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07-08-2021 | Original Paper

Pilot Evaluation of a Facebook Group Self-Care Intervention for Primary Caregivers of Children with Developmental Disabilities

Auteurs: Emily A. Iovino, Sandra M. Chafouleas, Lisa M. H. Sanetti, Nicholas Gelbar

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 10/2021

Abstract

The current exploratory study sought to develop and pilot a Facebook-delivered health-promoting self-care intervention for caregivers of children with developmental disabilities (DD). Survey and focus group methods were used to gain information about the participation of caregivers of children with DD in existing Facebook support groups and their experiences related to stress, self-care, and social support that would aid in intervention development. Results were used in concert with existing guidance to determine the content and targets of the intervention. Caregivers were recruited to participate in a Facebook group-delivered intervention focused on broad areas of self-care including physical health, psychological health, social health, and work health. The Facebook group-delivered intervention, designed to target these identified areas using social support, was piloted over an 8-week period with caregivers of children with DD. Across all variables, differences from pretest to posttest were statistically significant, with small to large effect sizes.

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Acton, G. J. (2002). Health-promoting self-care in family caregivers. Western Journal of Nursing Research, 24(1), 73–86. https://doi.org/10.1177/01939450222045716. CrossRefPubMed

Auxier, B., & Anderson, M. (2021). Social media use in 2021. Pew Research Center. https://www.pewresearch.org/internet/2021/04/07/social-media-use-in-2021/.

Baker-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204. https://doi.org/10.2511/rpsd.30.4.194. CrossRef

Brehaut, J. C., Kohen, D. R., Raina, P., Walter, S. D., Russell, D. J., & Swinton, M., et al. (2004). The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers? Pediatrics, 114(2), e182–e191. https://doi.org/10.1542/peds.114.2.e182. CrossRefPubMed

Caldwell, J.(2008). Health and access to health care of female family caregivers of adults with developmental disabilities. Journal of Disability Policy Studies, 19(2), 68–79. https://doi.org/10.1177/1044207308316093. CrossRef

Cantwell, J., Muldoon, O. T., & Gallagher, S. (2014). Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 35, 2215–2223. https://doi.org/10.1016/j.ridd.2014.05.012. CrossRefPubMed

Carroll, D. W. (2013). Families of children with developmental disabilities: Understanding stress and opportunities for growth. American Psychological Association.

Centers for Disease Control and Prevention (CDC). (2018). Facts about developmental disabilities. https://www.cdc.gov/ncbddd/developmentaldisabilities/facts.html#ref.

Chafouleas, S. M., Iovino, E. A., & Koriakin, T. A. (2020). Caregivers of children with developmental disabilities: Exploring perceptions of health-promoting self-care. Journal of Developmental and Physical Disabilities, 32(6), 893–913. https://doi.org/10.1007/s10882-019-09724-x. CrossRef

Chafouleas, S. M., Miller, F. G., Briesch, A. M., Neugebauer, S. R., & Riley-Tillman, T. C. (2011). Usage Rating Profile - Intervention (Revised). University of Connecticut.

Cohen, J. (1988). Statistical power analysis for the behavioral sciences. 2nd ed. Routledge.

Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24(4), 385–396. https://doi.org/10.2307/2136404. CrossRefPubMed

Cole, L., Kharwa, Y., Khumalo, N., Reinke, J. S., & Karrim, S. B. S. (2017). Caregivers of school-aged children with autism: Social media as a source of support. Journal of Child and Family Studies, 26(12), 3464–3475. https://doi.org/10.1007/s10826-017-0855-9. CrossRef

Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52. https://doi.org/10.1023/A:1026592305436. CrossRefPubMed

Family Caregiver Alliance. (2012). Selected caregiver assessment measures: A resource inventory for practitioners (2nd ed.). https://www.carealliance.ie/userfiles/file/SelCGAssmtMeas_ResInv_FINAL_12_10_12.pdf.

