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26-09-2019 | Original Paper | Uitgave 2/2020

Parent Perspectives on the Presentation, Triggers, Impact, and Support of Anxiety in Young Children on the Autism Spectrum

Tijdschrift:: Journal of Child and Family Studies > Uitgave 2/2020

Auteurs:: Kate Simpson, Dawn Adams, Elizabeth Wheeley, Deb Keen

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Abstract

Objectives

A high proportion of children with autism experience elevated anxiety, which is evident from an early age. Although parents provide a significant role in recognising the early signs and triggers of their child’s anxiety and in prompting help-seeking, there are few studies using qualitative methods to document parent perspectives around their child’s anxiety. The aim of this study is to explore parent perspectives of their child’s anxiety across home and school.

Methods

Semi-structured interviews were conducted with parents of 10 young children (5–8 years) with autism to explore their understanding of their child’s presentation and triggers of anxiety across different settings (home and school) as well as the strategies and supports used to manage the anxiety in the home and school setting. Thematic analysis of the data

Results

Parents reported signs of anxiety were evident in their child from a young age but recognising these signs and distinguishing anxiety from other behaviours was difficult. Triggers identified related to sensory experiences, academic expectations, social demands, and uncertainty, all of which were discussed in relation to the school context. Parents shared how supporting their child with autism is multifaceted and is related to understanding the individual child’s anxiety.

Conclusions

These findings highlight the heterogeneity of anxiety presentation in children with autism and the challenge in differentiating anxiety from other behaviours both in home and school settings.

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Meer informatie

Adams, D., & Oliver, C. (2011). The expression and assessment of emotions and internal states in individuals with severe or profound intellectual disabilities. Clinical Psychology Review, 31, 293–306. https://doi.org/10.1016/j.cpr.2011.01.003. CrossRefPubMed

Adams, D., Clark, M., & Simpson, K. (2019). The relationship between child anxiety and the quality of life of children, and parents of children, on the autism spectrum. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/2Fs10803-019-03932-2.

Adams, D., MacDonald, L., & Keen, D. (2019). Teacher responses to anxiety-related behaviours in students on the autism spectrum. Research in Developmental Disabilities, 86, 11–19. https://doi.org/10.1016/j.ridd.2018.12.009. CrossRefPubMed

Adams, D., Simpson, K., & Keen, D. (2018). School-related anxiety symptomatology in a community sample of primary-school-aged children on the autism spectrum. Journal of School Psychology, 70, 64–73. https://doi.org/10.1016/j.jsp.2018.07.003. CrossRefPubMed

Adams, D., Young, K., & Keen, D. (2019). Anxiety in children with autism at school: a systematic review. Review Journal of Autism and Developmental Disorders, 1–15. https://doi.org/10.1007/s40489-019-00172-z. CrossRef

Adams, D., Young, K., Simpson, K., & Keen, D. (2019). Parent descriptions of the presentation and management of anxiousness in children on the autism spectrum. Autism, 23, 980–992. https://doi.org/10.1177/1362361318794031. CrossRefPubMed

Ashburner, J., Ziviani, J., & Rodger, S. (2010). Surviving in the mainstream: capacity of children with autism spectrum disorders to perform academically and regulate their emotions and behavior at school. Research in Autism Spectrum Disorders, 4, 18–27. https://doi.org/10.1016/j.rasd.2009.07.002. CrossRef

Bearss, K., Taylor, C. A., Aman, M. G., Whittemore, R., Lecavalier, L., Miller, J., & Scahill, L. (2016). Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder. Autism, 20, 663–672. https://doi.org/10.1177/1362361315601012. CrossRefPubMed

Bischof, N., Rapee, R. M., Hudry, K., & Bayer, J. (2018). Acceptability and caregiver‐reported outcomes for young children with autism spectrum disorder whose parents attended a preventative population‐based intervention for anxiety: a pilot study. Autism Research. https://doi.org/10.1002/aur.1963. CrossRef

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. https://doi.org/10.1191/1478088706qp063oa. CrossRef

Braun, V., & Clarke, V. (2012). Thematic analysis. In H. Cooper (Ed.), The handbook of research methods in psychology (pp. 57–71). Washington, DC: American Psychological Association.

Brereton, A. V., Tonge, B. J., Mackinnon, A. J., & Einfeld, S. L. (2002). Screening young people for autism with the developmental behavior checklist. Journal of the American Academy of Child & Adolescent Psychiatry, 41, 1369–1375. https://doi.org/10.1097/00004583-200211000-00019. CrossRef

Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., & Durkin, M. S. (2018). Prevalence of autism spectrum disorders among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2014. Morbidity and Mortality Weekly Report Surveillance Summaries, 67, 1–23. https://doi.org/10.15585/mmwr.ss6706a1. CrossRefPubMedPubMedCentral

Chronis-Tuscano, A., Degnan, K. A., Pine, D. S., Perez-Edgar, K., Henderson, H. A., Diaz, Y., & Fox, N. A. (2009). Stable early maternal report of behavioral inhibition predicts lifetime social anxiety disorder in adolescence. Journal of the American Academy of Child and Adolescent Psychiatry, 48, 928–935. https://doi.org/10.1097/CHI.0b013e3181ae09df. CrossRefPubMedPubMedCentral

