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Quality of Life Research
Gepubliceerd in: Quality of Life Research 9/2016

01-09-2016

Patient-centered outcomes on quality of life and anthroposophic healthcare: a qualitative triangulation study

Auteurs: Evi B. Koster, Erik W. Baars, Diana M. J. Delnoij

Gepubliceerd in: Quality of Life Research | Uitgave 9/2016

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Abstract

Purpose

To provide a qualitative investigation of aspects that matter to patients regarding quality of life (QOL) and other perceived treatment effects of anthroposophic healthcare (AH). It is a first step in the development of patient reported outcome measures (PROMs) for AH. Hence, it will contribute to the evaluation of AH quality from patients’ perspectives.

Method

Within-method triangulation of four qualitative data sources is: (1) Survey of 2063 patients of AH general practitioners; single open item; (2) Survey of 34 patients of AH nurses; single open item; (3) and (4) Sixteen semi-structured interviews with patients. The data sources contained patients’ qualitative reports on contribution of treatment to QOL, other perceived treatment effects and/or quality of care aspects. Content analysis Construction of items and domains by open, axial and selective coding.

Results

Twelve domains regarding quality of life are found: Recovery/Symptom reduction, Active contribution/Autonomy, General well-being, Meaning, Rest/Relaxation, Functioning, Energy/Strength, Care relationship, Natural healing, Mindful inner attitude, Being well informed and Social relations. The interviews demonstrate relations between domains.

