Top

Journal of Autism and Developmental Disorders

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in:

26-10-2018 | Original Paper

Personal Growth Experiences of Parents to Children with Autism Spectrum Disorder

Auteurs: Einat Waizbard-Bartov, Maya Yehonatan-Schori, Ofer Golan

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2019

Abstract

Experiences of parenting a child with Autism Spectrum Disorder (ASD) have mostly been studied in relation to hardship. The current study explored personal growth experiences of Israeli parents to children with ASD, specifically in relation to Tedeschi and Calhoun’s crisis-related growth model. Nineteen parents were interviewed, and qualitative categorical content analysis was performed. Four major growth themes emerged: Empowerment and personal strength, Existential perspective/spiritual-emotional experience, Interpersonal and Expertise, professional or political involvement. Themes were largely consistent with the crisis-related growth model, with some being unique to the current subject of inquiry. Findings indicated growth might occur differently in different cultures. Clinically, with some parents, the focus regarding the parenting of their child with ASD should be shifted from adjustment to growth.

vorige artikel Editorial: 2018 in Review

volgende artikel Sex Differences in Social Attention in Infants at Risk for Autism

Alleen toegankelijk voor geautoriseerde gebruikers

Aldwin, C., & Levenson, M. (2004). Posttraumatic growth: A developmental perspective. Psychological Inquiry, 15(1), 19–22. CrossRef

Altiere, M. J., & Kluge, S. (2009). Family functioning and coping behaviors in parents of children with Autism. Journal of Child and Family studies, 18, 83–92. CrossRef

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5). Washington, DC: American Psychiatric Association. CrossRef

Barnett, D., Clements, M., Kaplan-Estrin, M., McCaskili, J. W., Hill Hunt, K., Butler, C. M., et al. (2006). Maternal resolution of child diagnosis: Stability and relations with child attachment across the toddler to preschooler transition. Journal of Family Psychology, 20, 100–107. CrossRefPubMed

Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51, 702–714. CrossRefPubMed

Benson, P. R. (2010). Coping, distress, and well being in mothers of children with autism. Research in Autism Spectrum Disorders, 4, 217–228. CrossRef

Benson, P. R. (2014). Coping and psychological adjustment among mothers of children with ASD: An accelerated longitudinal study. Journal of Autism and Developmental Disorders, 44(8), 1793–1807. CrossRefPubMed

Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavior disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50, 184–198. CrossRefPubMed

Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child & Family Behavior Therapy, 28(1), 1–18. CrossRef

Bowlby, J. (1980). Attachment and loss: Vol. 3. Loss: Sadness and depression. New York: Basic Books.

Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with Autism spectrum disorders: The couple’s relationship. Focus on Autism and Other Developmental Disabilities, 24, 38–49. CrossRef

Casey, L. B., Zanksas, S., Meindl, J. N., Parra, G. R., Cogdal, P., et al. (2012). Parental symptoms of posttraumatic stress following a child’s diagnosis of autism spectrum disorder: A pilot study. Research in Autism Spectrum Disorders, 6(3), 1186–1193. CrossRef

Crane, L., Chester, J. W., Goddard, L., Henry, L. A., & Hill, E. L. (2016). Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom. Autism, 20(2), 153–162. CrossRefPubMed

Dabrowska, A., & Pisula, A. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and down syndrome. Journal of Intellectual Disability Research, 54, 266–280. CrossRefPubMed

Daire, A. P., Munyon, M. D., Carlson, R. G., Kimemia, M., & Mitcham, M. (2011). Examining distress of parents of children with and without special needs. Journal of Mental Health Counseling, 33(2), 177–188. CrossRef

Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behavior problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671. CrossRefPubMed

Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(14), 375–387. CrossRefPubMed

Fleischmann, A. (2005). The hero’s story and autism: Grounded theory study of websites for parents of children with autism. Autism, 9(3), 299–316. CrossRefPubMed

Friese, S. (2014). Qualitative data analysis with ATLAS. ti. London: Sage.

