Top

Research on Child and Adolescent Psychopathology

Gepubliceerd in:

08-02-2024

Population Level Mental Health Diagnoses for Youth with Intellectual/Developmental Disabilities Compared to Youth without Intellectual/Developmental Disabilities

Auteurs: Sandra Marquis, Yona Lunsky, Kimberlyn M. McGrail, Jennifer Baumbusch

Gepubliceerd in: Research on Child and Adolescent Psychopathology | Uitgave 7/2024

Abstract

There is evidence in the literature that youth with intellectual/developmental disabilities (IDD) experience mental health issues to a greater extent compared to youth without IDD. In addition, transition from pediatric to adult services may be a period of increased anxiety and mental health problems for these youth. This study used a retrospective cohort design using population level administrative health data to compare mental health diagnoses between youth with IDD and youth without IDD; particularly examining the period when youth transition from pediatric health services to adult health services. In addition, this study compared the mental health of youth with various types of IDD (Down syndrome, autism, fetal alcohol syndrome and other rarer diagnoses). Results showed that at the population level youth with IDD have greater odds of anxiety/depression or psychotic illness than youth without IDD. Adjusted odds of anxiety/depression or psychotic illness also varied with age, income level, sex, and type of IDD. Youth with fetal alcohol syndrome had the greatest odds of both anxiety/depression and a psychotic illness. Odds of anxiety/depression increased from age 15–19 years old. Odds of a psychotic illness increased from age 15 to age 24 years old.

vorige artikel Does the Relationship between Age and Brain Structure Differ in Youth with Conduct Disorder?

volgende artikel Psychological Factors Associated with Functional Tic-like Behaviours during the COVID-19 Pandemic

Anderson, L. L., Humphries, K., McDermott, S., Marks, B., Sisarak, J., & Larson, S. (2013). The state of the science of health and wellness for adults with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 51(5), 385–398. https://doi.org/10.1352/1934-9556-51.5.385.CrossRefPubMedPubMedCentral

Andresen, E. (2011). Epidemiology and Biostatistics. In D. Lollar & E. Andresen (Eds.), Public Health Perspectives on Disability Epidemiology to Ethics and Beyond. Springer Science

Ark, T. K., Kesselring, S., Hills, B., & McGrail, K. M. (2020). Population Data BC: Supporting population data science in British Columbia. International Journal of Population Data Science, 4(2), 14. https://doi.org/10.23889/ijpds.v4i2.1133.CrossRef

Biggs, E. E., & Carter, E. W. (2016). Quality of life for transition-age youth with autism or intellectual disability. Journal of Autism and Developmental Disorders, 46(1), 190–204. https://doi.org/10.1007/s10803-015-2563-x.CrossRefPubMed

British Columbia Ministry of Health [creator] (2021): Consolidation File (MSP Registration and Premium Billing). V2. Population Data BC [publisher]. Data Extract. MOH (2021) (2021). http://www.popdata.bc.ca/data.

British Columbia Ministry of Health [creator] (2020): Medical Services Plan (MSP) Payment Information File. V2 Population Data BC [publisher]. Data Extract. MOH (2021) (n.d.). http://www.popdata.bc.ca/data.

Brown, M., Higgins, A., & MacArthur, J. (2020). Transition from child to adult health services: A qualitative study of the views and experiences of families of young adults with intellectual disabilities. Journal of Clinical Nursing, 29(1–2), 195–207. https://doi.org/10.1111/jocn.15077.CrossRefPubMed

Burke, M. M., & Fujiura, G. T. (2013). Using secondary datasets to understand persons with developmental disabilities and their families. International Review of Research in Developmental Disabilities, 45, 257–280. https://doi.org/10.1016/B978-0-12-407760-7.00007-4.

Canadian Institute for Health Information [creator] (2020 and 2021): Discharge Abstract Database (Hospital Separations). V2 Population Data BC [publisher]. Data Extract. MOH (2021) (n.d.). http://www.popdata.bc.ca/data.

