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Research on children and parents’ experiences of ADHD has grown in recent years, attracting attention to their subjective perception of ADHD as a disorder. Theoretical accounts of illness perception suggest that it is multi-dimensional, consisting of at least five core constructs (see the common-sense model of illness representations or CSM: Leventhal et al., in: Rachman (ed) Medical psychology, Pergamon, New York, vol 2, pp 7–30, 1980, in: Baum, Taylor, Singer (eds) Handbook of psychology and health: social psychological aspects of health, Earlbaum, Hillsdale, vol 4, pp 219–252, 1984). We suggest that the application of CSM in children/adolescents with ADHD and their parents may play an important role in understanding their coping behavior, treatment adherence, and emotional well-being. A systematic search identified 101 eligible studies that investigated the perception of ADHD among diagnosed children/adolescents and their parents. In general, these studies support the existence of the multiple facets of illness representations proposed by the CSM in both diagnosed youngsters and parents indicating substantial variability among both parents and youngsters on each of these facets. The comprehensive assessment of the representations of ADHD indicates imbalance attention to the different representations of ADHD in the literature; disproportional research attention has been paid to the perceived effectiveness of treatment (i.e., treatment control dimension) compared to other illness representations (e.g., timeline, consequence, and coherence), despite research showing their relevance to treatment adherence among other implications. The review identifies the limitation of existing relevant research, needed foci for future studies, specific testable hypotheses, and potential clinical implications of the multifaceted representations of ADHD among youngsters and carers alike.
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Achenbach, T. M. (1991). Integrative guide for the 1991 CBCL/4-18, YSR and TRF profiles. Burlington: Department of Psychiatry, University of Vermont.
American Academy of Pediatrics. (2000). Clinical practice guideline: Diagnosis and evaluation of the child with attention-deficit/hyperactivity disorder. Pediatrics, 105, 1158–1170. CrossRef
American Academy of Pediatrics. (2001). Clinical practice guideline: Treatment of the school-aged child with attention-deficit/hyperactivity disorder. Pediatrics, 108(4), 1033–1044. CrossRef
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing. CrossRef
Arora, T., & Mackay, L. (2004). Talking and listening to children diagnosed with ADHD and taking psycho stimulants (Children at the margins: Supporting children, supporting schools). London: Trentham Books.
Bagwell, C. L., Molina, B. S. G., Pelham, W. E., & Hoza, B. (2001). Attention-deficit hyperactivity disorder and problems in peer relations: Predictions from childhood to adolescence. Journal of the American Academy of Child and Adolescent Psychiatry, 40(11), 1285–1292. doi: 10.1097/00004583-200111000-00008. PubMedCrossRef
Bain, G. H., Lemmon, H., Teunisse, S., Starr, J. M., Fox, H. C., Deary, I. J., et al. (2003). Quality of life in healthy old age: Relationships with childhood IQ, minor psychological symptoms and optimism. Social Psychiatry and Psychiatric Epidemiology, 38(11), 632–636. doi: 10.1007/s00127-003-0685-5. PubMedCrossRef
Barkley, R. A. (1991). Attention deficit hyperactivity disorder. New York: Guilford.
Barkley, R. A., Murphy, K. R., & Fischer, M. (2008). Adult ADHD: What the science says. New York: Guilford.
Bogus, S. (1997). Diagnosis Du Jour? Understanding attentional deficits can sharpen our treatment strategies. Family Therapy Networker, 21(1), 63–67.
Brazelton, T. B., & Sparrow, J. D. (2003). The Touchpoints™ model of development. Boston, MA: Brazelton Touchpoints Center, Children’s Hospital.
