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Journal of Autism and Developmental Disorders

Gepubliceerd in:

22-10-2020 | Original Paper

Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis

Auteurs: Janessa Manning, Joseph Billian, Jill Matson, Colleen Allen, Neelkamal Soares

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2021

Abstract

Caring for an individual with autism spectrum disorder (ASD) in ideal circumstances can be stressful, and the Coronavirus disease (COVID-19) pandemic created a high degree of disruption to life and stress to families living with an individual with ASD. We conducted an online survey of families in Michigan that revealed higher levels of stress in caregivers of younger individuals with ASD and those with greater severity of ASD symptoms. Stress around therapeutic service disruption, finances, and illness predominated and greater stress was reported for caregivers of individuals receiving greater intensity of services pre-COVID-19. Respondents voiced concerns about receiving respite care during COVID-19, and those expressing interest in respite also reported greater symptom severity in the person with ASD.

vorige artikel Pupillary Responses Obey Emmert’s Law and Co-vary with Autistic Traits

volgende artikel Temporal Coordination and Prosodic Structure in Autism Spectrum Disorder: Timing Across Speech and Non-speech Motor Domains

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American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5). Arlington, VA: American Psychiatric Pub.CrossRef

Autism Alliance of Michigan. 2020. MiNavigator Program. Retrieved June 12, 2020, from https://autismallianceofmichigan.org/project/minavigator/

Bonis, S. (2016). Stress and parents of children with autism: a review of literature. Issues in Mental Health Nursing, 37(3), 153–163.CrossRefPubMed

Colizzi, M., Sironi, E., Antonini, F., Ciceri, M. L., Bovo, C., & Zoccante, L. (2020). Psychosocial and behavioral impact of COVID-19 in autism spectrum disorder: an online parent survey. Brain Sciences, 10(6), 341.CrossRefPubMedPubMedCentral

COVID-19 Addendum to Motherly’s 2019 State of Motherhood survey. (2020). www.motherly.com

Fitzgerald, M., Birkbeck, G., & Matthews, P. (2002). Maternal burden in families with children with autistic spectrum disorder. Irish Journal of Psychological Medicine, 33(1), 2–17.

Hall, H. R., & Graff, J. C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34(1), 4–25.CrossRefPubMed

Harper, A., Dyches, T. T., Harper, J., Roper, S. O., & South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(11), 2604–2616.CrossRefPubMed

Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.CrossRefPubMed

Hume, K., Waters, V., Sam, A., Steinbrenner, J., Perkins, Y., Dees, B., & et al. (2020). Supporting individuals with autism through uncertain times. https://sacramentoabatherapy.com/supporting-individuals-with-autism-through-uncertain-times/

Johns Hopkins University Center for Systems Science and Engineering. (2020). Coronavirus COVID-19 global cases. https://gisanddata.maps.arcgis.com/apps/opsdashboard/index.html#/bda7594740fd40299423467b48e9ecf6

Kenyon, C. (2020). Flattening-the-curve associated with reduced COVID-19 case fatality rates—an ecological analysis of 65 countries. Journal of Infection, 81(1), e98–e99.CrossRefPubMed

Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158.CrossRefPubMed

Krakovich, T. M., McGrew, J. H., Yu, Y., & Ruble, L. A. (2016). Stress in parents of children with autism spectrum disorder: an exploration of demands and resources. Journal of Autism and Developmental Disorders, 46(6), 2042–2053.CrossRefPubMed

Leigh-Hunt, N., Bagguley, D., Bash, K., Turner, V., Turnbull, S., Valtorta, N., & Caan, W. (2017). An overview of systematic reviews on the public health consequences of social isolation and loneliness. Public Health, 152, 157–171.CrossRefPubMed

Lindly, O. J., Chavez, A. E., & Zuckerman, K. E. (2016). Unmet health services needs among us children with developmental disabilities. Journal of Developmental & Behavioral Pediatrics, 37(9), 712–723.CrossRef

Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. T. (2007). Transition and change in adolescents and young adults with autism: longitudinal effects on maternal well-being. American Journal of Mental Retardation: AJMR, 112(6), 401–417.CrossRefPubMed

Maenner, M. J., Shaw, K. A., Baio, J., Washington, A., Patrick, M., DiRienzo, M., et al. (2020). Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR. Surveillance Summaries, 69(4), 1–12.CrossRefPubMedCentral

Michigan Autism Legislation PA 99 and PA 100, (2012). https://www.michigan.gov/autism/0,4848,7-294-63681---,00.html

Narzisi, A. (2020). Handle the autism spectrum condition during coronavirus (COVID-19) stay at home period: ten tips for helping parents and caregivers of young children. Brain Sciences, 10(4), 207.CrossRefPubMedPubMedCentral

Office of Governor Gretchen Whitmer. (2020). Executive Order No. 2020–21. https://www.michigan.gov/whitmer/0,9309,7-387-90499_90705-522626--00.html

Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620.CrossRefPubMed

Roth, B. M., Kralovic, S., Roizen, N. J., Spannagel, S. C., Minich, N., & Knapp, J. (2016). Impact of autism navigator on access to services. Journal of Developmental & Behavioral Pediatrics, 37(3), 188–195.CrossRef

The White House. (2020). Proclamation on declaring a national emergency concerning the novel coronavirus disease (COVID-19) outbreak. https://www.whitehouse.gov/presidential-actions/proclamation-declaring-national-emergency-concerning-novel-coronavirus-disease-covid-19-outbreak/

Tolbert, J., Hall, C., Orgera, K., Singer, N., Mengistu, S., & Tian, M. (2020). State Data and Policy Actions to Address Coronavirus. https://www.kff.org/coronavirus-covid-19/issue-brief/state-data-and-policy-actions-to-address-coronavirus/

Vohra, R., Madhavan, S., Sambamoorthi, U., & St Peter, C. (2014). Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism, 18(7), 815–826.CrossRefPubMed

Weiss, J. A., Wingsiong, A., & Lunsky, Y. (2014). Defining crisis in families of individuals with autism spectrum disorders. Autism, 18(8), 985–995.CrossRefPubMedPubMedCentral

Xie, X., Xue, Q., Zhou, Y., Zhu, K., Liu, Q., Zhang, J., & Song, R. (2020). Mental health status among children in home confinement during the coronavirus disease 2019 Outbreak in Hubei Province. JAMA Pediatrics China. https://doi.org/10.1001/jamapediatrics.2020.1619CrossRef

Titel: Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis
Auteurs: Janessa Manning
Joseph Billian
Jill Matson
Colleen Allen
Neelkamal Soares
Publicatiedatum: 22-10-2020
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 8/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-020-04760-5

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