Skip to main content


Swipe om te navigeren naar een ander artikel

31-08-2017 | S.I. : Parenting Children with ASD | Uitgave 4/2018 Open Access

Journal of Autism and Developmental Disorders 4/2018

Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder

Journal of Autism and Developmental Disorders > Uitgave 4/2018
Helen McConachie, Nuala Livingstone, Christopher Morris, Bryony Beresford, Ann Le Couteur, Paul Gringras, Deborah Garland, Glenys Jones, Geraldine Macdonald, Katrina Williams, Jeremy R. Parr
Belangrijke opmerkingen

Electronic supplementary material

The online version of this article (doi:10.​1007/​s10803-017-3282-2) contains supplementary material, which is available to authorized users.
The broader study has been published as McConachie, H., Parr, J. R., Glod, M., Hanratty, J., Livingstone, N., Oono, I. P., et al. (2015). Systematic review of tools to measure outcomes for young children with autism spectrum disorder. Health Technology Assessment, 19(41), doi:10.​3310/​hta19410.
NIHR guidance on further publication includes: “NIHR considers that publication of its research, necessarily in briefer format, in specialist and general journals, is important for the dissemination and uptake of research findings and therefore expects grant holders to seek such publication. Although the possibility that this may constitute dual publication may cause concerns, it is considered that the NIHR Journals Library, which contains comprehensive accounts of whole funded projects, is different from other smaller journal articles and therefore publication in both formats is acceptable.”


Evaluation of interventions for children with autism spectrum disorder (ASD) is hampered by the multitude of outcomes measured and tools used. Measurement in research with young children tends to focus on core impairments in ASD. We conducted a systematic review of qualitative studies of what matters to parents. Parent advisory groups completed structured activities to explore their perceptions of the relative importance of a wide range of outcome constructs. Their highest ranked outcomes impacted directly on everyday life and functioning (anxiety, distress, hypersensitivity, sleep problems, happiness, relationships with brothers and sisters, and parent stress). Collaboration between professionals, researchers and parents/carers is required to determine an agreed core set of outcomes to use across evaluation research.

Onze productaanbevelingen

BSL Psychologie Totaal

Met BSL Psychologie Totaal blijf je als professional steeds op de hoogte van de nieuwste ontwikkelingen binnen jouw vak. Met het online abonnement heb je toegang tot een groot aantal boeken, protocollen, vaktijdschriften en e-learnings op het gebied van psychologie en psychiatrie. Zo kun je op je gemak en wanneer het jou het beste uitkomt verdiepen in jouw vakgebied.

Extra materiaal
Over dit artikel

Andere artikelen Uitgave 4/2018

Journal of Autism and Developmental Disorders 4/2018 Naar de uitgave

S.I. : Local vs. Global processing in Autism Spectrum Disorders

Color Afterimages in Autistic Adults

S.I. : Local vs. Global processing in Autism Spectrum Disorders

Multiple Object Tracking Reveals Object-Based Grouping Interference in Children with ASD