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Journal of Autism and Developmental Disorders
Gepubliceerd in:

25-02-2022 | Original Paper

Patterns of Special Education Eligibility and Age of First Autism Spectrum Disorder (ASD) Identification Among US Children with ASD

Auteurs: Amy N. Esler, Jeannette Sample, Jennifer Hall-Lande, Bryn Harris, Catherine Rice, Jenny Poynter, Russell S. Kirby, Lisa Wiggins

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2023

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Abstract

The study examined timing of autism spectrum disorder (ASD) identification in education versus health settings for 8-year-old children with ASD identified through records-based surveillance. The study also examined type of ASD symptoms noted within special education evaluations. Results indicated that children with records from only education sources had a median time to identification of ASD over a year later than children with records from health sources. Black children were more likely than White children to have records from only education sources. Restricted and repetitive behaviors were less frequently documented in educational evaluations resulting in developmental delay eligibility compared to specific ASD eligibility among children with ASD. Future research could explore strategies reduce age of identification in educational settings and increase equitable access to health evaluations.
volgende artikel Assessing and Managing Suicide Risk in Autistic Youth: Findings from a Clinician Survey in a Pediatric Psychiatric Emergency Setting
Literatuur
Akshoomoff, N., Corsello, C., & Schmidt, H. (2006). The role of the autism diagnostic observation schedule in the assessment of autism spectrum disorders in school and community settings. The California School Psychologist, 11(1), 7–19.PubMedCrossRef
Alfonso, V. C., & DuPaul, G. J. (2020). Introduction: The importance of early childhood development, education, and intervention. In V. C. Alfonso & G. J. DuPaul (Eds.), Healthy development in young children: Evidence-based interventions for early education (pp. 3–10). American Psychological Association.
Alfonso, V. C., Engler, J. R., & Lepore, J. C. C. (2020). Assessing and evaluating young children: Developmental domains and methods. In V. C. Alfonso & G. J. DuPaul (Eds.), Healthy development in young children: Evidence-based interventions for early education (pp. 13–44). American Psychological Association.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). American Psychiatric Pub.CrossRef
Ault-Brutus, A., & Alegria, M. (2018). Racial/ethnic differences in perceived need for mental health care and disparities in use of care among those with perceived need in 1990–1992 and 2001–2003. Ethnicity & Health, 23(2), 142–157.CrossRef
Autism and Developmental Disabilities Monitoring Network (ADDM). (2012). ADDM abstraction manual. ADDM.
Autism and Developmental Disabilities Monitoring Network Surveillance Year 2006 Principal Investigators, & Centers for Disease Control and Prevention (CDC). (2009). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, United States, 2006. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 58(10), 1–20.
Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators, & Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 61(3), 1–19.
Azad, G., & Mandell, D. S. (2016). Concerns of parents and teachers of children with autism in elementary school. Autism, 20(4), 435–441.PubMedCrossRef
Baio, J. (2014). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States, 2010.
Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., … Dowling, N. F. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 Sites, United States, 2014. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 67(6), 1–23.
Barton, E. E., Harris, B., Leech, N., Stiff, L., Choi, G., & Joel, T. (2016). An analysis of state autism educational assessment practices and requirements. Journal of Autism and Developmental Disorders, 46(3), 737–748.PubMedCrossRef
Bender, M. S., Nader, P. R., Kennedy, C., & Gahagan, S. (2013). A culturally appropriate intervention to improve health behaviors in Hispanic mother–child dyads. Childhood Obesity, 9(2), 157–163.PubMedPubMedCentralCrossRef
