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Gepubliceerd in: Journal of Autism and Developmental Disorders 11/2022

20-11-2021 | Original Paper

Participation According to Clinicians Working with Young Children with Developmental Disabilities: A Long Way to Go

Auteurs: Marieke Coussens, Jeroen Maes, Annemie Desoete, Guy Vanderstraeten, Hilde Van Waelvelde, Dominique Van de Velde

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2022

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Abstract

Participation has become an important measure of outcome in child rehabilitation as young children with developmental disabilities are increasingly at risk of decreased participation. Therefore, this study garnered information on clinicians’ perspectives regarding perceived facilitators and barriers when rendering participation-based interventions using a qualitative research design. Semi-structured interviews of clinicians (Ns = 12, 25–57 years) were conducted and evaluated via an inductive thematic analysis. Results denote that current mechanisms of providing participation-based interventions resembled traditionally focused interventions; thus, resulting in a knowledge-to-practice gap. Clinicians desired more opportunities to communicate with caregivers and to be able to influence the children’ s natural environments. They also identified shortness of time, resources, and rigid health care regulations as barriers hampering the efficacy of participation-based services.
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Literatuur
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual for mental disorders (5th ed.). American Psychiatric Association.CrossRef American Psychiatric Association. (2013). Diagnostic and statistical manual for mental disorders (5th ed.). American Psychiatric Association.CrossRef
go back to reference Anaby, D., Campbell, S., Missiuna, C., Shaw, S., Bennet, S., Khan, S., Tremblay, S., Kalubi-Lukusa, J., & Camden, C. (2019). Recommend practices to organize and deliver school-based services for children with disabilities: A scoping review. Child Care Health and Development, 45(1), 15–27. https://doi.org/10.1111/cch.12621CrossRefPubMed Anaby, D., Campbell, S., Missiuna, C., Shaw, S., Bennet, S., Khan, S., Tremblay, S., Kalubi-Lukusa, J., & Camden, C. (2019). Recommend practices to organize and deliver school-based services for children with disabilities: A scoping review. Child Care Health and Development, 45(1), 15–27. https://​doi.​org/​10.​1111/​cch.​12621CrossRefPubMed
go back to reference Braund, H., & Soleas, E. (2019). The struggle is real: Metacognitive conceptualizations, actions, and beliefs of pre-service and in-service teachers. In F. E. Weinert & R. H. Kluwe (Eds.), Metacognition, motivation, and understanding (pp. 65–116). Erlbaum. Braund, H., & Soleas, E. (2019). The struggle is real: Metacognitive conceptualizations, actions, and beliefs of pre-service and in-service teachers. In F. E. Weinert & R. H. Kluwe (Eds.), Metacognition, motivation, and understanding (pp. 65–116). Erlbaum.
go back to reference Braun, V., & Clarke, V. (2019). Reflecting on reflexive thematic analysis. Qualitative Research in Sport, Exercise and Health, 11(4), 589–597.CrossRef Braun, V., & Clarke, V. (2019). Reflecting on reflexive thematic analysis. Qualitative Research in Sport, Exercise and Health, 11(4), 589–597.CrossRef
go back to reference Colyvas, J. L., Sawyer, B. E., & Campbell, P. H. (2010). Identifying strategies early intervention occupational therapists use to teach caregivers. American Journal of Occupational Therapy, 64, 776–785.CrossRef Colyvas, J. L., Sawyer, B. E., & Campbell, P. H. (2010). Identifying strategies early intervention occupational therapists use to teach caregivers. American Journal of Occupational Therapy, 64, 776–785.CrossRef
go back to reference Crais, E. R., Roy, V.P., & Free, K. (2006). Parents' and professionals' perception of the implementation of family-centered practices in child assessments. American Journal of Speech-Language Pathology, 15(365–377). Crais, E. R., Roy, V.P., & Free, K. (2006). Parents' and professionals' perception of the implementation of family-centered practices in child assessments. American Journal of Speech-Language Pathology, 15(365–377).