Brown, C., Battista, D. R., Sereika, S. M., Bruehlman, R. D., Dunbar-Jacob, J., & Thase, M. E. (2007). Primary care patients’ personal illness models for depression: Relationship to coping behavior and functional disability. General Hospital Psychiatry. doi: 10.1016/j.genhosppsych.2007.07.007. PubMedCentral
Bussing, R., Koro-Ljungberg, M., Noguchi, K., Mason, D., Mayerson, G., & Garvan, C. W. (2012). Willingness to use ADHD treatments: A mixed methods study of perceptions by adolescents, parents, health professionals and teachers. Social Science and Medicine, 74(1), 92–100. doi: 10.1016/j.socscimed.2011.10.009. PubMedCrossRef
Caci, H., Doepfner, M., Asherson, P., Donfrancesco, R., Faraone, S. V., Hervas, A., et al. (2014). Daily life impairments associated with self-reported childhood/adolescent attention-deficit/hyperactivity disorder and experiences of diagnosis and treatment: Results from the European Lifetime Impairment Survey. European Psychiatry, 29(5), 316–323. doi: 10.1016/j.eurpsy.2013.10.007. PubMedCrossRef
Cheung, B. Y., Dar-Nimrod, I., & Gonsalkorale, K. (2014). Am I my genes? Perceived genetic etiology, intrapersonal processes, and health. Social and Personality Psychology Compass, 8(11), 626–637. CrossRef
Cochrane Public Health Group Guidance for Authors. http://ph.cochrane.org/review-authors.
Coletti, D. J., Pappadopulos, E., Katsiotas, N. J., Berest, A., Jensen, P. S., & Kafantaris, V. (2012). Parent perspectives on the decision to initiate medication treatment of attention-deficit/hyperactivity disorder. Journal of Child and Adolescent Psychopharmacology, 22(3), 226–237. doi: 10.1089/cap.2011.0090. PubMedPubMedCentralCrossRef
Conners, C. K., Epstein, J. N., March, J. S., Angold, A., Wells, K. C., Klaric, J., et al. (2001). Multimodal treatment of ADHD in the MTA: An alternative outcome analysis. Journal of the American Academy of Child and Adolescent Psychiatry, 40(2), 159–167. doi: 10.1097/00004583-200102000-00010. PubMedCrossRef
Corkum, P., Rimer, P., & Schachar, R. (1999). Parental knowledge of attention-deficit hyperactivity disorder and opinions of treatment options: Impact on enrollment and adherence to a 12-month treatment trial. The Canadian Journal of Psychiatry, 44(10), 1043–1048. doi: 10.1177/070674379904401011. PubMedCrossRef
Dennis, T., Davis, M., Johnson, U., Brooks, H., & Humbi, A. (2008). Attention deficit hyperactivity disorder: Parents’ and professionals’ perceptions. Journal of Community Practice, 81(3), 24–28.
dosReis, S., Butz, A., Lipkin, P. H., Anixt, J. S., Weiner, C. L., & Chernoff, R. (2006). Attitudes about stimulant medication for attention-deficit/hyperactivity disorder among African American families in an inner city community. The Journal of Behavioral Health Services & Research, 33(4), 423–430. doi: 10.1007/s11414-006-9038-y. CrossRef
dosReis, S., Mychailyszyn, M. P., Evans-Lacko, S. E., Beltran, A., Riley, A. W., & Myers, M. A. (2009). The meaning of attention-deficit/hyperactivity disorder medication and parents’ initiation and continuity of treatment for their child. Journal of Child and Adolescent Psychopharmacology, 19(4), 377–383. doi: 10.1089/cap.2008.0118. PubMedPubMedCentralCrossRef
dosReis, S., Park, A., Ng, X., Frosch, E., Reeves, G., Cunningham, C., et al. (2017). Caregiver treatment preferences for children with a new versus existing attention-deficit/hyperactivity disorder diagnosis. Journal of Child and Adolescent Psychopharmacology, 27(3), 234–242. doi: 10.1089/cap.2016.0157. PubMedCrossRef
dosReis, S., Zito, J. M., Safer, D. J., Soeken, K. L., Mitchell, J. W., & Ellwood, L. C. (2003). Parental perceptions and satisfaction with stimulant medication for attention-deficit hyperactivity disorder. The Journal of Developmental and Behavioral Pediatrics, 24(3), 155–162. doi: 10.1097/00004703-200306000-00004. PubMedCrossRef
Emilsson, M., Gustafsson, P. A., Ohnstrom, G., & Marteinsdottir, I. (2017). Beliefs regarding medication and side effects influence treatment adherence in adolescents with attention deficit hyperactivity disorder. European Child and Adolescent Psychiatry, 26(5), 559–571. doi: 10.1007/s00787-016-0919-1. PubMedCrossRef
Faraone, S. V., Biederman, J., Monuteaux, M. C., Doyle, A. E., & Seidman, L. J. (2001). A psychometric measure of learning disability predicts educational failure four years later in boys with attention-deficit/hyperactivity disorder. Journal of Attention Disorders, 4(4), 223–230. doi: 10.1177/108705470100400404. CrossRef
Fournier, M., de Ridder, D., & Bensing, J. M. (2002). How optimism contributes to the adaptation of chronic illness. A prospective study into the enduring effects of optimism on adaptation moderated by the controllability of chronic illness. Personality and Individual Differences, 33(7), 1163–1183. doi: 10.1016/S0191-8869(02)00006-5. CrossRef
Fox, C., Buchanan-Barrow, E., & Barrett, M. (2008). Children’s understanding of mental illness: An exploratory study. Child: Care, Health and Development, 34(1), 10–18. doi: 10.1111/j.1365-2214.2007.00783.x.
