Top

Gepubliceerd in:

01-08-2011 | Original Paper

Parents of Adolescents with Mental Disorders: Improving Their Caregiving Experience

Auteurs: Michela Gatta, Lara Dal Zotto, Giulia Nequinio, Lara Del Col, Rosaria Sorgato, Giovanni Ceranto, Costantino Paolo Testa, Riccardo Pertile, Pier Antonio Battistella

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 4/2011

Abstract

Several studies have demonstrated that the family members of adolescents with mental diseases experience distress, anxiety and depression, as well as economic strain, all of which contribute to physical and psychological caregiver morbidity. The aim of this study was to assess the effectiveness of intervention to improve the caregiving experience of the parents of mentally ill adolescents. The parents of 20 patients were assessed with the Experience of Caregiving Inventory (ECI) and the Working Alliance Inventory (WAI), while patients’ functioning and psychopathology were evaluated with the Global Assessment of Functioning (GAF) scale and the Child Behavior Check List (CBCL), respectively. Assessments were conducted over 9 months, comparing the experimental group receiving the intervention with a control group that received “standard” care. While there were no significant differences in the patients’ psychopathologies, the caregivers in the experimental group had better ECI and WAI scores. Intervention focusing on the parents seemed to improve the caregivers’ understanding of the disease’s impact on their lives irrespective of the severity of their children’s condition. This finding may be useful in developing adequate measures for the parents of adolescents with severe mental diseases to help contain their psychological distress.

vorige artikel Assessing Psychosocial Impairment in the Pediatric Emergency Department: Child/Caregiver Concordance

volgende artikel Profiles of Racial Socialization Among African American Parents: Correlates, Context, and Outcome

Achenbach, T. M., & Rescorla, L. A. (2001). Manual for the ASEBA school-age forms & profiles. Burlington, VT: University of Vermont, Research Center for Children, Youth & Families.

Addington, J., Coldham, E. L., Jones, B., Ko, T., & Addington, D. (2003). The first episode of psychosis: The experience of relatives. Acta Psychiatrica Scandinavica, 108, 285–289.PubMedCrossRef

Addington, J., McCleery, A., & Addington, D. (2005). Three-year outcome of family work in an early psychosis program. Schizophrenia Research, 79, 107–116.PubMedCrossRef

Association, American. Psychiatric. (1994). Diagnostic and statistical manual of mental disorders (4th ed ed.). Washington DC: American Psychiatric Press.

Baronet, A. M. (1999). Factors associated with caregiving burden in mental illness: A critical review of the research literature. Clinical Psychology Review, 19, 819–841.PubMedCrossRef

Bordin, E. S. (1976). The generalizability of the psychoanalytic concept of the working alliance. Psychotherapy: Theory Research Practice, 16, 252–260.CrossRef

Bowlby, J. (1979). The making and breaking of affectional bonds. In J. Bowlby (Ed.), The making and breaking of affectional bonds (pp. 126–160). London: Tavistock.

Bowlby, J. (1988). A secure base: Parent-child attachment and healthy human development. New York: Basic Books.

Cohen, C. A., Colantonio, A., & Vernich, L. (2002). Positive aspects of caregiving: Rounding out the caregiver experience. International Journal of Geriatric Psychiatry., 17(2), 184–188.PubMedCrossRef

Costello, E. J., Foley, D. L., & Angold, A. (2006). 10-year research update review: The epidemiology of child and adolescent psychiatric disorders: II. Developmental epidemiology. Journal of the American Academy of Child & Adolescent Psychiatry, 45, 8–25.CrossRef

Di Giuseppe, R., Linscott, J., & Jilton, R. (1996). Developing the therapeutic alliance in children-adolescent psychotherapy. Applied & Preventive Psychology, 5, 85–100.CrossRef

Ferruzza, E. (1999). Il lavoro psicoterapeutico con genitori e figli nel tempo. In M. Pierri (Ed.), Genitori e figli nel tempo. Padova, Italy: Patron.

Fiander, M., & Burns, T. (1998). Essential components of schizophrenia care: a Delphi approach. Acta Psychiatrica Scandinavica, 98, 400–405.PubMedCrossRef

Freud, S. (1912). The dynamics of the transference. In J. Strachey (Ed.), and trans. The Standard Edition of the Complete Psychological Works of Sigmund Freud (Vol. 12, pp. 99–108). London: Hogarth Press.

