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Gepubliceerd in: Quality of Life Research 9/2019

16-05-2019

Posttraumatic stress and health-related quality of life in parents of children with cardiac rhythm devices

Auteurs: Helene Werner, Christian Balmer, Phaedra Lehmann

Gepubliceerd in: Quality of Life Research | Uitgave 9/2019

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Abstract

Purpose

Studies have shown a high prevalence of post-traumatic stress disorders (PTSD) among parents of children with life-threatening diseases. However, it is yet unknown whether parents of children with cardiac rhythm device develop posttraumatic stress symptoms or even PTSD.

Methods

This cross-sectional investigation is part of a comprehensive single-center study of long-term medical and psychosocial outcomes in pediatric patients with pacemaker (PM) and implantable cardioverter defibrillator (ICD). 69 patients (78%) were included in the study, with the participation of 69 mothers and 57 fathers. Parents completed the Posttraumatic Diagnostic Scale and Medical Outcomes Study Short Form-36 item questionnaire. Child’s medical data was collected retrospectively from patients’ hospital records.

Results

At assessment, the patients (39% females) were on average 11.2 years old. The predominant device type was PM in 56 cases (81%). The mean time since device implantation was 6.3 years (SD = 4.3). Full heart-disease related PTSD was diagnosed in one mother and no father, while partial heart-disease-related PTSD was diagnosed in 3 mothers (4%) and 2 fathers (4%). Parental HRQoL—especially regarding the mental health dimension—was affected in both parents. In both parents, total PTSD symptom severity scores were a significant predictor for mental health summary scores after controlling for child age at implantation, presence of other non-cardiac disease in the child, parental age, and presence of own chronic disease.

Conclusions

Special attention should be given to parental PTSD symptoms in the clinical follow-up of PM and ICD patients as some parents might probably benefit from psychological support.
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Metagegevens
Titel
Posttraumatic stress and health-related quality of life in parents of children with cardiac rhythm devices
Auteurs
Helene Werner
Christian Balmer
Phaedra Lehmann
Publicatiedatum
16-05-2019
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 9/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-019-02202-z

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