Journal of Autism and Developmental Disorders

Gepubliceerd in:

14-11-2019 | Brief Report

Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome

Auteurs: Sarah E. Fitzpatrick, Lauren M. Schmitt, Ryan Adams, Ernest V. Pedapati, Logan K. Wink, Rebecca C. Shaffer, Jessica Sage, Jayne Dixon Weber, Kelli C. Dominick, Craig A. Erickson

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2020

Abstract

To date, health related quality of life (QoL) has not been systematically evaluated in youth with fragile X syndrome (FXS), the most common single gene cause of autism and the most common inherited form of developmental disability. We describe QoL data gathered using the Pediatric Quality of Life Inventory (PedsQL) completed online by 364 parents of youth with FXS. Parents consistently reported across all gender and age groups that their children experienced the highest QoL in Physical functioning and the lowest QoL in Cognitive functioning. Overall, older children with FXS had increase QoL ratings in the domains of School and Cognitive function.

vorige artikel Self- vs Parent Reports of Generalised Anxiety Disorder Symptomatology in Mildly Impaired Girls with an Autism Spectrum Disorder

volgende artikel Caregiver Touch-Speech Communication and Infant Responses in 12-Month-Olds at High Risk for Autism Spectrum Disorder

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Titel: Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome
Auteurs: Sarah E. Fitzpatrick
Lauren M. Schmitt
Ryan Adams
Ernest V. Pedapati
Logan K. Wink
Rebecca C. Shaffer
Jessica Sage
Jayne Dixon Weber
Kelli C. Dominick
Craig A. Erickson
Publicatiedatum: 14-11-2019
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 3/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-019-04292-7

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