Frantz, R., Hansen, S. G., & Machalicek, W. (2018). Interventions to promote well-being in parents of children with autism: A systematic review. Review Journal of Autism and Developmental Disorders, 5(1), 58–77. https://doi.org/10.1007/s40489-017-0123-3. CrossRef

Freedman, B. H., Kalb, L. G., Zablotsky, B., & Stuart, E. A. (2012). Relationship status among parents of children with autism spectrum disorders: A population-based study. Journal of Autism and Developmental Disorders, 42(4), 539–548. https://doi.org/10.1007/s10803-011-1269-y. CrossRefPubMed

Gallagher, S., & Whiteley, J. (2012). Social support is associated with blood pressure responses in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 33(6), 2099–2105. https://doi.org/10.1016/j.ridd.2012.06.007. CrossRefPubMed

Gammon, E. A., & Rose, S. D. (1991). The Coping Skills Training Program for parents of children with developmental disabilities: An experimental evaluation. Research on Social Work Practice, 1(3), 244–256. https://doi.org/10.1177/104973159100100302. CrossRef

Gerber, K. (2014). Exploring the value of a Facebook support group for parents of children with autism. http://scholar.sun.ac.za/bitstream/handle/10019.1/86270/gerber_exploring_2014.pdf?sequence=1&isAllowed=y.

Goudie, A., Nacisse, M., Hall, D. E., & Kuo, D. Z. (2014). Financial and psychological stressors associated with caring for children with disability. Family, Systems, & Health, 32(3), 280–290. https://doi.org/10.1037/fsh0000027. CrossRef

Griffiths, K. M., Reynolds, J., & Vassallo, S. (2015). An online, moderated peer-to-peer support bulletin board for depression: User-perceived advantages and disadvantages. JMIR Mental Health, 2(2), e14. https://doi.org/10.2196/mental.4266. CrossRefPubMedPubMedCentral

Hall, H. R., & Graff, J. C. (2012). Maladaptive behaviors of children with autism: Parent support, stress, and coping. Issues in Contemporary Pediatric Nursing, 35(3-4), 194–214. https://doi.org/10.3109/01460862.2012.734210. CrossRef

Iacob, C. I., Avram, E., Cojocaru, D., & Podina, I. (2020). Resilience in familial caregivers of children with developmental disabilities: A meta-analysis. Journal of Autism and Developmental Disorders, 50(11), 4053–4068. https://doi.org/10.1007/s10803-020-04473-9. CrossRefPubMed

Iadarola, S., Perez-Ramos, J., Smith, T., & Dozler, A. (2019). Understanding stress in parents of children with autism spectrum disorder: A focus on under-represented families. International Journal of Developmental Disabilities, 65(1), 20–30. https://doi.org/10.1080/20473869.2017.1347228. CrossRefPubMed

Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child Family Psychological Review, 15(3), 247–277. https://doi.org/10.1007/s10567-012-0119-6. CrossRef

Kyzar, K. B., Turnbull, A. P., Summers, J. A., & Gomez, V. A. (2012). The relationship of family support to family outcomes: A synthesis of key findings from research on severe disability. Research and Practice for Persons with Severe Disabilities, 37(1), 31–44. https://doi.org/10.2511/027494812800903247. CrossRef

Laranjo, L., Arguel, A., Neves, A. L., Gallagher, A. M., Kaplan, R., Mortimer, N., Mendes, G. A., & Lau, A. Y. S. (2014). The influence of social networking sites on health behavior change: A systematic review and meta-analysis. Journal of the American Medical Informatics Association, 22(1), 243–256. https://doi.org/10.1136/amiajnl-2014-002841. CrossRefPubMedPubMedCentral

Lindo, E. J., Kliemann, K. R., Combes, B. H., & Frank, J. (2016). Managing stress levels of parents of children with developmental disabilities: A meta-analytic review of interventions. Family Relations, 65(1), 207–224. https://doi.org/10.1111/fare.12185. CrossRef

Ling, J., Robbins, K. B., Zhang, N., Kerver, J. M., Lyons, H., Wieber, N., & Zhang, M. (2018). Using Facebook in a healthy lifestyle intervention: Feasibility and preliminary efficacy. Western Journal of Nursing Research, 40(12), 1818–1842. https://doi.org/10.1177/0193945918756870. CrossRefPubMed