Crane, L., Chester, J., Goddard, L., Henry, L., & Hill, E. (2016). Experiences of autism diagnosis: a survey of over 1000 parents in the United Kingdom. Autism, 20, 153–162. https://doi.org/10.1177/1362361315573636. CrossRefPubMed

Creswell, J. W., & Miller, D. L. (2000). Determining validity in qualitative inquiry. Theory into Practice, 39, 124–130. https://doi.org/10.1207/s15430421tip3903_2. CrossRef

den Houting, J., Adams, D., Roberts, J., & Keen, D. (2018a). Exploring anxiety symptomatology in school-aged autistic children using an autism-specific assessment. Research in Autism Spectrum Disorders, 50, 73–82. https://doi.org/10.1016/j.rasd.2018.03.005. CrossRef

den Houting, J., Adams, D., Roberts, J., & Keen, D. (2018b). An exploration of autism-specific and non-autism-specific measures of anxiety symptomatology in school-aged autistic children. Clinical Psychologist. https://doi.org/10.1111/cp.12174. CrossRef

Einfeld, S. L., & Tonge, B. J. (1995). The developmental behavior checklist: the development and validation of an instrument to assess behavioral and emotional disturbance in children and adolescents with mental retardation. Journal of Autism and Developmental Disorders, 25, 81–104. https://doi.org/10.1007/BF02178498. CrossRefPubMed

Ferraioli, S. J., & Harris, S. L. (2011). Effective educational inclusion of students on the autism spectrum. Journal of Contemporary Psychotherapy, 41(1), 19–28. https://doi.org/10.1007/s10879-010-9156-y. CrossRef

Flynn, S., Vereenooghe, L., Hastings, R., Adams, D., Cooper, S.-A., Gore, N., & Waite, J. (2017). Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review. Clinical Psychology Review, 57, 32–44. https://doi.org/10.1016/j.cpr.2017.08.006. CrossRefPubMed

Fujii, C., Renno, P., McLeod, B. D., Lin, C. E., Decker, K., Zielinski, K., & Wood, J. J. (2013). Intensive cognitive behavioral therapy for anxiety disorders in school-aged children with autism: a preliminary comparison with treatment-as-usual. School Mental Health, 5, 25–37. https://doi.org/10.1007/s12310-012-9090-0. CrossRef

Greco, V., Lambert, H. C., & Park, M. (2016). Capturing the child’s perspective: a review of self-report measures used with children. Occupational Therapy in Mental Health, 32, 228–244. https://doi.org/10.1080/0164212X.2016.1164104. CrossRef

Hoover, S. (2018). When we know better, we don’t always do better: facilitating the research to practice and policy gap in school mental health. School Mental Health, 10, 190–198. https://doi.org/10.1007/s12310-018-9271-6. CrossRef

Keen, D., Adams, D., Simpson, K., den Houting, J., & Roberts, J. (2019). Anxiety-related symptomatology in young children on the autism spectrum. Autism, 23, 350–358. https://doi.org/10.1177/1362361317734692. CrossRefPubMed

Kerns, C., & Kendall, P. (2012). The presentation and classification of anxiety in autism spectrum disorder. Clinical Psychology: Science and Practice, 19, 323–347. https://doi.org/10.1111/cpsp.12009. CrossRef

Loomes, R., Hull, L., & Mandy, W. P. L. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child & Adolescent Psychiatry, 56, 466–474. https://doi.org/10.1016/j.jaac.2017.03.013. CrossRef

Lyneham, H. J., Sburlati, E. S., Abbott, M. J., Rapee, R. M., Hudson, J. L., Tolin, D. F., & Carlson, S. E. (2013). Psychometric properties of the child anxiety life interference scale (CALIS). Journal of Anxiety Disorders, 27, 711–719. https://doi.org/10.1016/j.janxdis.2013.09.008. CrossRefPubMed

MacQueen, K., McLellan-Lemal, M. E., Barthholow, K., & Milstein, B. (2008). Team-based codebook development: structure, process, and agreement. In G. Guest & K. M. MacQueen (Eds), Handbook for team-based qualitative research (pp. 119–135). New York, NY: Rowman Altamira.

Magiati, I., Ong, C., Lim, X., Tan, J., Ong, A., Patrycia, F., & Howlin, P. (2015). Anxiety symptoms in young people with autism spectrum disorder attending special schools: association with gender, adaptive functioning and autism symptomatology. Autism, 20, 306–320. https://doi.org/10.1177/1362361315577519. CrossRefPubMed

Mandy, W., Chilvers, R., Chowdhury, U., Salter, G., Seigal, A., & Skuse, D. (2012). Sex differences in autism spectrum disorder: evidence from a large sample of children and adolescents. Journal of Autism and Developmental Disorders, 42, 1304–1313. https://doi.org/10.1007/s10803-011-1356-0. CrossRefPubMed

Neil, L., Olsson, N. C., & Pellicano, E. (2016). The relationship between intolerance of uncertainty, sensory sensitivities and anxiety in autistic and typically developing children. Journal of Autism and Developmental Disorders, 46, 1962–1973. https://doi.org/10.1007/s10803-016-2721-9. CrossRefPubMedPubMedCentral

Ozsivadjian, A., Knott, F., & Magiati, I. (2012). Parent and child perspectives on the nature of anxiety in children and young people with autism spectrum disorders: a focus group study. Autism, 16, 107–121. https://doi.org/10.1177/1362361311431703. CrossRefPubMed

QSR. (2015). NVivo for Mac Version 11 [Computer software]. Burlington, MA: QSR International.