Frith, U. (2003). Autism: Explaining the Enigma (2nd edn.). London: Blackwell.

Garcia-Lopez, C., Sarria, E., Pozo., P., & Recio, P. (2016). Supportive Dyadic and psychological adaptation in couples parenting with autism spectrum disorder: The role of relationship satisfaction. Journal of Autism and Developmental Disorders, 46, 3434–3447. CrossRefPubMed

Gombosi, P. G. (1998). Parents of autistic children: Some thoughts about trauma, dislocation and tragedy. The Psychoanalytic Study of the Child, 53, 254–275. CrossRefPubMed

Gray, D. E. (1994). Coping with autism: Stresses and strategies. Sociology of Health and Illness, 16, 275–300. CrossRef

Gray, D. E. (1998). Autism and the family: Problems, prospects and coping with the disorder. Springfield, IL: Thomas.

Gray, D. E. (2001). Accommodation, resistance and transcendence: Three narratives of autism. Social Science & Medicine, 53, 1247–1257. CrossRef

Gray, D. E. (2002). Ten years on: a longitudinal study of families of children with autism. Journal of Intellectual & Developmental Disability, 27(3), 215–222. CrossRef

Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science & Medicine, 56, 631–642. CrossRef

Hannon, M. D., & Hannon, L. C. (2017). Fathers’ orientation to their children’s autism diagnosis: A grounded theory study. Journal of Autism and Developmental Disorders, 47, 2265–2274. CrossRefPubMed

Howlin, P. (2004). Autism and asperger syndrome: Preparing for Adulthood (2nd edn.). Abingdon: Routledge. CrossRef

Huang, M., & Zhou, Z. (2016). Perceived self-efficacy, cultural values, and coping styles among Chinese families of children with Autism. International Journal of School & Educational Psychology, 4(2), 61–70. CrossRef

Hughes, R. (1999). An Investigation of coping skills of parents of children with disabilities: Implications for service providers. Education and Training in Mental Retardation and Developmental Disabilities, 34(3), 271–280.

Huws, J. C., Jones, R. S. P., & Ingledew, D. K. (2001). Parents of children with autism using an email group: A grounded theory study. Journal of Health Psychology, 6, 569–584. CrossRefPubMed

Jones, L., Gold, E., Totsika, V., Hastings, R. P., Jones, M., Griffiths, A., & Silverstone, S. (2018). A mindfulness parent well-being course: Evaluation of outcomes for parents of children with autism and related disabilities recruited through special schools. European Journal of Special Needs Education, 33(1), 16–30. CrossRef

Joosten, A. V., & Safe, A. P. (2014). Management strategies of mothers of school-aged children with autism: Implications for practice. Australian Occupational Therapy Journal, 61(4), 249–258. CrossRefPubMed

Kasari, C., & Sigman, M. (1997). Linking parental perceptions to interactions in young children with autism. Journal of Autism and Developmental Disorders, 27, 39–57. CrossRefPubMed

Kheir, N., Ghoneim, O., & Sandridge, A. L., et al. (2012). Quality of life of caregivers of children with autism in Qatar. Autism, 16, 293–298. CrossRefPubMed

King, G. A., Baxter, D., Rosenbaum, P., Zwaigenbaum, L., & Bates, A. (2009). Belief systems of families of children with autism spectrum disorders or down syndrome. Focus on Autism and Other Developmental Disabilities, 24(1), 50–64. CrossRef

Klauber, T. (1999). The significance of trauma and other factors in work with the parents of children with autism. In A. Alvarez & S. Reid (Eds.), Autism and personality: Findings from the Tavistock Autism workshop (pp. 33–48). London: Routledge.