Freeman, D., Dunn, G., Garety, P., Weinman, J., Kuipers, E., Fowler, D., et al. (2013). Patients’ beliefs about the causes, persistence and control of psychotic experiences predict take-up of effective cognitive behaviour therapy for psychosis. Psychological Medicine, 43(2), 269–277. doi: 10.1017/S0033291712001225. PubMedCrossRef
Freeman, D., & Garety, P. A. (1999). Worry, worry processes and dimensions of delusions: An exploratory investigation of a role for anxiety processes in the maintenance of delusional distres. Behavioural and Cognitive Psychotherapy, 27(1), 47–62.
Freeman, W., Johnston, C., & Barth, F. M. (1997). Parent attributions for inattentive-overactive, oppositional-defiant, and prosocial behaviours in children with attention deficit hyperactivity disorder. Canadian Journal of Behavioural Science, 29(4), 239–248. doi: 10.1037/0008-400X.29.4.239. CrossRef
Gajria, K., Lu, M., Sikirica, V., Greven, P., Zhong, Y., Qin, P., et al. (2014). Adherence, persistence, and medication discontinuation in patients with attention-deficit/hyperactivity disorder—A systematic literature review. Neuropsychiatric Disease and Treatment, 10, 1543–1569. doi: 10.2147/NDT.S65721. PubMedPubMedCentral
Gau, S. S., Lin, Y. J., Shang, C. Y., Liu, S. K., Chiu, Y. N., & Soong, W. T. (2010). Emotional/behavioral problems and functional impairment in clinic- and community-based children with attention-deficit/hyperactivity disorder in Taiwan. Journal of Abnormal Child Psychology, 38(4), 521–532. doi: 10.1007/s10802-009-9381-6. PubMedCrossRef
Haber, J. (2000). The great misdiagnosis. New York: Taylor.
Harpur, R. A., Thompson, M., Daley, D., Abikoff, H., & Sonuga-Barke, E. J. (2008). The attention-deficit/hyperactivity disorder medication-related attitudes of patients and their parents. Journal of Child and Adolescent Psychopharmacology, 18(5), 461–473. doi: 10.1089/cap.2008.023. PubMedCrossRef
Harrison, C., & Sofronoff, K. (2002). ADHD and parental psychological distress: Role of demographics, child behavioral characteristics, and parental cognitions. Journal of the American Academy of Child and Adolescent Psychiatry, 41(6), 703–711. doi: 10.1097/00004583-200206000-00010. PubMedCrossRef
Hébert, J., Polotskaia, A., Joober, R., & Grizenko, N. (2013). Adherence to psychostimulant medication in children with attention-deficit/hyperactivity disorder: The role of attitudes. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 22(4), 317–323. doi: 10.1177/1087054705279996. PubMedPubMedCentral
Heine, S. J., Dar-Nimrod, I., Cheung, B. Y., & Proulx, T. (2017). Essentially biased: Why people are fatalistic about genes. Advances in Experimental Social Psychology, 55, 137–192. CrossRef
Hinshaw, S. P., & Ellison, K. (2015). What everyone needs to know?. New York: Oxford University Press.