Conclusions

The findings give a comprehensive insight into aspects of care that are relevant to patients, providing a first step to develop PROMs for AH. Findings show a broadening of domains compared to existing measurement instruments and show close similarities with the recently developed concept of “positive health.” Extending QOL instruments with a broader set of domains would give concrete tools to improve evaluation of quality of care and make this evaluation more in line with aspects that matter to AH patients.
vorige artikel The use and impact of quality of life assessment tools in clinical care settings for cancer patients, with a particular emphasis on brain cancer: insights from a systematic review and stakeholder consultations
volgende artikel Quality of life in older individuals with joint contractures in geriatric care settings
Literatuur
1.
Cleary, P. D., & Edgman-Levitan, S. (1997). Health care quality. Incorporating consumer perspectives. Journal of the American Medical Association, 278(19), 1608–1612.CrossRefPubMed
2.
Sixma, H., Kerssens, J. J., van Campen, C., & Peters, L. (1998). Quality of care form the patients’ perspective: From Theoretical concept to a new measuring instrument. Health Expectations, 1(2), 82–95.CrossRefPubMed
3.
Koopman, L. et al. (2011). Handboek meetinstrumenten: een handleiding voor de ontwikkeling en het gebruik van Consumer Quality Index (CQI) vragenlijsten (Handbook measurement instruments: a manual for developing en using Consumer Quality Index (CQI) questionnaires) Utrecht: Centrum Klantervaring Zorg.
4.
Kessel, P. V., Triemstra, M., & de Boer, D. (2014). Handreiking voor het meten van kwaliteit van zorg met patient reported outcome measures (Assistance for measuring quality of care with patient reported outcome Measures). Utrecht: Nivel.
5.
Turner, R. R., et al. (2007). Patient-reported outcomes: Instrument development and selection issues. Value in Health, 10(2), S86–S93.CrossRefPubMed
6.
McKenna, S. P. (2011). Measuring patient-reported oucomes: Moving beyond misplaced common sense to hard science. BMC Medicine, 9(86).
7.
Boyce, M., & Brown, J. P. (2013). Does providing feedback on patient-reported oucomes to healthcare professionals result in better outcomes for patients? A systematic review. Quality of Life Research, 22, 2265–2278. doi:10.​1007/​s11136-013-0390-0.CrossRefPubMed
8.
Greeson, J. M., Rosenzweig, S., Halbert, S. C., Cantor, I. S., Keener, M. T., & Brainard, G. C. (2008). Integrative Medicine research at an academic medical center: patient characteristics and health-related quality-of-life outcomes. The Journal of Alternative and Complementary Medicine, 14(6), 763–767.CrossRefPubMedPubMedCentral
9.
10.
Frenkel, M., Arye, E. B., Carlson, C., & Sierpina, V. (2008). Integrating complementary and alternative medicine ino conventional primary care: The patient perspective. Explore, 4, 178–186.CrossRefPubMed
11.
Fischer, F., et al. (2014). High prevalence but limited evidence in complementary and alternative medicine: Guidelines for future research. BMC complementary and alternative medicine, 14(46).
12.
Xu, H., & Chen, K. (2011). Integrating traditional medicine with biomedicine. Towards a patient-centered healthcare system. Chinese Journal of Integrative Medicine, 17(2), 83–84.CrossRefPubMed
13.
Kienle, G., Albonico, H., Baars, E., Hamre, H. J., Zimmermann, P., & Kiene, H. (2013). Anthroposphic Medicine: an integrative medical system originating in Europe. Global advances in health and medicine, 2(6), 20–31.CrossRefPubMedPubMedCentral
14.
15.
Baars, E. W. (2011). Evidence-based curative health promotion. A systems based biology-orientated treatment of seasonal allergic rhinitis with Citrus/Cydonia comp. Wageningen: Wageningen University.
16.
Baars, E. (Ed.). (2005). Goede zorg. Ethische en methodische aspecten (Good care. Ethical and methodical aspects). Christofoor: Zeist.
17.
Hamre, H., Fisher, M., Heger, M., Riley, D., Haidvogl, M., Baars, E., et al. (2005). Anthroposophic therapy of respiratory and ear infections. Wiener Klinische Wochenschrift, 117(13), 500–501.CrossRefPubMed
18.
Baars, E. W., Gans, S., & Ellis, E. L. (2008). The effect of hepar magnesium on seasonal fatigue symptoms: A pilot study. The Journal of Alternative and Complementary Medicine, 14(4), 395–402.CrossRefPubMed
19.
Kienle, G., Kiene, H., & Albonico, H. (2006). Anthroposophic medicine, effectiveness, utility, costs, safety. Stuttgart: Schattauer.
20.
Baars, E., & van der Bie, G. (Eds.). (2009). Praktijkonderzoek in de antroposofische gezondheidszorg (Practice research in anthroposophic healthcare). Leiden: Hogeschool Leiden.
21.
Baars, E. W., en G.H. van der Bie (Ed.). (2008). Praktijkonderzoek in de Antroposofische Gezondheidszorg. Eerste stappen in de ontwikkeling van practice-based evidence, ondersteuning in de therapeutische besluitvorming en evalueren van kwaliteit en effect (Practice research in anthroposophic healthcare. First steps in developing practice-based evidence, support of therapeutic decisionmaking and evaluating quality and effect). Leiden: Hogeschool Leiden.
22.
Kienle, G., Glockmann, A., Grugel, R., Hamre, H. J., & Kiene, H. (2011). Klinische Forschung zur Anthroposphischen Medizin—Update eines Health Technology Assesment-Berichts und Status Quo (Clinical Research in Anthroposophic Medicine—Update of a Health Technology Assesment Report and Status Quo). Forschende Komplementärmedizin, 18(5), 4.CrossRef
23.