Frigerio, A., Rucci, P., Goodman, R., Ammaniti, M., Carlet, O., Cavolina, P., et al. (2009). Prevalence and correlates of mental disorders among adolescents in Italy: The PrISMA study. European Child and Adolescent Psychiatry, 18, 217–226.PubMedCrossRef

Frigerio, A., Vanzin, L., Pastore, V., Nobile, M., Giorda, R., Marino, C., et al. (2006). The Italian preadolescent mental health project (PrISMA): Rationale and methods. International Journal of Methods in Psychiatric Research, 15, 22–35.PubMedCrossRef

Gatta, M., Ramaglioni, E., Lai, J., Svanellini, L., Toldo, I., Del Col, L., et al. (2009). Psychological and behavioral disease during developmental age: The importance of the alliance with parents. Neuropsychiatric disease and treatment, 5, 541–546.PubMedCrossRef

Gatta, M., Spoto, A., Testa, P., Svanellini, L., Lai, J., Salis, M., et al. (2010). Adolescent insight within the working alliance: A bridge between diagnostic and psychotherapeutic processes. Adolescent Health, Medicine and Therapeutics, 1, 45–52.CrossRef

Greenson, R. R. (1967). The technique and practice of psychoanalysis. New York: International Universities Press.

Hanson, W. E., Curry, K. T., & Bandalos, D. L. (2002). Reliability generalization of working alliance inventory scale scores. Educational and Psychological Measurement, 62, 659–673.CrossRef

Harvey, K., Burns, T., Fahy, T., Manley, C., & Tattan, T. (2001a). Relatives of patients with severe psychotic illness: Factors that influence appraisal of caregiving and psychological distress. Social Psychiatry and Psychiatric Epidemiology, 36, 456–461.PubMedCrossRef

Harvey, K., Burns, T., Fiander, M., Huxley, P., Manley, C., & Fahy, T. (2002). The effect of intensive case management on the relatives of patients with severe mental illness. Psychiatric Services, 53, 1580–1585.PubMedCrossRef

Harvey, K., Burns, T., Sedgwick, P., Higgitt, A., Creed, F., & Fahy, T. (2001b). Relatives of patients with severe psychotic disorders: Factors that influence contact frequency. British Journal of Psychiatry, 178, 248–254.PubMedCrossRef

Henry, W. P., & Strupp, H. H. (1994). The therapeutic alliance as interpersonal process. In A. O. Horvath & L. S. Greenberg (Eds.), The working alliance: Theory, research and practice (pp. 51–84). New York: Wiley.

Horvath, A. O. (1994). Empirical validation of Bordin’s pantheoretical model of the alliance: The working alliance inventory perspective. In A. O. Horvath & L. S. Greenberg (Eds.), The working alliance: Theory, research, and practice (pp. 109–128). New York: Wiley.

Horvath, A. O., & Greenberg, L. S. (1989). The development and validation of the Working Alliance Inventory. Journal of Counseling Psychology, 36, 223–233.CrossRef

Horvath, A. O., & Symonds, B. D. (1991). Relation between working alliance and outcome in psychotherapy: A meta-analysis. Journal of Counseling Psychology, 38, 139–149.CrossRef

Hunt, C. K. (2003). Concepts in caregiver research. Journal of nursing scholarship, 35, 27–32.PubMedCrossRef

Istituto Nazionale di Statistica (ISTAT) (2008). Istruzione: tasso di abbandono delle scuole superiori. In: Barbieri, G. A., Cruciani, S., Ferrara, A. (a cura di). 100 Statistiche per il paese, 35, 48. Roma: CSR.

Ivanova, M. Y., Dobrean, A., Dopfner, M., Erol, N., Fombonne, E., Fonseca, A. C., et al. (2007). Testing the 8-syndrome structure of the CBCL in 30 societies. Journal of Clinical Child and Adolescent Psychology, 36, 405–417.PubMedCrossRef

Joyce, J., Leese, M., Kuipers, E., Smuzkler, G., Harris, T., & Staples, E. (2003). Evaluating a model of caregiving for people with psychosis. Social Psychiatry and Psychiatric Epidemiology, 38, 189–195.PubMedCrossRef

Joyce, J., Leese, M., & Szmukler, G. (2000). The experience of caregiving inventory: Further evidence. Social Psychiatry and Psychiatric Epidemiology, 35, 185–189.PubMedCrossRef

Kessler Ronald, C., & Wang Philip, S. (2008). The descriptive epidemiology of commonly occurring mental disorders in the United States. Annual Review of Public Health, 29, 115–129.PubMedCrossRef

Lingiardi, V. (2002). L’alleanza terapeutica. Teoria, clinica, ricerca (pp. 197–200). Milano: Cortina Raffaello.

