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03-01-2019 | Original Paper | Uitgave 5/2019

Journal of Autism and Developmental Disorders 5/2019

Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder

Tijdschrift:
Journal of Autism and Developmental Disorders > Uitgave 5/2019
Auteurs:
Dasal Tenzin Jashar, Deborah Fein, Leandra N. Berry, Jeffrey D. Burke, Lauren E. Miller, Marianne L. Barton, Thyde Dumont-Mathieu
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Electronic supplementary material

The online version of this article (https://​doi.​org/​10.​1007/​s10803-018-3851-z) contains supplementary material, which is available to authorized users.

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Abstract

Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child’s cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback.

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Extra materiaal
Supplementary material 1 (DOCX 20 KB)
10803_2018_3851_MOESM1_ESM.docx
Supplementary material 2 (SAV 207 KB)
10803_2018_3851_MOESM2_ESM.sav
Supplementary Table 1 (DOCX 23 KB)
10803_2018_3851_MOESM3_ESM.docx
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