Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften E-learning Web-tv Video Audio
Tips voor Mijn BSL
UITGEBREID ZOEKEN
Inloggen
Top
Quality of Life Research
Gepubliceerd in: Quality of Life Research 7/2013

01-09-2013

Philosophical perspectives on response shift

Auteurs: Leah McClimans, Jerome Bickenbach, Marjan Westerman, Licia Carlson, David Wasserman, Carolyn Schwartz

Gepubliceerd in: Quality of Life Research | Uitgave 7/2013

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

Purpose

This paper brings a philosophical perspective to response shift research with the aim of raising new critical questions, clarifying some of the concepts employed, and providing a philosophical context within which to critically examine the assumptions that shape the field.

Methods

This critical analysis aims to reveal assumptions and clarify concepts and/or definitions that undergird methodological practice and theory.

Results

We bring attention to the distinction of weak and strong evaluations, and the implications and consequences for construct validity and for designing patient-reported outcome measures (PROMs). We then consider the epistemology of PROMs, suggesting that they are better suited to a social constructivist approach than a scientific realist one. Finally, we examine the relationship between disability and response shift, arguing that in at least some cases, response shifts should not be understood as ‘measurement bias’.

Conclusion

Our analysis reveals various concerns and further questions related to the role that substantive values play in the assessment of QoL. It also draws response shift into a wider arena, with broader issues of interpretation, self-evaluation, the meaning of the ‘good life’, and the status and legitimacy we accord to various scientific methods.
vorige artikel Psychometric characteristics of daily diaries for the Patient-Reported Outcomes Measurement Information System (PROMIS®): a preliminary investigation
volgende artikel Pitfalls in the interpretation of standardised quality of life instruments for individual patients? A qualitative study in colorectal cancer
Literatuur
1.
Gadamer, G. -H. (1996). On the enigmatic character of health. In G.-H. Gadamer (Ed.), The enigma of health (trans: Gaiger, J., Walker, N.) (pp. 103–116). Stanford: Stanford University Press.
2.
Westerman, M. J., Hak, T., Sprangers, M. A., Groen, H. J., van der Wal, G., & The, A. M. (2008). Listen to their answers! Response behaviour in the measurement of physical and role functioning. Quality of Life Research, 17(4), 549–558.PubMedCrossRef
3.
Schwartz, C. E., & Sprangers, M. A. G. (1999). Methodological approaches for assessing response shift in longitudinal quality of life research. Social Science and Medicine, 48(11), 1531–1548.PubMedCrossRef
4.
Taylor, C. (1985). What is human agency? In C. Taylor (Ed.), Human agency and language philosophical papers I (pp. 15–44). Cambridge: Cambridge University Press.CrossRef
5.
Rokeach, M. (1973). The nature of human values. New York: Free Press.
6.
Kolhberg, L. (1981). The philosophy of moral development: Moral stages and the idea of justice (Essays on Moral Development Volume 1). New York: Harper & Row.
7.
Calman, K. C. (2004). Evolutionary ethics: can values change. Journal of Medical Ethics, 30(4), 366–370.PubMedCrossRef
8.
Kahneman, D. (2011). Thinking, fast and slow. New York: Farrar, Straus and Giroux.
9.
Barofsky, I. (2012). Quality: Its definition and measurement as applied to the medically ill. New York: Springer.
10.
McClimans, L. (2011). Interpretability, validity, and the minimum important difference. Theoretical Medicine and Bioethics, 32(6), 389–401.PubMedCrossRef
11.
Edgar, A. (1995). Weighting health states and strong evaluation. Bioethics, 9(3), 244–246.CrossRef
12.
Streiner, D. L., & Norman, G. R. (2003). Health measurement scales a practical guide to their development and use (3rd ed.). Oxford: Oxford University Press.
13.
Mallinson, S. (2002). Listening to respondents: A qualitative assessment of the short-form 36 health status questionnaire. Social Science and Medicine, 54(1), 11–21.PubMedCrossRef
14.
McClimans, L. (2010). A theoretical framework for patient-reported outcome measures. Theoretical Medicine and Bioethics, 31(3), 225–240.PubMedCrossRef
15.
Ogden, J. (2002). Health and the construction of the individual. East Sussex: Routledge.
16.
Latour, B. (1987). Science in action: How to follow scientists and engineers through society. Cambridge: Harvard University Press.
17.
Westerman, M. J., Sprangers, M. A., Groen, H. J., van der Wal, G., & Hak, T. (2007). Small-cell lung cancer patients are just ‘a little bit’ tired. Response shift and self-presentation in the measurement of fatigue. Quality of Life Research, 16(5), 853–861.PubMedCrossRef
18.
Goffman, E. (1959). The presentation of self in everyday life. New York: Anchor Books.
19.
World Health Organization. (2001). The international classification of functioning, disability and health (ICF). Geneva: WHO.
20.
Schwartz, C. E., Andresen, E. M., Nosek, M. A., & Krahn, G. L. (2007). Response shift theory: Important implications for measuring quality of life in people with disability. Archive of Physical Medicine and Rehabilitation, 88(4), 529–536.CrossRef
21.
Sprangers, M. A. G., & Schwartz, C. E. (1999). Integrating response shift into health-related quality-of-life research: A theoretical model. Social Science and Medicine, 48(11), 1507–1515.PubMedCrossRef
22.
Amundson, R. (2010). Quality of life, disability, and hedonic psychology. Journal for the Theory of Social Behaviour, 40(4), 374–392.CrossRef
23.
Oort, F., Mechteld, J., Visser, R. M., & Sprangers, M. A. G. (2009). Formal definitions of measurement bias and explanation bias clarify measurement and conceptual perspectives on response shift. Journal of Clinical Epidemiology, 62(11), 1126–1137.PubMedCrossRef
24.
25.
Van Fraassen, B. (2008). Scientific representation. Oxford: Oxford University Press.CrossRef
26.
Ubel, P. A., Peeters, Y., & Smith, D. (2010). Abandoning the language of ‘‘response shift’’: A plea for conceptual clarity in distinguishing scale recalibration from true changes in quality of life. Quality of Life Research, 19(4), 465–471.PubMedCrossRef
27.
Sprangers, M. A. G., & Schwartz, C. E. (2010). Do not throw the baby out with the bath water: Build on current approaches to realize conceptual clarity. Response to Ubel, Peeters, and Smith. Quality of Life Research, 19(4), 477–479.PubMedCrossRef
Metagegevens
Titel
Philosophical perspectives on response shift
Auteurs
Leah McClimans
Jerome Bickenbach
Marjan Westerman
Licia Carlson
David Wasserman
Carolyn Schwartz
Publicatiedatum
01-09-2013
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 7/2013
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-012-0300-x

Andere artikelen Uitgave 7/2013

Quality of Life Research 7/2013 Naar de uitgave

Erratum

Erratum to: A systematic review of outcomes of chronic disease self-management interventions

Review

Systematic review reveals limitations of studies evaluating health-related quality of life after potentially curative treatment for esophageal cancer

OriginalPaper

An investigation of the construct validity of the ICECAP-A capability measure

OriginalPaper

Intergenerational educational mobility on general mental health and depressive symptoms in young women

OriginalPaper

Pitfalls in the interpretation of standardised quality of life instruments for individual patients? A qualitative study in colorectal cancer

OriginalPaper

The association of responsiveness in oral and general health-related quality of life with patients’ satisfaction of new complete dentures