Lee, G. K. (2009). Parents of children with high functioning Autism: How well do they cope and adjust? Journal of Developmental and Physical Disabilities, 21, 93–114. CrossRef

Lieblich, A., Tuval-Mashiach, R., & Zilber, T. (1998). Narrative research. London: Sage. CrossRef

Lopez, B. (2015). Beyond modularisation: The Need of a socio-neuro- constructionist model of Autism. Journal of Autism and Developmental Disorders, 45(1), 31–41. CrossRefPubMed

Ludlow, A., Skelly, C., & Rohleder, P. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorders. Journal of Health Psychology, 17, 702–711. CrossRefPubMed

Marvin, R. S., & Pianta, R. C. (1996). Mother’s reactions to their child’s diagnosis: Relations with security of attachment. Journal of Clinical Child Psychology, 25, 436–445. CrossRef

Meichenbaum, D. (2006). Resilience and posttraumatic growth: A constructive narrative perspective. In L. G. Calhoun & R. G. Tedeschi (Eds.), Handbook of posttraumatic growth. New Jersey: Lawrence Erlbaum Associates.

Meirsschaut, M., Roeyers, H., & Warreyn, P. (2010). Parenting in families with a child with autism spectrum disorder and a typically developing child: Mothers’ experiences and cognitions. Research in Autism Spectrum Disorders, 4(4), 661–669. CrossRef

Midence, K., & O’Neill, M. (1999). The experience of parents in the diagnosis of autism: A pilot study. Autism, 3(3), 273–285. CrossRef

Minuchin, S. (1974). Families and family therapy. Cambridge, MA: Harvard University Press.

Myers, B. J., Mackintosh, V. H., & Goin-Kochel, R. P. (2009). “My greatest joy and my greatest heart ache”: Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives. Research in Autism Spectrum Disorders, 3, 670–684. CrossRef

Ooi, K. L., Ong, Y. S., Jacob, S. A., & Khan, T. M. (2016). A meta-synthesis on parenting a child with autism. Neuropsychiatric Disease and Treatment, 12, 745–762. PubMedPubMedCentral

Palinkas, L. A., Horwitz, S. M., Green, C. A., Wisdom, J. P., Duan, N., & Hoagwood, K. (2015). Purposeful sampling for qualitative data collection and analysis in mixed method implementation research. Administration and Policy in Mental Health, 42(5), 533–544. CrossRefPubMedPubMedCentral

Park, C., Cohen, L. H., & Murch, R. L. (1996). Assessment and prediction of stress-related growth. Journal of Personality, 64(1), 71–104. CrossRefPubMed

Park, C. L., & Lechner, S. C. (2006). Measurement issues in assessing growth following stressful life experiences. In L. G. Calhoun & R. G. Tedeschi (Eds.), Handbook of posttraumatic growth. New Jersey: Lawrence Erlbaum Associates.

Phelps, K. W., McCammon, S. L., Wuensch, K. L., & Golden, J. A. (2009). Enrichment, stress, and growth from parenting an individual with an autism spectrum disorder. Journal of Intellectual & Developmental Disability, 34(2), 133–141. CrossRef

Potter, C. A. (2017). “I Received a Leaflet and That Is All”: Father experiences of a diagnosis of autism. British Journal of Learning Disabilities, 45, 95–105. CrossRef

Powell, S., Rosner, R., Butollo, W., Tedeschi, R. G., & Calloun, L. G. (2003). Posttraumatic growth after war: A study of former refugees and displaced people in Sarajevo. Journal of Clinical Psychology, 59, 71–84. CrossRefPubMed

Ryan, S., & Runswick-Cole, K. (2008). From advocate to activist? Mapping the experiences of mothers of children on the autism spectrum. Journal of Applied Research in Intellectual Disabilities, 22(1), 43–53. CrossRef

Seligman, M., & Darling, R. B. (1989). Ordinary families, special children. New York: Guilford.