Hamre, H., Kiene, H., Ziegler, R., Troger, W., Meinecke, C., Schnurer, C., et al. (2014). Overview of the publication from the anthroposophic medicine outcome study (AMOS): A whole system evaluation study. Global advances in health and medicine, 3(1), 54–70. doi:10.​7453/​gahmj.​2013.​010.CrossRefPubMedPubMedCentral
24.
25.
Meuwissen, L. E., & de Bakker, D. H. (2009). Consumer quality-index Huisartsenzorg meet patiëntervaringen en vergelijkt huisartspraktijken (CQ-index General Practice measures patient experiences and compares GP practices). Nederlands Tijdschrijft voor Geneeskunde, 153(A180).
26.
Appleby, J. (2012). Patient reported outcome measures: How are we feeling today? British Medical Journal, 344(d8191).
27.
28.
Haywood, K. L., Staniszewska, S., & Chapman, S. (2012). Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): A systematice review. Quality of Life Research, 21, 35–52. doi:10.​1007/​s11136-011-9921-8.CrossRefPubMed
29.
Wiering, B. M., de Boer, D., Delnoij, D. M. J. (2016). Patient involvement in the development of patient reported outcome measures: A scoping review. Health Expect. doi:10.​1111/​hex.​12442.PubMed
30.
31.
32.
33.
34.
Aaronson, N. K., Muller, M., Cohen, P. D., Essink-Bot, M.-L., Fekkes, M., Sanderman, R., et al. (1998). Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations. Journal of Clinical Epidemiology, 51(11), 1055–1068.CrossRefPubMed
35.
Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13(2), 299–310.CrossRefPubMed
36.
37.
Ketelaars, D., Baars, E., & Kroon, H. (2001). Healing through working. A study of therapeutic communities for persons with psychiatric problems. New York: Mercury Press.
38.
39.
Shih, F. (1998). Triangulation in nursing research: Issues of conceptual clarity and purpose. Journal of advanced nursing, 28(3), 631–641.CrossRefPubMed
40.
Baars, E. W., et al. (2012). Routine outcome monitoring naar uitwendige therapie in de eerstelijnsgezondheidszorg: resultaten van een eerste pilotonderzoek (Routine outcome monitoring of external applications therapy in primary care: results of a pilot study). In E. W. Baars & J. Hoekman (Eds.), De wetenschappelijke stand van zaken van de uitwendige therapie (Scientific state of affairs of external applications therapy). Hogeschool Leiden: Leiden.
41.
Ponstein, A., van Gerven, M., & van der Bie, G. (2011). Healthcare program for depressive disorders: An anthroposophic approach. Leiden: University of Applied Sciences Leiden.
42.
Kroenke, K., Spitzer, R. L., & Williams, J. B. (2001). The PHQ-9: Validation of a brief depression severity measure. Journal of General Internal Medicine, 16, 606–613.CrossRefPubMedPubMedCentral
43.
Wester, F. (1987/1995). Strategieën voor kwalitatief onderzoek (Strategies for qualitative research). Bussum: Coutinho.
44.
Baarda, B. (2013). Basisboek kwalitatief onderzoek (Handbook qualitative research). Groningen/Houten: Noordhoff.
45.
Glaser, B., & Strauss, A. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine.
46.
Nederlands Centrum Geestelijke Gezondheidszorg. (1995). Handboek concept mapping met Ariadne. Utrecht: Author/Talbott.
47.
Strauss, A. L., & Corbin, J. M. (1990). Basics of qualitative research (Vol. 15). Newbury Park, CA:Sage.
48.
Huber, M., Knottnerus, J. A., Green, L., van de Horst, H., Jadad, A. R., Kromhout, S., et al. (2011). How should we define health? British Medical Journal. doi:10.​1136/​bmj.​d4163.PubMed
49.
Huber, M., van Vliet, M., Giezenberg, M., & Knottnerus, A. (2013). Towards a conceptual framework relating to “Health as the ability to adapt and self manage’ Operationalisering Gezondheidsconcept. Driebergen: Louis Bolk Instituut.
50.
51.
Alivia, M., Guadagni, P., & di Sarsina, P. R. (2011). Towards salutogenesis in the development of personalised and preventive healthcare. The EPMA Journal, 2(4), 381–384.CrossRefPubMedPubMedCentral
52.
Döring, T. F., Vieweger, A., Pautasso, M., Vaarst, M., Finckh, M. R., & Wolfe, M. S. (2015). Resilience as a universal criterion of health. Journal of the Science of Food and Agriculture, 95(3), 455–465.CrossRefPubMed
53.
Rosenbaum, P., & Gorter, J. (2012). The ‘F-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457–463.
54.
Timmermans, S. (2013). Seven warrants for qualitative health sociology. Social Science and Medicine, 77, 1–8.CrossRefPubMed
55.
Seligman, M. E., Parks, A. C., & Steen, T. (2004). A balanced psychology and a full life. Philosophical Transactions-Royal Society of London Series B Biological Sciences, 359, 1379–1382.CrossRef
56.
Lee Duckworth, A., Steen, T. A., & Seligman, M. E. (2005). Positive psychology in clinical practice. Annual Review of Clinical Psychology, 1, 629–651.CrossRef
57.
Ryff, C. D., & Keyes, C. L. M. (1995). The structure of psychological well-being revisited. Journal of Personality and Social Psychology, 69(4), 719.CrossRefPubMed
58.
Fava, G. A., & Ruini, C. (2003). Development and characteristics of a well-being enhancing psychotherapeutic strategy: Well-being therapy. Journal of Behavior Therapy and Experimental Psychiatry, 34(1), 45–63.CrossRefPubMed
59.
Metagegevens
Titel
Patient-centered outcomes on quality of life and anthroposophic healthcare: a qualitative triangulation study
Auteurs
Evi B. Koster
Erik W. Baars
Diana M. J. Delnoij
Publicatiedatum
01-09-2016
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 9/2016
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-016-1276-8

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