Robertson, A., Stanfield, A., Watt, J., Barry, F., Day, M., Cormack, M., & Melville, C. (2018). The experience and impact of anxiety in autistic adults: a thematic analysis. Research in Autism Spectrum Disorders, 46, 8–18. https://doi.org/10.1016/j.rasd.2017.11.006. CrossRef

Rodgers, J., Wigham, S., McConachie, H., Freeston, M., Honey, E., & Parr, J. R. (2016). Development of the anxiety scale for children with autism spectrum disorder (ASC‐ASD). Autism Research, 9, 1205–1215. https://doi.org/10.1002/aur.1603. CrossRefPubMed

Rodgers, J., Wigham, S., McConachie, H., Freeston, M. H., Honey, E., & Parr, J. R. (2016). Anxiety scale for children–autism spectrum disorder (ASC-ASD): guidelines for use. Newcastle, UK: Newcastle University.

Saggers, B., Klug, D., Harper-Hill, K., Costley, D., Clark, T., Bruck, S., & Carrington, S. (2016). Australian autism educational needs analysis–what are the needs of schools, parents and students on the autism spectrum?. Brisbane: Cooperative Research Centre for Living with Autism.

Shephard, E., Bedford, R., Milosavlkevic, B., Gliga, T., Jones, E., Pickles, A., … BASIS Team (2018). Early developmental pathways to childhood symptoms of attention-deficit hyperactivity disorder, anxiety and autism spectrum disorder. Journal of Child Psychology and Psychiatry. https://doi.org/10.1111/jcpp.12947. CrossRef

Simpson, K., Keen, D., Adams, D., Alston‐Knox, C., & Roberts, J. (2018). Participation of children on the autism spectrum in home, school, and community. Child: Care, Health and Development, 44, 99–107. https://doi.org/10.1111/cch.12483. CrossRef

South, M., & Rodgers, J. (2017). Sensory, emotional and cognitive contributions to anxiety in autism spectrum disorders. Frontiers in Human Neuroscience, 11, 20. https://doi.org/10.3389/fnhum.2017.00020. CrossRefPubMedPubMedCentral

Stanger, C., & Lewis, M. (1993). Agreement among parents, teachers, and children on internalising and externalising behaviour problems. Journal of Clinical Child Psychology, 22, 107–115. CrossRef

Uljarevic, M., Lane, A. E., Kelly, A., & Leekham, S. R. (2016). Sensory subtypes and anxiety in older children and adolescents with autism spectrum disorders. Autism Research, 9. https://doi.org/10.1002/aur.1602. CrossRef

van Steensel, F., Bögels, S. M., & Perrin, S. (2011). Anxiety disorders in children and adolescents with autistic spectrum disorders: a meta-analysis. Clinical Child and Family Psychology Review, 14, 302. https://doi.org/10.1007/s10567-011-0097-0. CrossRefPubMedPubMedCentral

Vasa, R. A., Kalb, L., Mazurek, M., Kanne, S., Freedman, B., Keefer, A., & Murray, D. (2013). Age-related differences in the prevalence and correlates of anxiety in youth with autism spectrum disorders. Research in Autism Spectrum Disorders, 7, 1358–1369. https://doi.org/10.1016/j.rasd.2013.07.005. CrossRef

White, S. W., Oswald, D., Ollendick, T., & Scahill, L. (2009). Anxiety in children and adolescents with autism spectrum disorders. Clinical Psychology Review, 29, 216–229. https://doi.org/10.1016/j.cpr.2009.01.003. CrossRefPubMedPubMedCentral

Wigham, S., Rodgers, J., South, M., McConachie, H., & Freeston, M. (2015). The interplay between sensory processing abnormalities, intolerance of uncertainty, anxiety and restricted and repetitive behaviours in autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 943–952. https://doi.org/10.1007/s10803-014-2248-x. CrossRef

Wood, J. J., & Gadow, K. D. (2010). Exploring the nature and function of anxiety in youth with autism spectrum disorders. Clinical Psychology: Science and Practice, 17, 281–292.

Titel: Parent Perspectives on the Presentation, Triggers, Impact, and Support of Anxiety in Young Children on the Autism Spectrum
Auteurs:: Kate Simpson
Dawn Adams
Elizabeth Wheeley
Deb Keen
Publicatiedatum: 26-09-2019
DOI: https://doi.org/10.1007/s10826-019-01576-5
Uitgeverij: Springer US
Tijdschrift: Journal of Child and Family Studies
Uitgave 2/2020
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843

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Abstract

Objectives

Methods

Results

Conclusions

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