Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Child and Family Studies 4/2012

01-08-2012 | Original Paper

Parent Perspectives on Community Mental Health Services for Children with Autism Spectrum Disorders

Auteurs: Lauren Brookman-Frazee, Mary Baker-Ericzén, Nicole Stadnick, Robin Taylor

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 4/2012

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

The community mental health (CMH) system provides treatment for behavioral and psychiatric problems in children with autism spectrum disorders (ASD). Although parent stakeholder perspectives are important to improving care, these perspectives have not been systematically examined for this population in the CMH sector. Twenty-one semi-structured qualitative interviews were conducted with parents of children with ASD who received services in CMH clinics. Themes related to child clinical histories, service access and experiences with the CMH system revealed a specific trajectory of service need identification, obtaining a diagnosis, and experience with services. Each trajectory stage was marked by high parent stress. Results provide information about the characteristics of children with ASD served in community mental health clinics and direction for targeted improvement efforts.
Literatuur
go back to reference Baker-Ericzén, M. J., Stahmer, A. C., & Burns, A. (2007). Child demographics associated with outcomes in a community-based pivotal response training program. Journal of Positive Behavior Interventions, 9(1), 52–60. CrossRef Baker-Ericzén, M. J., Stahmer, A. C., & Burns, A. (2007). Child demographics associated with outcomes in a community-based pivotal response training program. Journal of Positive Behavior Interventions, 9(1), 52–60. CrossRef
go back to reference Bickman, L. (2000). The most dangerous and difficult question in mental health services research. Mental Health Services Research, 2(2), 71–72. CrossRef Bickman, L. (2000). The most dangerous and difficult question in mental health services research. Mental Health Services Research, 2(2), 71–72. CrossRef
go back to reference Bilgin, H., & Kucuk, L. (2010). Raising an autistic child: Perspectives from Turkish mothers. Journal of Child and Adolescent Psychiatric Nursing, 23(2), 92–99. PubMedCrossRef Bilgin, H., & Kucuk, L. (2010). Raising an autistic child: Perspectives from Turkish mothers. Journal of Child and Adolescent Psychiatric Nursing, 23(2), 92–99. PubMedCrossRef
go back to reference Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208–215. CrossRef Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208–215. CrossRef
go back to reference Brookman-Frazee, L., & Drahota, A. (2010). An individualized mental health intervention for children with autism spectrum disorders: A model to address challenging behaviors in children with ASD (unpublished manual). San Diego: University of California. Brookman-Frazee, L., & Drahota, A. (2010). An individualized mental health intervention for children with autism spectrum disorders: A model to address challenging behaviors in children with ASD (unpublished manual). San Diego: University of California.
go back to reference Brookman-Frazee, L., Drahota, A., Stadnick, N., & Palinkas, L. A. (2011). Therapist perspectives on community mental health services for children with autism spectrum disorders. Administration and Policy in Mental Health and Mental Health Services Research. doi: 10.​1007/​s10488-011-0355-y. Brookman-Frazee, L., Drahota, A., Stadnick, N., & Palinkas, L. A. (2011). Therapist perspectives on community mental health services for children with autism spectrum disorders. Administration and Policy in Mental Health and Mental Health Services Research. doi: 10.​1007/​s10488-011-0355-y.