Huang, A., Seshadri, K., Matthews, T. A., & Ostfeld, B. M. (2013). Parental perspectives on use, benefits, and physician knowledge of complementary and alternative medicine in children with autistic disorder and attention-deficit/hyperactivity disorder. Journal of Alternative and Complementary Medicine, 19(9), 746–750. doi: 10.1089/acm.2012.0640. PubMedPubMedCentralCrossRef
Jackson, H., McGorry, P., Edwards, J., Hulbert, C., Henry, L., Francey, S., et al. (1998). Cognitively-oriented psychotherapy for early psychosis (COPE): Preliminary results. British Journal of Psychiatry, 172(33), 92–99.
Johnston, C., Fine, S., Weiss, M., Weiss, J., Weiss, G., & Freeman, W. S. (2000). Effects of stimulant medication treatment on mothers’ and children’s attributions for the behavior of children with attention deficit hyperactivity disorder. Journal of Abnormal Child Psychology, 28(4), 371–382. PubMedCrossRef
Johnston, C., Mah, J. W., & Regambal, M. (2010). Parenting cognitions and treatment beliefs as predictors of experience using behavioral parenting strategies in families of children with attention-deficit/hyperactivity disorder. Behavior Therapy, 41(4), 491–504. doi: 10.1016/j.beth.2010.02.001. PubMedCrossRef
Johnston, C., Seipp, C., Hommersen, P., Hoza, B., & Fine, S. (2005). Treatment choices and experiences in attention deficit and hyperactivity disorder: Relations to parents’ beliefs and attributions. Child: Care, Health and Development, 31(6), 669–677. doi: 10.1111/j.1365-2214.2005.00555.x.
Jolley, S., & Garety, P. A. (2004). Insight and delusions, a cognitive psychological approach. In X. F. Amador & A. S. David (Eds.), In insight and psychosis (pp. 89–100). New York: Oxford University Press. CrossRef
Kessler, R. C., Adler, L., Barkley, R. A., Biederman, J., Conners, C. K., Demler, O., et al. (2006). The prevalence and correlates of adult ADHD in the United States: Results from the National Comorbidity Survey Replication. American Journal of Psychiatry, 163(4), 716–723. doi: 10.1176/ajp.2006.163.4.716. PubMedPubMedCentralCrossRef
King, K., Alexander, D., & Seabi, J. (2016). Siblings’ perceptions of their ADHD-diagnosed sibling’s impact on the family system. The International Journal of Environmental Research and Public Health. doi: 10.3390/ijerph13090910.
Kuipers, E., Watson, P., Onwumere, J., Bebbington, P., Dunn, G., Weinman, J., et al. (2007). Discrepant illness perceptions, affect and expressed emotion in people with psychosis and their carers. Social Psychiatry and Psychiatric Epidemiology, 42(4), 277–283. doi: 10.1007/s00127-007-0165-4. PubMedCrossRef
Laird, R. D., & De Los Reyes, A. (2013). Testing informant discrepancies as predictors of early adolescent psychopathology: Why difference scores cannot tell you what you want to know and how polynomial regression may. Journal of Abnormal Child Psychology, 41(1), 1–14. doi: 10.1007/s10802-012-9659-y. PubMedCrossRef
Lebowitz, M. S. (2014). Biological conceptualizations of mental disorders among affected individuals: A review of correlates and consequences. Clinical Psychology: Science and Practice, 21(1), 67–83. doi: 10.1111/cpsp.12056.
LeFever, G. B., & Arcona, A. P. (2003). ADHD among American schoolchildren. The Scientific Review of Mental Health Practice, 2(1), 49–60.
Leventhal, H., Meyer, D., & Nerenz, D. (1980). The common sense model of illness danger. In S. E. Rachman (Ed.), Medical psychology (Vol. 2, pp. 7–30). New York: Pergamon.