Champions for Inclusive Health come together to create change: Special Olympics British Columbia. (n.d.). Retrieved January 22, (2020). from https://www.specialolympics.ca/british-columbia/news/champions-inclusive-health-come-together-create-change.

Comer-HaGans, D., Weller, B. E., Story, C., & Holton, J. (2020). Developmental stages and estimated prevalence of coexisting mental health and neurodevelopmental conditions and service use in youth with intellectual disabilities, 2011–2012. Journal of Intellectual Disability Research, 64(3), 185–196. https://doi.org/10.1111/jir.12708.CrossRefPubMed

Cvejic, R. C., & Trollor, J. N. (2018). Transition to adult mental health services for young people with an intellectual disability. Journal of Paediatrics and Child Health, 54(10), 1127–1130. https://doi.org/10.1111/jpc.14197.CrossRefPubMed

Doyle, A., O’Sullivan, M., Craig, S., & McConkey, R. (2020). People with intellectual disability in Ireland are still dying young. Journal of Applied Research in Intellectual Disabilities, 00, 1–9. https://doi.org/10.1111/jar.12853.CrossRef

Eligibility for Medical Services Plan. (2022). https://www2.gov.bc.ca/gov/content/health/health-drug-coverage/msp/bc-residents/eligibility-and-enrolment/are-you-eligible.

Emerson, E., Glover, G., Hatton, C., & Wolstenholme, J. (2014). Trends in age-standardised mortality rates and life expectancy of people with learning disabilities in Sheffield over a 33-year period. Tizard Learning Disability Review, 19(2), 90–95. https://doi.org/10.1108/TLDR-01-2014-0003.CrossRef

Florio, T., & Trollor, J. (2015). Mortality among a cohort of persons with an intellectual disability in New South Wales, Australia. Journal of Applied Research in Intellectual Disabilities, 28(5), 383–393. https://doi.org/10.1111/jar.12190.CrossRefPubMed

Glasson, E. J., & Hussain, R. (2008). Linked data: Opportunities and challenges in disability research Linked data: Opportunities and challenges in disability research. Journal of Intellectual and Developmental Disability, 33(4), 265–291. https://doi.org/10.1080/13668250802441409.

Gotham, K., Brunwasser, S. M., & Lord, C. (2015). Depressive and anxiety symptom trajectories from school age through young adulthood in samples with Autism Spectrum Disorder and developmental delay. Journal of the American Academy of Child and Adolescent Psychiatry, 54(5), 369–376. www.jaacap.org.CrossRefPubMedPubMedCentral

Hepper, F., & Garralda, M. E. (2001). Psychiatric adjustment to leaving school in adolescents with intellectual disability: A pilot study. Journal of Intellectual Disability Research, 45(6), 521–525. https://doi.org/10.1046/j.1365-2788.2001.00367.x.CrossRefPubMed

Heslop, P., Blair, P. S., Fleming, P., Hoghton, M., Marriott, A., & Russ, L. (2014). The Confidential Inquiry into premature deaths of people with intellectual disabilities in the UK: A population-based study. The Lancet, 383(9920), 889–895. https://doi.org/10.1016/S0140-6736(13)62026-7.CrossRef

Hodapp, R. M., Goldman, S. E., & Urbano, R. C. (2013). Using secondary datasets in disability research: Special issues, special promise. International Review of Research in Developmental Disabilities, 45, 1–34. https://doi.org/10.1016/B978-0-12-407760-7.00001-3.CrossRef

Hogan, D. P., Msall, M. E., & Drew, J. A. R. (2006). The developmental epidemiology of mental retardation and developmental disabilities. International Review of Research in Mental Retardation, 33, 213–245. https://doi.org/10.1016/S0074-7750(06)33009-1.

Hoyle, J. N., Laditka, J. N., & Laditka, S. B. (2020). Severe developmental disability and the transition to adulthood. Disability and Health Journal, 13(3), 100912. https://doi.org/10.1016/j.dhjo.2020.100912.CrossRefPubMed

Hudson, B. (2006). Making and missing connections: Learning disability services and the transition from adolescence to adulthood. Disability and Society, 21(1), 47–60. https://doi.org/10.1080/09687590500375366.CrossRef

Jutte, D. P., Roos, L. L., & Brownell, M. D. (2011). Administrative record linkage as a tool for public health research. Annual Review of Public Health, 32, 91–108. https://doi.org/10.1146/annurev-publhealth-031210-100700.

