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Quality of Life Research
Gepubliceerd in: Quality of Life Research 9/2016

01-09-2016 | Brief Communication

Phase 1 in the development of a patient-reported measure to quantify perceived inconvenience of radiotherapy: generation of issues

Auteurs: P. Sundaresan, C. G. Milross, M. R. Stockler, D. S. J. Costa, M. T. King

Gepubliceerd in: Quality of Life Research | Uitgave 9/2016

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Abstract

Aims

Current patient-reported measures (PROMs) do not specifically address radiotherapy (RT) related inconvenience. We conducted, as per guidelines of the European Organization for Research and Treatment of Cancer (EORTC), the initial (issue generation) phase of development of a RT inconvenience PROM. Specifically, we aimed to develop a conceptual framework for RT inconvenience and generate a comprehensive list of issues pertaining to it.

Methods

We reviewed existing PROMs and literature and gathered qualitative and quantitative data from consumers and health professionals, in order to generate a comprehensive list of issues pertaining to RT inconvenience. A framework for the consideration of RT inconvenience was defined and used to ensure all possible issues were explored and to list the issues into conceptual domains.

Results

Qualitative data from 26 consumers and 30 health professionals, and quantitative data from 1191 consumers and 253 health professionals resulted in the identification of 38 issues grouped into five conceptual domains: (1) inconvenience of RT opportunity, (2) inconvenience of decision-making, (3) inconvenience of treatment, (4) inconvenience of side effects, and (5) inconvenience of follow-up.

Conclusions

This list of RT inconvenience issues will, in future work, be operationalized into a set of items for pretesting and then large-scale field testing as per the EORTC guidelines.
vorige artikel Validation of the psychometrics properties of a French quality of life questionnaire among a cohort of renal transplant recipients less than one year
volgende artikel The European Portuguese WHOQOL-OLD module and the new facet Family/Family life: reliability and validity studies
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Sundaresan, P., Stockler, M., & Milross, C. (2015). What is access to radiation therapy (RT)? A conceptual frame work and review of influencing factors. Australian Health Review. doi:10.​1071/​AH14262.
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Sundaresan, P., King, M. T., Stockler, M. R., Costa, D. S. J., & Milross, C. G. (2015). Barriers to radiotherapy utilisation in New South Wales Australia: Health professionals’ perceptions of impacting factors. Journal of Medical Imaging and Radiation Oncology, 59(4), 535–541.CrossRefPubMed
Metagegevens
Titel
Phase 1 in the development of a patient-reported measure to quantify perceived inconvenience of radiotherapy: generation of issues
Auteurs
P. Sundaresan
C. G. Milross
M. R. Stockler
D. S. J. Costa
M. T. King
Publicatiedatum
01-09-2016
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 9/2016
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-016-1265-y

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