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Gepubliceerd in:

29-11-2016 | Original Paper

Parentification of Adult Siblings of Individuals with Autism Spectrum Disorder

Auteurs: Theodore S. Tomeny, Tammy D. Barry, Elizabeth C. Fair, Robyn Riley

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 4/2017

Abstract

Many typically-developing (TD) siblings provide care for their siblings with autism spectrum disorder (ASD), both as children and as adults. Research on parentification (i.e., when children assume responsibilities typically reserved for adults) has been mixed, with some studies supporting positive outcomes for TD siblings and others indicating negative outcomes. Some of these discrepancies may be due to inconsistencies in differentiating types of parentification. The current study examined how different types of parentification during childhood (retrospectively-reported) related to distress outcomes and attitudes about sibling relationships among 41 TD adult siblings of individuals with ASD. Results indicated that parent-focused parentification was positively related with anxiety and stress among TD siblings. Sibling-focused parentification was positively related to stress but was also related to more positive sibling relationship attitudes. Accounting for demographic variables and the other form of parentification, parent-focused parentification was a unique predictor of distress, whereas sibling-focused parentification was a unique predictor of positive sibling relationship attitudes. Although parentification is often viewed negatively, sibling-focused parentification and perceived benefits of parentification may predict positive outcomes. Results suggest that parentification may prove important in understanding the complex nature of sibling relationships. Specifically, strengthening the sibling bond and reducing parent-focused parentification during childhood may curtail sibling relationship problems and general distress in TD siblings later in life.

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Bigby, C. (1997). Parental substitutes? The role of siblings in the lives of older people with intellectual disability. Journal of Gerontological Social Work, 29, 3–21. doi:10.1300/J083v29n01_02.CrossRef

Brody, G. H. (1998). Sibling relationship quality: Its causes and consequences. Annual Review of Psychology, 49, 1–24. doi:10.1146/annurev.psych.49.1.1.CrossRefPubMed

Burke, M. M., Taylor, J. L., Urbano, R., & Hodapp, R. M. (2012). Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities. American Journal of Intellectual and Developmental Disabilities, 117, 33–47. doi:10.1352/1944-7558-117.1.33.CrossRef

Burton, L. (2007). Childhood adultification in economically disadvantaged families: A conceptual model. Family Relations, 56, 329–345.CrossRef

Byng-Hall, J. (2008). The significance of children fulfilling parental roles: Implications for family therapy. Journal of Family Therapy, 30, 147–162. doi:10.1111/j.1467-6427.2008.00423.x.CrossRef

Cicirelli, V. G. (1995). Sibling relationships across the life span. New York: Plenum Press.CrossRef

Cridland, E. K., Jones, S. C., Stoyles, G., Caputi, A. P., & Magee, C. A. (2015). Families living with autism spectrum disorder: Roles and responsibilities of adolescent sisters. Focus on Autism and Other Developmental Disabilities , 1–12. doi:10.1177/1088357615583466.

Di Biasi, S., Trimarco, B., D’Ardia, C., Melogno, S., Meledrani, G., & Levi, G. (2016). Psychological adjustment, social responsiveness, and parental distress in an Italian sample of siblings of children with high-functioning autism spectrum disorder. Journal of Child and Family Studies, 25, 883–890. doi:10.1007/s10826-015-0256-x.CrossRef

Diener, M. L., Anderson, L., Wright, C. A., & Dunn, M. L. (2015). Sibling relationships in children with autism spectrum disorder in the context of everyday life and a strength-based program. Journal of Child and Family Studies, 24, 1060–1072. doi:10.1007/s10826-014-9915-6.CrossRef

Fitzgerald, M. M., Schneider, R. A., Salstrom, S., Zinzow, H. M., Jackson, J., & Fossel, R. V. (2008). Child sexual abuse, early family risk, and childhood parentification: Pathways to current psychosocial adjustment. Journal of Family Psychology, 22, 320–324. doi:10.1037/0893-3200.22.2.320.CrossRefPubMed

Gerhard, P. F., & Lainer, I. (2011). Addressing the needs of adolescents and adults with autism: A crisis on the horizon. Journal of Contemporary Psychotherapy, 41, 37–45. doi:10.1007/s10879-010-9160-2.CrossRef

Harrell, F. E. (2001). Regression Modeling Strategies. New York: Springer.CrossRef

Hastings, R. P. (2003). Behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 33, 99–104.CrossRefPubMed

Heller, T., & Kramer, J. (2009). Involvement of adult siblings of persons with developmental disabilities in future planning. Intellectual and Developmental Disabilities, 47, 208–219. doi:10.1352/1934-9556-47.3.208.CrossRefPubMed