go back to reference Brookman-Frazee, L. I., Taylor, R., & Garland, A. F. (2010). Characterizing community-based mental health services for children with autism spectrum disorders and disruptive behavior problems. Journal of Autism and Developmental Disorders, 40(10), 1188–1201. PubMedCrossRef Brookman-Frazee, L. I., Taylor, R., & Garland, A. F. (2010). Characterizing community-based mental health services for children with autism spectrum disorders and disruptive behavior problems. Journal of Autism and Developmental Disorders, 40(10), 1188–1201. PubMedCrossRef
go back to reference Brownson, R. C., Fielding, J. E., & Maylahn, C. M. (2009). Evidence-based public health: A fundamental concept for public health practice. Annual Review of Public Health, 30, 175–201. PubMedCrossRef Brownson, R. C., Fielding, J. E., & Maylahn, C. M. (2009). Evidence-based public health: A fundamental concept for public health practice. Annual Review of Public Health, 30, 175–201. PubMedCrossRef
go back to reference Carbone, P. S., Behl, D. D., Azor, V., & Murphy, N. A. (2010). The medical home for children with autism spectrum disorders: Parent and pediatrician perspectives. Journal of Autism and Developmental Disorders, 40(3), 317–324. PubMedCrossRef Carbone, P. S., Behl, D. D., Azor, V., & Murphy, N. A. (2010). The medical home for children with autism spectrum disorders: Parent and pediatrician perspectives. Journal of Autism and Developmental Disorders, 40(3), 317–324. PubMedCrossRef
go back to reference Chalfant, A. M., Rapee, R., & Carroll, L. (2007). Treating anxiety disorders in children with high functioning autism spectrum disorders: A controlled trial. Journal of Autism and Developmental Disorders, 37(10), 1842–1857. PubMedCrossRef Chalfant, A. M., Rapee, R., & Carroll, L. (2007). Treating anxiety disorders in children with high functioning autism spectrum disorders: A controlled trial. Journal of Autism and Developmental Disorders, 37(10), 1842–1857. PubMedCrossRef
go back to reference Chorpita, B. F., Yim, L. M., Donkervoet, J. C., Arensdorf, A., Amundsen, M. J., McGee, C., et al. (2002). Toward large-scale implementation of empirically supported treatments for children: A review and observations by the Hawaii Empirical Basis to Services Task Force. Clinical Psychology: Science and Practice, 9(2), 165–190. CrossRef Chorpita, B. F., Yim, L. M., Donkervoet, J. C., Arensdorf, A., Amundsen, M. J., McGee, C., et al. (2002). Toward large-scale implementation of empirically supported treatments for children: A review and observations by the Hawaii Empirical Basis to Services Task Force. Clinical Psychology: Science and Practice, 9(2), 165–190. CrossRef
go back to reference Dunn, M., Burbine, T., Bowers, C., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–51. PubMedCrossRef Dunn, M., Burbine, T., Bowers, C., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–51. PubMedCrossRef
go back to reference Dymond, S. K., Gilson, C. L., & Myran, S. P. (2007). Services for children with autism spectrum disorders. Journal of Disability Policy Studies, 18, 133–147. CrossRef Dymond, S. K., Gilson, C. L., & Myran, S. P. (2007). Services for children with autism spectrum disorders. Journal of Disability Policy Studies, 18, 133–147. CrossRef
go back to reference Garland, A. F., Brookman-Frazee, L., Hurlburt, M. S., Accurso, E. C., Zoffness, R. J., Haine-Schlagel, R., et al. (2010). Mental health care for children with disruptive behavior problems: A view inside therapists’ offices. Psychiatric Services, 61(8), 788–795. PubMedCrossRef Garland, A. F., Brookman-Frazee, L., Hurlburt, M. S., Accurso, E. C., Zoffness, R. J., Haine-Schlagel, R., et al. (2010). Mental health care for children with disruptive behavior problems: A view inside therapists’ offices. Psychiatric Services, 61(8), 788–795. PubMedCrossRef
go back to reference Garro, L. (1992). Chronic illness and the construction of narratives. In M. J. Good, P. E. Brodwin, B. J. Good, & A. Kleinman (Eds.), Pain as human experience: An anthropological perspective (pp. 100–137). Berkeley: University of California Press. Garro, L. (1992). Chronic illness and the construction of narratives. In M. J. Good, P. E. Brodwin, B. J. Good, & A. Kleinman (Eds.), Pain as human experience: An anthropological perspective (pp. 100–137). Berkeley: University of California Press.
go back to reference Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Chicago: Aldine. Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Chicago: Aldine.