Lovell, B., Moss, M., & Wetherell, M. A. (2012). With a little help from my friends: Psychological, endocrine and health corollaries of social support in parental caregivers of children with autism or ADHD. Research in Developmental Disabilities, 33(2), 682–687. https://doi.org/10.1016/j.ridd.2011.11.014. CrossRefPubMed

McManus, B. M., Carle, A., Acevedo-Garcia, D., Ganz, M., Hauser-Cram, P., & McCormick, M. (2011). Modeling the social determinants of caregiver burden among families of children with developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 116(3), 246–260. https://doi.org/10.1352/1944-7558-116.3.246. CrossRefPubMed

Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2006). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187. https://doi.org/10.1111/j.1365-2214.2006.00644.x. CrossRef

Musil, C. M., Zauszniewski, J. A., Burant, C. J., Toly, V. B., & Warner, C. B. (2015). Evaluating an online resourcefulness training intervention pilot test using six critical parameters. The International Journal of Aging and Human Development, 82(1), 117–135. https://doi.org/10.1177/0091415015623552. CrossRefPubMed

Naslund, J. A., Aschbrenner, K. A., Marsch, L. A., McHugo, G. J., & Bartels, S. J. (2018). Facebook for supporting a lifestyle intervention for people with major depressive disorder, bipolar disorder, and schizophrenia: An exploratory study. Psychiatric Quarterly, 89(1), 81–94. https://doi.org/10.1007/s11126-017-9512-0. CrossRef

National Alliance for Caregiving and AARP. (2009). Caregivers of children: A focused look at those caring for a child with special needs under the age of 18. http://www.caregiving.org/pdf/research/Report_Caregivers_of_Children_11-12-09.pdf.

Niela-Vilen, H., Axelin, A., Salantera, S., & Melender, H. (2014). Internet-based peer support for parents: A systematic integrative review. International Journal of Nursing Studies, 51(11), 1524–1537. https://doi.org/10.1016/j.ijnurstu.2014.06.009. CrossRefPubMed

Pagoto, S., Waring, M. E., May, C. N., Ding, E. Y., Kunz, W. H., Hayes, R., & Oleski, J. L. (2016). Adapting behavioral interventions for social media delivery. Journal of Medical Internet Research, 18(1), e24. https://doi.org/10.2196/jmir.5086. CrossRefPubMedPubMedCentral

Parish, S. S., Rose, R. A., Swaine, J. G., Dababnah, S., & Mayra, E. T. (2012). Financial well-being of single, working-age mothers of children with developmental disabilities. American Journal on Intellectual & Developmental Disabilities, 117(5), 400–412. https://doi.org/10.1352/1944-7558-117.5.400. CrossRef

Parker Oliver, D., Washington, K., Wittenberg-Lyles, E., Gage, A., Mooney, M., & Demiris, G. (2015). Lessons learned from a secret Facebook support group. Health & Social Work, 40(2), 125–133. https://doi.org/10.1093/hsw/hlv007. CrossRef

Pender, N. J., Murdaugh, C. L., & Parsons, M. (2015). Health promotion in nursing practice (7th ed.). Pearson.

Perkins, E. A., & LaMartin, K. M. (2012). The internet as social support for older carers of adults with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 9(1), 53–62. https://doi.org/10.1111/j.1741-1130.2012.00330.x. CrossRef

Pinquart, M. (2018). Parenting stress in caregivers of children with chronic physical condition: A meta-analysis. Stress and Health, 34(2), 197–207. https://doi.org/10.1002/smi.2780. CrossRefPubMed

Plant, K. M., & Sanders, M. R. (2007). Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research, 51(2), 109–124. https://doi.org/10.1111/j.1365-2788.2006.00829.x. CrossRefPubMed

Quinn, A., Briggs, H. E., Miller, K. M., & Orellana, E. R. (2013). Social and familial determinants of health: Mediating effects of caregiver mental and physical health on children’s mental health. Children and Youth Services Review, 36, 163–169. https://doi.org/10.1016/j.childyouth.2013.11.016. CrossRef