Hooper, L. M., DeCoster, J., White, N., & Voltz, M. L. (2011a). Characterizing the magnitude of the relation between self-reported childhood parentification and adult psychopathology: A meta-analysis. Journal of Clinical Psychology, 67, 1–16. doi:10.1002/jclp.20807.CrossRef

Hooper, L. M., Doehler, K., Wallace, S. A., & Hannah, N. J. (2011b). The parentification inventory: Development, validation, and cross-validation. The American Journal of Family Therapy, 39, 226–241. doi:10.1080/01926187.2010.531652.CrossRef

Hooper, L. M., & Doehler, K. (2012). Assessing family caregiving: A comparison of three retrospective parentification measures. Journal of Marital and Family Therapy, 38, 653–666. doi:10.1111/j.1752-0606.2011.00258.x.CrossRefPubMed

Hooper, L. M. (2012). Parentification. In R. J. R. Levesque (Ed.), Encyclopedia of Adolescence. Vol 4, (pp. 2023–2031). New York, NY: Springer.

Hooper, L. M. (2009). Parentification Inventory. Tuscaloosa: Department of Educational Studies in Psychology, Research Methodology, and Counseling, The University of Alabama.

Jurkovic, G. J. (1997). Lost Childhoods: The Plight of the Parentified Child. Philadelphia: Taylor & Francis.

Jurkovic, G. J., Kuperminc, G., Perilla, J., Murphy, A., Ibanez, G., & Casey, S. (2004). Ecological and ethical perspectives on filial responsibility: Implications for primary prevention with immigrant latino adolescents. The Journal of Primary Prevention, 25, 81–104. doi:10.1023/B:JOPP.0000039940.99463.eb.CrossRef

Kennedy, D. E., & Kramer, L. (2008). Improving emotion regulation and sibling relationship quality: The more fun with sisters and brothers program. Family Relations, 57, 567–578. doi:10.1111/j.1741-3729.2008.00523.x.CrossRef

Kramer, L., & Kowal, A. K. (2005). Sibling relationship quality from birth to adolescence: The enduring contributions of friends. Journal of Family Psychology, 19, 503–511. doi:10.1037/0893-3200.19.4.503.CrossRefPubMed

Krauss, M. W., Seltzer, M. M., Gordon, R., & Friedman, D. H. (1996). Binding ties: The roles of adult siblings of persons with mental retardation. Mental Retardation, 34, 83–93.PubMed

Lovibond, P. F., & Lovibond, S. H. (1995). The structure of negative emotional states: Comparison of the depression anxiety stress scales (DASS) with the beck depression and anxiety inventories. Behaviour Research and Therapy, 33, 335–343. doi:10.1016/0005-7967(94)00075-U.CrossRefPubMed

McMahon, T. J., & Luthar, S. S. (2007). Defining characteristics and potential consequences of caretaking burden among children living in urban poverty. American Journal of Orthopsychiatry, 77, 267–281. doi:10.1037/0002-9432.77.2.267.CrossRefPubMedPubMedCentral

Orsmond, G. I., Kuo, H., & Seltzer, M. (2009). Siblings of individuals with an autism spectrum disorder: Sibling relationships and wellbeing in adolescence and adulthood. Autism, 13, 59–80. doi:10.1177/1362361308097119.CrossRefPubMedPubMedCentral

Orsmond, G. I., & Seltzer, M. M. (2000). Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship. American Journal of Mental Retardation, 105, 486–508.CrossRefPubMed

Orsmond, G. I., & Seltzer, M. (2007). Siblings of individuals with autism spectrum disorders across the life course. Mental Retardation and Developmental Disabilities Research Reviews, 13, 313–320. doi:10.1002/mrdd.20171.CrossRefPubMed

Orsmond, G. I., & Seltzer, M. M. (2009). Adolescent siblings of individuals with autism spectrum disorder: Testing a diathesis-stress model of sibling well-being. Journal of Autism and Developmental Disorders, 39, 1053–1065.CrossRefPubMedPubMedCentral

Petalas, M. A., Hastings, R. P., Nash, S., & Duff, S. (2015). Typicality and subtle difference in sibling relationships: Experiences of adolescents with autism. Journal of Child and Family Studies, 24, 38–49. doi:10.1007/s10826-013-9811-5.CrossRef

Pollard, C. A., Barry, C. M., & Freedman, B. H. (2013). Relationship quality as a moderator of anxiety in siblings of children diagnosed with autism spectrum disorders or Down syndrome. Journal of Child and Family Studies, 22, 647–657. doi:10.1007/s10826-012-9618-9.CrossRef

Portner, L. C. & Riggs, S. A. (2016). Sibling relationships in emerging adulthood: Associations with parent-child relationship. Journal of Child and Family Studies, Advance online publication. doi:10.1007/s10826-015-0358-5.