Landes, S. D., McDonald, K. E., Wilmoth, J. M., & Carter Grosso, E. (2021). Evidence of continued reduction in the age-at-death disparity between adults with and without intellectual and/or developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 34(3), 916–920. https://doi.org/10.1111/JAR.12840.CrossRefPubMed

Lin, E., Balogh, R., Cobigo, V., Ouellette-Kuntz, H., Wilton, A. S., & Lunsky, Y. (2013). Using administrative health data to identify individuals with intellectual and developmental disabilities: A comparison of algorithms. Journal of Intellectual Disability Research, 57(5), 462–477. https://doi.org/10.1111/jir.12002.CrossRefPubMed

Lin, E., Balogh, R. S., Durbin, A., Holder, L., Gupta, N., Volpe, T., Isaacs, B. J., Weiss, J. A., & Lunsky, Y. (2019). Addressing gaps in the health care services used by adults with developmental disabilities in Ontario. https://www.ices.on.ca/publications/research-reports/addressing-gaps-in-the-health-care-services-used-by-adults-with-developmental-disabilities-in-ontario/.

Liu, G., Pearl, A. M., Kong, L., Brown, S. L., Ba, D., Leslie, D. L., & Murray, M. J. (2019). Risk factors for emergency department utilization among adolescents with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 49(11), 4455–4467. https://doi.org/10.1007/s10803-019-04166-y.CrossRefPubMed

Lunsky, Y., & Balogh, R. (2010). Dual diagnosis: A national study of psychiatric hospitalization patterns of people with developmental disability. Canadian Journal of Psychiatry, 55(11), 721–728.

Lunsky, Y., Lake, J. K., Durbin, J., Perry, A., Bullock, H., Morris, S., & Lee, J. S. (2014). Understanding and improving care for individuals with intellectual and developmental disabilities in the emergency department. International Review of Research in Developmental Disabilities, 47, 1–37. https://doi.org/10.1016/B978-0-12-800278-0.00001-4.

Marquis, S., Lunsky, Y., McGrail, K. M., & Baumbusch, J. (2023). Population level administrative data evidence of visits to the emergency department by youth with intellectual/developmental disabilities in BC, Canada. The American Journal of Emergency Medicine, 69, 52–57. https://doi.org/10.1016/J.AJEM.2023.04.006.CrossRefPubMed

Nathenson, R. A., & Zablotsky, B. (2017). The transition to the adult health care system among youths with Autism Spectrum Disorder. Psychiatric Services, 68(7), 735–738. https://doi.org/10.1176/appi.ps.201600239.CrossRefPubMed

Patja, K., Iivanainen, M., Vesala, H., Oksanen, H., & Ruoppila, I. (2000). Life expectancy of people with intellectual disability: A 35-year follow-up study. Journal of Intellectual Disability Research, 44(5), 591–599. https://doi.org/10.1046/j.1365-2788.2000.00280.x.CrossRefPubMed

Piccoli, S., Pizzighello, S., & Martinuzzi, A. (2019). Changes in psychiatric diagnoses during the transition phase from childhood to adulthood in a group of patients with intellectual disability. Adolescent Psychiatry, 10(1), 41–47. https://doi.org/10.2174/2210676609666190702150358.

