflict Tactics Scales. Journal of Marriage and the Family, 41, 75–88.CrossRef
go back to reference Tobin, D. L., Holroyd, K. A., Reynolds, R. V., & Wigal, J. K. (1989). The hierarchical factor structure of the Coping Strategies Inventory. Cognitive Therapy and Research, 13(4), 343–361.CrossRef Tobin, D. L., Holroyd, K. A., Reynolds, R. V., & Wigal, J. K. (1989). The hierarchical factor structure of the Coping Strategies Inventory. Cognitive Therapy and Research, 13(4), 343–361.CrossRef
go back to reference Urcuyo, K. R., Boyers, A. E., Carver, C. S., & Antoni, M. H. (2005). Finding benefit in breast cancer: Relations with personality, coping, and concurrent well-being. Psychology and Health, 20(2), 175–192.CrossRef Urcuyo, K. R., Boyers, A. E., Carver, C. S., & Antoni, M. H. (2005). Finding benefit in breast cancer: Relations with personality, coping, and concurrent well-being. Psychology and Health, 20(2), 175–192.CrossRef
go back to reference Vitaliano, P. P., Echeverri, D., Yi, J., Phillips, P. E. M., Young, H., & Siegler, I. C. (2005). Psychophysiological mediators of caregiver stress and differential cognitive decline. Psychology and Aging, 20(3), 402–441.CrossRefPubMed Vitaliano, P. P., Echeverri, D., Yi, J., Phillips, P. E. M., Young, H., & Siegler, I. C. (2005). Psychophysiological mediators of caregiver stress and differential cognitive decline. Psychology and Aging, 20(3), 402–441.CrossRefPubMed
go back to reference Wigglesworth, A., Mosqueda, L., Mulnard, R., Liao, S., Gibbs, L., & Fitzgerald, W. (2010). Screening for abuse and neglect of people with dementia. Journal of the American Geriatrics Society, 58(3), 493–500.CrossRef Wigglesworth, A., Mosqueda, L., Mulnard, R., Liao, S., Gibbs, L., & Fitzgerald, W. (2010). Screening for abuse and neglect of people with dementia. Journal of the American Geriatrics Society, 58(3), 493–500.CrossRef
go back to reference Wong, M. G., & Heriot, S. A. (2008). Parents of children with cystic fibrosis: How they hope, cope and despair. Child: Care, Health and Development, 34(3), 344–354. Wong, M. G., & Heriot, S. A. (2008). Parents of children with cystic fibrosis: How they hope, cope and despair. Child: Care, Health and Development, 34(3), 344–354.
go back to reference Yan, E., & Kwok, T. (2011). Abuse of older Chinese with dementia by family caregivers: An inquiry into the role of caregiver burden. International Journal of Geriatric Psychiatry, 26, 527–535.CrossRefPubMed Yan, E., & Kwok, T. (2011). Abuse of older Chinese with dementia by family caregivers: An inquiry into the role of caregiver burden. International Journal of Geriatric Psychiatry, 26, 527–535.CrossRefPubMed
go back to reference Yan, E. (2014). Elder abuse and help-seeking behaviour in elderly Chinese. Journal of Interpersonal Violence, 15, 1–26. Yan, E. (2014). Elder abuse and help-seeking behaviour in elderly Chinese. Journal of Interpersonal Violence, 15, 1–26.
go back to reference Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67(6), 361–370.CrossRefPubMed Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67(6), 361–370.CrossRefPubMed
Metagegevens
Titel
Predicting Potentially Harmful Psychological and Physical Behaviours by Parental Caregivers toward Children with Autism Spectrum Disorder
Auteur
Brian Lovell
Publicatiedatum
05-04-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 8/2018
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-018-1087-3

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