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03-01-2019 | Original Paper | Uitgave 5/2019

Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder

Tijdschrift:: Journal of Autism and Developmental Disorders > Uitgave 5/2019

Auteurs:: Dasal Tenzin Jashar, Deborah Fein, Leandra N. Berry, Jeffrey D. Burke, Lauren E. Miller, Marianne L. Barton, Thyde Dumont-Mathieu

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The online version of this article (https://doi.org/10.1007/s10803-018-3851-z) contains supplementary material, which is available to authorized users.

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Abstract

Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child’s cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback.

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Titel: Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder
Auteurs:: Dasal Tenzin Jashar
Deborah Fein
Leandra N. Berry
Jeffrey D. Burke
Lauren E. Miller
Marianne L. Barton
Thyde Dumont-Mathieu
Publicatiedatum: 03-01-2019
DOI: https://doi.org/10.1007/s10803-018-3851-z
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Uitgave 5/2019
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

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