Reale, L., & Bonati, M. (2015). Mental disorders and transition to adult mental health services: A scoping review. European Psychiatry, 30(8), 932–942. https://doi.org/10.1016/j.eurpsy.2015.07.011.CrossRefPubMed

Robertson, J., Hatton, C., Baines, S., & Emerson, E. (2015). Systematic reviews of the health or health care of people with intellectual disabilities: A systematic review to identify gaps in the evidence base. Journal of Applied Research in Intellectual Disabilities, 28(6), 455–523. https://doi.org/10.1111/jar.12149.CrossRefPubMed

Rydzewska, E., Fleming, M., Mackay, D., Young-Southward, G., Blacher, J., Bolourian, Y., Widaman, K., & Cooper, S. A. (2020). General health status in young people with intellectual disabilities with and without Down syndrome in, and transitioning from, special education: Findings from the National Longitudinal transitions Study-2. Journal of Intellectual Disability Research, 64(12), 895–907. https://doi.org/10.1111/jir.12781.CrossRefPubMed

Schlenz, A. M., Carpenter, L. A., Bradley, C., Charles, J., & Boan, A. (2015). Age differences in emergency department visits and inpatient hospitalizations in preadolescent and adolescent youth with Autism Spectrum disorders. Journal of Autism and Developmental Disorders, 45(8), 2382–2391. https://doi.org/10.1007/s10803-015-2405-x.CrossRefPubMed

Shea, L. L., Xie, M., Turcotte, P., Marcus, S., Field, R., Newschaffer, C., & Mandell, D. (2018). Service use and associated expenditures among adolescents with Autism Spectrum Disorder transitioning to adulthood. Journal of Autism and Developmental Disorders, 48(9), 3223–3227. https://doi.org/10.1007/s10803-018-3563-4.CrossRefPubMed

Spady, D. W., Schopflocher, D. P., Svenson, L. W., & Thompson, A. H. (2001). Prevalence of mental disorders in children living in Alberta, Canada, as determined from physician billing data. Archives of Pediatrics & Adolescent Medicine, 155(10), 1153–1159. https://doi.org/10.1001/ARCHPEDI.155.10.1153.CrossRef

Stankiewicz, E., Ouellette-Kuntz, H., McIsaac, M., Shooshtari, S., & Balogh, R. (2018). Patterns of mortality among adults with intellectual and developmental disabilities in Ontario. Canadian Journal of Public Health, 109(5–6), 866–872. https://doi.org/10.17269/s41997-018-0124-8.CrossRefPubMedPubMedCentral

Statistical Analysis System, Version 9.4. (n.d.). In SAS Institute Inc

Statistics Canada (2009): Statistics Canada Income Band Data. Catalogue Number: 13C0016. V2. Population Data BC. Data Extract. Population Data BC (2021). (n.d.). http://www.popdata.bc.ca/data.

Sullivan, W. F., Diepstra, H., Heng, J., Ally, S., Bradley, E., Casson, I., Hennen, B., Kelly, M., Korossy, M., McNeil, K., Abells, D., Amaria, K., Boyd, K., Gemmill, M., Grier, E., Kennie-Kaulbach, N., Ketchell, M., Ladouceur, J., Lepp, A., & Witherbee, S. (2018). Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines. Canadian Family Physician, 64(4), 254. /pmc/articles/PMC5897068/.PubMedPubMedCentral

Taylor, J. L., & Gotham, K. O. (2016). Cumulative life events, traumatic experiences, and psychiatric symptomatology in transition-aged youth with Autism Spectrum Disorder. Journal of Neurodevelopmental Disorders, 8(1), 28. https://doi.org/10.1186/s11689-016-9160-y.CrossRefPubMedPubMedCentral

The Learning Disability Mortality Review (LeDeR) Programme Annual Report 2018. (2018). www.hqip.org.uk/national-programmes.

Tint, A., Brown, H. K., Chen, S., Lai, M. C., Tarasoff, L. A., Vigod, S. N., Parish, S., Havercamp, S. M., & Lunsky, Y. (2021). Health characteristics of reproductive-aged autistic women in Ontario: A population-based, cross-sectional study. Autism, 25(4), 1114–1124. https://doi.org/10.1177/1362361320982819.CrossRefPubMedPubMedCentral

Warton, M. E. (2020). Time After Time: Difference-in-Differences and Interrupted Time Series Models in SAS ®. https://support.sas.com/resources/papers/proceedings20/4674-2020.pdf.

Warton, M. E., Parker, M. M., & Karter, A. J. (2016). How D-I-D you do that? Basic difference-in-differences models in SAS.

