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Gepubliceerd in:

01-09-2009

PatientViewpoint: a website for patient-reported outcomes assessment

Auteurs: Claire F. Snyder, Roxanne Jensen, S. Orion Courtin, Albert W. Wu, Website for Outpatient QOL Assessment Research Network

Gepubliceerd in: Quality of Life Research | Uitgave 7/2009

Abstract

Purpose

To develop a prototype website to collect patient-reported outcomes in outpatient clinical oncology and link the data with the electronic medical record (EMR).

Methods

A multidisciplinary Research Network, including experts in outcomes research, clinical oncology, nursing, social work, information technology, EMRs, behavioral science, decision science, clinical trials, law, and a cancer survivor, was formed to design the prototype website. The Research Network developed the initial website specifications, elicited feedback from patients (n = 20) and clinicians (n = 7), constructed the website, and conducted usability testing (n = 10).

Results

Clinicians reported that the website could improve clinical practice if it was not burdensome and were most interested in tracking change over time. Patients were interested in using the website because of the potential to facilitate communication with their clinicians. Patients emphasized the importance of short and simple surveys and a user-friendly interface. The PatientViewpoint website was designed to meet these specifications. Usability testing suggested that patients had few problems accessing and using the site.

Conclusions

Preliminary reports from clinicians and patients suggest that a website to collect PROs and link them with the EMR could help improve the quality of cancer care. Further pilot-testing will evaluate the use, usefulness, and acceptability of PatientViewpoint.

volgende artikel Predicting EQ-5D utility scores from the 25-item National Eye Institute Vision Function Questionnaire (NEI-VFQ 25) in patients with age-related macular degeneration

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Titel: PatientViewpoint: a website for patient-reported outcomes assessment
Auteurs: Claire F. Snyder
Roxanne Jensen
S. Orion Courtin
Albert W. Wu
Website for Outpatient QOL Assessment Research Network
Publicatiedatum: 01-09-2009
Uitgeverij: Springer Netherlands
Gepubliceerd in: Quality of Life Research / Uitgave 7/2009
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-009-9497-8

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Abstract

Purpose

Methods

Results

Conclusions

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