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To develop a prototype website to collect patient-reported outcomes in outpatient clinical oncology and link the data with the electronic medical record (EMR).
A multidisciplinary Research Network, including experts in outcomes research, clinical oncology, nursing, social work, information technology, EMRs, behavioral science, decision science, clinical trials, law, and a cancer survivor, was formed to design the prototype website. The Research Network developed the initial website specifications, elicited feedback from patients (n = 20) and clinicians (n = 7), constructed the website, and conducted usability testing (n = 10).
Clinicians reported that the website could improve clinical practice if it was not burdensome and were most interested in tracking change over time. Patients were interested in using the website because of the potential to facilitate communication with their clinicians. Patients emphasized the importance of short and simple surveys and a user-friendly interface. The PatientViewpoint website was designed to meet these specifications. Usability testing suggested that patients had few problems accessing and using the site.
Preliminary reports from clinicians and patients suggest that a website to collect PROs and link them with the EMR could help improve the quality of cancer care. Further pilot-testing will evaluate the use, usefulness, and acceptability of PatientViewpoint.
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McLachlan, S. A., Allenby, A., Matthews, J., Wirth, A., Kissane, D., Bishop, M., et al. (2001). Randomized trial of coordinated psychosocial interventions based on patient self-assessment versus standard care to improve the psychosocial functioning of patients with cancer. Journal of Clinical Oncology, 19, 4117–4125. PubMed
Berry, D. L., Trigg, L. J., Lober, W. B., Karras, B. T., Galligan, M. L., Austin-Seymour, M., et al. (2004). Computerized symptom and quality-of-life assessment for patients with cancer Part I: Development and pilot testing. Oncology Nursing Forum, 15, E75–E83. CrossRef
National Institutes of Health. (2004). RFA-RM-04-014 Meetings/networks for methodological development in interdisciplinary research. Available at: http://grants1.nih.gov/grants/guide/rfa-files/RFA-RM-04-014.html. Accessed 10 March 2009.
- PatientViewpoint: a website for patient-reported outcomes assessment
Claire F. Snyder
S. Orion Courtin
Albert W. Wu
Website for Outpatient QOL Assessment Research Network
- Springer Netherlands