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Gepubliceerd in: Journal of Autism and Developmental Disorders 7/2021

30-09-2020 | Original Paper

Parental Risk Literacy is Related to Quality of Life in Spanish Families of Children with Autism Spectrum Disorder

Auteurs: Dunia Garrido, Dafina Petrova, Edward Cokely, Gloria Carballo, Rocio Garcia-Retamero

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2021

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Abstract

Families of children with autism spectrum disorder (ASD) often experience much more negative perceptions of their family quality of life (FQoL). To investigate key factors that may shape these experiences, we conducted a case–control study of sixty-one Spanish families (29 with a child with ASD) using a broad psychosocial assessment (e.g., ASD severity, social support, demographics), including the first direct test of the relationship between FQoL and parental risk literacy (i.e., the ability to evaluate and understand risk, as measured by numeracy). Results revealed that numeracy was associated with differences in perceived FQoL among families of children with ASD (R2 = .10), a finding that held across several models statistically controlling for the influence of other variables. Findings suggest that parental risk literacy skills may generally be associated with differences in decision making vulnerabilities (e.g., risk evaluation and interpretation) that influence family outcomes including FQoL.
Literatuur
go back to reference American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders manual text revision (DSM-IV-TR). Washington, DC: American Psychiatric Association. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders manual text revision (DSM-IV-TR). Washington, DC: American Psychiatric Association.
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.CrossRef American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.CrossRef
go back to reference Berkman, L. F., & Syme, S. L. (1979). Social networks, host resistance, and mortality: A nine-year follow-up study of Alameda County residents. American Journal of Epidemiology, 109(2), 186–204.CrossRef Berkman, L. F., & Syme, S. L. (1979). Social networks, host resistance, and mortality: A nine-year follow-up study of Alameda County residents. American Journal of Epidemiology, 109(2), 186–204.CrossRef
go back to reference Cohen, J., Cohen, P., West, S. G., & Aiken, L. S. (2003). Applied multiple regressions/correlations analysis for the behavioral sciences. Mahwah: Lawerence Erlbaum Associates. Cohen, J., Cohen, P., West, S. G., & Aiken, L. S. (2003). Applied multiple regressions/correlations analysis for the behavioral sciences. Mahwah: Lawerence Erlbaum Associates.
go back to reference Cokely, E. T., Feltz, A., Ghazal, S., Allan, J. N., Petrova, D., & Garcia-Retamero, R. (2018). Skilled decision theory: From intelligence to numeracy and expertise. In K. A. Ericsson, R. R. Hoffman, A. Kozbelt, & A. M. Williams (Eds.), Cambridge handbook of expertise and expert performance (2nd ed., pp. 476–505). New York: Cambridge University Press.CrossRef Cokely, E. T., Feltz, A., Ghazal, S., Allan, J. N., Petrova, D., & Garcia-Retamero, R. (2018). Skilled decision theory: From intelligence to numeracy and expertise. In K. A. Ericsson, R. R. Hoffman, A. Kozbelt, & A. M. Williams (Eds.), Cambridge handbook of expertise and expert performance (2nd ed., pp. 476–505). New York: Cambridge University Press.CrossRef
go back to reference Cokely, E. T., Galesic, M., Schulz, E., Ghazal, S., & Garcia-Retamero, R. (2012). Measuring risk literacy: The Berlin numeracy test. Judgment and Decision Making, 7, 25–47. Cokely, E. T., Galesic, M., Schulz, E., Ghazal, S., & Garcia-Retamero, R. (2012). Measuring risk literacy: The Berlin numeracy test. Judgment and Decision Making, 7, 25–47.
go back to reference Cokely, E. T., & Kelley, C. M. (2009). Cognitive abilities and superior decision making under risk: A protocol analysis and process model evaluation. Judgment and Decision Making, 4(1), 20–33. Cokely, E. T., & Kelley, C. M. (2009). Cognitive abilities and superior decision making under risk: A protocol analysis and process model evaluation. Judgment and Decision Making, 4(1), 20–33.
go back to reference Gaissmaier, W., Wegwarth, O., Skopec, D., Müller, A., Broschinski, S., & Politi, M. C. (2012). Numbers can be worth a thousand pictures: Individual differences in understanding graphical and numerical representations of health-related information. Health Psychology, 31, 286–296. https://doi.org/10.1037/a0024850.CrossRefPubMed Gaissmaier, W., Wegwarth, O., Skopec, D., Müller, A., Broschinski, S., & Politi, M. C. (2012). Numbers can be worth a thousand pictures: Individual differences in understanding graphical and numerical representations of health-related information. Health Psychology, 31, 286–296. https://​doi.​org/​10.​1037/​a0024850.CrossRefPubMed