Resch, J. A., Mireles, G., Benz, M. R., Grenwelge, C., Peterson, R., & Zhang, D. (2010). Giving parents a voice: A qualitative study of the challenges experienced by parents of children with disabilities. Rehabilitation Psychology, 55(2), 139–150. https://doi.org/10.1037/a0019473. CrossRefPubMed

Robison, J., Fortinsky, R., Kleppinger, A., Shugrue, N., & Porter, M. (2009). A broader view of family caregiving: Effects of caregiving and caregiver conditions on depressive symptoms, health, work, and social isolation. Journal of Gerontology: Series B, 64B(6), 788–798. https://doi.org/10.1093/geronb/gbp015. CrossRef

Samuelson, M., Foret, M., Baim, M., Lerner, J., Fricchione, G., Benson, H., Dusek, J., & Yeung, A. (2010). Exploring the effectiveness of a comprehensive mind-body intervention for medical symptom relief. The Journal of Alternative and Complementary Medicine, 16(2), 187–192. https://doi.org/10.1089/acm.2009.0142. CrossRefPubMed

Schulz, R., & Sherwood, P. R. (2008). Physical and mental health effects of family caregiving. American Journal of Nursing, 108(9), 23–27. https://doi.org/10.1097/01.NAJ.0000336406.45248.4c. CrossRef

Skok, A., Harvey, D., & Reddihough, D. (2006). Perceived stress, perceived social support, and wellbeing among mothers of school-aged children with cerebral palsy. Journal of Intellectual & Developmental Disability, 31(1), 53–57. https://doi.org/10.1080/13668250600561929. CrossRef

Smith, T. B., Oliver, M. N. I., & Innocenti, M. S. (2001). Parenting stress in families of children with disabilities. American Journal of Orthopsychiatry, 71(2), 257–261. https://doi.org/10.1037/0002-9432.71.2.257. CrossRef

Trute, B., Benzies, K. M., Worthington, C., Reddon, J. R., & Moore, M. (2010). Accentuate the positive to mitigate the negative: Mother psychological coping resources and family adjustment in childhood disability. Journal of Intellectual & Developmental Disability, 35(1), 36–43. https://doi.org/10.3109/13668250903496328. CrossRef

Turnbull, A., Turnbull, H. R., Erwin, E. J., Soodak, L. C., & Shogren, K. A. (2015). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust (7th ed.). Pearson.

Valle, C. G., Tate, D. R., Mayer, D. K., Allicock, M., & Cai, J. (2013). A randomized trial of a Facebook-based physical activity intervention for young adult cancer survivors. Journal of Cancer Survivorship, 7(3), 355–368. https://doi.org/10.1007/s11764-013-0279-5. CrossRefPubMedPubMedCentral

Walker, S. N., Sechrist, K. R., & Pender, N. J. (1987). The health-promoting lifestyle profile: Development and psychometric characteristics. Nursing Research, 36, 76–81. https://doi.org/10.1097/00006199-198703000-00002. CrossRefPubMed

Walker, S. N., Volkan, K., Sechrist, K. R., & Pender, N. J. (1988). Health-promoting life styles of older adults: Comparisons with young and middle-aged adults, correlates and patterns. Advances in Nursing Science, 11(1), 76–90. https://doi.org/10.1097/00012272-198810000-00008. CrossRefPubMed

Walker, S. N., Sechrist, K. R., & Pender, N. J. (1995). Health promoting lifestyle profile II. University of Nebraska Medical Center.

Titel: Pilot Evaluation of a Facebook Group Self-Care Intervention for Primary Caregivers of Children with Developmental Disabilities
Auteurs: Emily A. Iovino
Sandra M. Chafouleas
Lisa M. H. Sanetti
Nicholas Gelbar
Publicatiedatum: 07-08-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Child and Family Studies / Uitgave 10/2021
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI: https://doi.org/10.1007/s10826-021-02047-6

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