go back to reference Guralnick, M. J. (2008). International perspectives on early intervention: A search for common ground. Journal of Early Intervention, 30, 90–101.CrossRef Guralnick, M. J. (2008). International perspectives on early intervention: A search for common ground. Journal of Early Intervention, 30, 90–101.CrossRef
go back to reference Guest, G., MacQueen, K., & Namey, E. (2012). Applied thematic analysis. SAGE.CrossRef Guest, G., MacQueen, K., & Namey, E. (2012). Applied thematic analysis. SAGE.CrossRef
go back to reference International classification of functioning, disability and health: ICF (2001). Geneva: World Health Organization, 2001. International classification of functioning, disability and health: ICF (2001). Geneva: World Health Organization, 2001.
go back to reference International classification of functioning, disability, and health, children and youth version: ICF-CY (2007). Geneva: World Health Organization, (2007). International classification of functioning, disability, and health, children and youth version: ICF-CY (2007). Geneva: World Health Organization, (2007).
go back to reference Imms, C., Granlund, M., Wilson, P., Steenbergen, B., Rosenbaum, P., & Gordon, A. (2017). Participation, both a means and an end: A conceptual analysis of processes and outcomes in childhood disability. Developmental Medicine & Child Neurology, 59(1), 16–25. https://doi.org/10.1111/dmcn.13237CrossRef Imms, C., Granlund, M., Wilson, P., Steenbergen, B., Rosenbaum, P., & Gordon, A. (2017). Participation, both a means and an end: A conceptual analysis of processes and outcomes in childhood disability. Developmental Medicine & Child Neurology, 59(1), 16–25. https://​doi.​org/​10.​1111/​dmcn.​13237CrossRef
go back to reference Imms, C., & Green, D. (2020). Participation: Optimising outcomes in childhood-onset neuro disability. Clinics in Developmental Medicine. Imms, C., & Green, D. (2020). Participation: Optimising outcomes in childhood-onset neuro disability. Clinics in Developmental Medicine.
go back to reference King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K., & Young, N. L. (2003). A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Physical & Occupational Therapeutics in Pediatrics, 23(1), 63–90.CrossRef King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K., & Young, N. L. (2003). A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Physical & Occupational Therapeutics in Pediatrics, 23(1), 63–90.CrossRef
go back to reference Maciver, D., Rutherford, M., Arakelyan, S., Kramer, J. M., Richmond, J., Todorova, L., Romero-Ayuso, D., Nakamura-Thomas, H., Ten Velden, M., Finlayson, I., O'Hare, A., & Forsyth, K. (2019). Participation of children with disabilities in school: A realist systematic review of psychosocial and environmental factors. PLoS ONE, 29(14(1)). 10.1371 Maciver, D., Rutherford, M., Arakelyan, S., Kramer, J. M., Richmond, J., Todorova, L., Romero-Ayuso, D., Nakamura-Thomas, H., Ten Velden, M., Finlayson, I., O'Hare, A., & Forsyth, K. (2019). Participation of children with disabilities in school: A realist systematic review of psychosocial and environmental factors. PLoS ONE, 29(14(1)). 10.1371
go back to reference Martin, N. C., Piek, J. P., & Hay, D. (2006). DCD and ADHD: A genetic study of their shared aetiology. Human Movement Science, 25(1), 110–124.CrossRef Martin, N. C., Piek, J. P., & Hay, D. (2006). DCD and ADHD: A genetic study of their shared aetiology. Human Movement Science, 25(1), 110–124.CrossRef
go back to reference Maxwell, G., & Granlund, M. (2011). How are conditions for participation expressed in education policy documents? A review of documents in Scotland and Sweden. European Journal of Special Needs of Education, 26, 251–272.CrossRef Maxwell, G., & Granlund, M. (2011). How are conditions for participation expressed in education policy documents? A review of documents in Scotland and Sweden. European Journal of Special Needs of Education, 26, 251–272.CrossRef