Leventhal, H., Nerenz, D. R., & Steele, D. J. (1984). Illness representations and coping with health threats. In A. Baum, S. E. Taylor, & J. E. Singer (Eds.), Handbook of psychology and health: Social psychological aspects of health (Vol. 4, pp. 219–252). Hillsdale, NJ: Earlbaum.
Lin, Y. F., & Chung, H. H. (2002). Parenting stress and parents’ willingness to accept treatment in relation to behavioral problems of children with attention-deficit hyperactive disorder. Journal of Nursing Research. doi: 10.1097/01.JNR.0000347582.54962.04.
Lobban, F., Barrowclough, C., & Jones, S. (2006). Does Expressed Emotion need to be understood within a more systemic framework? An examination of discrepancies in appraisals between patients diagnosed with schizophrenia and their relatives. Social Psychiatry and Psychiatric Epidemiology, 41(1), 50–55. doi: 10.1007/s00127-005-0993-z. PubMedCrossRef
Mash, E. J., & Johnston, C. (1983). Parental perceptions of child behavior problems, parenting self-esteem, and mothers’ reported stress in younger and older hyperactive and normal children. Journal of Consulting and Clinical Psychology, 51(1), 86–99. doi: 10.1037/0022-006X.51.1.86. PubMedCrossRef
McElearney, C., Fitzpatrick, C., Farrell, N., King, M., & Lynch, B. (2005). Stimulant medication in ADHD: What do children and their parents say? Irish Journal of Psychological Medicine, 22(1), 5–9. CrossRef
Milton Keynes Primary Care Trust 10 questions to help you make sense of qualitative research. http://www.casp-uk.net/casp-tools-checklists. Accessed 23 January 2017.
MTA Cooperative Group. (1999). A 14-month randomized clinical trial of treatment strategies for attention-deficit/hyperactivity disorder. The MTA Cooperative Group. Multimodal Treatment Study of Children with ADHD. Archives of General Psychiatry, 56(12), 1073–1086. CrossRef
Mukherjee, S., Shah, H. R., Ramanathan, S., & Dewan, M. (2016). Knowledge and attitudes about attention-deficit/hyperactivity disorder and specific learning disorder in an urban Indian population. The Journal of Nervous and Mental Disease, 204(6), 458–463. doi: 10.1097/NMD.0000000000000524. PubMedCrossRef
Park, S., Kim, B. N., Cho, S. C., Kim, J. W., Shin, M. S., Yoo, H. J., et al. (2013). Baseline severity of parent-perceived inattentiveness is predictive of the difference between subjective and objective methylphenidate responses in children with attention-deficit/hyperactivity disorder. J Child Adolesc Psychopharmacol, 23(6), 410–414. doi: 10.1089/cap.2013.0031. PubMedCrossRef
Petrie, K. J., Broadbent, E., & Kydd, R. (2008). Illness perceptions in mental health: Issues and potential applications. Journal of Mental Health, 17(6), 559–564. CrossRef
Rapport, M. D., Chung, K. M., Shore, G., & Isaacs, P. (2001). A conceptual model of child psychopathology: Implications for understanding attention deficit hyperactivity disorder and treatment efficacy. Journal of Clinical Child & Adolescent Psychology, 30(1), 48–58. doi: 10.1207/S15374424JCCP3001_6. CrossRef
Schwarz, N., & Bohner, G. (1996). Feelings and their motivational implications: Moods and the action sequence. In J. A. B. E. P. M. Gollwitzer (Ed.), The psychology of action: Linking cognition and motivation to behavior (pp. 119–145). New York: Guilford.