Shawler, P. M., & Sullivan, M. A. (2017). Parental Stress, Discipline Strategies, and Child Behavior Problems in Families with Young Children with Autism Spectrum Disorder. Focus on Autism and other Developmental Disabilities, 32(2), 142–151. CrossRef

Smith, L. E., Hong, J., Mailick Seltzer, M., Greenberg, J. S., Almeida, D. M., & Bishop, S. L. (2010). Daily experiences among mothers of adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 167–178. CrossRefPubMed

Solomon, A. H., & Chung, B. (2012). Understanding autism: How family therapists can support parents of children with autism spectrum disorders. Family process, 51(2), 250–264. CrossRefPubMed

Stern, D. N., Bruschweiler-Stern, N., & Freeland, A. (1998). The birth of a mother: how motherhood changes you forever. London: Bloomsbury.

Strauss, A., & Corbin, J. (1990). Basics of qualitative research- Grounded theory procedures and techniques. Riverside County: Sage publications.

Tait, K., Fung, F., Hu, A., Sweller, N. & Wang, W. (2016). Understanding Hong Kong Chinese families’ experiences of an autism/ASD diagnosis. Journal of Autism and Developmental Disorders, 46, 1164–1183. CrossRefPubMed

Tarakeshwar, N., & Pargament, K. I. (2001). Religious coping in families of children with autism. Focus on Autism & Other Developmental Disabilities, 16, 247–260. CrossRef

Tedeschi, R. G., & Calhoun, L. G. (1995). Trauma and transformation: Growing in the aftermath of suffering. Riverside County: Sage. CrossRef

Tedeschi, R. G., & Calhoun, L. G. (1996). The Posttraumatic growth inventory: Measuring the positive legacy of trauma. Journal of Traumatic Stress, 9, 455–471. CrossRefPubMed

Tedeschi, R. G., & Calhoun, L. G. (2004). Posttraumatic growth: Conceptual foundations and empirical evidence. Psychological Inquiry, 15(1), 1–18. CrossRef

Tedeschi, R. G., & Calhoun, L. G. (2006). The foundations of posttraumatic growth: An expanded framework. In L. G. Calhoun & R. G. Tedeschi (Eds.), Handbook of posttraumatic growth. New Jersey: Lawrence Erlbaum Associates.

Tunali, B., & Power, T. G. (2002). Coping by redefinition: Cognitive appraisals in mothers of children with autism and children without autism. Journal of Autism and Developmental Disorders, 32(1), 25–34. CrossRefPubMed

Wang, Q. (2016). Why should we all be cultural psychologists? Lessons from the study of social cognition. Perspectives on Psychological Science, 11, 583–596. CrossRefPubMedPubMedCentral

Zhang, W., Yan, T. T., Barriball, L. K., While, A. E., & Liu, X. H. (2015). Post-traumatic growth in mothers of children with autism: A phenomenological study. Autism, 19(1), 29–37. CrossRefPubMed

Zhang, W., Yan, T. T., Du, Y. S., & Liu, X. H. (2014). Brief report: Effects of solution-focused brief therapy group-work on promoting post-traumatic growth of mothers who have a child with ASD. Journal of Autism and Developmental Disorders, 44(8), 2052–2056. CrossRefPubMed

Titel: Personal Growth Experiences of Parents to Children with Autism Spectrum Disorder
Auteurs: Einat Waizbard-Bartov
Maya Yehonatan-Schori
Ofer Golan
Publicatiedatum: 26-10-2018
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2019
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-018-3784-6

Bohn Stafleu van Loghum

Tip

Swipe om te navigeren naar een ander artikel

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 4/2019

When Are We Sure? Predictors of Clinician Certainty in the Diagnosis of Autism Spectrum Disorder

Editorial: 2018 in Review

Recent Advances and New Directions in Measuring Theory of Mind in Autistic Adults

Autism Spectrum Disorder: Incidence and Time Trends Over Two Decades in a Population-Based Birth Cohort

Autism Spectrum Disorder Decision Tree Subgroups Predict Adaptive Behavior and Autism Severity Trajectories in Children with ASD

Comparison of Online and Face-to-Face Parent Education for Children with Autism and Sleep Problems