Weiss, J. A., Isaacs, B., Diepstra, H., Wilton, A. S., Brown, H. K., McGarry, C., & Lunsky, Y. (2018). Health concerns and health service utilization in a population cohort of young adults with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 48(1), 36–44. https://doi.org/10.1007/s10803-017-3292-0.CrossRefPubMed

Young-Southward, G., Philo, C., & Cooper, S. A. (2017a). What effect does transition have on health and well-being in young people with intellectual disabilities? A systematic review. Journal of Applied Research in Intellectual Disabilities, 30(5), 805–823. https://doi.org/10.1111/jar.12286.CrossRefPubMed

Young-Southward, G., Rydzewska, E., Philo, C., & Cooper, S. A. (2017b). Physical and mental health of young people with and without intellectual disabilities: Cross-sectional analysis of a whole country population. Journal of Intellectual Disability Research, 61(10), 984–993. https://doi.org/10.1111/jir.12422.CrossRefPubMed

Young-Southward, Genevieve, Cooper, S. A., & Philo, C. (2017c). Health and wellbeing during transition to adulthood for young people with intellectual disabilities: A qualitative study. Research in Developmental Disabilities, 70, 94–103. https://doi.org/10.1016/j.ridd.2017.09.003.CrossRef

Titel: Population Level Mental Health Diagnoses for Youth with Intellectual/Developmental Disabilities Compared to Youth without Intellectual/Developmental Disabilities
Auteurs: Sandra Marquis
Yona Lunsky
Kimberlyn M. McGrail
Jennifer Baumbusch
Publicatiedatum: 08-02-2024
Uitgeverij: Springer US
Gepubliceerd in: Research on Child and Adolescent Psychopathology / Uitgave 7/2024
Print ISSN: 2730-7166
Elektronisch ISSN: 2730-7174
DOI: https://doi.org/10.1007/s10802-024-01174-0

Andere artikelen Uitgave 7/2024

Why Should I? Examining How Childhood Callous-Unemotional Traits Relate to Prosocial and Affiliative Behaviors and Motivations

A Pilot Study of the Coping Together Virtual Family Intervention: Exploring Changes in Family Functioning and Individual Well-Being

Amygdala Volume is Associated with ADHD Risk and Severity Beyond Comorbidities in Adolescents: Clinical Testing of Brain Chart Reference Standards

Open Access

Bohn Stafleu van Loghum

Population Level Mental Health Diagnoses for Youth with Intellectual/Developmental Disabilities Compared to Youth without Intellectual/Developmental Disabilities

Abstract

Andere artikelen Uitgave 7/2024

Why Should I? Examining How Childhood Callous-Unemotional Traits Relate to Prosocial and Affiliative Behaviors and Motivations

A Pilot Study of the Coping Together Virtual Family Intervention: Exploring Changes in Family Functioning and Individual Well-Being

Amygdala Volume is Associated with ADHD Risk and Severity Beyond Comorbidities in Adolescents: Clinical Testing of Brain Chart Reference Standards

Relations Between Neighborhood Disadvantage and Electrocortical Reward Processing in Youth at High and Low Risk for Depression

Autistic and Non-autistic Children’s Pain Perception is Modulated by Their First-Hand Pain Sensitivity and Theory of Mind

Psychological Factors Associated with Functional Tic-like Behaviours during the COVID-19 Pandemic

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Why Should I? Examining How Childhood Callous-Unemotional Traits Relate to Prosocial and Affiliative Behaviors and Motivations

A Pilot Study of the Coping Together Virtual Family Intervention: Exploring Changes in Family Functioning and Individual Well-Being

Amygdala Volume is Associated with ADHD Risk and Severity Beyond Comorbidities in Adolescents: Clinical Testing of Brain Chart Reference Standards

Relations Between Neighborhood Disadvantage and Electrocortical Reward Processing in Youth at High and Low Risk for Depression

Autistic and Non-autistic Children’s Pain Perception is Modulated by Their First-Hand Pain Sensitivity and Theory of Mind

Psychological Factors Associated with Functional Tic-like Behaviours during the COVID-19 Pandemic