go back to reference Garrido, D., Carballo, G., Franco, V., & Garcia-Retamero, R. (2015). Dificultades de comprensión del lenguaje en niños no verbales con trastornos del espectroautista y sus implicaciones en la calidad de vida familiar [Language comprehension disorders in non-verbal children with autism spectrum disorders and their implications in the family quality of life]. Revista de Neurología, 60, 207–214.CrossRef Garrido, D., Carballo, G., Franco, V., & Garcia-Retamero, R. (2015). Dificultades de comprensión del lenguaje en niños no verbales con trastornos del espectroautista y sus implicaciones en la calidad de vida familiar [Language comprehension disorders in non-verbal children with autism spectrum disorders and their implications in the family quality of life]. Revista de Neurología, 60, 207–214.CrossRef
go back to reference Gilliam, J. E. (2004). Gilliam Autism Rating Scale. Austin, TX: Pro-Ed. Gilliam, J. E. (2004). Gilliam Autism Rating Scale. Austin, TX: Pro-Ed.
go back to reference Hayes, A. F. (2013). Introduction to mediation, moderation, and conditional process analysis: A regression-based approach. New York: Guilford Press. Hayes, A. F. (2013). Introduction to mediation, moderation, and conditional process analysis: A regression-based approach. New York: Guilford Press.
go back to reference Le Couteur, A., Lord, C., & Rutter, M. (2003). The autism diagnostic interview-revised (ADI-R). Los Angeles: Western Psychological Services. Le Couteur, A., Lord, C., & Rutter, M. (2003). The autism diagnostic interview-revised (ADI-R). Los Angeles: Western Psychological Services.
go back to reference Lord, C., Rutter, M., DiLavore, P. C., & Risi, S. (2002). Autism Diagnostic Observation Schedule-WPS (ADOS-WPS). Los Angeles: Western Psychological Services. Lord, C., Rutter, M., DiLavore, P. C., & Risi, S. (2002). Autism Diagnostic Observation Schedule-WPS (ADOS-WPS). Los Angeles: Western Psychological Services.
go back to reference Romanczyk, R. G., & Gillis, J. M. (2005). Treatment approaches for autism: Evaluating options and making informed choices. In D. Zager (Ed.), Autism spectrum disorders: Identification, education, and treatment (3rd ed., pp. 515–535). Mahwah, NJ: Lawrence Erlbaum. Romanczyk, R. G., & Gillis, J. M. (2005). Treatment approaches for autism: Evaluating options and making informed choices. In D. Zager (Ed.), Autism spectrum disorders: Identification, education, and treatment (3rd ed., pp. 515–535). Mahwah, NJ: Lawrence Erlbaum.
go back to reference Traczyk, J., Sobkow, A., Fulawka, K., Kus, J., Petrova, D., & Garcia-Retamero, R. (2018). Numerate decision makers don’t use more effortful strategies unless it pays: A process tracing investigation of skilled and adaptive strategy selection in risky decision making. Judgment and Decision Making, 13, 372–438. Traczyk, J., Sobkow, A., Fulawka, K., Kus, J., Petrova, D., & Garcia-Retamero, R. (2018). Numerate decision makers don’t use more effortful strategies unless it pays: A process tracing investigation of skilled and adaptive strategy selection in risky decision making. Judgment and Decision Making, 13, 372–438.
go back to reference Verdugo, M. A., Rodríguez, A., & Sainz, F. (2009). Escala de calidad de vida familiar. Salamanca: INICO (Spanish adaptation to the Family Quality of Life Survey, Beach Center on Disability, 2003). Verdugo, M. A., Rodríguez, A., & Sainz, F. (2009). Escala de calidad de vida familiar. Salamanca: INICO (Spanish adaptation to the Family Quality of Life Survey, Beach Center on Disability, 2003).
go back to reference Webster, A., Cumming, J., & Rowland, S. (2016). Empowering parents of children with autism spectrum disorder: Critical decision-making for quality outcomes. Singapore: Springer. Webster, A., Cumming, J., & Rowland, S. (2016). Empowering parents of children with autism spectrum disorder: Critical decision-making for quality outcomes. Singapore: Springer.
Metagegevens
Titel
Parental Risk Literacy is Related to Quality of Life in Spanish Families of Children with Autism Spectrum Disorder
Auteurs
Dunia Garrido
Dafina Petrova
Edward Cokely
Gloria Carballo
Rocio Garcia-Retamero
Publicatiedatum
30-09-2020
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-020-04733-8

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