Luborsky, L., CritsChristoph, P., Mintz, J., & Auerbach, A. (1988). Who will benefit from psychotherapy?. New York: Basic Books.

Magliano, L., Fadden, G., Economou, M., Held, T., Xavier, M., Guarneri, M., et al. (2000). Family burden and coping strategies in schizophrenia: 1-year follow-up data from the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology, 35, 109–115.PubMedCrossRef

Magliano, L., Fadden, G., Economou, M., Xavier, M., Held, T., Guarneri, M., et al. (1998a). Social and clinical factors influencing the choice of coping strategies in relatives of patients with schizophrenia: results of the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology, 33, 413–419.PubMedCrossRef

Magliano, L., Fadden, G., Madianos, M., de Almeida, J. M., Held, T., Guarneri, M., et al. (1998b). Burden of the families of patients with schizophrenia: results from the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology, 33, 405–412.PubMedCrossRef

Mancini, G. (2003). L’alleanza terapeutica come custode della psicoterapia. Available from http://www.cipspsia.it/allegati/Tesina-Alleanza-Terapeutica-MANCINI.pdf. Accessed on August 10, 2009.

Marcelli, D., & Bracconier, A. (1995). Adolescence et Psychopathologie. Paris: Masson.

Martin, D. J., Garske, J. P., & Davis, M. K. (2000). Relation of the therapeutic alliance with outcome and other variables: A meta-analytic review. Journal of Consulting and Clinical Psychology, 68(3), 438–450.PubMedCrossRef

Meara, N. M., & Patton, M. J. (1994). Contributions of the working alliance in the practice of career counselling. Career Development Quarterly, 43, 161–177.

Møller, T., Gudde, C. B., Folden, G. E., & Linaker, O. M. (2009). The experience of caregiving in relatives of patients with serious mental illness: Gender differences, health and functioning. Scandinavian Journal of Caring Sciences, 23, 153–160.PubMedCrossRef

Nock, M. K., & Kazdin, A. E. (2005). Randomized controlled trial of a brief intervention for increasing participation in parent management training. Journal of Consulting and Clinical Psychology, 73, 872–879.PubMedCrossRef

Orlinsky, D. E., & Howard, K. I. (1978). The relation of process to outcome in psychotherapy. In S. L. Garfield & A. E. Bergin (Eds.), Handbook of psychotherapy and behavior change: An empirical analysis (2nd ed., pp. 283–329). New York: Wiley.

Orlinsky, D. E., & Howard, K. I. (1986). Process and outcome in psychotherapy. In S. L. Garfield & A. E. Bergin (Eds.), Handbook of psychotherapy and behavior change (3rd ed., pp. 311–381). New York: Wiley.

Raune, D., Kuipers, E., & Bebbington, P. E. (2004). Expressed emotion at first-episode psychosis: investigating a carer appraisal model. British Journal of Psychiatry, 184, 321–326.PubMedCrossRef

Rogers, C. R. (1975). Empathic: An unappreciated way of being. The Counseling Psychologist, 5(2), 2–10.CrossRef

Sepulveda, A. R., Kyriacou, O., & Treasure, J. (2009a). Development and validation of the Accommodation and Enabling Scale for Eating Disorders (AESED) for caregivers in eating disorders. BMC. Health Services Research, 9, 171–183.PubMedCrossRef

Sepulveda, A. R., Lopez, C., Macdonald, P., & Treasure, J. (2008a). Feasibility and acceptability of DVD and telephone coaching-based skills training for carers of people with an eating disorder. International Journal of Eating Disorders, 41, 318–325.PubMedCrossRef

Sepulveda, A. R., Todd, G., Whitaker, W., Grover, M., Stahl, D., & Treasure, J. (Oct 5 2009). Expressed emotion in relatives of patients with eating disorders following skills training program. International Journal of Eating Disorders, doi:10.1002/eat.20749.