go back to reference Heidergerken, A. D., Geffken, F., Modi, A., & Frakey, L. (2005). A survey of autism knowledge in a health care setting. Journal of Autism and Developmental Disorders, 35(3), 323–330. CrossRef Heidergerken, A. D., Geffken, F., Modi, A., & Frakey, L. (2005). A survey of autism knowledge in a health care setting. Journal of Autism and Developmental Disorders, 35(3), 323–330. CrossRef
go back to reference Hoagwood, K. E. (2005). Family-based services in children’s mental health: A research review and synthesis. Journal of Child Psychology and Psychiatry, 46(7), 670–713. CrossRef Hoagwood, K. E. (2005). Family-based services in children’s mental health: A research review and synthesis. Journal of Child Psychology and Psychiatry, 46(7), 670–713. CrossRef
go back to reference Hoagwood, K., & Kolko, D. J. (2009). Introduction to the special section on practice contexts: A glimpse into the nether world of public mental health services for children and families. Administration and Policy In Mental Health, 36(1), 35–36. PubMedCrossRef Hoagwood, K., & Kolko, D. J. (2009). Introduction to the special section on practice contexts: A glimpse into the nether world of public mental health services for children and families. Administration and Policy In Mental Health, 36(1), 35–36. PubMedCrossRef
go back to reference Huang, L., Stroul, B., Friedman, R., Mrazek, P., Friesen, B., Pires, S., et al. (2005). Transforming mental health care for children and their families. American Psychologist, 60, 615–627. PubMedCrossRef Huang, L., Stroul, B., Friedman, R., Mrazek, P., Friesen, B., Pires, S., et al. (2005). Transforming mental health care for children and their families. American Psychologist, 60, 615–627. PubMedCrossRef
go back to reference Koegel, R. L., Bimbela, A., & Schreibman, L. (1996). Collateral effects of parent training on family interactions. Journal of Autism and Developmental Disorders, 22, 141–152. CrossRef Koegel, R. L., Bimbela, A., & Schreibman, L. (1996). Collateral effects of parent training on family interactions. Journal of Autism and Developmental Disorders, 22, 141–152. CrossRef
go back to reference Kohler, F. (1999). Examining the services received by young children with autism and their families: A survey of parent response. Focus on Autism and Other Developmental Disabilities, 14, 150–158. CrossRef Kohler, F. (1999). Examining the services received by young children with autism and their families: A survey of parent response. Focus on Autism and Other Developmental Disabilities, 14, 150–158. CrossRef
go back to reference Lainhart, J. (1999). Psychiatric problems in individuals with autism, their parents and siblings. International Review of Psychiatry, 11(4), 278–298. CrossRef Lainhart, J. (1999). Psychiatric problems in individuals with autism, their parents and siblings. International Review of Psychiatry, 11(4), 278–298. CrossRef
go back to reference Levy, S. E., Giarelli, E., Lee, L., Schieve, L., Kirby, R. S., Cunniff, C., et al. (2010). Autism spectrum disorder and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United States. Journal of Developmental and Behavioral Pediatrics, 31(4), 267–275. PubMedCrossRef Levy, S. E., Giarelli, E., Lee, L., Schieve, L., Kirby, R. S., Cunniff, C., et al. (2010). Autism spectrum disorder and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United States. Journal of Developmental and Behavioral Pediatrics, 31(4), 267–275. PubMedCrossRef
go back to reference Leyfer, O. T., Folstein, S. E., Bacalman, S., Davis, N. O., Dinh, E., Morgan, J., et al. (2006). Comorbid psychiatric disorders in children with autism: Interview development and rates of disorders. Journal of Autism and Developmental Disorders, 36(7), 849–861. PubMedCrossRef Leyfer, O. T., Folstein, S. E., Bacalman, S., Davis, N. O., Dinh, E., Morgan, J., et al. (2006). Comorbid psychiatric disorders in children with autism: Interview development and rates of disorders. Journal of Autism and Developmental Disorders, 36(7), 849–861. PubMedCrossRef
go back to reference Mandell, D. S., Walrath, C. M., Manteuffel, B., Sgro, G., & Pinto-Martin, J. (2005). Characteristics of children with autistic spectrum disorders served in comprehensive community-based mental health settings. Journal of Autism and Developmental Disorders, 35(3), 313–321. PubMedCrossRef Mandell, D. S., Walrath, C. M., Manteuffel, B., Sgro, G., & Pinto-Martin, J. (2005). Characteristics of children with autistic spectrum disorders served in comprehensive community-based mental health settings. Journal of Autism and Developmental Disorders, 35(3), 313–321. PubMedCrossRef
go back to reference Marshall, C., & Rossman, G. B. (2006). Designing qualitative research (4th ed.). Thousand Oaks: Sage Publications. Marshall, C., & Rossman, G. B. (2006). Designing qualitative research (4th ed.). Thousand Oaks: Sage Publications.