Sikirica, V., Flood, E., Dietrich, C. N., Quintero, J., Harpin, V., Hodgkins, P., et al. (2015). Unmet needs associated with attention-deficit/hyperactivity disorder in eight European countries as reported by caregivers and adolescents: Results from qualitative research. Patient, 8(3), 269–281. doi: 10.1007/s40271-014-0083-y. PubMedCrossRef
Sollie, H., & Larsson, B. (2016). Parent-reported symptoms, impairment, helpfulness of treatment, and unmet service needs in a follow-up of outpatient children with attention-deficit/hyperactivity disorder. Nordic Journal of Psychiatry, 70(8), 582–590. doi: 10.1080/08039488.2016.1187204. PubMedCrossRef
Strine, T. W., Lesesne, C. A., Okoro, C. A., McGuire, L. C., Chapman, D. P., Balluz, L. S., et al. (2006). Emotional and behavioral difficulties and impairments in everyday functioning among children with a history of attention-deficit/hyperactivity disorder. Preventing Chronic Disease, 3, A52. PubMedPubMedCentral
Swanson, J. M., Kraemer, H. C., Hinshaw, S. P., Arnold, L. E., Conners, C. K., Abikoff, H. B., et al. (2001). Clinical relevance of the primary findings of the MTA: Success rates based on severity of ADHD and ODD symptoms at the end of treatment., 40(2), 168–179. doi: 10.1097/00004583-200102000-00011.
Swanson, J., McBurnett, K., Christian, D., & Wigal, T. (1995). Stimulant medications and the treatment of children with ADHD. In R. J. Prinz & T. H. Ollendick (Eds.), Advances in clinical psychology (pp. 265–322). New York: Plenum Press.
Thapar, A., Cooper, M., Eyre, O., & Langley, K. (2013). What have we learnt about the causes of ADHD? Journal of Clinical Child & Adolescent Psychology, 54(1), 3–16. doi: 10.1111/j.1469-7610.2012.02611.x.
The Joanna Briggs Institute. (2016). Joanna Briggs Institute reviewers’ manual (2016th ed.). Australia: The Joanna Briggs Institute.
Timimi, S., Moncrieff, J., Jureidini, J., & White, R. (2004). A critique of the international consensus statement on ADHD. Clinical Child and Family Psychology Review, 71, 59–63. doi: 10.1023/B:CCFP.0000020192.49298.7a.
Todd, R. D., Huang, H., Todorov, A. A., Neuman, R. J., Reiersen, A. M., Henderson, C. A., et al. (2008). Predictors of stability of attention-deficit/hyperactivity disorder subtypes from childhood to young adulthood. Journal of the American Academy of Child and Adolescent Psychiatry, 47(1), 76–85. doi: 10.1097/chi.0b013e31815a6aca. PubMedCrossRef
Vaughn, A. (2007). Peer rejection and positive illusions as predictors of later childhood adjustment in children with and without ADHD. Unpublished master’s thesis, Purdue University.
Wan, E. S. F., Ma, J. L. C., Lai, K. Y. C., & Lo, J. W. K. (2016). The subjective experiences of attention-deficit/hyperactivity disorder of chinese families in Hong Kong: Co-construction of meanings in multiple family groups: Table 1. Health and Social Work, 41(3), 164–172. doi: 10.1093/hsw/hlw023. PubMedPubMedCentralCrossRef
Wender, P. H. (1998). Pharmacotherapy of attention-deficit/hyperactivity disorder in adults. Journal of Clinical Psychiatry, 59(s7), 76–79. PubMed
Wolraich, M. L., Wibbelsman, C. J., Brown, T. E., Evans, S. W., Gotlieb, E. M., Knight, J. R., et al. (2005). Attention-deficit/hyperactivity disorder among adolescents: A review of the diagnosis, treatment, and clinical implications. Pediatrics, 115(6), 1734–1746. doi: 10.1542/peds.2004-1959. PubMedCrossRef
Yeh, M., Aarons, G. A., Ho, J., Leslie, L. K., McCabe, K., Tsai, K., et al. (2014). Parental etiological explanations and longitudinal medication use for youths with attention deficit hyperactivity disorder. Administration and Policy In Mental Health, 41(3), 401–409. doi: 10.1007/s10488-013-0477-5. PubMedPubMedCentralCrossRef
- Perceptions of ADHD Among Diagnosed Children and Their Parents: A Systematic Review Using the Common-Sense Model of Illness Representations
Iana Y. T. Wong
David J. Hawes
Michael R. Kohn
- Springer US