Sepulveda, A. R., Whitney, J., Hankins, M., & Treasure, J. (2008b). Development and validation of an Eating Disorders Symptoms Impact Scale (EDSIS) for carers of people with eating disorders. Health and Quality of Life Outcomes, 6, 28–36.PubMedCrossRef

Startup, M., Jackson, M. C., & Bendix, S. (2002). The concurrent validity of the Global Assessment of Functioning (GAF). British Journal of Clinical Psychology, 41, 417–422.PubMedCrossRef

Szmukler, G. I., Burgess, P., Hermann, H., Benson, A., Colusa, S., & Bloch, S. (1996a). Caring for relatives with serious mental illness: the development of the experience of caregiving inventory. Social Psychiatry and Psychiatric Epidemiology, 31, 137–148.PubMedCrossRef

Szmukler, G. I., Herman, H., Collusa, S., Benson, A., & Bloch, S. (1996b). A controlled trial of a counselling intervention for caregivers or relatives with schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 31, 149–155.PubMedCrossRef

Szmukler, G. I., Kuipers, E., Joyce, J., Harris, T., Leese, M., Maphosa, W., et al. (2003). An exploratory randomised controlled trial of a support programme for carers of patients with a psychosis. Social Psychiatry and Psychiatric Epidemiology, 38, 411–418.PubMedCrossRef

Szmukler, G. I., Wykes, T., & Parkman, S. (1998). Care-giving and the impact on carers of a community mental health service. PRiSM Psychosis Study. 6. British Journal of Psychiatry, 173, 399–403.PubMedCrossRef

Tarlow, B. J., Wisniewski, S. R., Belle, S. H., Rubert, M., Ory, M. G., & Gallagher-Thompson, D. (2004). Positive aspects of caregiving: Contributions of the REACH project to the development of new measures for Alzheimer’s caregiving. Research on Aging, 26(4), 429–480.CrossRef

Tarricone, I., Leese, M., Szmukler, G. I., Bassi, M., & Berardi, D. (2006). The experience of carers of patients with severe mental illness: A comparison between London and Bologna. European Psychiatry, 21, 93–101.PubMedCrossRef

Tennakoon, L., Fannon, D., Doku, V., O’Ceallaigh, S., Soni, W., Santamaria, M., et al. (2000). Experience of caregiving: Relatives of people experiencing a first episode of psychosis. British Journal of Psychiatry, 177, 529–533.PubMedCrossRef

Treasure, J., Murphy, T., Szmukler, G., Todd, G., Gavan, K., & Joyce, J. (2001). The experience of caregiving for severe mental illness: A comparison between anorexia nervosa and psychosis. Social Psychiatry and Psychiatric Epidemiology, 36, 343–347.PubMedCrossRef

Van Wijngaarden, B., Schene, A., Koeter, M., Becker, T., Knapp, M., Knudsen, H. C., et al. (2003). EPSILON Study Group. People with schizophrenia in five countries: Conceptual similarities and intercultural differences in family caregiving. Schizophrenia Bullettin, 29, 573–586.

Whitney, J., Haigh, R., Weinman, J., & Treasure, J. (2007). Caring for people with eating disorders: factors associated with psychological distress and negative caregiving appraisals in carers of people with eating disorders. British Journal of Clinical Psychology, 46, 413–428.PubMedCrossRef

Winn, S., Perkins, S., Walwyn, R., Schmidt, U., Eisler, I., Treasure, J., et al. (2007). Predictors of mental health problems and negative caregiving experiences in carers of adolescents with bulimia nervosa. International Journal of Eating Disorders, 40, 171–178.PubMedCrossRef

Winnicott, D. W. (1965). The maturation processes and the facilitating environment. New York: International Universities Press.

World Health Organization. (1992). ICD 10, international statistical classification of diseases and related health problems (10th ed.). New York: American Psychiatry Publishing.

Titel: Parents of Adolescents with Mental Disorders: Improving Their Caregiving Experience
Auteurs: Michela Gatta
Lara Dal Zotto
Giulia Nequinio
Lara Del Col
Rosaria Sorgato
Giovanni Ceranto
Costantino Paolo Testa
Riccardo Pertile
Pier Antonio Battistella
Publicatiedatum: 01-08-2011
Uitgeverij: Springer US
Gepubliceerd in: Journal of Child and Family Studies / Uitgave 4/2011
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI: https://doi.org/10.1007/s10826-010-9415-2

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 4/2011

Assessing Psychosocial Impairment in the Pediatric Emergency Department: Child/Caregiver Concordance

Measuring Competence and Dysfunction in Preschool Children: Source Agreement and Component Structure

Trajectories of Postpartum Maternal Depressive Symptoms and Children’s Social Skills

Parental Knowledge and Substance Use Among African American Adolescents: Influence of Gender and Grade Level

Parental Monitoring During Early Adolescence Deters Adolescent Sexual Initiation: Discrete-Time Survival Mixture Analysis

Development and Validation of a Parent Report Measure for Assessing Social-Emotional Competencies of Children and Adolescents