Bhasin, T. K., & Schendel, D. (2007). Sociodemographic risk factors for autism in a US metropolitan area. Journal of Autism and Developmental Disorders, 37(4), 667–677.PubMedCrossRef
Bishop, S. L., Richler, J., Cain, A. C., & Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal of Mental Retardation, 112, 450–461.PubMedCrossRef
Boyd, B. A., McDonough, S. G., & Bodfish, J. W. (2012). Evidence-based behavioral interventions for repetitive behaviors in autism. Journal of Autism and Developmental Disorders, 42(6), 1236–1248.PubMedPubMedCentralCrossRef
Boyd, B. A., McDonough, S. G., Rupp, B., Khan, F., & Bodfish, J. W. (2011). Effects of a family-implemented treatment on the repetitive behaviors of children with autism. Journal of Autism and Developmental Disorders, 41, 1330–1341.PubMedPubMedCentralCrossRef
Bradley-Klug, K. L., Jeffries-DeLoatche, K. L., Walsh, A. S., Bateman, L. P., Nadeau, J., Powders, D. J., & Cunningham, J. (2013). School psychologists’ perceptions of primary care partnerships: Implications for building the collaborative bridge. Advances in School Mental Health Promotion, 6, 51–67.CrossRef
Campbell, F. A., & Ramey, C. T. (1994). Effects of early intervention on intellectual and academic achievement: A follow-up study of children from low-income families. Child Development, 65, 684–698.PubMedCrossRef
Campbell, J. M., Ruble, L. A., & Hammond, R. K. (2014). Evidence-based assessment of autism spectrum disorders. Autism spectrum disorders in children and adolescents: Evidence-based assessment and intervention (pp. 51–73). American Psychological Association.
Carbone, P. S., Behl, D. D., Azor, V., & Murphy, N. A. (2010). The medical home for children with autism spectrum disorders: Parent and pediatrician perspectives. Journal of Autism and Developmental Disorders, 40, 317–324.PubMedCrossRef
Centers for Disease Control and Prevention. (2007). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, 14 sites, United States, 2002. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, DC: 2002), 56(1), 12–28.
Christensen, D. L., Baio, J., Van Naarden Braun, K., Bilder, D., Charles, J, … Centers for Disease Control and Prevention (CDC) (2016). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2012. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 65(3), 1–23.
Danaher, J. (2011). Eligibility policies and practices for young children under part B of IDEA. (NECTAC Notes. No. 27.). National Early Childhood Technical Assistance Center (NECTAC).
Daniels, A. M., & Mandell, D. S. (2014). Explaining differences in age at autism spectrum disorder diagnosis: A critical review. Autism, 18(5), 583–597.PubMedCrossRef
Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J., ... Varley, J. (2010). Randomized, controlled trial of an intervention for toddlers with autism: The Early Start Denver Model. Pediatrics, 125(1), e17–e23.
Dawson, G., Jones, E. J., Merkle, K., Venema, K., Lowy, R., Faja, S., ... Webb, S. J. (2012). Early behavioral intervention is associated with normalized brain activity in young children with autism. Journal of the American Academy of Child & Adolescent Psychiatry, 51(11), 1150–1159.
Doshi-Velez, F., Ge, Y., & Kohane, I. (2014). Comorbidity clusters in autism spectrum disorders: An electronic health record time-series analysis. Pediatrics, 133(1), e54–e63.PubMedPubMedCentralCrossRef
Doyle, J. (2008). Barriers and facilitators of multidisciplinary team working: A review. Paediatric Nursing, 20, 26–29.PubMedCrossRef
Esler, A. N., & Ruble, L. A. (2015). DSM-5 diagnostic criteria for autism spectrum disorder with implications for school psychologists. International Journal of School & Educational Psychology, 3(1), 1–15.CrossRef
Filipek, P. A., Accardo, P. J., Baranek, G. T., Cook, E. H., Dawson, G., Gordon, B., ... Volkmar, F. R. (1999). The screening and diagnosis of autistic spectrum disorders. Journal of Autism and Developmental Disorders, 29(6), 439–484.
Grahame, V., Brett, D., Dixon, L., McConachie, H., Lowry, J., Rodgers, J., ... Le Couteur, A. (2015). Managing repetitive behaviours in young children with autism spectrum disorder (ASD): Pilot randomised controlled trial of a new parent group intervention. Journal of Autism and Developmental Disorders, 45(10), 3168–3182.