Rao, P. A., & Biedel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33, 437–451. doi:10.1177/0145445509336427.CrossRefPubMed

Riggio, H. (2000). Measuring attitudes toward adult sibling relationships: The lifespan sibling relationship scale. Journal of Social and Personal Relationship, 17, 707–728. doi:10.1177/0265407500176001.CrossRef

Ross, P., & Cuskelly, M. (2006). Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorder. Journal of Intellectual and Developmental Disability, 31, 77–86. doi:10.1080/13668250600710864.CrossRefPubMed

Seltzer, M. M., Krauss, M. W., Hong, J., & Orsmond, G. I. (2001). Continuity or discontinuity of family involvement following residential transitions to adults who have mental retardation. Mental Retardation, 39, 181–194.CrossRefPubMed

Shivers, C. M., Deisenroth, L. K., & Taylor, J. L. (2013). Patterns and predictors of anxiety among siblings of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 1336–1346. doi:10.1007/s10803-012-1685-7.CrossRefPubMedPubMedCentral

Shifren, K. (2001). Early caregiving and adult depression: Good news for young caregivers. The Gerontologist, 41, 188–190. doi:10.1093/geront/41.2.188.CrossRefPubMed

Shifren, K., & Kachorek, L. V. (2003). Does early caregiving matter? The effects on young caregivers’ adult mental health. International Journal of Behavioral Development, 27, 338–346. doi:10.1080/01650250244000371.CrossRef

Smith, M. J., Greenberg, J. S., & Seltzer, M. M. (2007). Siblings of adults with schizophrenia: Expectations about future caregiver roles. American Journal of Orthopsychiatry, 77, 29–37. doi:10.1037/0002-9432.77.1.29.CrossRefPubMedPubMedCentral

Smith, J., & Ross, H. (2007). Training parents to mediate sibling disputes affects children’s negotiation and conflict understanding. Child Development, 78, 790–805. doi:10.1111/j.1467-8624.2007.01033.x.CrossRefPubMed

Stein, J. A., Rotheram-Borus, M. J., & Lester, P. (2007). Impact of parentification on long-term outcomes among children of parents with HIV/AIDS. Family Process, 46, 317–333. doi:10.1111/j.1545-5300.2007.00214.x.CrossRefPubMed

Stewart, R. B., & Marvin, R. S. (1984). Sibling relations: The role of conceptual perspective-taking in the ontogeny of sibling caregiving. Child Development, 55, 1322–1332. doi:10.2307/1130002.CrossRef

Stormshak, E. A., Bellanti, C. J., & Bierman, K. L., the Conduct Problems Prevention Research Group. (1996). The quality of sibling relationships and the development of social competence and behavioral control in aggressive children. Developmental Psychology, 32, 79–89. doi:10.1037/0012-1649.32.1.79.CrossRef

Tomeny, T. S., Barry, T. D., & Bader, S. H. (2012). Are typically-developing siblings of children with an autism spectrum disorder at risk for behavioral, emotional, or social maladjustment? Research in Autism Spectrum Disorders, 6, 508–518. doi:10.1016/j.rasd.2011.07.012.CrossRef

Tozer, R., Atkin, K., & Wenham, A. (2013). Continuity, commitment and context: Adult siblings of people with autism plus learning disability. Health & Social Care in the Community, 21, 480–488. doi:10.1111/hsc.12034.CrossRef

Tucker, C. J., McHale, S. M., & Crouter, A. C. (2008). Links between older and younger adolescent siblings’ adjustment: The moderating role of shared activities. International Journal of Behavioral Development, 32, 152–160. doi:10.1177/0165025407087214.CrossRef

Ward, B., Tanner, B. S., Mandleco, B., Dyches, T. T., & Freeborn, D. (2016). Sibling experiences: Living with young persons with autism spectrum disorders. Pediatric Nursing, 42, 69.PubMed

Whiteman, S. D., McHale, S. M., & Crouter, A. D. (2007). Competing processes of sibling influence: Observational learning and sibling deidentification. Social Development, 16, 642–661. doi:10.1111/j.1467-9507.2007.00409.x.CrossRef

Wilson, C. J., McGillivray, J. A., & Zetlin, A. G. (1992). The relationship between attitude to disabled siblings and ratings of behavioural competency. Journal of Intellectual Disability Research, 36, 325–336. doi:10.1111/j.1365-2788.1992.tb00531.x.CrossRefPubMed

Titel: Parentification of Adult Siblings of Individuals with Autism Spectrum Disorder
Auteurs: Theodore S. Tomeny
Tammy D. Barry
Elizabeth C. Fair
Robyn Riley
Publicatiedatum: 29-11-2016
Uitgeverij: Springer US
Gepubliceerd in: Journal of Child and Family Studies / Uitgave 4/2017
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI: https://doi.org/10.1007/s10826-016-0627-y

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