go back to reference Menon, A., Korner-Bitensky, N., Kastner, M., et al. (2009). Strategies for rehabilitation professionals to move evidence-based knowledge into practice: a systematic review. J Rehabil Med., 41(13), 1024–1032.CrossRef Menon, A., Korner-Bitensky, N., Kastner, M., et al. (2009). Strategies for rehabilitation professionals to move evidence-based knowledge into practice: a systematic review. J Rehabil Med., 41(13), 1024–1032.CrossRef
go back to reference Palisano, R. J., Chiarello, L. A., King, G. A., Novak, I., Stoner, T., & Fiss, A. (2012). Participation-based therapy for children with physical disabilities. Disability and Rehabilitation, 34(12), 1041–1052.CrossRef Palisano, R. J., Chiarello, L. A., King, G. A., Novak, I., Stoner, T., & Fiss, A. (2012). Participation-based therapy for children with physical disabilities. Disability and Rehabilitation, 34(12), 1041–1052.CrossRef
go back to reference Rasmussen, P., & Gillberg, C. (2000). Natural outcome of ADHD with developmental coordination disorder at age 22 years: A controlled, longitudinal, community-based study. Journal of the American Academy of Child and Adolescent Psychiatry, 39(11), 1424–1431.CrossRef Rasmussen, P., & Gillberg, C. (2000). Natural outcome of ADHD with developmental coordination disorder at age 22 years: A controlled, longitudinal, community-based study. Journal of the American Academy of Child and Adolescent Psychiatry, 39(11), 1424–1431.CrossRef
go back to reference Richards, L. (2005). Handling qualitative data: A practical guide. Sage. Richards, L. (2005). Handling qualitative data: A practical guide. Sage.
go back to reference Ryan, R. M., & Deci, E. L. (2018). Self-determination Theory: Basic psychological needs in motivation, development, and wellness. Guilford Press. Ryan, R. M., & Deci, E. L. (2018). Self-determination Theory: Basic psychological needs in motivation, development, and wellness. Guilford Press.
go back to reference Sawyer, B. E., & Campbell, P. H. (2009). Beliefs about Participation-Based Practices in Early Intervention. In T. J. University (Ed.), Faculty Publications. Sawyer, B. E., & Campbell, P. H. (2009). Beliefs about Participation-Based Practices in Early Intervention. In T. J. University (Ed.), Faculty Publications.
go back to reference Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357.CrossRef Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357.CrossRef
go back to reference Visser, J. (2003). Developmental coordination disorder: A review of research on subtypes and comorbidities. Human Movement Science, 22(4–5), 479–493.CrossRef Visser, J. (2003). Developmental coordination disorder: A review of research on subtypes and comorbidities. Human Movement Science, 22(4–5), 479–493.CrossRef
go back to reference Williams, J., & Holmes, C. (2005). Children of the 21st century: Slipping through the net. Contemporary Nurse, 18(1–2), 57–66.CrossRef Williams, J., & Holmes, C. (2005). Children of the 21st century: Slipping through the net. Contemporary Nurse, 18(1–2), 57–66.CrossRef
go back to reference Zwicker, J., Suto, M., Harris, S. R., Vlasakova, N., & Missiuna, C. (2017). Developmental coordination disorder is more than a motor problem: Children describe the impact of daily struggles on their quality of life. British Journal of Occupational Therapy, 81(2), 65–73. https://doi.org/10.1177/0308022617735046CrossRef Zwicker, J., Suto, M., Harris, S. R., Vlasakova, N., & Missiuna, C. (2017). Developmental coordination disorder is more than a motor problem: Children describe the impact of daily struggles on their quality of life. British Journal of Occupational Therapy, 81(2), 65–73. https://​doi.​org/​10.​1177/​0308022617735046​CrossRef
Metagegevens
Titel
Participation According to Clinicians Working with Young Children with Developmental Disabilities: A Long Way to Go
Auteurs
Marieke Coussens
Jeroen Maes
Annemie Desoete
Guy Vanderstraeten
Hilde Van Waelvelde
Dominique Van de Velde
Publicatiedatum
20-11-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05374-1

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