Hojnoski, R. L., & Missall, K. N. (2020). Considerations and methods in assessing early learning and social–emotional development in young children. In V. C. Alfonso & G. J. DuPaul (Eds.), Healthy development in young children: Evidence-based interventions for early education (pp. 45–63). American Psychological Association.
Hyman, S. L., Levy, S. E., & Myers, S. M. (2020). Identification, evaluation, and management of children with autism spectrum disorder. Pediatrics, 145(1), e20193447.PubMedCrossRef
Imm, P., White, T., & Durkin, M. S. (2019). Assessment of racial and ethnic bias in autism spectrum disorder prevalence estimates from a US surveillance system. Autism, 23(8), 1927–1935.PubMedPubMedCentralCrossRef
Individuals with Disabilities Education Improvement Act of 2004, 20 U.S.C. § 1400 (2004).
Kaat, A. J., Shui, A. M., Ghods, S. S., Farmer, C. A., Esler, A. N., Thurm, A., ... Bishop, S. L. (2021). Sex differences in scores on standardized measures of autism symptoms: A multisite integrative data analysis. Journal of Child Psychology and Psychiatry, 62(1), 97–106.
Klin, A., Saulnier, C., Tsatsanis, K., & Volkmar, F. R. (2005). Clinical evaluation in autism spectrum disorders: Psychological assessment within a transdisciplinary framework. Handbook of Autism and Pervasive Developmental Disorders, 2, 772–798.CrossRef
Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122, e1149–e1158.PubMedCrossRef
Landa, R. J. (2018). Efficacy of early interventions for infants and young children with, and at risk for, autism spectrum disorders. International Review of Psychiatry, 30(1), 25–39.PubMedCrossRef
Lin, C. E., & Koegel, R. (2018). Treatment for higher-order restricted repetitive behaviors (H-RRB) in children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(11), 3831–3845.PubMedCrossRef
Lord, C., Rutter, M., DiLavore, P., Risi, S., Gotham, K., & Bishop, S. (2012). Autism diagnostic observation schedule, 2nd edition (ADOS-2) manual. Western Psychological Services.
Maddox, B. B., Rump, K. M., Stahmer, A. C., Suhrheinrich, J., Rieth, S. R., Nahmias, A. S., ... Mandell, D. S. (2020). Concordance between a US educational autism classification and the autism diagnostic observation schedule. Journal of Clinical Child & Adolescent Psychology, 49(4), 469–475.
Maenner, M. J., Shaw, K. A., & Baio, J. (2020). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summaries, 69(4), 1–12.PubMedCentralCrossRef
Maenner, M. J., Shaw, K. A., Bakian, A. V., et al. (2021). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2018. MMWR Surveillance Summaries, 70(SS-11), 1–16.PubMedCentralCrossRef
Mandell, D. S., Novak, M. M., & Zubritsky, C. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorder. Pediatrics, 116, 1480–1486.PubMedCrossRef
Miles, J. H., Takahashi, T. N., Bagby, S., Sahota, P. K., Vaslow, D. F., Wang, C. H., ... Farmer, J. E. (2005). Essential versus complex autism: Definition of fundamental prognostic subtypes. American Journal of Medical Genetics Part A, 135(2), 171–180.
Norbury, C. F., & Sparks, A. (2013). Difference or disorder? Cultural issues in understanding neurodevelopmental disorders. Developmental Psychology, 49(1), 45–58.PubMedCrossRef
Pettygrove, S., Pinborough-Zimmerman, J., Meaney, F. J., Braun, K. V. N., Nicholas, J., Miller, L., ... Rice, C. (2013). Predictors of ascertainment of autism spectrum disorders across nine US communities. Journal of Autism and Developmental Disorders, 43(8), 1867–1879.
Pickard, K. E., & Ingersoll, B. R. (2016). Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use. Autism, 20(1), 106–115.PubMedCrossRef
Rapp, J. T., & Vollmer, T. R. (2005). Stereotypy I: A review of behavioral assessment and treatment. Research in Developmental Disabilities, 26, 527–547.PubMedCrossRef
Ratto, A.B., Kenworthy, L., Yerys, B.E., Bascom, J., Wieckowski, A.T., White, S.W., … Anthony, L.G. (2018). What about the girls? Sex-based differences in autistic traits and adaptive skills. Journal of Autism and Developmental Disorders, 48, 1698–1711.
Rice, C. E., Baio, J., Van Naarden Braun, K., Doernberg, N., Meaney, F. J., Kirby, R. S., & ADDM Network. (2007). A public health collaboration for the surveillance of autism spectrum disorders. Paediatric and Perinatal Epidemiology, 21(2), 179–190.PubMedCrossRef