go back to reference McLennan, J. D., Huculak, S., & Sheehan, D. (2008). Brief report: Pilot investigation of service receipt by young children with autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38(6), 1192–1196. PubMedCrossRef McLennan, J. D., Huculak, S., & Sheehan, D. (2008). Brief report: Pilot investigation of service receipt by young children with autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38(6), 1192–1196. PubMedCrossRef
go back to reference Moes, D. (1995). Parent education and parenting stress. In R. L. Koegel & L. K. Koegel (Eds.), Teaching children with autism: Strategies for initiating positive interactions and improving learning opportunities. Baltimore: Paul H. Brookes Publishing Co. Moes, D. (1995). Parent education and parenting stress. In R. L. Koegel & L. K. Koegel (Eds.), Teaching children with autism: Strategies for initiating positive interactions and improving learning opportunities. Baltimore: Paul H. Brookes Publishing Co.
go back to reference Montes, G., Halterman, J. S., & Magyar, C. I. (2009). Access to and satisfaction with school and community health services for children with autism: National overview. Pediatrics, 124, S407–S413. PubMedCrossRef Montes, G., Halterman, J. S., & Magyar, C. I. (2009). Access to and satisfaction with school and community health services for children with autism: National overview. Pediatrics, 124, S407–S413. PubMedCrossRef
go back to reference National Research Council. (2001). Educating children with autism. Washington, DC: National Academy Press, Division of Behavioral and Social Sciences and Education, Committee on Educational Interventions for Children with Autism. National Research Council. (2001). Educating children with autism. Washington, DC: National Academy Press, Division of Behavioral and Social Sciences and Education, Committee on Educational Interventions for Children with Autism.
go back to reference Osborne, L. A., & Reed, P. (2008). Caregivers’ perceptions of communication with professionals during the diagnosis of autism. Autism, 12, 259–274. CrossRef Osborne, L. A., & Reed, P. (2008). Caregivers’ perceptions of communication with professionals during the diagnosis of autism. Autism, 12, 259–274. CrossRef
go back to reference Renty, J., & Roeyers, H. (2005). Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents. Child: Care, Health and Development, 32(3), 371–385. CrossRef Renty, J., & Roeyers, H. (2005). Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents. Child: Care, Health and Development, 32(3), 371–385. CrossRef
go back to reference Simonoff, E., Pickles, A., Charman, T., Chandler, S., Loucas, T., & Baird, G. (2008). Psychiatric disorders in children with autism spectrum disorders: Prevalence, comorbidity, and associated factors in a population-derived sample. Journal of the American Academy of Child and Adolescent Psychiatry, 47(8), 921–929. PubMedCrossRef Simonoff, E., Pickles, A., Charman, T., Chandler, S., Loucas, T., & Baird, G. (2008). Psychiatric disorders in children with autism spectrum disorders: Prevalence, comorbidity, and associated factors in a population-derived sample. Journal of the American Academy of Child and Adolescent Psychiatry, 47(8), 921–929. PubMedCrossRef
go back to reference Singh, J., Illes, J., Lazzeroni, L., & Hallmayer, J. (2009). Trends in US autism research funding. Journal of Autism and Developmental Disorders, 39(5), 788–795. PubMedCrossRef Singh, J., Illes, J., Lazzeroni, L., & Hallmayer, J. (2009). Trends in US autism research funding. Journal of Autism and Developmental Disorders, 39(5), 788–795. PubMedCrossRef