Rice, C., Nicholas, J., Baio, J., Pettygrove, S., Lee, L. C., Braun, K. V. N., ... Yeargin-Allsopp, M. (2010). Changes in autism spectrum disorder prevalence in 4 areas of the United States. Disability and Health Journal, 3(3), 186–201.
Rice, C. E., Rosanoff, M., Dawson, G., Durkin, M. S., Croen, L. A., Singer, A., & Yeargin-Allsopp, M. (2012). Evaluating changes in the prevalence of the autism spectrum disorders (ASDs). Public Health Reviews, 34(2), 1–22.PubMedCrossRef
Rubenstein, E., Daniels, J., Schieve, L. A., Christensen, D. L., Van Naarden Braun, K., Rice, C. … Lee, L. C. (2018). Trends in special education eligibility among children with autism spectrum disorder, 2002–2010. Public Health Reports (Washington, D.C.: 1974), 133(1), 85–92.
Safer-Lichtenstein, J., Hamilton, J., & McIntyre, L. L. (2020). School-based autism rates by state: An analysis of demographics, political leanings, and differential identification. Journal of Autism and Developmental Disorders, 51(7), 2271–2283.CrossRef
Salvia, J., Ysseldyke, J. E., & Witmer, S. (2017). Assessment in special and inclusive education (13th ed.). Cengage.
Shahidullah, J. D., McClain, M. B., Azad, G., Mezher, K. R., & McIntyre, L. L. (2020). Coordinating autism care across schools and medical settings: Considerations for school psychologists. Intervention in School and Clinic, 56(2), 107–114.CrossRef
Shattuck, P. T., Durkin, M., Maenner, M., Newschaffer, C., Mandell, D. S., Wiggins, L., ... Cuniff, C. (2009). Timing of identification among children with an autism spectrum disorder: Findings from a population-based surveillance study. Journal of the American Academy of Child & Adolescent Psychiatry, 48(5), 474–483.
Shaw, K. A., Maenner, M. J., & Baio, J. (2020). Early identification of autism spectrum disorder among children aged 4 years—Early autism and developmental disabilities monitoring network, six sites, United States, 2016. MMWR Surveillance Summaries, 69(3), 1–11.PubMedCentralCrossRef
Sloper, P. (2004). Facilitators and barriers for coordinated multi-agency services. Child: Care Health & Development, 30, 571–580.CrossRef
Smith, K. A., Gehricke, J. G., Iadarola, S., Wolfe, A., & Kuhlthau, K. A. (2020). Disparities in service use among children with autism: A systematic review. Pediatrics, 145(Supplement 1), S35–S46.PubMedCrossRef
Volkmar, F., Siegel, M., Woodbury-Smith, M., King, B., McCracken, J., & State, M. (2014). Practice parameter for the assessment and treatment of children and adolescents with autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 53(2), 237–257.CrossRef
Wetherby, A. M., Woods, J., Guthrie, W., Delehanty, A., Brown, J. A., Morgan, L., ... Lord, C. (2018). Changing developmental trajectories of toddlers with autism spectrum disorder: Strategies for bridging research to community practice. Journal of Speech, Language, and Hearing Research, 61(11), 2615-2628.
Wiggins, L. D., Durkin, M., Esler, A., Lee, L. C., Zahorodny, W., Rice, C., ... Baio, J. (2020). Disparities in documented diagnoses of autism spectrum disorder based on demographic, individual, and service factors. Autism Research, 13(3), 464–473.
Wilkinson, L. A. (2016). A best practice guide to assessment and intervention for autism spectrum disorder in schools. Jessica Kingsley Publishers.
Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA, 289(1), 49–55.PubMedCrossRef
Zwaigenbaum, L., Bauman, M. L., Choueiri, R., Kasari, C., Carter, A., Granpeesheh, D., ... Natowicz, M. R. (2015). Early intervention for children with autism spectrum disorder under 3 years of age: Recommendations for practice and research. Pediatrics, 136(Supplement 1), S60–S81.
Metagegevens
Titel
Patterns of Special Education Eligibility and Age of First Autism Spectrum Disorder (ASD) Identification Among US Children with ASD
Auteurs
Amy N. Esler
Jeannette Sample
Jennifer Hall-Lande
Bryn Harris
Catherine Rice
Jenny Poynter
Russell S. Kirby
Lisa Wiggins
Publicatiedatum
25-02-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 5/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-022-05475-5

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