go back to reference Sperry, L. A., Whaley, K. T., Shaw, E., & Brame, K. (1999). Services for young children with autism spectrum disorders: Voices of parents and providers. Infants and Young Children, 11(4), 17–33. CrossRef Sperry, L. A., Whaley, K. T., Shaw, E., & Brame, K. (1999). Services for young children with autism spectrum disorders: Voices of parents and providers. Infants and Young Children, 11(4), 17–33. CrossRef
go back to reference Stahmer, A. C. (2007). The basic structure of community early intervention programs for children with autism: Provider descriptions. Journal of Autism and Developmental Disorders, 37(7), 1344–1354. PubMedCrossRef Stahmer, A. C. (2007). The basic structure of community early intervention programs for children with autism: Provider descriptions. Journal of Autism and Developmental Disorders, 37(7), 1344–1354. PubMedCrossRef
go back to reference Stahmer, A. C., Collings, N. M., & Palinkas, L. A. (2005). Early intervention practices for children with autism: Descriptions from community providers. Focus on Autism and Other Developmental Disabilites, 20(2), 66–79. CrossRef Stahmer, A. C., Collings, N. M., & Palinkas, L. A. (2005). Early intervention practices for children with autism: Descriptions from community providers. Focus on Autism and Other Developmental Disabilites, 20(2), 66–79. CrossRef
go back to reference Stahmer, A. C., & Gist, K. (2001). The effects of an accelerated parent education program on technique mastery and child outcome. Journal of Positive Behavior Interventions, 3(2), 75–82. CrossRef Stahmer, A. C., & Gist, K. (2001). The effects of an accelerated parent education program on technique mastery and child outcome. Journal of Positive Behavior Interventions, 3(2), 75–82. CrossRef
go back to reference Tappe, A. (2002). Using NVivo in qualitative research. Melbourne: QSR International. Tappe, A. (2002). Using NVivo in qualitative research. Melbourne: QSR International.
go back to reference Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability, 29(1), 16–26. CrossRef Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability, 29(1), 16–26. CrossRef
go back to reference Westfall, J. M., Mold, J., & Fagnan, L. (2007). Practice-based research—“Blue Highways” on the NIH roadmap. Journal of the American Medical Association, 297(4), 403–406. PubMedCrossRef Westfall, J. M., Mold, J., & Fagnan, L. (2007). Practice-based research—“Blue Highways” on the NIH roadmap. Journal of the American Medical Association, 297(4), 403–406. PubMedCrossRef
go back to reference Willms, D. G., Best, A. J., Taylor, D. W., Gilbert, J. R., Wilson, D. M. C., Lindsay, E. A., et al. (1990). A systematic approach for using qualitative methods in primary prevention research. Medical Anthropology Quarterly, 4, 391–409. CrossRef Willms, D. G., Best, A. J., Taylor, D. W., Gilbert, J. R., Wilson, D. M. C., Lindsay, E. A., et al. (1990). A systematic approach for using qualitative methods in primary prevention research. Medical Anthropology Quarterly, 4, 391–409. CrossRef
go back to reference Wood, J. J., Drahota, A., Sze, K., Har, K., Chiu, A., & Langer, D. A. (2009). Cognitive behavioral therapy for anxiety in children with autism spectrum disorders: A randomized, controlled trial. Journal of Child Psychology and Psychiatry, 50, 244–254. CrossRef Wood, J. J., Drahota, A., Sze, K., Har, K., Chiu, A., & Langer, D. A. (2009). Cognitive behavioral therapy for anxiety in children with autism spectrum disorders: A randomized, controlled trial. Journal of Child Psychology and Psychiatry, 50, 244–254. CrossRef
Metagegevens
Titel
Parent Perspectives on Community Mental Health Services for Children with Autism Spectrum Disorders
Auteurs
Lauren Brookman-Frazee
Mary Baker-Ericzén
Nicole Stadnick
Robin Taylor
Publicatiedatum
01-08-2012
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 4/2012
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-011-9506-8